300 episodes

Daily, digital coverage of the latest SMA news and perspectives.

SMA News & Perspectives SMA News Today

    • Health & Fitness
    • 5.0, 4 Ratings

Daily, digital coverage of the latest SMA news and perspectives.

    Plans Advance for Biomarkers Panel to Assess Drug-induced Skeletal Muscle Injury

    Plans Advance for Biomarkers Panel to Assess Drug-induced Skeletal Muscle Injury

    SMA News Today’s multimedia associate, Price Wooldridge, discusses plans being advanced for a biomarkers panel to assess drug-induced skeletal muscle injury in SMA.

    Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/

    • 4 min
    #63 - Interview With Hugo Trevino

    #63 - Interview With Hugo Trevino

    In episode 63, host Kevin Schaefer talks with Hugo Trevino from Chicago, Illinois. Hugo is a disability advocate and an academic advisor for students with disabilities at the University of Illinois in Chicago, and he has SMA Type 3. Kevin and Hugo talk about advocacy, school experiences, ableism and more. Also, hear the story of how Hugo and his sister had to fight for a ramp so they could get on stage for their high school graduation.

    To learn more about spinal muscular atrophy, visit our website at http://www.smanewstoday.com.

    • 49 min
    The First Few Days of The 31 Days of SMA Initiative & A Story On Dating and Disability

    The First Few Days of The 31 Days of SMA Initiative & A Story On Dating and Disability

    Forums Director Kevin Schaefer reads from one of the stories from our 31 Days of SMA initiative. This story focuses on dating and disability. Also, DeAnn Runge gives an overview of the first few days of the 31 Days of SMA initiative.

    Are you interested in learning more about spinal muscular atrophy? If so, please visit smanewstoday.com/

    • 5 min
    Greatest Loss of Motor Skills at Ages 5 to 13 In SMA Type 2 Patients & Wheelchair Evaluation

    Greatest Loss of Motor Skills at Ages 5 to 13 In SMA Type 2 Patients & Wheelchair Evaluation

    SMA News Today’s multimedia associate, Price Wooldridge, discusses the greatest loss of motor skills at ages 5 to 13 in SMA Type 2 patients.

    Now that DeAnn Runge had her wheelchair evaluation she has to decide what wheelchair will best suit her needs.

    Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/

    • 9 min
    Biogen is Planning to Launch a First Trial, Testing Spinraza in Children Previously Given Zolgensma

    Biogen is Planning to Launch a First Trial, Testing Spinraza in Children Previously Given Zolgensma

    SMA News Today’s multimedia associate, Price Wooldridge, discusses the news Biogen is planning to launch a first trial, testing Spinraza in children previously given Zolgensma.

    Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/

    • 5 min
    Thinking Ahead, Disability vs. Disease & Diverse Reading Selections

    Thinking Ahead, Disability vs. Disease & Diverse Reading Selections

    Forums Director Kevin Schaefer talks about taking on extra responsibilities while his Mom recovers from surgery.

    Welcome to all of the new forum members. This week on the forums some of the topics being discussed include thinking ahead, disability vs. disease and diverse reading selections.

    Are you interested in learning more about spinal muscular atrophy? If so, please visit smanewstoday.com/

    • 6 min

Customer Reviews

5.0 out of 5
4 Ratings

4 Ratings

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