Pathfinders Podcast - Life and the world with a muscle-weakening condition

Dr Jonathan Hastie
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  • Society & Culture

Pathfinders Neuromuscular Alliance is the first organisation in the world run by and for adults with muscle-weakening conditions. Our Pathfinders talk about life and the world from the perspective of an adult with a muscle-weakening condition, in a society not made with us in mind.

Episodes

  1. 09/30/2022

    Pathfinders Podcast with Sanjeev Mann & Gianluca Luisi - Episode 6: Food

    In the sixth episode of the Pathfinders Podcast Sanjeev and Gianluca discuss food;  their Italian and Indian favourites, cooking and eating out.

  2. 08/05/2022

    Pathfinders Podcast with Sanjeev Mann & Gianluca Luisi - Episode 5: Independence

    In the fifth episode of the Pathfinders Podcast Sanjeev and Gianluca discuss independence; what it means to them, acceptance, the impact of the care crisis on them, their dream home, pros and cons of living with parents & Pathfinders PA training.

  3. 07/08/2022

    Pathfinders Podcast with Sanjeev Mann & Gianluca Luisi - Episode 4: Representation

    In the fourth episode of the Pathfinders Podcast Sanjeev and Gianluca discuss representation in the media and video games; their favourite movies, role models, theatre accessibility, opportunities in the arts, disabled video game characters and the potential for development disability sports games and accessing games.

    Pathfinders Podcast with Sanjeev Mann & Gianluca Luisi - Episode 4: Representation

  4. 06/24/2022

    Pathfinders Podcast with Sanjeev Mann & Gianluca Luisi - Episode 3: Mental health

    In the third episode of the Pathfinders Podcast Sanjeev and Gianluca discuss their mental health.

  5. 06/10/2022

    Pathfinders Podcast with Sanjeev Mann & Gianluca Luisi - Episode 2: Social life

    In the second episode of the Pathfinders Podcast Sanjeev and Gianluca discuss their social lives; what they like to do, accessibility and limitations, driving, PA support, buses and planes, favourite destinations, tips for flying and their funny holiday stories.

  6. 05/27/2022

    Pathfinders Podcast with Sanjeev Mann & Gianluca Luisi - Episode 1: Football

    In the first episode of the Pathfinders Podcast meet Sanjeev and Gianluca and hear them talk about their love of football; their teams, stadium access, favourite players, favourite football moments, tips for disabled football fans & powerchair football.

    Pathfinders Podcast with Sanjeev Mann & Gianluca Luisi - Episode 1: Football

  7. 01/26/2021

    Pathfinders Podcast Episode 3: Disability in Movies

    We talk about The Upside, Untouchable, The Fundamentals of Caring, Inside I'm Dancing, Cinemability, Ironside, When You Remember Me, Me Before You and Crip Camp. Our thoughts on how disability is portrayed.

  8. 07/10/2020

    Pathfinders Podcast Episode 2: Living Life to the Max

    For our second episode Phillip and Jon are joined by musician and adult with DMD Alex James, who talks to us about his new single Direction and life as a musician with DMD. Alex James' single is available on spotify here: https://open.spotify.com/album/0LNlndSYFJr4yG1N9BKS4d?si=KOR2GODbTVawGIW0zp2kWA

    Pathfinders Podcast Episode 2: Living Life to the Max

  9. 06/10/2020

    DMD Pathfinders podcast with Phillip Carroll - Life and the World with Duchenne

    In our pilot podcast episode, DMD Pathfinders discuss life and the world with Duchenne. Phillip Carroll hosts Jon Hastie and Mark Chapman, cofounders of DMD Pathfinders who talk about their personal journey with Duchenne, travel, road trips and flying with a wheelchair.

    DMD Pathfinders podcast with Phillip Carroll - Life and the World with Duchenne
  • 9 Episodes

About

Pathfinders Neuromuscular Alliance is the first organisation in the world run by and for adults with muscle-weakening conditions. Our Pathfinders talk about life and the world from the perspective of an adult with a muscle-weakening condition, in a society not made with us in mind.

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