This Podcast is going to be about Pediatric Cancer and the need to keep the awareness of this terrible disease in the public eye. My plan is to be able to interview a wide spectrum of people who all have a passion and a stake in finding a way to make the lives of these Pediatric Cancer Patients easier. I will interview oncologists, nurses, recovered patients, parents who have had to oversee their children's cancer fight, heads of Pediatric Cancer Foundations and Organizations , and others who would like to use this forum to advocate for these children.
Ellyn Miller will talk about her daughter Gabriella who passed away from DIPG in 2013, and the advocacy work that Gabriella started and Ellyn has continued for Pediatric Cancer patients.
Gabriella Miller lived less than one year after her diagnosis of DIPG in 2012. During that time, she was able to become a passionate advocate for the cause of Pediatric Cancer, including a memorable statement just 2 weeks before she passed away as she implored Congress to "STOP TALKING AND START DOING" Shortly after that House Majority Leader Eric Cantor, helped to push through legislation that he named the Gabriella Miller Kids First Research Act that was signed into law by President Obama in 2014.
Her mother Ellyn will talk about Gabriella , and will also discuss her own advocacy work which started with the Gabriella Kids First Research Act and has continued through her recent testimony given on Capital Hill, about the Gabriella Miller First Research Act 2.0. As a major voice on Capitol Hill for this Pediatric Cancer cause , Ellyn's work has produced and is producing major legislation that is making a very positive difference in the lives of kids who need it the most.
Mark Weiss started his non profit COMIC BOOKS FOR KIDS in 2017 to help brighten the days for Pediatric Cancer patients undergoing treatment. This non profit is now the largest Comic Book charity in the country.
After a 31 year career as an executive at IBM , Mark Weiss decided to start a non profit that would bring passion and help others. This non profit, COMIC BOOKS FOR KIDS is now the largest charity for Comic Books in the country. Mark will talk about how he started this non profit in 2017, and the steps that he took to get his organization to where it is today. The bottom line is that it has helped brighten the days of Pediatric Cancer patients in 180 hospitals across the country as they endure their individual cancer treatments.
Courtney Durante will talk about her daughter Lilli whose cancer battle inspired her to start COSTUMES FOR COURAGE, which in one year has distributed 250 costumes to kids in 41 states and 6 countries who are battling cancer.
Courtney Durante's daughter Lilli was diagnosed with an Optic Pathway Glioma Brain Tumor when she was 4 years old. Lilly decided to wear a different costume to each of her year long chemotherapy sessions . Now 7 years old, Lilly is doing very well health wise. In honor of Lilly, Courtney started the Non Profit COSTUMES FOR COURAGE which provides costumes to pediatric cancer patients in hospitals in the United States and other countries. Because of Covid this non profit did not truly get its start until October of 2020, but has already provided 250 patients in 41 states and 6 countries with costumes that help to make their cancer treatments easier to endure.
Melissa Scott will discuss the Pediatric Cancer Non Profit COOL KIDS CAMPAIGN, and the support it has received from Board Members and former star athletes Ken Singleton and Dan Jansen, as well as former Olympic Icon Mike Eruzione.
Melissa Scott is the Managing Director of the Charlotte North Carolina branch of the Pediatric Cancer non profit COOL KIDS CAMPAIGN. Melissa will talk about the many different programs it offers to these kids and their families, and will also discuss the contributions from former great athletes and current Board Members Ken Singleton and Dan Jansen, as well as the contribution from all time Olympic star Mike Eruzione.
Nancy Goodman will talk about her Non Profit KIDS V CANCER, which she started just 1 day after her son Jacob passed away from Medulloblastoma in 2009. Nancy will also speak about her successful initiatives that have been adopted on Capitol Hill
Just 1 day after her son Jacob passed away from Medulloblastoma in 2009, Nancy Goodman started the Non Profit KIDS V CANCER. Nancy will discuss this non profit, whose objective it is to find new methods and medicines to help in the fight against Pediatric Cancer. Nancy is one of the leading advocates on Capitol Hill for these kids, and her advocacy has produced a number of initiatives along with legislation that has produced successful results and promises to produce even more successful results as time goes on.
Cole Stabnick and Luke Reynolds will discuss an event which they started as High School seniors, to honor a classmate who was diagnosed with Non Hodgkins Lymphoma. This idea eventually became a very successful non profit called BALL 4 A CURE
After hearing that a fellow high school classmate was diagnosed with Non Hodgkins Lymphoma, High School seniors Cole Stabnick, Luke Reynolds and five others created an event to honor his cancer fight. This event became a non profit called BALL 4 A CURE. This non profit is anchored by a 3 on 3 basketball tournament along with a recently added golf tournament and has raised over $100,000, which has been donated to the Connecticut Children's Medical Center to help in the fight against Pediatric Cancer.
This non profit is only in its infancy as there are plans to expand both the number of events as well as hopefully working directly with pediatric cancer patients to help make their difficult lives easier and happier.
Both Cole and Luke are vey passionate about giving back which is always a great thing to see, especially from two young men that are simultaneously trying to advance their own blossoming career paths.
Thank for the opportunity
Thank you for allow me to share my cancer survivorship story from stage3b colorectal cancer and bring to light that children can get Colorectal Cancer as well. Thanks for the opportunity. This is a wonderful podcast .
As the mom of a pediatric brain cancer survivor so thankful to have discovered this podcast!