AAMDSIF Podcasts for Patients

The Aplastic Anemia and MDS International Foundation

"Podcasts for Patients" from the Aplastic Anemia and MDS International Foundation features interviews with Bone Marrow Failure Specialists and Patients For more, see our podcast page at: https://www.aamds.org/podcast/

  1. Barry Parnas - Podcast Episode EDIT

    May 4

    Barry Parnas - Podcast Episode EDIT

    Listen to Barry describe the diagnosis, watch-and-wait, treatment, and survivorship for MDS, or Myelodysplastic Syndromes

    16 min
  2. FDA Approves Omisirge to Treat Patients with Severe Aplastic Anemia

    May 4

    FDA Approves Omisirge to Treat Patients with Severe Aplastic Anemia

    Learn from Dr. Richard Childs, RADM, as he explains the FDA approval of Omnisirge for treating patients with Severe Aplastic Anemia, or SAA.

    19 min
  3. Pediatric Nurse Finds her Way through Aplastic Anemia Treatment

    02/13/2025

    Pediatric Nurse Finds her Way through Aplastic Anemia Treatment

    Claire was a NICU nurse, so she had never experienced a pattient with Aplastic Anemia. Then, she became a patient herself. Find out how she learned she was stronger than she knew in this episode.

    14 min
  4. MDS and Keeping Hope - Donna's Story

    01/27/2025

    MDS and Keeping Hope - Donna's Story

    When Donna picked up a Hope Stone at her first AAMDSIF Patient and Family Conference, she couldn't foresee that she would be carrying it in her pocket on all challenging days. Listen here as Donna shares how she found hope while dealing with MDS, or Myelodysplastic Syndromes. For more content like this, please follow the AAMDSIF Podcast for Patients on Soundcloud, Apple Podcasts, Google Play, Spotify, or the website: https://www.aamds.org/education/podcast-episodes

    27 min
  5. Long, Hard, Road to Diagnosis - Shaquilla's Story

    01/21/2025

    Long, Hard, Road to Diagnosis - Shaquilla's Story

    As an active, working, mom, Shaquilla was used to being busy, and enjoying all the activities that come with children. Then she started getting tired. She wasn't just tired; she couldn't keep up with the daily routine anymore. The visits to the doctor didn't solve the problem. When the diagnosis of PNH finally came, it wasn't any less confusing. Find out how Shaquilla became her own best advocate in her health care, and how she remains resilient in this Podcast for Patients episode.

    20 min
  6. Podcast for Patients: In Treatment for PNH - Shane's Story

    01/15/2025

    Podcast for Patients: In Treatment for PNH - Shane's Story

    Pain. Blood Clots. Diagnosis. Listen to Shane describe his journey to diagnosis, then to ongoing, successful, treatment in this recent episode. He will inspire you to advocate for yourself, and to keep focused on your needs. To listen to more podcast episodes, please subscribe on Apple Podcasts, Google Play, SoundCloud, Spotify, or listen on the AAMDSIF website here: https://www.aamds.org/education/podcast-episodes.

    23 min
  7. FDA Approval of PiaSky for Pediatric Patients with PNH

    07/09/2024

    FDA Approval of PiaSky for Pediatric Patients with PNH

    Dr. Satheesh Chonat describes the use of this medication for pediatric patients with PNH, or paroxysmal nocturnal hemoglobinuria. For more podcast episodes like this, please visit aamds.org/podcast (https://www.aamds.org/education/podcast-episodes).

    9 min
  8. New Drug Approval for PNH Patients - PiaSky

    07/09/2024

    New Drug Approval for PNH Patients - PiaSky

    Dr. Carlos De Castro describes the use of this medication for patients with PNH. Listen now. For more podcast episodes like this, please visit aamds.org/podcast-episodes (https://www.aamds.org/education/podcast-episodes)

    7 min
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Ratings & Reviews

5
out of 5
2 Ratings

About

"Podcasts for Patients" from the Aplastic Anemia and MDS International Foundation features interviews with Bone Marrow Failure Specialists and Patients For more, see our podcast page at: https://www.aamds.org/podcast/

Information

  • Creator
    The Aplastic Anemia and MDS International Foundation
  • Years Active
    2019 - 2026
  • Episodes
    63
  • Rating
    Clean
  • Copyright
    © All rights reserved
  • Show Website
    AAMDSIF Podcasts for Patients