HypoPara Unscripted

hypoparaunscripted
  • 5,0 (8)
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HypoPara Unscripted brings together experts and patients for meaningful, honest, candid conversations about living with hypoparathroidism, a rare condition of the hypoparathyroid glands (4 tiny endocrine glands in the neck) which which make a hormone that regulates calcuim and phosphorus levels in the blood. From treatments and advances to real life challenges and resilience, the goal of this podcast is simple: to educate, empower and connect the hypopara community.  Hosted by Patty Keating, patient advocate and director of the Hypoparathyroidism Association, this podcast will bring a better understanding of hypopara as well as hope to all who are living with this difficult rare disease. New podcast weblog

Episódios

  1. há 5 dias

    More Than a Pharmacy; The Team Behind Your Treatment

    What makes specialty pharmacy so special? In this episode of HypoPara Unscripted, Patty speaks with Katie Gillick, patient advocate at Orsini Specialty Pharmacy living with HypoPara, and pharmacist Michelle Hamblin to show us how they get the only FDA approved HypoPara treatment in the hands of patients.  Together, Katie and Michelle tell us how specialty pharmacies are different from retail drug stores, including patient support, monitoring for side effects and working with insurance companies, making it clear that although starting a new treatment can feel overwhelming you won't have to navigate it alone!    Katie shares her own personal journey with HypoPara which shapes the care she gives to others, helping to carry out Orsini’s promise that no patient will ever be left behind.

    23 min

  2. 31 de mai.

    Name It, Claim It, Tame It: Heather Novak’s HypoPara Journey

    In honor of World Hypopara Day, Patty sits down with patient advocate and award-winning author Heather Novak for an inspiring conversation about finding purpose while living with the challenges of a rare disease. Heather shares her remarkable journey as a teenager with unexplained broken bones to a diagnosis of hyperparathyroidism, until after she had surgery, when she woke up with hypoparathyroidism. Heather opens up to Patty about how she was misunderstood for so many years. Medical professionals downplayed and misdiagnosed her symptoms; dismissing them as anxiety and stress which has impacted her mentally and emotionally to this day. But for Heather, writing became both a creative outlet and a source of hope, allowing her to advocate for others living with chronic illness while pursuing her dream of being a best selling novelist. This episode is a powerful reminder that while hypoparathyroidism may be part of your story it doesn’t have to define your future when you name it, claim it and tame it.

    24 min

  3. 30 de abr.

    One Diagnosis, Three Lives, One Powerful Pivot

    In this episode of Hypopara Unscripted, Patty welcomes a cast of characters; three inspiring women who share how hypoparathyroidism brought them together and changed their lives forever.  If you have ever felt alone in your diagnosis, this episode is a reminder that through the power of friendship and connection you are not. From shocking diagnoses to a true sisterhood; Liz, Chrissy, and Lisa’s bond, love and support of each other have countered their worries, fears and challenges of living with this difficult and rare condition.  Indulge in this uplifting conversation about togetherness, hope and remembering that in order to make the most of life, you may sometimes need to ‘pivot’! To reach Patty for questions and comments you are welcome to email: pkeating@hypopara.org

    30 min

  4. 26 de mar.

    More Than What the Labs Show - a Conversation with Hypopara Expert Dr. Rubin

    In this second episode of HypoPara Unscripted, Patty talks with expert Dr. Rubin about all things hypopara. From the “SHINE” study (a research history examination of participating hypopara patients), to the real-life challenges patients live with every day, Dr. Rubin explains the effects hypopara has on bone health, brain fog, fatigue, and cognitive function. Join Patty and Dr. Rubin as she encourages self advocacy, explains how patients sometimes just don't "feel right” even though lab results look “normal” and she shares the quality of life potential with PTH based therapies. Dr. Rubin’s insight and compassion blended with Patty’s profound patient perspective offers hope, validation and a deeper understanding of what it truly means to live with hypoparathyroidism. To get in touch with Patty Keating, Executive Director of the Hypoparathyroidism Association, please email her at pkeating@hypopara.org

    28 min

  5. 26 de fev.

    Hope, Hormones and Hypopara: A Candid Conversation With Dr. Michael Mannstadt

    In this premiere episode of HypoPara Unscripted, your host Patty Keating, Executive Director of the Hypoparathyroidism Association as well as a post-surgical hypopara patient herself, talks with world-renowned endocrinologist Dr. Michael Mannstadt. Together, they uncover how hypoparathyroidism care has evolved, the breakthroughs in genetics, PTH therapy improvements and why validation and respect mean so much to hypopara patients. This honest, hopeful and compelling first episode of Hypopara Unscripted represents a true triumph for those living with hypoparathyroidism and their providers!

    23 min
  • 5 episódios

Classificações e avaliações

5
de 5
8 avaliações

Sobre

HypoPara Unscripted brings together experts and patients for meaningful, honest, candid conversations about living with hypoparathroidism, a rare condition of the hypoparathyroid glands (4 tiny endocrine glands in the neck) which which make a hormone that regulates calcuim and phosphorus levels in the blood. From treatments and advances to real life challenges and resilience, the goal of this podcast is simple: to educate, empower and connect the hypopara community.  Hosted by Patty Keating, patient advocate and director of the Hypoparathyroidism Association, this podcast will bring a better understanding of hypopara as well as hope to all who are living with this difficult rare disease. New podcast weblog

Informações

  • Criado por
    hypoparaunscripted
  • Anos de atividade
    2 mil
  • Episódios
    5
  • Classificação
    Livre
  • Copyright
    © Copyright 2026 All Rights Reserved
  • Site do podcast
    HypoPara Unscripted