Humancare

Eva Minkoff
  • 4.9 (17)
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Podcast featuring conversations with health entrepreneurs, care professionals, patient advocates, and industry changemakers. What do they all have in common? The mission to humanize healthcare by exploring the disconnect in relationships. --- Hosted by Eva Minkoff. Part of the Invisible Not Broken Podcast Network.

  1. 06/29/2021

    Humanizing Healthcare & Understanding Chronic Illness: Eva's Interview on Planning On Call Podcast

    Helping individuals with chronic illness can be very difficult because there are not always clear answers to their problems. That can be challenging, especially for doctors whose years of training have taught them to find problems and ultimately fix those problems. To overcome this, Eva stresses the importance of making a human connection with patients and validating their pain even if there may not be clear answers to their problems. Eva remarks in our conversation that the focus needs to be on not just the patient, but also the relationship. – Tim Hamilton, host of Planning on Call This week is a little different - we’re re-publishing Eva’s guest interview on the Planning on Call podcast!   Hosted by Tim Hamilton, CFP®, CIMA, CSLP, ‘Planning on Call’ is a series of podcasts, blog posts, and other content focused on providing medical professionals, and their spouses, the important information they need to know as they plan their future.   Other episodes of the Planning on Call podcast can be found here:https://atlaspwm.com/category/planning-on-call In this episode of Planning on Call, Eva and Tim discuss the following:   ·      Eva’s build-block story that led to her chronic conditions and related career path ·      Her views on the disconnect between doctor-patient relationships ·      How to humanize healthcare   You can listen to this episode on the original Planning on Call podcast here:https://atlaspwm.com/planning-on-call-blog-12-humanizing-healthcare-chronic-illness Apple PodcastsSpotifyLibsyn  You can also find out more about Tim and financial planning resources for medical professionals here: https://atlaspwm.com/medical-professionals   Eva’s bio from the original Planning on Call show, written by Tim Hamilton:   I had an amazing conversation with Eva Minkoff in my latest episode of Planning on Call. In this episode, I had the opportunity to learn about living with chronic illness and the support structures that can be built through humanizing healthcare. A Planning on Call listener connected me to Eva because they thought she had a unique perspective to discuss, and I could not agree more! Chronic illness and its treatment is a topic I knew very little about before speaking with Eva. I found our conversation very illuminating personally, so I hope it resonates with listeners as well.   Eva has an impressive background which consists of but is not limited to being a serial entrepreneur in healthcare, Nutrition Scientist, and NASM Certified Personal Trainer. She also has spent a lot of time developing an impactful podcast, [Human]Care . This podcast features conversations with health entrepreneurs, care professionals from all walks of life, patient advocates, and industry change-makers all with the mission to humanize healthcare… and is part of a top-rated chronic illness podcast and network, Invisible Not Broken. Also, you can listen to her TEDx Talk, “5 Minutes to Fix Our Broken Healthcare System”, this talk boldly hypothesizes how elevating the patient-physician relationship through a proposed structured conversation can improve the healthcare systems.   Eva has dealt with chronic illness in her own life, suffering from Fibromyalgia, Hypermobile Ehlers Danlos Syndrome, and Mast Cell Activation Syndrome (among other ailments). Navigating the difficulties of living with, diagnosing, and treating chronic illness for most of her life has given her the firsthand experience needed to help find solutions for other individuals living, struggling, and persevering with chronic illnesses.

    1h 15m

  2. 05/25/2021

    The Impact of Illness on Family Dynamics: Clorinda Walley

    THE IMPACT OF ILLNESS ON FAMILY DYNAMICS: CLORINDA WALLEY “I don’t regret any of it. I probably would have done it differently. But I didn’t. You don’t get to choose what’s happened to you when it’s happening.” -Clorinda Walley About Clorinda: Clorinda Walley is the President of the Good Days charity, which funds medical expenses for those with chronic conditions.  Clorinda has over 20 years of experience in the healthcare industry and over 12 years in strategic philanthropy. As a member of the chronic illness community herself, Clorinda has ulcerative colitis, migraines, Hashimoto’s disease, arthritis, endometriosis, clotting disorder, and ADHD. Clorinda is also 1 of 13 siblings, and many of her siblings also have chronic conditions like Raynaud’s, Sjogren’s, and psoriasis. In short, living with and caring for people in this community has been her entire life. Now, Clorinda has made it her mission through Good Days to promote preventional medicine, given that so many of our chronic conditions are, in fact, preventable or at least well-managed through healthy lifestyles and attention to well-being. Clorinda’s illness journey has taught her how to care, how to caregive, and how to be a voice for those suffering from chronic disease. In this episode, Clorinda and Eva discuss: Importance of relationships and being held accountable for your health Knowing the role that you and your support network play in your chronic illness journey How to develop realistic expectations about your health Timestamps 4:55- 52:08 Clorinda’s chronic illness journey 54:17-57:31 How to be efficient when dealing with a health crisis 57:36-1:00:56 When expectations don’t match up with reality 1:00:57- 1:07:30 When relationships fall apart 1:07:41-1:14:26 Keeping the lines of communication open 1:14:42-1:18:10 What to do when you don’t have a support system 1:18:37-1:20:04 How to meet people on their level of the chronic illness journey 1:21:06-1:24:03 What we can do to lower the number of people dealing with chronic disease Clorinda’s links:  Good Days’ Website: www.mygooddays.org Good Days’ Facebook: https://www.facebook.com/mygooddaysorg Good Days’ Twitter: https://twitter.com/MyGoodDays Instagram: https://www.instagram.com/gooddaysorg/ Additional Interview Question Responses: Could you give us a brief snapshot of what your daily life is like? What is your “normal”? I have had to adjust over the years since my initial struggle with Ulcerative Colitis. I am happy to say that most days now I manage well. I no longer have to take a plethora of medications and any discomfort that I have is manageable. What does “trust” mean to you in the patient-practitioner relationship? I found that trust goes two ways. It is not a matter of taking everything at face value and moving on. I learned that is okay to ask questions. To be your own advocate. I also had to take accountability for my care and be a diligent patient. Make my appointments, document my illness, discuss concerns and follow my treatment plan. And also to be okay if something is not working and trying something else. The same diagnosis does not mean the same care. Listen to what your body is telling you and discuss it with your provider. A road map to autoimmune diseases does not exist. They affect people differently. Document your path and find the practitioner that will listen, answer questions and work on creating your personal road map and treatment plan. What are you most passionate about in regard to your work/helping people? No one wants to get sick. The one thing I have found is everyone wants to have more time. More time to create experiences and lasting memories. More time to love and be loved. I believe we all have a collective responsibility to help people any way we can. I want people to know they are not alone. I want to create a connection that comes from heart. I am passionate about providing hope and more good days to anyone I touch.   CLICK HERE FOR FULL TRANSCRIPT.   PLEASE SUPPORT US BY:  SHARING WITH LOVED ONES 😍 SUBSCRIBING + LEAVING A RATING & REVIEW 👍 DON’T FORGET TO LISTEN & SUBSCRIBE TO EACH OF OUR PODCASTS: EXPLICITLY SICK WITH MONICA HUMANCARE WITH EVA DISCOMFORT ZONE WITH JASON SEX AND CHRONIC ILLNESS WITH DR. LEE CHECK OUT OUR OFFICIAL INVISIBLE NOT BROKEN FACEBOOK PAGE AND OUR INSTAGRAMS! @HUMANCARE_PODCAST @DRLEEPHILLIPS @DZONEPODCAST @EXPLICITLYSICK

    1h 15m

  3. 05/04/2021

    Chronic Illness Trauma Treatment With Mindfulness: Veronique Mead

    Chronic Illness Trauma Treatment With Mindfulness: Veronique Mead “There are things like a mindfulness practice where you actually look at and work with and practice being with yourself as you are without judging and that's part of how I discovered my first triggers- by really paying attention and not thinking about my body is broken, but thinking about it as responding intelligently to what's going on in the world.” – Veronique Mead About Veronique: Veronique Mead was an Assistant Professor of Family Medicine and a practicing physician when she changed careers to retrain as a Somatic Trauma Therapist.  For the past 20 years she has been integrating the science and her personal journey of gradual recovery from disabling chronic fatigue syndrome into a new model for making sense of chronic illnesses of all kinds. Her research explains how effects of trauma are not psychological as is still often mistakenly believed. Veronique shares the model and science she never learned in her medical training on her blog, Chronic Illness Trauma Studies.   In this episode, Veronique, and Eva discuss: Approaches for addressing trauma The impact that trauma can have on relationships Listening to your body when seeking treatment   Time Stamps: 3:17 Veronique’s Journey with CFS 39:17 Factors that will help with your healing journey 46:26 The importance of listening to your body during your healing journey 51:51 What are some important things to know about trauma therapy? 59:05 Unrecognized trauma and its impact that it can have on your body. 1:07:16 How has trauma affected your relationships? Veronique’s links:  Website: https://chronicillnesstraumastudies.com/ Linkedin: https://www.linkedin.com/in/veroniquemeadillnessblog/ Facebook:  https://www.facebook.com/chronicillnesstraumastudies/ Youtube: https://www.youtube.com/channel/UCh-ng96Ji8rJSIJdXjCpCqA/videos     CLICK HERE FOR FULL TRANSCRIPT.   PLEASE SUPPORT US BY:  SHARING WITH LOVED ONES 😍 SUBSCRIBING + LEAVING A RATING & REVIEW 👍     DON’T FORGET TO LISTEN & SUBSCRIBE TO EACH OF OUR PODCASTS: EXPLICITLY SICK WITH MONICA HUMANCARE WITH EVA DISCOMFORT ZONE WITH JASON SEX AND CHRONIC ILLNESS WITH DR. LEE CHECK OUT OUR OFFICIAL INVISIBLE NOT BROKEN FACEBOOK PAGE AND OUR INSTAGRAMS! @HUMANCARE_PODCAST @DRLEEPHILLIPS @DZONEPODCAST @EXPLICITLYSICK

    1h 15m

  4. 04/13/2021

    Researcher & Patient Collaboration to Humanize Care

    Researcher & Patient Collaboration to Humanize Care: Ella Basala “ People really do accept and like us for who we are. It has taken a long time to understand that. As a younger person dealing with a chronic illness, that was definitely an inhibitor for me to make these close relationships and to just to be myself.“ – Ella Basala About Ella: Ella Balasa is a patient advocate and a person living with cystic fibrosis. Diagnosed at 18 months old, cystic fibrosis (or “CF”) is a life-limiting, invisible, chronic, and rare lung disease. Before digging into Ella and her background, I want to shed some more light on what it means to have CF to give you all some context: Since early childhood, Ella has had countless hospitalizations to receive intravenous antibiotics to treat the lung infections that are the hallmark of the disease. These infections deteriorate the lung tissue over time, reducing function, and ultimately leading to failure requiring a double lung transplant to prolong life. Her disease is becoming visible as she requires using supplemental oxygen with physical activity. But despite having 28% lung function, she’s never let it be her excuse.With an academic background in biology, Ella is an advocate for the development of novel therapies for the treatment of antibiotic-resistant infections. She has spoken publicly about the value of patient voice in research as well as her experience with phage therapy (which we’ll talk about) as a previous speaker at the FDA, the Milken Institute's Future of Health Summit, and other conferences. She is deeply involved in the CF community through being a director of the US Adult CF Association, serving as a member of research committees for the CF Foundation, and through her passion for writing. Ella writes about her research experiences and introspectively about the hardships, yet triumph that comes with living with a chronic illness. Through these opportunities, she provides a scientific voice and hopes to encourage empowerment in patient communities. In her free time, Ella enjoys cooking, drawing, spending time with friends, and traveling when she can.  To learn more about her work and experiences visit, www.ellabalasa.com.   In this episode, Ella and Eva discuss: Patient Empowerment in the world of research The overlooked patient-researcher relationship The formation of research (and all) relationships through vulnerability Links to Visit: Ella’s Website: www.ellabalasa.com Twitter: @ellabalasa1 Instagram: @thisgirlella Time Stamps: 3:00 Ella’s Journey with CF 5:42  The role of relationships In Ella’s Journey 7:33 Ella’s personal journey to self acceptance 8:58 The aspect of vulnerability in relationships 10:20 Ella’s experience with connecting through vulnerability 17:27 Is vulnerability in the doctor-patient relationship the same as in research? 19:49 The disconnect of researcher vulnerability 22:17 Ella’s experience with advocacy work 26:28 Why is there a shortage of self advocacy in healthcare? 36:57 How to take action in the researcher-patient relationship as a patient 38:21 How to break the patient language vs. researcher language barriers 48:33 How can patients better self advocate? 53:00 What have you learned from your experience with CF?   CLICK HERE FOR FULL TRANSCRIPT. PLEASE SUPPORT US BY:  SHARING WITH LOVED ONES 😍 SUBSCRIBING + LEAVING A RATING & REVIEW 👍

    59 min

  5. 03/30/2021

    Two Being Healthy and Social: Em and Kate Miller

    Two Being Healthy and Social: Em & Kate Miller “ I feel like we all want this deep human connection and you're not going to have a deep connection without intimacy. “ – Emily Miller  About Em and Kate: Eva was joined this week by Emily and Kate MIller. Emily and Kate are two sisters who have each been diagnosed with multiple chronic illnesses. They started a blog called Two Being Healthy that aims to share tips and advice about navigating the chronic illness world while promoting patient advocacy.   In this episode, Kate, Emily, and Eva discuss: Effective communication in your relationships with chronic illness Working through the “trial and error” period of treatment The importance of emphasizing self-care Links to Visit: Two Being Healthy Blog: https://www.twobeinghealthy.com/ Two Being Healthy YouTube channel: http://bit.ly/2TOvA7E Doctors Appointment – Our Top 10 Tips! : http://bit.ly/2sO6DxX Instagram: @twobeinghealthy Time Stamps: 22:31 The “Why?” of Two Being Healthy 35:00 Chronic illness and being honest with others (And yourself) 43:00 What tips do you have for communication with friends and family? 1:03:00 Healthier communication with others (for yourself) [Guest’s] links:  Website: TwoBeingHealthy.com Instagram: @TwoBeingHealthy Twitter: @TwoBeingHealthy     CLICK HERE FOR FULL TRANSCRIPT. PLEASE SUPPORT US BY:  SHARING WITH LOVED ONES 😍 SUBSCRIBING + LEAVING A RATING & REVIEW 👍

    1h 11m

  6. 03/16/2021

    Doctor Dating Game: Joe Balewski

    Doctor Dating Game: Joe Balewski “What you have to look for in a doctor is not somebody who gives you the diagnosis that you want. It’s finding the doctor who listens.” – Joe Balewski About Joe: Eva was joined this week by Joe Balewski. Joe is no stranger to the healthcare system - he has a lifetime of experience with Osteogenesis Imperfecta and, most recently, 13 years with Postural Orthostatic Tachycardia Syndrome. This past year, Joe started a practical chronic illness podcast called THE CHRONIC ILLNESS PLAYBOOK where he interviews Spoonies about the practices that get them through the day. In this episode, Joe and Eva discuss: The doctor-patient “Dating game” The importance of having human interactions with your doctor The path to getting a diagnosis (With POTS)   Timestamps: 07:15 The trial and error period of your first diagnosis 15:00 What started “The Chronic Illness playbook” 26:15 Getting diagnosed with Osteogenesis  54:24 The similarities of the doctor-patient relationship and a romantic relationship 1:16:07 The reality of finding a good doctor Joe’s links:  Instagram: @chronicillnessplaybook Facebook: @ChronicIllnessResourceGuide Bonus questions: What are your top 3 tips for someone who is undiagnosed but they know that something is “off”?  Listen to your body; Take notes; Be patient. If you could have a giant billboard, metaphorically speaking, that could get a message out to millions or billions of people, what would it say and why? It could be a few words, a sentence or a few. It can be your quote or, if helpful, someone else’s quote. (i.e. Is there any quote you think of often or live your life by?) “Motivation is fleeting. Fall in love with the process.”   CLICK HERE FOR FULL TRANSCRIPT.   PLEASE SUPPORT US BY:  SHARING WITH LOVED ONES 😍 SUBSCRIBING + LEAVING A RATING & REVIEW 👍     DON’T FORGET TO LISTEN & SUBSCRIBE TO EACH OF OUR PODCASTS: EXPLICITLY SICK WITH MONICA HUMANCARE WITH EVA DISCOMFORT ZONE WITH JASON SEX AND CHRONIC ILLNESS WITH DR. LEE CHECK OUT OUR OFFICIAL INVISIBLE NOT BROKEN FACEBOOK PAGE AND OUR INSTAGRAMS! @HUMANCARE_PODCAST @DRLEEPHILLIPS @DZONEPODCAST @EXPLICITLYSICK

    1h 11m

  7. 03/02/2021

    Gender, Race and Relationships (with Endometriosis): Lauren Kornegay

    Gender, Race, and Relationships (And Endometriosis): Lauren Kornegay “I never recommend advocacy for anybody who is not focused on themselves first. Because it is not an easy process. It is very overwhelming sometimes and you have to make sure that you are helping yourself because how are you going to help someone else if you aren’t helping yourself?”  – Lauren Kornegay About Lauren: Eva was joined this week by Lauren Kornegay. A native of Oxon Hill, MD, Lauren R. Kornegay is the Founder and Executive Director of Endo Black, Inc. Diagnosed with endometriosis at the age of 20, Lauren experienced the pain, struggles, exhaustion, and confusion accompanying the disorder. In October of 2015, she started her journey and created ENDO Black, a platform designed to connect women of color affected by endometriosis together. In January, Lauren released “Your Personal Journey Log for Endometriosis”, a step-by-step guide on effectively tracking your endometriosis, and launched Your Favorite Endometriosis Coach, where she offers one on one sessions, planning sessions, and group coaching for people affected by endometriosis.   In this episode, Lauren and Eva discuss: Race and gender struggles for patients in the medical field. Self advocacy in your medical journey. The importance of telling your doctor all of the details.   Timestamps Introduction 4:26  What is Endometriosis? 4:56 Lauren’s story 7:10 Racial stereotypes in the field of healthcare  26:58 The importance of communicating with your doctor 46:59 Tips on advocating 51:16 Conclusion 1:14:18 Lauren’s links:  Website: laurenkornegay.com and endoblack.org Instagram: @iamlaurenrenee and @endo_black Facebook: FACEBOOK Twitter: TWITTER   Additional Interview Questions: How has your disorder affected your relationships?   Surprisingly, endometriosis has mainly affected my relationships in a positive way. My friends and family members are extremely supportive of me and the struggles I face with endometriosis.  What is your best coping mechanism or health "life hack"? For me, I believe that my coping mechanism or health “life hack” is monitoring my self-care and learning to say No. What are your top 3 tips for someone who is undiagnosed but they know that something is “off”? Top three tips are to get diagnosed, to don’t take no for an answer and to always get a second, or third option is necessary.  CLICK HERE FOR FULL TRANSCRIPT.   PLEASE SUPPORT US BY:  SHARING WITH LOVED ONES 😍 SUBSCRIBING + LEAVING A RATING & REVIEW 👍     DON’T FORGET TO LISTEN & SUBSCRIBE TO EACH OF OUR PODCASTS: EXPLICITLY SICK WITH MONICA HUMANCARE WITH EVA DISCOMFORT ZONE WITH JASON SEX AND CHRONIC ILLNESS WITH DR. LEE CHECK OUT OUR OFFICIAL INVISIBLE NOT BROKEN FACEBOOK PAGE AND OUR INSTAGRAMS! @HUMANCARE_PODCAST @DRLEEPHILLIPS @DZONEPODCAST @EXPLICITLYSICK

    1h 16m

  8. 02/16/2021

    Announcement: [Human]care Stories

    Humancare Stories: An awareness and conflict resolution project.   The Humancare Stories segment will be a collection of anonymously contributed stories from listeners like you, about negative interactions experienced within the context of healthcare – whether that be an interaction with a patient, provider, loved one, or stranger.   For example, subitted stories could be about a disheartening dialogue with a doctor, an offensive conversation with a romantic partner, or even an infuriating exchange with someone in a waiting room. Essentially any person-to-person interaction related to one’s health journey.   After the submission of a story through voice recording, these stories are validated and dissected before being published on the Humancare podcast. (All submissions, will be reviewed although only a select few stories will be chosen to be published.)   For those that are, these episodes will begin by playing the original recording of the story.   Then as the host, I will analyze “what happened” from both a factual and experiential viewpoint.   From there, I will present to you, the listeners, thought-provoking reflection questions paired with insights from a board of advocates, as well as tools and suggested resources   – all of which aim to stimulate a potentially different way of looking at the story told that best serves both parties involved.   The purpose is to be both supportive and proactive.   It isn’t about choosing sides. It isn’t about being right or wrong. It’s about shedding the labels. It’s about removing the ego.   It's about seeing one’s self as human, seeing that other person as human – as awful as the interaction may have been - and finding a common ground as two humans.   I am looking to encourage listeners, like you, to adopt tools to mentally, emotionally and physically prepare you for similar situations in your lives going forward.   I hope to provide you with alternative options in terms of actions and reactions so that you can feel a greater sense of control going forward.   I believe that if we individually shift our approach to these often angering, upsetting, frustrating interactions, that we can collectively and collaboratively shift the broken relationship dynamics within healthcare as a whole.   Again, it isn’t about choosing sides. It isn’t about blame or shame. No one wins in these interactions. No one.   The way we approach these difficult conversations need to change. You know it. I know it. We all know it.   At the end of the day, relationships in the context of healthcare are between two humans just like any relationship.   And that’s ultimately the purpose of this project:   to humanize healthcare first through humanizing our stories.     If you are open to sharing your story with the community, text “I want to share my story” to 585-484-0232. From there I will send you the submission requirements.   While I will need to be in contact with you to receive your recording, all stories will be published anonymously.   Thanks again for being supporters of the Humancare podcast and our mission to humanize healthcare.

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4.9
out of 5
17 Ratings

About

Podcast featuring conversations with health entrepreneurs, care professionals, patient advocates, and industry changemakers. What do they all have in common? The mission to humanize healthcare by exploring the disconnect in relationships. --- Hosted by Eva Minkoff. Part of the Invisible Not Broken Podcast Network.

Information

  • Creator
    Eva Minkoff
  • Years Active
    2020 - 2021
  • Episodes
    23
  • Rating
    Explicit
  • Show Website
    Humancare