Help! I'm Hypermobile

Alexandra Orfanides
  • 5.0 (15)
  • HEALTH & FITNESS
  • UPDATED BIWEEKLY

Forget the misconceptions—being hypermobile doesn't mean you're stuck without options. Join hypermobility expert Alex as she reveals exciting breakthroughs and practical tips for managing hypermobility, HSD, and hEDS, as well as sharing insight from her own personal journey. Get ready for engaging discussions, relatable anecdotes, and a few laughs along the way. Prepare to feel inspired, informed, and connected. Because incurable does not mean untreatable!

  1. FEB 4

    Scoliosis Surgery, Hypermobility, and Enjoying the Little Things: Ellen’s Story

    Dealing with hEDS/HSD and co-occurring conditions, including scoliosis, is anything but easy. In this episode, I’m joined by Ellen to talk about the realities of dealing with some of the more complex issues relating to hypermobility (which in her case includes scoliosis and multiple spinal surgeries). Ellen shares her journey, including how she copes with her dynamic disability all while balancing her university studies in criminal law. This is a conversation about some of the tough stuff (including surgery and dysautonomia) and Ellen’s experience navigating it while still managing to enjoy the little things. In this episode, we cover: - when Ellen first realised she had an abnormal spinal curvature (and what happened next) - the moment when everything “clicked” when she realised she had hEDS/HSD - the challenges that come with spinal surgery, let alone revision surgery This episode is for anyone who is hypermobile and struggling to deal with their symptoms. –––––––––––––––––––––––––––––– 📚 Join the waitlist for pre-order information for the May 12th release of Help! I’m Hypermobile (and get your free PDF companion guide in the meantime): hypermobilityhq.com/book 📸 Follow me @hypermobilityhq on Instagram, TikTok, and YouTube 🎙 Learn more about the podcast: hypermobilityhq.com/podcast 💌 Guest info, media, and resources: hypermobilityhq.com/blog –––––––––––––––––––––––––––––– Medical disclaimer: This podcast is for educational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional before making changes to your training, exercise, or healthcare plan.

    1h 3m

  2. JAN 21

    How I Stopped Fighting My Body: Hypermobility, Exercise, and Abby’s Story

    What if the problem was never that you weren’t trying hard enough, but that your hypermobile body needed a different approach to strength training? In this episode, I’m joined by my patient Abby to talk about what it really looks like to stop fighting your body in the gym and start working with it. Abby shares her journey from recovering from a childhood spinal fracture to realising that hypermobility was the missing piece behind years of chronic muscle and joint pain. This is a conversation about letting go of rigid exercise rules, embracing dynamic needs, and redefining strength in a hypermobile body. In this episode, we cover: - Recovering from a childhood spinal fracture and how Abby navigates ongoing chronic pain - How learning she was hypermobile made everything make sense - How Abby uses self-treatment strategies and has worked to “become her own coach” to stay consistent with exercise Learning to train with your body rather than against it This episode is for anyone who is hypermobile and struggling to make exercise work in a body with changing needs. –––––––––––––––––––––––––––––– 📚 Join the waitlist for pre-order information for the May 12th release of Help! I’m Hypermobile (and get your free PDF companion guide in the meantime): hypermobilityhq.com/book 📸 Follow me @hypermobilityhq on Instagram, TikTok, and YouTube 🎙 Learn more about the podcast: hypermobilityhq.com/podcast 💌 Guest info, media, and resources: hypermobilityhq.com/blog –––––––––––––––––––––––––––––– Medical disclaimer: This podcast is for educational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional before making changes to your training, exercise, or healthcare plan. ––––––––––––––––––––––––––––––

    1 hr

  3. JAN 7

    The Surrender Agenda: Living With Chronic Illness, Pain & Self-Compassion

    Author, speaker, and chronic illness advocate Lorraine Ansell and I talk about learning to live with and love your body while living with chronic pain and complex health challenges. Through a discussion of her book The Surrender Agenda, we explore Lorraine’s experience of living with hEDS, including navigating serious health events and profound personal loss, and how years of wondering why she wasn’t “strong enough” led to a reckoning with identity, self-worth, and the belief that pushing harder is always the answer. This is a conversation about invisible grief, losing trust in your body, and the slow, often uncomfortable process of learning to care for yourself with kindness. In this episode, we dig into: • Learning to live with (and perhaps even come to love) your chronic pain • Navigating difficult health and life experiences, including retinal detachment and miscarriage • Why The Surrender Agenda was exactly the book I didn’t know I needed This episode is for anyone living with chronic illness, navigating grief or medical trauma, or wondering how to stop being at war with their body while still living fully. If you would like to learn more about Lorraine’s book visit https://www.lorraineansellauthor.com/ You can also find Lorraine online on Instagram and Tiktok THANK YOU for watching, and remember: incurable does not mean untreatable ❣️ 📚 Help! I’m Hypermobile (April 2026) join the waitlist + get your FREE PDF in the meantime: hypermobilityhq.com/book 📸 Follow me @hypermobilityhq on Instagram, TikTok, and YouTube 🎙 Learn more about the podcast: hypermobilityhq.com/podcast 💌 Guest info, media, and resources: hypermobilityhq.com/blog Medical disclaimer: This podcast is for educational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional before making changes to your healthcare or wellbeing plan.

    1h 15m

  4. 12/17/2025

    Training With Coach Sean: My hEDS Experience with Exercise and Why Strength Training Isn’t Enough

    Coach Sean and I discuss why strength training alone often isn’t enough for hypermobile bodies. Drawing on my personal experience training with hEDS, we explore why learning to generate tension matters even for experienced, seemingly strong hypermobile athletes, and why cardiovascular work can support strength rather than compete with it. We dig deep into: Why tactile feedback matters for hypermobile athletesHow thinking about blood flow diversion can help manage symptoms outside the gymWhy rigid programmes don’t work for hypermobile peopleWhy you NEED to be doing cardio if you are building muscle Sean is a highly experienced Certified CrossFit Level 3 Trainer (CF-L3) coach with an extensive background in Crossfit-specific gymnastics, bringing a deep understanding of strength, conditioning, and long term athletic development to this conversation. He is also my personal coach, and his own experience returning to exercise after serious health challenges has shaped an informed and strategic approach to coaching athletes and people looking to elevate their overall fitness. This episode is for anyone training, rehabbing, or strength training while dealing with joint hypermobility and wondering why doing “everything right” still doesn’t feel like enough. THANK YOU for watching, and remember: incurable does not mean untreatable! ❣️ 📚 Join the waitlist for pre-order information for the April 2026 release of my book Help! I'm Hypermobile (and get your free PDF companion guide in the meantime): ⁠⁠hypermobilityhq.com/book⁠⁠ 📸 Follow me ⁠⁠@hypermobilityhq⁠⁠ and subscribe on ⁠⁠Instagram⁠⁠, ⁠⁠Tiktok⁠⁠, and ⁠⁠Youtube⁠ ⁠ ⭐️ Follow Sean on Instagram at ⁠@Sean_coach_tomo91 🎙️ Learn more about the podcast: ⁠⁠hypermobilityhq.com/podcast⁠⁠ 💌 For guest info, media, or resources visit my blog at ⁠⁠hypermobilityhq.com/blog/ Medical disclaimer: This podcast is for educational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional before making changes to your training, exercise, or healthcare plan.

    1h 6m

  5. 12/03/2025

    Pregnancy and Hypermobility: The Must-Know hEDS/HSD Pregnancy Guidelines with Dr. Sally Pezaro

    Pregnant with hEDS or HSD (or thinking about it for future)? In this episode, I’m joined by midwife and professor Dr. Sally Pezaro to talk through what hypermobile people REALLY need to know about pregnancy and birth. We break down👇 Sally’s 3 key recommendations for anyone pregnant with hEDS/HSDhow to share the guidelines with your doctor or midwife to improve your care and advocate for yourselfwhy collaborative, person-centred maternity care matters so much for hypermobile peopleeverything you’ve wanted to know about C-sections, vaginal birth, IVF, epidurals, tears, and more (and what we can say from research so far about how these affect people with hEDS/HSD) This is a practical, compassionate conversation for patients, clinicians, and birth partners alike. THANK YOU for watching, and remember: incurable does not mean untreatable! ❣️ 📚 Join the waitlist for pre-order information for the April 2026 release of Help! I'm Hypermobile (and get your free PDF companion guide in the meantime): ⁠⁠hypermobilityhq.com/book⁠⁠ 📸 Follow me ⁠⁠@hypermobilityhq⁠⁠ and subscribe on ⁠⁠Instagram⁠⁠, ⁠⁠Tiktok⁠⁠, and ⁠⁠Youtube⁠ ⁠ ⭐️ Follow Sally on Tiktok at ⁠@SallyPezaro⁠ and Instagram at ⁠@theacademicmidwife 🎙️ Learn more about the podcast: ⁠⁠hypermobilityhq.com/podcast⁠⁠ 💌 For guest info, media, or resources visit my blog at ⁠⁠hypermobilityhq.com/blog/

    1 hr

  6. 11/20/2025

    hEDS, Histamine, & PCOS with Hannah

    We're back (again!). And this time Hannah is sharing her experience navigating hEDS, POTS, histamine issues, and PCOS as a patient.  We dig deep into👇 •⁠  ⁠our shared experience of feeling abandoned by the medical system at certain points in our healthcare journey (and what we did next) •⁠  ⁠why there is no such thing as a hypermobile "look" when it comes to hEDS and HSD •⁠ how PCOS can affect your experience of hEDS/HSD (and why it's so important to start protecting your bone density NOW!) •⁠ and we whip out the dynamometer at the end for a Grip-Strength Showdown🏆 As always, THANK YOU for being here🙏 And remember: incurable does not mean untreatable!❣️ 📚 Join the waitlist for pre-order information for the April 2026 release of Help! I'm Hypermobile (and get your free PDF companion guide in the meantime): ⁠hypermobilityhq.com/book⁠ 📸 Follow me ⁠@hypermobilityhq⁠ and subscribe on ⁠Instagram⁠, ⁠Tiktok⁠, and ⁠Youtube⁠  ⭐️ Follow Hannah on Tiktok at @the.histamine.queen and Instagram at @histamine.queen.hannah 🎙️ Learn more about the podcast: ⁠hypermobilityhq.com/podcast⁠ 💌 For guest info, media, or resources visit my blog at ⁠hypermobilityhq.com/blog/

    1h 17m

  7. 11/05/2025

    Hypermobility and Me: My Story

    WE'RE BACK — with guests!🤩 And for this very special first episode, the tables have turned… and I’m the one being interviewed😅 Joining me is my dear friend Hannah (who shares her own experiences online living with hEDS, POTS, and a histamine condition). Today, she’s asking me about: my personal journey to getting an hEDS diagnosis (finally!) last summerwhat "the dark days" in my early 20s were like when I had no idea how to manage my symptoms and no supportwhy I’ve been quiet on social media this past yearand my upcoming book, Help! I’m Hypermobile: Your How-To Guide for hEDS, HSD, and Life in a Hypermobile Body (coming April 2026!🎉) It’s been a lot lately to be entirely honest, but the podcast has a special place in my heart and I'm so happy to be back on here with all of you. I hope you enjoy the expert guest interviews and patient stories this season as much as I do! Thank you for being here🙏 And remember: incurable does not mean untreatable!❣️ 📚 Join the waitlist for pre-order information for the April 2026 release of Help! I'm Hypermobile (and get your free PDF companion guide in the meantime): hypermobilityhq.com/book📸 Follow us @hypermobilityhq and subscribe on Instagram, Tiktok, and Youtube 🎙️ Learn more about the podcast: hypermobilityhq.com/podcast 💌 For guest info, media, or resources visit my blog at hypermobilityhq.com/blog/

    48 min

  8. 05/09/2024

    Ep 14 Hypermobility and Posture: Why What You Think You Know About Posture is Probably Wrong

    We're back and we're talking about POSTURE! Misconceptions are EVERYWHERE when it comes to posture, and most of what you think you know about posture is probably wrong. Listen to today's episode to find out. . . why there's no such thing as an inherently bad (or good!) posture why we as a society have this weird obsession with "good" posture (and what it has to do with good morals) easy, actionable ways that YOU can start to modify your body positions today to feel more comfortable in your hypermobile body As always, please remember that all of the information contained within this podcast is for informational purposes ONLY. Please be sure to speak with your appropriately qualified healthcare provider if you have any concerns❣️ SHOWNOTES🤓 Please be sure to check my blog at⁠ ⁠hypermobilityhq.com⁠⁠ for complete citations as well as a text transcript of the episode. Connect with Me TikTok tiktok.com/@hypermobilityhq⁠⁠⁠⁠⁠⁠ Instagram⁠⁠ ⁠⁠⁠⁠instagram.com/hypermobilityhq/⁠⁠⁠⁠⁠⁠ and. . .👇 Youtube⁠⁠⁠⁠⁠⁠ youtube.com/@hypermobilityhq⁠⁠⁠⁠⁠⁠ Work with Me If you wish to learn more about my clinical work with both remote and in-person patients, you can visit my website here: ⁠⁠⁠⁠⁠https://www.hypermobilityhq.com/⁠⁠⁠⁠⁠ Contact Me If you wish to contact me directly, please send an email to ⁠⁠⁠alex@hypermobilityhq.com⁠⁠⁠ Join My (Awesome!) Community Looking for a little "hypermobile home" on the internet where you can learn more about hypermobility and connect with other people who are going through the same journey? Well, be sure to check out Hypermobility HQ. Hypermobility HQ is a private membership community that gives the scientifically-minded hypermobile person a non-judgemental place to share thoughts, strategies, and experiences on navigating life in a hypermobile body. Because incurable does not mean untreatable!For more info and to make sure you don't miss the launch make sure you're subscribed to my mailing list. You can sign up here:⁠⁠ ⁠⁠⁠⁠⁠stan.store/HypermobilityHQ⁠⁠⁠⁠⁠⁠⁠ Words Matter! If you wish to read the National Institutes of Health style guide on inclusive and gender-neutral language, you can find it here: ⁠⁠⁠⁠https://www.nih.gov/nih-style-guide/inclusive-gender-neutral-language⁠⁠⁠⁠ And a GIANT Thank You to Everyone Who Has Left a Review + Subscribed💙 At the time of me writing this, we're at SEVENTY-FIVE (!!!!!!!!) reviews🤩 I wonder if we can get to 100??? And make sure you're subscribed to this podcast to automatically receive your brand new episodes. This season we're talking about all of the most highly requested topics. Should be a fun one! 👀 Wishing you the best in health and everything else, Alex❤️

    47 min
See All (22)

5
out of 5
15 Ratings

About

Forget the misconceptions—being hypermobile doesn't mean you're stuck without options. Join hypermobility expert Alex as she reveals exciting breakthroughs and practical tips for managing hypermobility, HSD, and hEDS, as well as sharing insight from her own personal journey. Get ready for engaging discussions, relatable anecdotes, and a few laughs along the way. Prepare to feel inspired, informed, and connected. Because incurable does not mean untreatable!

Information

  • Creator
    Alexandra Orfanides
  • Years Active
    2023 - 2026
  • Episodes
    22
  • Rating
    Explicit
  • Copyright
    © Alexandra Orfanides
  • Show Website
    Help! I'm Hypermobile

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