HC&U

Ben and Lindsey Massengale

HCandU is a podcast dedicated to the metabolic disorder, homocystinuria. This podcast is meant to be a resource for anyone who has HCU or has been affected by HCU. Topics to be discussed on the show include patient stories, research updates, recipes, and interviews with experts in the field of homocystinuria. Whether you or someone you know were just diagnosed or have been a patient for years, we hope you find this podcast helpful!

  1. Clinical Trials 101 Bonus Episode

    -2 дн.

    Clinical Trials 101 Bonus Episode

    Welcome to HC&U, the homocystinuria podcast sponsored by HCU Network America! We hope you enjoy this three part series, sponsored by Travere Therapeutics. The first installment is called Clinical Trials 101.  Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org! Check out HCU Network America! Check out Travere Therapeutics! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HCU Network America on Twitter What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X! Share your NBS story with HCUNA! #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

    59 мин.
  2. World Homocystinuria Awareness Day Panel

    -5 дн.

    World Homocystinuria Awareness Day Panel

    We hope you enjoy the 2026 World Homocystinuria Awareness Day panel hosted by Ben featuring Jacob, Amy, and Isaac! Thank you to our panel sponsor, Syntis Bio! Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org! Check out HCU Network America! Check out Syntis Bio! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HCU Network America on Twitter What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X! Share your NBS story with HCUNA! #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

    1 ч. 6 мин.
  3. Episode 52 with Brandon Tornes

    25 июн.

    Episode 52 with Brandon Tornes

    In the fifty second episode of HC&U, we interview Brandon Tornes.  Brandon is the dad of Mason who has Cobalamin C. He shares an update on Mason's and his family's journey with Cobalamin C as well as some advice for people in a similar situation. During Lindsey's Low Pro Bitesss, we discuss Mom's fried sweet potatoes.  Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org! Check out HCU Network America! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HCU Network America on Twitter Mason's Story Brandon's First Interview on Spotify! What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X! Share your NBS story with HCUNA! #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr

    25 мин.

  4. 18 июн.

    HC&U Bite Sized with Brittany Parke

    HC&U: A Podcast about Homocystinuria and HCU Network America are proud to present a new monthly podcast series featuring quick, informational interviews with experts in the world of homocystinuria.  In the third installment of HC&U Bite Sized, we talk to HCU Network America Research Coordinator and mom of cblG patient Grayson, Brittany Parke about her presentation for the Society of Inborn Metabolic Disorders.  Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org! Check out HCU Network America! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HCU Network America on Twitter What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X! Share your NBS story with HCUNA! #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr

    10 мин.
  5. Episode 51 with Zamira Castaneda

    29 мая

    Episode 51 with Zamira Castaneda

    In the fifty first episode of HC&U, we interview Zamira Castaneda.  Zamira is the mother of Luciano who has Cobalamin G. She shares her family's medical journey along with some struggles and triumphs of living with Cobalamin G. During Lindsey's Low Pro Bitesss, we discuss Mom's fried sweet potatoes.  Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org! Check out HCU Network America! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HCU Network America on Twitter Luciano's Story What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X! Share your NBS story with HCUNA! #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr

    38 мин.

  6. 24 мая

    HC&U Bite Sized with Nicolo Betoni

    HC&U: A Podcast about Homocystinuria and HCU Network America are proud to present a new monthly podcast series featuring quick, informational interviews with experts in the world of homocystinuria.  In the second installment of HC&U Bite Sized, we talk to Nicolo Betoni about his presentation at the American Academy of Neurology conference.  Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org! Check out HCU Network America! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HCU Network America on Twitter What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X! Share your NBS story with HCUNA! #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr

    6 мин.

  7. 7 мая

    HC&U Bite Sized with Kristen Skvorak

    HC&U: A Podcast about Homocystinuria and HCU Network America are proud to present a new monthly podcast series featuring quick, informational interviews with experts in the world of homocystinuria.  In the first installment of HC&U Bite Sized, we talk to Kristen Skvorak about her presentation at ACMG.  Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org! Check out HCU Network America! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HCU Network America on Twitter What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X! Share your NBS story with HCUNA! #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr

    4 мин.
  8. Episode 50 With Ruby Jean

    30 апр.

    Episode 50 With Ruby Jean

    In the fiftieth episode of HC&U, we interview Ruby.  Ruby is a patient with classical HCU living in Australia. She shares her journey with homocystinuria and goes into detail about her experience with clinical trials.  During Lindsey's Low Pro Bitesss, we discuss chili cheese tots.  Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org! Check out HCU Network America! HC&U on Facebook Find Our Low Protein Ideas on Instagram! HC&U on Twitter HCU Network America on Twitter Ruby's Story What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X! Share your NBS story with HCUNA! #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr

    34 мин.
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HCandU is a podcast dedicated to the metabolic disorder, homocystinuria. This podcast is meant to be a resource for anyone who has HCU or has been affected by HCU. Topics to be discussed on the show include patient stories, research updates, recipes, and interviews with experts in the field of homocystinuria. Whether you or someone you know were just diagnosed or have been a patient for years, we hope you find this podcast helpful!

Информация

  • Автор
    Ben and Lindsey Massengale
  • Годы выхода
    2018 - 2026
  • Выпуски
    65
  • Ограничения
    Без ненормативной лексики
  • Сайт подкаста
    HC&U