Haemcast

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Welcome to the Haemcast, where we talk about all things haemophilia and bleeding disorders. Join us as we speak with leading experts in the field to tackle and address the latest news, hot topics and research.

  1. Sticky blood, teddies and teens — Talking to children about their bleeding disorder

    3월 31일

    Sticky blood, teddies and teens — Talking to children about their bleeding disorder

    When it comes to managing family life with a child who has a bleeding disorder, parents aren’t just caregivers – they’re organisers, advocates and educators. Alongside managing their child’s condition, they have to help them understand it too. In this episode of Haemcast’s special series in collaboration with Local families with bleeding disorders, parents discuss how they go about talking to their child about their bleeding disorder – helping them understand where it comes from, what it means for their day-to-day lives, and why their treatment is important. For more information about Local families with bleeding disorders, visit ⁠www.bleeding-disorders.co.uk   CREDITS Participants: Hannah Brunning, Mark Salmen, Jackie Perkins Interviewer: Kathryn Jenner Music: Once Again Royalty Free Music by Benjamin Tissot via ⁠⁠⁠⁠⁠⁠⁠⁠bensound.com⁠

    34분
  2. Veins, verse and voices: How poetry helped Local families with bleeding disorders be heard

    3월 5일

    Veins, verse and voices: How poetry helped Local families with bleeding disorders be heard

    The first in a special Haemcast series in collaboration with Local families with bleeding disorders, exploring aspects of family life. In this episode, members of Local families with bleeding disorders discuss the online workshops that helped them explore their experiences and express their hopes, expectations and worries about the bleeding disorders that impact their families. They are joined by community advocate Rich Gorman, and poet and arts practitioner Dawn Gorman (no relation). The poetry collection resulting from the workshops, Bleeding and Belonging, is available online as an eBook. For more information about Local families with bleeding disorders, visit www.bleeding-disorders.co.uk CREDITS: Participants: Dr Rich Gorman, Dawn Gorman, Lisa Steadman, Hannah Brunning, Marie Dolton, Alex Akrimi, Claire Brown Interviewers: Kathryn Jenner, Dr Kate Khair Music: Once Again Royalty Free Music by Benjamin Tissot via ⁠⁠⁠⁠⁠⁠⁠bensound.com⁠

    35분
  3. Banana sap, mangos and factor IX — a Ugandan haemophilia B journey

    2025. 10. 09.

    Banana sap, mangos and factor IX — a Ugandan haemophilia B journey

    Morris Okello lives in Northern Uganda. In this episode of Haemcast, he tells Dr Kate about the childhood experiences that eventually led to him being diagnosed with haemophilia B. As well as describing his own journey towards becoming an advocate for people with haemophilia in Uganda, Morris highlights the work of the Ugandan Haemophilia Society in raising awareness, improving rates of diagnosis, and providing access to treatment and care. CREDITS: Speaker: Morris Okello Griffin Interviewer: Dr Kate Khair Music: Once Again Royalty Free Music by Benjamin Tissot via ⁠⁠⁠⁠⁠⁠bensound.com⁠

    25분
  4. Quality of life in the balance: Helen Tate on living with Factor V deficiency

    2025. 08. 21.

    Quality of life in the balance: Helen Tate on living with Factor V deficiency

    Dance teacher and Haemophilia Society trustee Helen Tate talks with Haemnet's Dr Kate Khair about living with Factor V deficiency, a rare bleeding disorder that affects around one in a million people. Helen leads an active life despite her condition and is a passionate advocate for the rare bleeding disorders community. She discusses diagnosis, coping with bleeds when treatment options are limited, and what she thinks needs to change to improve life for everyone who lives with a rare bleeding disorder. CREDITS: Speaker: Helen Tate Interviewer: Dr Kate Khair Music: Once Again Royalty Free Music by Benjamin Tissot via ⁠⁠⁠⁠⁠bensound.com⁠

    22분
  5. Looking back on Terence's life: Haemophilia then and now, with Kate Khair

    2025. 07. 30.

    Looking back on Terence's life: Haemophilia then and now, with Kate Khair

    Following our six-part mini-series 'Reflections on a life with severe haemophilia', with Terence O'Rourke, Haemnet's Dr Kate Khair considers some of the things that have changed in haemophilia care during Terence's lifetime – and some of the  things that perhaps haven't. Kate discusses the importance of remembering times when haemophilia treatment wasn't so readily available, getting a diagnosis, treatment decisions, feeling isolated, and the importance of support and understanding. CREDITS: Speaker: Dr Kate Khair Interviewer: Kathryn Jenner Music: Once Again Royalty Free Music by Benjamin Tissot via ⁠⁠⁠⁠bensound.com⁠

    18분
  6. Reflections on a life with severe haemophilia. Part 6: Decision-making and teamwork

    2025. 07. 02.

    Reflections on a life with severe haemophilia. Part 6: Decision-making and teamwork

    The final part of our mini-series featuring Terence O'Rourke, in which he reflects on living with severe haemophilia A. In this episode, Terence discusses his approach to making decisions about treatment, and the importance of teamwork in both his working life and in relation to his haemophilia care. CREDITS: Speaker: Terence O’Rourke Interviewer: Dr Meila Roy Producer: Chris Caton Music: Once Again Royalty Free Music by Benjamin Tissot via ⁠⁠⁠bensound.com⁠

    14분
  7. Reflections on a life with severe haemophilia. Part 5: Treatment impacts, life changes and hepatitis C

    2025. 06. 12.

    Reflections on a life with severe haemophilia. Part 5: Treatment impacts, life changes and hepatitis C

    In part 5 of Terence O'Rourke's story, he again reflects on his working life and how this was impacted by both his haemophilia and its treatment. He discusses his approach to and choices about treatment and managing his haemophilia, and about eventually overcoming hepatitis C. Terence continues to be driven by determination and confidence in his own problem-solving ability throughout. CREDITS: Speaker: Terence O’Rourke Interviewer: Dr Meila Roy Producer: Chris Caton Music: Once Again Royalty Free Music by Benjamin Tissot via ⁠⁠⁠bensound.com⁠

    13분
  8. Reflections on a life with severe haemophilia. Part 4: The arrival of Factor VIII and an evolving career

    2025. 05. 29.

    Reflections on a life with severe haemophilia. Part 4: The arrival of Factor VIII and an evolving career

    In part 4 of our mini-series in conversation with Terence O'Rourke, he reflects on changes in treatment for haemophilia and the arrival of Factor VIII.   Terence describes some of the prejudice he experienced as a person with haemophilia, and the faith his wife had in him. He also discusses the progression of his career, and how it shifted and changed around his haemophilia.   CREDITS: Speaker: Terence O’Rourke Interviewer: Dr Meila Roy Producer: Chris Caton Music: Once Again Royalty Free Music by Benjamin Tissot via ⁠⁠bensound.com⁠

    13분
모두 보기(39개)

소개

Welcome to the Haemcast, where we talk about all things haemophilia and bleeding disorders. Join us as we speak with leading experts in the field to tackle and address the latest news, hot topics and research.

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  • 제작진
    Haemnet
  • 방송 연도
    2021년 - 2026년
  • 에피소드
    39
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    Haemcast