14 episodes

Forget the misconceptions—being hypermobile doesn't mean you're stuck without options. Join hypermobility expert Alex as she reveals exciting breakthroughs and practical tips for managing hypermobility, HSD, and hEDS, as well as sharing insight from her own personal journey. Get ready for engaging discussions, relatable anecdotes, and a few laughs along the way.

Prepare to feel inspired, informed, and connected. Because incurable does not mean untreatable!

Help! I'm Hypermobile Alexandra Orfanides

    • Health & Fitness
    • 5.0 • 12 Ratings

Forget the misconceptions—being hypermobile doesn't mean you're stuck without options. Join hypermobility expert Alex as she reveals exciting breakthroughs and practical tips for managing hypermobility, HSD, and hEDS, as well as sharing insight from her own personal journey. Get ready for engaging discussions, relatable anecdotes, and a few laughs along the way.

Prepare to feel inspired, informed, and connected. Because incurable does not mean untreatable!

    Ep 13 Hypermobility and Fitness: 6 Essential Rules I Wish I Knew Sooner

    Ep 13 Hypermobility and Fitness: 6 Essential Rules I Wish I Knew Sooner

    Exercising if you're hypermobile isn't easy.

    Join me on today’s episode as I reflect on my personal fitness journey and share with you 6 insights I wish I had known about hypermobility and exercise decades ago. I still use these rules both for myself and with my patients, and I hope that you find them helpful on your journey too!

    TODAY YOU'LL LEARN👇


    Why there is (for the most part) no such thing as an exercise that is inherently “good” or “bad” for hypermobility
    Why happiness matters when developing an effective exercise strategy
    Why you might want to think about Overtraining Syndrome and how it relates to your hypermobile body

    As always, please remember that all of the information contained within this podcast is for informational purposes ONLY. Please be sure to speak with your appropriately qualified healthcare provider if you have any concerns❣️

    SHOWNOTES🤓

    Please be sure to check my blog at⁠ ⁠hypermobilityhq.com⁠⁠ for complete citations as well as a text transcript of the episode.

    Connect with Me


    TikTok ⁠⁠⁠⁠⁠⁠⁠⁠https://www.tiktok.com/@hypermobilityhq⁠⁠⁠⁠⁠⁠
    Instagram⁠⁠ ⁠⁠⁠⁠https://www.instagram.com/hypermobilityhq/⁠⁠⁠⁠⁠⁠

    and. . .👇


    Youtube⁠⁠⁠⁠⁠⁠ https://www.youtube.com/@hypermobilityhq⁠⁠⁠⁠⁠⁠

    Work with Me

    If you wish to learn more about my clinical work with both remote and in-person patients, you can visit my website here: ⁠⁠⁠⁠⁠https://www.hypermobilityhq.com/⁠⁠⁠⁠⁠

    Contact Me

    If you wish to contact me directly, please send an email to ⁠⁠⁠alex@hypermobilityhq.com⁠⁠⁠

    🏡 Join My (Awesome!) Community

    Looking for a little "hypermobile home" on the internet where you can learn more about hypermobility and connect with other people who are going through the same journey? Well, be sure to check out Hypermobility HQ. Hypermobility HQ is a private membership community that gives the scientifically-minded hypermobile person a non-judgemental place to share thoughts, strategies, and experiences on navigating life in a hypermobile body. Because incurable does not mean untreatable! For more info click here: ⁠⁠⁠⁠⁠stan.store/HypermobilityHQ⁠⁠⁠⁠⁠⁠⁠

    Words Matter!

    If you wish to read the National Institutes of Health style guide on inclusive and gender-neutral language, you can find it here: ⁠⁠⁠⁠https://www.nih.gov/nih-style-guide/inclusive-gender-neutral-language⁠⁠⁠⁠

    And a GIANT Thank You to Everyone Who Has Left a Review + Subscribed💙

    At the time of me writing this, we're at SIXTY-SEVEN (!!!!!!!!) reviews🤩 I would be SO grateful if you could take a second to leave a review and help us get to 70!🚀🌟

    And make sure you're subscribed to this podcast to automatically receive your brand new episodes. This season we're talking about all of the most highly requested topics. Should be a fun one! 👀

    Wishing you the best in health and everything else,

    Alex❤️


    ---

    Send in a voice message: https://podcasters.spotify.com/pod/show/helpimhypermobile/message

    • 39 min
    Ep 12: Hypermobility and Pregnancy

    Ep 12: Hypermobility and Pregnancy

    Hypermobility affects EVERYTHING (because connective tissue is EVERYWHERE!), and pregnancy is no exception!

    Trigger Warning: adverse pregnancy events, pregnancy complications

    The biggest source of confusion when it comes to hypermobility and pregnancy is how some hypermobile people can have relatively uneventful pregnancies (in fact, some hypermobile people even report finding that pregnancy improves their symptoms in some ways!) whereas others experience serious complications relating to their hypermobility. Suffice to say it’s complicated. I’ve tried my best to share what I consider to be important information, but please do remember that it’s impossible to cover every aspect of a complex topic like pregnancy perfectly in a single episode. As I’m not a pregnancy specialist these are simply my views as an osteopath who works with patients where pregnancy (or plans for future pregnancy) can affect their care and management. 

    In this episode you'll learn👇


    What an episiotomy is (and why you need to understand how it can affect your hypermobile body)


    What you might want to think about pre-conception


    Why we need to normalise pregnancy prehab!



    As always, please remember that all of the information contained within this podcast is for informational purposes ONLY. Please be sure to speak with your appropriately qualified healthcare provider if you have any concerns❣️

    SHOWNOTES🤓

    Today’s episode referenced a lot of research and resources. I have put them here, but please be sure to check my blog at ⁠hypermobilityhq.com⁠ for complete citations as well as a text transcript of the episode.

    If you only have time to read 1 thing. . . 

    Make it this: ⁠A clinical update on hypermobile Ehlers-Danlos syndrome during pregnancy, birth and beyond⁠. I promise it’s more exciting than it sounds, and it is the one article I would recommend that EVERY hypermobile person reads.

    Connect with Me


    TikTok ⁠⁠⁠⁠⁠⁠⁠https://www.tiktok.com/@hypermobilityhq⁠⁠⁠⁠⁠


    Instagram⁠ ⁠⁠⁠⁠https://www.instagram.com/hypermobilityhq/⁠⁠⁠⁠⁠




    and. . .👇



    Youtube⁠⁠⁠⁠⁠https://www.youtube.com/@hypermobilityhq⁠⁠⁠⁠⁠




    Work with Me

    If you wish to learn more about my clinical work with both remote and in-person patients, you can visit my website here: ⁠⁠⁠⁠⁠https://www.hypermobilityhq.com/⁠⁠⁠⁠⁠

    Contact Me

    If you wish to contact me directly, please send an email to ⁠⁠⁠alex@hypermobilityhq.com⁠⁠⁠

    Join My (Awesome!) Community

    Looking for a little "hypermobile home" on the internet where you can learn more about hypermobility and connect with other people who are going through the same journey? Well, be sure to check out Hypermobility HQ. Hypermobility HQ is a private membership community that gives the scientifically-minded hypermobile person a non-judgemental place to share thoughts, strategies, and experiences on navigating life in a hypermobile body. Because incurable does not mean untreatable!For more info and to make sure you don't miss the launch make sure you're subscribed to my mailing list. You can sign up here:⁠ ⁠⁠⁠⁠⁠stan.store/HypermobilityHQ⁠⁠⁠⁠⁠⁠

    Words Matter!

    If you wish to read the National Institutes of Health style guide on inclusive and gender-neutral language, you can find it here: ⁠⁠⁠⁠https://www.nih.gov/nih-style-guide/inclusive-gender-neutral-language⁠⁠⁠⁠

    And a GIANT Thank You to Everyone Who Has Left a Review + Subscribed💙

    At the time of me writing this, we're at SIXTY-FIVE (!!!!!!!!) reviews🤩I wonder if we can get to 70???

    And make sure you're subscribed to this podcast to automatically receive your brand new episodes. This season we're talking about all of the most highly requested topics. Should be a fun one! 👀

    Wishing you the best in health and everything else,

    Alex❤️




    ---

    Send in a voice message: https://podcasters.

    • 48 min
    Ep 11 Hypermobility and Intimacy

    Ep 11 Hypermobility and Intimacy

    Hypermobility and adult intimacy issues are common, but rarely talked about.

    In this episode you'll learn👇


    2 of the most common intimacy-related injuries Alex hears about from this community (and what you can do about them)
    Why we need to reframe how we think about intimacy
    3 conditions that affect intimacy that many people don't realise might be related to their hypermobility



    As always, please remember that all of the information contained within this podcast is for informational purposes ONLY. Please be sure to speak with your appropriately qualified healthcare provider if you have any concerns❣️



    Connect with Me



    TikTok ⁠⁠⁠⁠⁠https://www.tiktok.com/@hypermobilityhq⁠⁠⁠


    Instagram ⁠⁠⁠https://www.instagram.com/hypermobilityhq/⁠⁠⁠



    and. . .👇



    Youtube

    ⁠⁠⁠https://www.youtube.com/@hypermobilityhq⁠⁠⁠




    Work with Me

    If you wish to learn more about my clinical work with both remote and in-person patients, you can visit my website here: ⁠⁠⁠⁠https://www.hypermobilityhq.com/⁠⁠⁠⁠

    Contact Me

    If you wish to contact me directly, please send an email to ⁠⁠alex@hypermobilityhq.com⁠⁠

    Join My (Awesome!) Community

    Looking for a little "hypermobile home" on the internet where you can learn more about hypermobility and connect with other people who are going through the same journey? Well, be sure to check out Hypermobility HQ. Hypermobility HQ is a private membership community that gives the scientifically-minded hypermobile person a non-judgemental place to share thoughts, strategies, and experiences on navigating life in a hypermobile body. Because incurable does not mean untreatable!For more info and to make sure you don't miss the launch make sure you're subscribed to my mailing list. You can sign up here: ⁠⁠⁠⁠stan.store/HypermobilityHQ⁠⁠⁠⁠

    Words Matter!

    If you wish to read the National Institutes of Health style guide on inclusive and gender-neutral language, you can find it here: ⁠⁠⁠https://www.nih.gov/nih-style-guide/inclusive-gender-neutral-language⁠⁠⁠

    And a GIANT Thank You to Everyone Who Has Left a Review + Subscribed💙

    I genuinely cannot believe how many reviews we have on here❤️. Seriously, there are more reviews for this little podcast than there are for podcasts run by influencers with MILLIONS of subscribers on various social media platforms. It's wild, and the only reason why I can think of as to why this has happened is because of this WONDERFUL community and your support for which I am so, so grateful🙏

    At the time of me writing this, we're at SIXTY-THREE (!!!!!!!!) reviews🤩



    And make sure you're subscribed to this podcast to automatically receive your brand new episodes. This season we're talking about all of the most highly requested topics. Should be a fun one! 👀



    Wishing you the best in health and everything else,

    Alex❤️


    ---

    Send in a voice message: https://podcasters.spotify.com/pod/show/helpimhypermobile/message

    • 27 min
    Ep 10 Period Problems and Hypermobility: How Charting Your Cycle Can Help

    Ep 10 Period Problems and Hypermobility: How Charting Your Cycle Can Help

    Hypermobility and period issues often go hand-in-hand😫🩸

    In this episode you'll learn:


    Why not all bleeds are periods! (and what this might mean for your health)




    Why learning to chart your cycle using the Symptothermal Method can give you valuable insight into what's going on INSIDE your body




    How to chart 2 key biomarkers



    and finally,


    why the corpus luteum might be the coolest tissue in the human body that you don't know about!



    🛒Want to get a basal body thermometer? Check out my shop! 👀

    https://amzn.to/40uQw3u

    💝 for 10% off a TempDrop thermometer use my code: https://tempdrop.refr.cc/hypermobilityhq

    (this kind of thermometer is not necessary for charting, but it's super helpful for people with irregular sleep schedules or who just want a device that makes things a bit less effort)



    THINGS I MENTION📝

    🔴 The Guardian article discussing how period pain issues are dismissed by healthcare providers

    🔴 https://readyourbody.com/

    🔴 https://cervicalmucus.org/



    As always, please remember that all of the information contained within this podcast is for informational purposes ONLY. Please be sure to speak with your appropriately qualified healthcare provider if you have any concerns❣️



    Connect with Me



    TikTok ⁠⁠⁠⁠https://www.tiktok.com/@hypermobilityhq⁠⁠


    Instagram ⁠⁠https://www.instagram.com/hypermobilityhq/⁠⁠



    and. . .👇



    🤩 Full Episode Video on YOUTUBE! ⁠⁠https://www.youtube.com/@hypermobilityhq⁠⁠




    Work with Me

    If you wish to learn more about my clinical work with both remote and in-person patients, you can visit my website here: ⁠⁠⁠https://www.hypermobilityhq.com/⁠⁠⁠

    Contact Me

    If you wish to contact me directly, please send an email to ⁠alex@hypermobilityhq.com⁠

    Join My (Awesome!) Community

    Looking for a little "hypermobile home" on the internet where you can learn more about hypermobility and connect with other people who are going through the same journey? Well, be sure to check out Hypermobility HQHypermobility HQ is a private membership community that gives the scientifically-minded hypermobile person a non-judgemental place to share thoughts, strategies, and experiences on navigating life in a hypermobile body. Because incurable does not mean untreatable!For more info and to make sure you don't miss the launch make sure you're subscribed to my mailing list. You can sign up here: ⁠⁠⁠stan.store/HypermobilityHQ⁠⁠⁠



    Words Matter!

    If you wish to read the National Institutes of Health style guide on inclusive and gender-neutral language, you can find it here: ⁠⁠https://www.nih.gov/nih-style-guide/inclusive-gender-neutral-language⁠⁠



    And a GIANT Thank You to Everyone Who Has Left a Review + Subscribed💙

    I genuinely cannot believe how many reviews we have on here❤️. Seriously, there are more reviews for this little podcast than there are for podcasts run by influencers with MILLIONS of subscribers on various social media platforms. It's wild, and the only reason why I can think of as to why this has happened is because of this WONDERFUL community and your support for which I am so, so grateful🙏

    At the time of me writing this, we're at FIFTY-SIX (!!!!!!!!) reviews🤩

    Can we get to 💯 before my birthday on January 16th? Stay tuned!👀



    And make sure you're subscribed to this podcast to automatically receive your brand new episodes (for the foreseeable future a new episode will be released every other week, although there will be some changes coming in 2024 that I can't wait to share with you!).



    Wishing you the best in health and everything else,

    Alex


    ---

    Send in a voice message: https://podcasters.spotify.com/pod/show/helpimhypermobile/message

    • 21 min
    Ep 09: Coping with Hypermobility at Work: Navigating Hypermobility in the Workplace

    Ep 09: Coping with Hypermobility at Work: Navigating Hypermobility in the Workplace

    Workplaces are HARD to navigate as a hypermobile person!!

    Support is often lacking (to say the least) and hypermobile workers suffer as a result. This episode focuses on practical, actionable steps you can take to try to make your workday at least a tiny bit easier. 

    Check out today’s episode and hear all about. . .


    The history of ergonomics (it's a classic tale of Good vs Evil)




    Why there’s NO SUCH THING AS GOOD POSTURE




    What you might be forgetting with your water




    How to reduce your risk of repetitive strain injury



    and finally,


    Why you might be able to walk for hours but struggle to stand for a short period of time



    As always, please remember that all of the information contained within this podcast is for informational purposes ONLY. Please be sure to speak with your appropriately qualified healthcare provider if you have any concerns.


    Connect with Me



    TikTok ⁠⁠⁠https://www.tiktok.com/@hypermobilityhq⁠


    Instagram ⁠https://www.instagram.com/hypermobilityhq/⁠



    and. . .👇



    🤩 Full Episode Video on YOUTUBE! ⁠https://www.youtube.com/@hypermobilityhq⁠




    Work with Me

    If you wish to learn more about my clinical work with both remote and in-person patients, you can visit my website here: ⁠⁠⁠https://www.hypermobilityhq.com/⁠⁠⁠

    Contact Me

    If you wish to contact me directly, please send an email to alex@hypermobilityhq.com

    Join My (Awesome!) Community

    Looking for a little "hypermobile home" on the internet where you can learn more about hypermobility and connect with other people who are going through the same journey? Well, be sure to check out Hypermobility HQHypermobility HQ is a private membership community that gives the scientifically-minded hypermobile person a non-judgemental place to share thoughts, strategies, and experiences on navigating life in a hypermobile body. Because incurable does not mean untreatable!For more info and to make sure you don't miss the launch make sure you're subscribed to my mailing list. You can sign up here: ⁠⁠stan.store/HypermobilityHQ⁠⁠



    Words Matter!

    If you wish to read the National Institutes of Health style guide on inclusive and gender-neutral language, you can find it here: ⁠⁠https://www.nih.gov/nih-style-guide/inclusive-gender-neutral-language⁠⁠



    And a GIANT Thank You to Everyone Who Has Left a Review + Subscribed💙

    YOU'RE THE BEST!!!!!!!!🏆



    Make sure you're subscribed to this podcast to automatically receive your brand new episodes (for the foreseeable future a new episode will be released every other week).



    Wishing you the best in health and everything else,

    Alex


    ---

    Send in a voice message: https://podcasters.spotify.com/pod/show/helpimhypermobile/message

    • 25 min
    Hypermobility and Your Gut: How Connective Tissue Influences Digestive Health

    Hypermobility and Your Gut: How Connective Tissue Influences Digestive Health

    Gut issues suck. Not only are they confusing, often painful, frequently disabling, they can even be life-threatening in some situations. I HATE GUT ISSUES (as do many of my hypermobile patients). And the general lack of support, appropriate diagnostic investigation, and treatment by the broader medical and healthcare communities doesn't help either. Suffice to say, it's currently a sh!tty situation.



    Tune in today and hear all about. . .


    why you need to think about the speed (or lack of speed) at which food moves through you. Because you're basically a conveyer belt🤖


    And you're also a doughnut🍩 You are a gut tube with a human built around it and this has BIG consequences from an immune/inflammatory perspective.


    why your stretchy gut tissue might be literally confusing your nerves (and adding to your dysauotonomia!)😵‍💫


    and the role that mast cells play in all this. Because they live in your gut, your brain, and your connective tissue😈

    and finally,


    my favourite go-to tips for addressing gut issues💪 (please be sure to speak with your medical Dr about these!)



    As always, please remember that all of the information contained within this podcast is for informational purposes ONLY. Please be sure to speak with your appropriately qualified healthcare provider if you have any concerns.



    Oh, and be sure to check out my FAVOURITE research paper on gut issues and hypermobility HERE 👉 https://pubmed.ncbi.nlm.nih.gov/35750466/




    Connect with Me


    TikTok ⁠⁠⁠https://www.tiktok.com/@hypermobilityhq⁠
    Instagram ⁠https://www.instagram.com/hypermobilityhq/⁠
    and. . .👇



    🤩 Full Episode Video on YOUTUBE! ⁠https://www.youtube.com/@hypermobilityhq⁠



    Work with Me

    If you wish to learn more about my clinical work with both remote and in-person patients, you can visit my website here: ⁠⁠⁠https://www.hypermobilityhq.com/⁠⁠⁠



    Contact Me

    If you wish to contact me directly, please send an email to alex@youractiveambition.co.uk



    Join My (Awesome!) Community

    Looking for a little "hypermobile home" on the internet where you can learn more about hypermobility and connect with other people who are going through the same journey? Well, be sure to check out Hypermobility HQ

    Hypermobility HQ is a private membership community that gives the scientifically-minded hypermobile person a non-judgemental place to share thoughts, strategies, and experiences on navigating life in a hypermobile body. Because incurable does not mean untreatable!

    For more info and to make sure you don't miss the launch make sure you're subscribed to my mailing list. You can sign up here: ⁠⁠stan.store/HypermobilityHQ⁠⁠



    Words Matter!

    If you wish to read the National Institutes of Health style guide on inclusive and gender-neutral language, you can find it here: ⁠⁠https://www.nih.gov/nih-style-guide/inclusive-gender-neutral-language⁠⁠



    And a GIANT Thank You to Everyone Who Has Left a Review + Subscribed💙 YOU'RE THE BEST!!!!!!!!🏆

    Make sure you're subscribed to this podcast to automatically receive your brand new episodes (for the foreseeable future a new episode will be released every other week).



    Wishing you the best in health and everything else,

    Alex



    ---

    Send in a voice message: https://podcasters.spotify.com/pod/show/helpimhypermobile/message

    • 41 min

Customer Reviews

5.0 out of 5
12 Ratings

12 Ratings

Britney27 ,

“So helpful” - my PTs, Chiro, Massage Therapist, and me

This show has helped me inform so many about what it means to live with hypermobility. In particular, the “Uncurable not Untreatable” episode has been incredibly educational for my own treatment team, because it describes what can be so hard to describe myself. The clear, research-backed, and approachable way she explains everything helps me understand me and others. Thank you so much!

Sincerely,
Never Writes Reviews But Props Where Props Are Due

mamakeepsgoing ,

Fantastic!

Love the simple explanations of extremely complex issues. Sharing with friends/fellow patients/moms of kids with EDS.

DouKrem ,

🦓❤️ must listen for bendy persons

Great audio quality and pace. Wonderful information, insight, and validation for us bendy people. I look forward to future episodes. 🦓❤️

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