Hospice Explained

Marie Betcher RN

This is a podcast to Explain what is hospice. The goal of this show is to decrease fear and increase education for patients and their families during the end of life season. The show will also share some experiences and stories to help the listener understand what does Hospice mean, and how a person can help care for their loved one.

  1. -1 J

    183 Creating Digital Legacies with Reflekta AI (with Grief Specialist Dawn DeLaloye)

    183 Creating Digital Legacies with Reflekta AI (with Grief Specialist Dawn DeLaloye) Hospice Explained host and former hospice nurse Marie Betcher interviews grief specialist Dawn DeLaloye about Reflekta AI, an intergenerational storytelling platform that helps people create a "reflection" of themselves or loved ones—living or deceased—by adding photos, voice recordings, and memories guided by an AI biographer. Dawn explains it takes about 20 minutes to start, has launched seven months ago, and already includes about 15,000 stories; listeners can try it by talking with sample elders Virginia and Arthur. She describes how reflections can preserve details beyond photo captions, support hospice and terminally ill patients by affirming they are more than a diagnosis, and may be healing for grief, sharing her experience creating a reflection of her father who had Lewy body dementia. Dawn outlines sharing and subscription access, and how voice can be preserved using recordings or a close relative's voice. 00:00 Podcast Disclaimer 00:29 Meet Your Host 00:42 Introducing Dawn DeLaloye 02:02 What Is Reflekta AI 03:42 Early Traction 04:04 Try Talking to Elders 05:23 Why It Was Founded 07:05 Legacy for Hospice 07:34 Creating After Death 10:21 Setup Time and Prompts 11:50 Healing Through Story 13:53 Everyone Has a Story 16:13 Sharing and Subscription 18:07 Meaning at End of Life 22:11 Preserving a Loved Voice 24:49 Final Thoughts and Wrap https://reflekta.ai/   If you want to help, you can donate to help support Hospice Explained at the Buy me a Coffee link   https://www.buymeacoffee.com/Hospice  Hospice Explained Affiliates & Contact Information Buying from these Affilite links will help support this Podcast.  Maire introduces a partnership with Suzanne Mayer RN inventor of the  cloud9caresystem.com,  When patients remain in the same position for extended periods, they are at high risk of developing pressure injuries, commonly known as bedsores. One of the biggest challenges caregivers face is the tendency for pillows and repositioning inserts to easily dislodge during care.(Suzanne is a former guest on Episode #119) When you order with Cloud 9 care system, please tell them you heard about them from Hospice Explained.(Thank You) Marie's Contact Marie@HospiceExplained.com www.HospiceExplained.com   Finding a Hospice Agency 1. You can use Medicare.gov to help find a hospice agency, 2. choose Find provider 3. Choose Hospice 4. then add your zip code This should be a list of Hospice Agencies local to you or your loved one.

    26 min
  2. 5 AVR.

    182 The Timely Presence: Year-Long Grief Support and Showing Up After Loss

    182 The Timely Presence: Year-Long Grief Support and Showing Up After Loss Host Marie Betcher, a registered nurse and former hospice nurse, interviews Kelly Edmondson, RN, a bereaved mother and certified grief counselor who founded The Timely Presence, a year-long grief support service. Kelly shares formative experiences with death in trauma ICU, including an 18-year-old dying on Christmas as his family arrived, and later the death of her son Darius in 2023, which led her to focus on supporting people through milestone days. She explains how The Timely Presence provides one-time-purchase collections tailored to relationships (parent/child, spouses/partners, infant pregnancy loss, and other close relationships), delivering 3–6 heirloom-quality personalized gifts over a year, ending on the loss anniversary, with reminders to the gift giver. Kelly discusses practical gift examples, expanding interest in pet loss, and guidance for supporting grieving people: say the loved one's name, listen without trying to fix grief, avoid comparisons, and recognize grief has no timeline. 00:00 Welcome and Disclaimer 00:44 Meet Kelly Edmondson RN 02:15 Christmas ICU Turning Point 05:18 The Call That Changed Everything 07:27 Mother's Day and Finding Purpose 10:37 Building The Timely Presence 15:07 How the Service Works 17:28 What's Inside the Gifts 21:08 Grief Counseling and Pet Loss 23:58 Say Their Name and Remember 30:29 What to Say to Grievers 34:14 Where to Find Timely Presence 35:52 Closing Thanks and Subscribe https://thetimelypresence.com/shop/   If you want to help, you can donate to help support Hospice Explained at the Buy me a Coffee link   https://www.buymeacoffee.com/Hospice  Hospice Explained Affiliates & Contact Information Buying from these Affilite links will help support this Podcast.  Maire introduces a partnership with Suzanne Mayer RN inventor of the  cloud9caresystem.com,  When patients remain in the same position for extended periods, they are at high risk of developing pressure injuries, commonly known as bedsores. One of the biggest challenges caregivers face is the tendency for pillows and repositioning inserts to easily dislodge during care.(Suzanne is a former guest on Episode #119) When you order with Cloud 9 care system, please tell them you heard about them from Hospice Explained.(Thank You) Marie's Contact Marie@HospiceExplained.com www.HospiceExplained.com   Finding a Hospice Agency 1. You can use Medicare.gov to help find a hospice agency, 2. choose Find provider 3. Choose Hospice 4. then add your zip code This should be a list of Hospice Agencies local to you or your loved one.

    36 min
  3. 181 Feeling Supported and Prepared for Death on Hospice

    30 MARS

    181 Feeling Supported and Prepared for Death on Hospice

    181 Feeling Supported and Prepared for Death on Hospice In episode 181 of Hospice Explained, host Marie Betcher, a registered nurse and former hospice nurse, shares a listener story about a new nurse who felt unsupported and unprepared for his mother's death on hospice and still carries a negative memory 16 years later. Marie reflects on the need for hospice staff to assess families' education and experience levels, ask leading questions, clearly explain what to expect, and ensure people know who to call and feel safe doing so. She also shares her own experience with her oldest brother's death, realizing she stayed in "nurse role" to support others and didn't emotionally prepare herself to grieve. She invites listeners to be a guest and share positive or negative hospice stories so others can learn and do better in the future.  00:00 Welcome and Disclaimer 00:29 Episode Intro and Purpose 00:47 Listener Story Feeling Unsupported 01:48 Hospice Staff Must Assess Needs 02:24 Personal Story Brother's Death 03:48 Check In and Teach Caregivers 04:52 Share Your Story and Closing IF You want to share your story please email me: Marie@HospiceExplained.com   If you want to help, you can donate to help support Hospice Explained at the Buy me a Coffee link   https://www.buymeacoffee.com/Hospice  Hospice Explained Affiliates & Contact Information Buying from these Affilite links will help support this Podcast.  Maire introduces a partnership with Suzanne Mayer RN inventor of the  cloud9caresystem.com,  When patients remain in the same position for extended periods, they are at high risk of developing pressure injuries, commonly known as bedsores. One of the biggest challenges caregivers face is the tendency for pillows and repositioning inserts to easily dislodge during care.(Suzanne is a former guest on Episode #119) When you order with Cloud 9 care system, please tell them you heard about them from Hospice Explained.(Thank You) Marie's Contact Marie@HospiceExplained.com www.HospiceExplained.com   Finding a Hospice Agency 1. You can use Medicare.gov to help find a hospice agency, 2. choose Find provider 3. Choose Hospice 4. then add your zip code This should be a list of Hospice Agencies local to you or your loved one.

    6 min
  4. 22 MARS

    180 Hospice Buddy: Practical Symptom Support, Caregiver Logbooks, and Grounding Prompts with Jamie Haberman RN

    180 Hospice Buddy: Practical Symptom Support, Caregiver Logbooks, and Grounding Prompts with Jamie Haberman RN   Host Marie Betcher, a registered nurse and former hospice nurse, interviews returning guest Jamie Haberman RN, a hospice nurse with nearly 20 years of end-of-life experience and founder of Hospice Buddy. Jamie describes her hospice background and explains Hospice Buddy as a caregiver support platform offering free resources, a Facebook support group, and paid one-on-one support calls. She outlines her publications: six caregiver logbooks designed for the six-month hospice timeframe to track medications, symptoms, vitals, and notes, plus simple activities like reflections, puzzles, and coloring; a five-minute caregiver grounding journal focused on gratitude, breathing, and letting go; and a Christian faith-based symptom management guide covering common hospice issues (pain, shortness of breath, anxiety, congestion, falls, DNR) with practical, nonclinical tips. They discuss why information is hard to absorb during crises, the need for overnight support, and how some patients seem to time their death when family briefly steps away.   00:00 Welcome and Disclaimer 00:29 Meet Host Marie 00:55 Introducing Jamie Haberman 01:50 Jamie Hospice Background 02:36 Hospice Buddy and Books 04:25 Five Minute Grounding 06:45 Faith Based Support 08:51 Symptom Management Guide 10:16 Formats Pricing and Calls 13:57 Why Extra Support Matters 16:17 Night Shift and Passing Timing 20:25 Caregiver Logbooks Activities 24:17 Where to Find Jamie 25:25 Final Encouragement and Wrap https://hospicebuddy.com/   If you want to help, you can donate to help support Hospice Explained at the Buy me a Coffee link   https://www.buymeacoffee.com/Hospice  Hospice Explained Affiliates & Contact Information Buying from these Affilite links will help support this Podcast.  Maire introduces a partnership with Suzanne Mayer RN inventor of the  cloud9caresystem.com,  When patients remain in the same position for extended periods, they are at high risk of developing pressure injuries, commonly known as bedsores. One of the biggest challenges caregivers face is the tendency for pillows and repositioning inserts to easily dislodge during care.(Suzanne is a former guest on Episode #119) When you order with Cloud 9 care system, please tell them you heard about them from Hospice Explained.(Thank You) Marie's Contact Marie@HospiceExplained.com www.HospiceExplained.com   Finding a Hospice Agency 1. You can use Medicare.gov to help find a hospice agency, 2. choose Find provider 3. Choose Hospice 4. then add your zip code This should be a list of Hospice Agencies local to you or your loved one.

    27 min
  5. 15 MARS

    179 Hospice Is About Living: Honest Conversations, Palliative vs. Hospice, and Supporting Nurses with Gina Harris MSN, MSQT

    179 Hospice Is About Living: Honest Conversations, Palliative vs. Hospice, and Supporting Nurses with Gina Harris MSN, MSQT Host Marie Betcher, a registered nurse and former hospice nurse, interviews Gina Harris MSN, MSQT, Chief Clinical Officer at Marisol Health in South Carolina, about hospice education and reducing fear around end-of-life care. Gina shares her career path from mortgage banking to 25 years in nursing, including critical care leadership and work as a CMS-certified surveyor, and explains how hospice nursing is emotionally demanding and often undervalued. The conversation centers on the need for honest communication about dying, including a story of a woman with recurring cancer who pursued a third major surgery before choosing hospice and dying days later, highlighting "chasing normal" and the limits of prognostic estimates. Gina describes hospice as support for living with comfort and dignity, outlines palliative care versus hospice, and explains how Marisol trains staff through in-services, role playing, interdisciplinary visits, and certification. 00:00 Welcome and Disclaimer 00:29 Meet Host Marie 00:45 Introducing Gina Harris MSN, MSQT 02:11 Gina's Nursing Journey 04:09 Why Hospice Matters 06:05 Coaching Nurses to Talk 08:29 Chasing Normal Story 13:42 Hard Truths and Hospice 18:21 Hospice Is About Living 20:23 Palliative vs Hospice Care 23:32 Training Staff for Truth 26:44 Hospice as a Choice 28:15 Signing Up and Opting Out 29:42 Closing Thanks and Location 30:21 Final Wrap Up   https://mirasolhealth.org/   If you want to help, you can donate to help support Hospice Explained at the Buy me a Coffee link   https://www.buymeacoffee.com/Hospice  Hospice Explained Affiliates & Contact Information Buying from these Affilite links will help support this Podcast.  Maire introduces a partnership with Suzanne Mayer RN inventor of the  cloud9caresystem.com,  When patients remain in the same position for extended periods, they are at high risk of developing pressure injuries, commonly known as bedsores. One of the biggest challenges caregivers face is the tendency for pillows and repositioning inserts to easily dislodge during care.(Suzanne is a former guest on Episode #119) When you order with Cloud 9 care system, please tell them you heard about them from Hospice Explained.(Thank You) Marie's Contact Marie@HospiceExplained.com www.HospiceExplained.com   Finding a Hospice Agency 1. You can use Medicare.gov to help find a hospice agency, 2. choose Find provider 3. Choose Hospice 4. then add your zip code This should be a list of Hospice Agencies local to you or your loved one.

    31 min
  6. 178 How to Talk to Someone About Hospice: Communication Tips and Resources

    8 MARS

    178 How to Talk to Someone About Hospice: Communication Tips and Resources

    178 How to Talk to Someone About Hospice: Communication Tips and Resources Host Marie Betcher, a registered nurse and former hospice nurse, explains that Hospice Explained is an educational resource and not a substitute for medical advice. She discusses how to communicate about hospice with patients, families, providers, and caregivers: be truthful, expect emotions, keep the focus on the person you're talking to, practice active listening, and use clear, simple language. She recommends asking simple, open-ended questions, pausing to listen, treating the discussion as a collaborative conversation rather than a debate, and being prepared with referrals and plans to find answers together. She suggests pulse.org and fivewishes.org as accessible resources to start end-of-life planning conversations, and encourages listeners to subscribe and share the podcast. 00:00 Welcome & Medical Disclaimer 00:29 Meet Your Host: Why This Podcast Exists 00:42 How to Talk About Hospice: Truth, Emotions & Listening 01:10 Keep It Simple: Questions, Pauses, and Conversation (Not Debate) 01:49 Be Ready With Resources: POLST & Five Wishes 02:47 Wrap-Up: Start the Conversation + Subscribe polst.org https://www.fivewishes.org/   If you want to help, you can donate to help support Hospice Explained at the Buy me a Coffee link   https://www.buymeacoffee.com/Hospice  Hospice Explained Affiliates & Contact Information Buying from these Affilite links will help support this Podcast.  Maire introduces a partnership with Suzanne Mayer RN inventor of the  cloud9caresystem.com,  When patients remain in the same position for extended periods, they are at high risk of developing pressure injuries, commonly known as bedsores. One of the biggest challenges caregivers face is the tendency for pillows and repositioning inserts to easily dislodge during care.(Suzanne is a former guest on Episode #119) When you order with Cloud 9 care system, please tell them you heard about them from Hospice Explained.(Thank You) Marie's Contact Marie@HospiceExplained.com www.HospiceExplained.com   Finding a Hospice Agency 1. You can use Medicare.gov to help find a hospice agency, 2. choose Find provider 3. Choose Hospice 4. then add your zip code This should be a list of Hospice Agencies local to you or your loved one.

    3 min
  7. 1 MARS

    177 Hospice, Caregiving, and Long-Term Care Planning with Raymond Lavine

    177 Hospice, Caregiving, and Long-Term Care Planning with Raymond Lavine Host Marie Betcher, a former hospice nurse and longtime registered nurse, interviews Raymond Lavine, Raymond explains he designs long-term care plans that can help pay for caregiving either at home or in a facility, addressing the common misconception that long-term care insurance is only "nursing home insurance." They discuss caregiver stress and the need to support caregivers with respite and practical help. Raymond outlines how long-term care policies generally work as a pool of money over a set period, often with inflation or cost-of-living features, and notes that benefits may not cover 100% of costs depending on the plan and setting. Raymond advises making incremental home modifications in advance to support aging in place and reduce falls. The episode ends with Raymond offering Zoom, phone, and in-person meetings, directing listeners to his website tools and FAQ features, and Marie encouraging listeners to subscribe and share. 00:00 Welcome + Medical Disclaimer  00:29 Meet Your Host Marie Betcher  00:46 Raymond Lavine's Backstory: Army, Vietnam & Career Path 02:43 What Raymond Does: Long‑Term Care Planning Meets Hospice Reality 04:21 Caregiver Burnout: Supporting the Family, Not Just the Patient 05:50 Does Long‑Term Care Insurance Pay for In‑Home Care or Facilities? 07:28 What Hospice Covers Under Medicare (and What It Doesn't) 11:00 How Long‑Term Care Policies Work: Pools of Money, Inflation Riders & Costs 16:08 Affordable Options When Money's Tight: Life Settlements, Reverse Mortgages & Hybrids 20:12 Avoiding Crisis: Planning, Home Modifications & Real‑World Care Logistics 22:09 Hospice Isn't a Daily Caregiver: Building a Care Team https://raymondlavineofficial.com/ https://www.lavineltcins.com/   If you want to help, you can donate to help support Hospice Explained at the Buy me a Coffee link   https://www.buymeacoffee.com/Hospice  Hospice Explained Affiliates & Contact Information Buying from these Affilite links will help support this Podcast.  Maire introduces a partnership with Suzanne Mayer RN inventor of the  cloud9caresystem.com,  When patients remain in the same position for extended periods, they are at high risk of developing pressure injuries, commonly known as bedsores. One of the biggest challenges caregivers face is the tendency for pillows and repositioning inserts to easily dislodge during care.(Suzanne is a former guest on Episode #119) When you order with Cloud 9 care system, please tell them you heard about them from Hospice Explained.(Thank You) Marie's Contact Marie@HospiceExplained.com www.HospiceExplained.com   Finding a Hospice Agency 1. You can use Medicare.gov to help find a hospice agency, 2. choose Find provider 3. Choose Hospice 4. then add your zip code This should be a list of Hospice Agencies local to you or your loved one.

    28 min
  8. 22 FÉVR.

    176 Hospice Explained: The Five Wishes and Why They Matter

    176 Hospice Explained: The Five Wishes and Why They Matter Host Marie Betcher, a registered nurse and former hospice nurse, reviews the "Five Wishes" advance care planning document after a prior episode with Yvonne Caputo. She explains where to find and purchase it (fivewishes.org and agingwithdignity.org), notes it can be notarized, and emphasizes completing it through conversations with loved ones. Marie walks through each wish: choosing the person to make decisions when you can't and clearly sharing your choices with them; deciding what medical treatments you want or don't want (also referencing POLST at polst.org); defining what comfort looks like and where you want to be cared for; how you want people to treat you; and what you want loved ones to know, including expressing love and sharing guidance about personal items and other wishes. She invites listeners to share hospice-related stories by emailing her through hospiceexplained.com, and encourages subscribing and sharing the podcast. 00:00 Welcome & Medical Disclaimer (Start Here) 00:28 Meet Your Host Marie + Why This Podcast Exists 00:41 Recap: Last Week's Guest & Introducing the Five Wishes 01:31 Wish #1: Choose Your Healthcare Decision-Maker 02:14 Wish #2: Treatments You Do (and Don't) Want 02:59 Wish #3: Defining Comfort at the End of Life 03:55 Wish #4: How You Want People to Treat You 04:08 Wish #5: What You Want Loved Ones to Know 05:28 Where to Get Five Wishes + Share Your Story (Closing) https://www.fivewishes.org/ https://agingwithdignity.org/five-wishes/   If you want to help, you can donate to help support Hospice Explained at the Buy me a Coffee link   https://www.buymeacoffee.com/Hospice  Hospice Explained Affiliates & Contact Information Buying from these Affilite links will help support this Podcast.  Maire introduces a partnership with Suzanne Mayer RN inventor of the  cloud9caresystem.com,  When patients remain in the same position for extended periods, they are at high risk of developing pressure injuries, commonly known as bedsores. One of the biggest challenges caregivers face is the tendency for pillows and repositioning inserts to easily dislodge during care.(Suzanne is a former guest on Episode #119) When you order with Cloud 9 care system, please tell them you heard about them from Hospice Explained.(Thank You) Marie's Contact Marie@HospiceExplained.com www.HospiceExplained.com   Finding a Hospice Agency 1. You can use Medicare.gov to help find a hospice agency, 2. choose Find provider 3. Choose Hospice 4. then add your zip code This should be a list of Hospice Agencies local to you or your loved one.

    6 min
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À propos

This is a podcast to Explain what is hospice. The goal of this show is to decrease fear and increase education for patients and their families during the end of life season. The show will also share some experiences and stories to help the listener understand what does Hospice mean, and how a person can help care for their loved one.

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