Arthritis At Home (+ On the Go)

Arthritis Consumer Experts
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Arthritis At Home (+ On the Go) makes it possible for people living with arthritis to watch or listen to interviews with Canadian experts in clinical rheumatology, arthritis scientists, physio and occupational therapists, psychologists and health economists, as well as patient experts and advocates. We hope you find Arthritis At Home informative and fun as you live your best life with arthritis.

  1. 3d ago

    An update on unmet needs in pediatric rheumatology

    In this Arthritis At Home interview, we are sharing the #CRArthritis with Dr. Michelle Batthish, Associate Professor in Pediatrics at McMaster University, and Dr. Karen Beattie, Research Manager in Pediatrics at McMaster University, about unmet needs in pediatric rheumatology. The duo shares highlights from their feasibility study titled “Transition to Adulthood through coaching and empowerment in rheumatology (TRACER): A feasibility study protocol.” In the study, young adults transitioning to adult rheumatology care were able to connect with a coach to walk them through all matters relating to transitioning to adult rheumatology care. Michelle and Karen hope that by sharing this study, they will be able to gain interest in conducting similar studies across Canada in order to benefit youths in different areas of Canada. Additional learning resources  Road to Adult Arthritis CarePreparing for the transition from pediatric to adult care and beyondYouth Transition Road MapHelping You Reach Your Transition Goals guideParent and Caregiver Reference Guide

  2. Oct 22

    Immunoglobulin G4-related disease (IgG4-RD): Symptoms and treatments

    In this Arthritis At Home interview, we are sharing the #CRArthritis with Dr. Andreu Fernández-Codina, Assistant Professor in the Department of General Internal Medicine at Windsor Regional Hospital Manitoba. He defines what IgG4-RD is.  IgG4-RD affects about 10-12 out of 100,000 people and could lead to dysfunction of some organs and cause masses. It is often mistaken for cancer. Diagnosing it requires a biopsy because it allows health care providers to provide the right treatment in a timely matter. The diagnosis process may also require help from multiple specialists, including but not limited to ear-nose-throat specialists, neurologist, respirologist, and imaging experts.  Common symptoms include swelling of the pancreas, jaundice caused by stones or pancreatic cancer, and swollen eyes or face. Sjogren’s patients often end up getting IgG4-RD. If treated early, IgG4-RD is treatable and manageable. Treatment include prednisone, steroids, oral medications such as methotrexate to keep the disease asleep, rituximab, and inebilizumab.   Additional learning resources IgG4ward! Patient & Caregivers (based in the USA) Development of an algorithm for IgG4-related disease managementThe Diagnostic Dilemma in IgG4-RD: Why does getting to the right diagnosis sometimes take so long?

  3. Oct 15

    IgG4 related disease: Diagnosis and management

    In this Arthritis At Home, we are sharing this year’s #CRArthritis with Dr. Mollie Carruthers, Clinical Assistant Professor in the Division Rheumatology at the University of British Columbia.   Dr. Carruthers discusses her collaborative workshop at this year’s meeting where she and her colleague share the progress that has been made in identifying, diagnosing, and treating IgG4-related disease (IgG4-RD). It is difficult to diagnose IgG4-RD as many symptoms mimic other diseases, and it is a very rare disease. She stresses the importance of having champions for IgG4-RD across different areas of Canada so that we can hear from others who have expertise and experience with IgG4-RD. Currently, Dr. Carruthers is working on building a Canadian IgG4-related disease network.   Additional learning resources   IgG4ward! Patient & Caregivers (based in the USA)IgG4-Related Disease 2019 ACR/EULAR Classification CriteriaIgG4-Related Disease Calculator 2019

  4. Oct 8

    CRA/CanRIO living guidelines, neutrophil serine protases, and tips for patients

    In this Arthritis At Home interview, we are sharing the #CRArthritis with Dr. Liam O'Neil, Assistant Professor of internal medicine at the Max Rady College of Medicine at the University of Manitoba. Dr. O'Neil highlights key points from his workshop and presentation at this year’s meeting. His workshop, titled “CRA/CanRIO Living Guidelines for the Management of Baseline Immunosuppression for Pre-existing Rheumatic Diseases”, looks at the fine balance between immunosuppressant medications in rheumatic disease and immune checkpoint inhibitors drugs in cancer treatment which stimulates the immune system.  Dr. O’Neil’s podium presentation was titled “Citrullination of Neutrophil Serine Proteases Enhances Proteolytic Activity, Stability, and Autoantigenicity in Rheumatoid Arthritis”. He discusses some of the key terms and findings from his research. Lastly, Dr. O’Neil concludes by providing some tips for patients when they’re preparing for a visit with their rheumatologist. Additional learning resources Canadian Rheumatology Association/Canadian Research Group of Rheumatology in Immuno-Oncology Living Guidelines for Baseline Immunosuppression in Individuals With Preexisting Rheumatic Diseases Initiating Immune Checkpoint Inhibitors: Part 1: Preexisting Inflammatory ArthritidesPart 2: Preexisting Systemic Autoimmune Rheumatic DiseasesOptimal Management of Immune Mediated Toxicity From Cancer Therapies (Canadian Rheumatology Association)

  5. Oct 1

    Putting patients at the centre: The care transdisciplinary team in action

    In this Arthritis At Home, we are sharing this year’s #CRArthritis with Dr. Carter Thorne, Consultant Staff at Southlake Regional Health Centre in Newmarket, Ontario.  Dr. Thorne discusses his workshop titled “Putting Patients at the Centre: The Care Transdisciplinary Team in Action.” He defines what trans-professional care is and how sharing of knowledge between each professional (physical therapist, pharmacist, nurse, doctors, rheumatologists, etc.) can ensure a more holistic approach to care. In his care centre, patients’ information is in the same database whether you’re at clinic or at the office, which helps ensure everyone is on the same page. Additional learning resources Centre of Arthritis Excellence (CArE)Constructing the program theory: An implementation science approach to understanding a successful interdisciplinary team-based model of rheumatology careArthritis At Home 286 – Optimal team-based rheumatology care: Health care professionals and patients experience

  6. Sep 24

    Ms. Pippa Mennell on living with lupus

    In week four of Arthritis Awareness Month in Canada, Arthritis at Home sits down with Ms. Pippa Mennell, member of the Arthritis Research Canada Arthritis Patient Advisory Board and person living with lupus.  In this episode and on the eve of the launch of Arthritis Consumer Experts’ new education course on lupus, host Cheryl Koehn and Ms. Mennell discuss the lived experience of the lupus journey, from initial symptoms to diagnosis and treatment and all things in between. They touch on: How different the lupus experience can be from person to person and what they can learn from each otherThe unease created by disease flares and the unpredictable nature of lupusLearning to be an active partner in their own careFatigue, mental health, physical activity and pacingPregnancy, sexual health, relationships and home and at workThe importance of education and the new JointHealthTM Education course on lupusWe hope you watch this important episode on living with lupus. Additional learning resources JointHealth™ Education – LupusArthritis Research Canada’s Arthritis Patient Advisory BoardNational Survey on Lupus Report: Part Two

  7. Sep 17

    Why ACE is listening to women living with arthritis

    Sixty-seven per cent (67%) of people with arthritis are women, making it the most reported chronic disease for women in Canada, but important gaps remain in our understanding of their experiences with diagnosis, treatment and daily life. In a new Arthritis at Home episode, Arthritis Consumer Experts (ACE) President Cheryl Koehn talks about why ACE launched its National Survey on Women and Arthritis and what we hope to learn directly from women living with the disease.  Cheryl discusses some of the questions ACE wants the survey to help answer. Are women’s symptoms being taken seriously when they first seek care? Where are delays occurring between diagnosis and receiving the right treatment? How do arthritis and treatment decisions affect work, family responsibilities and different stages of a woman’s life?  She also explains how ACE plans to use the survey findings to identify gaps in care and develop specific recommendations for governments, public and private drug plans and other healthcare decision makers.  If you are a woman living with arthritis in Canada and have not yet completed the survey, we want to hear from you. The survey takes approximately 10–15 minutes, and responses are anonymous.  Click here to take the National Survey on Women and Arthritis.

  8. Sep 10

    Quebec election 2026: Putting arthritis on the ballot

    With Quebecers heading to the polls on October 5, Arthritis Consumer Experts (ACE) has launched its #Vote4Arthritis campaign to ensure the needs of people living with arthritis are part of the provincial election conversation.  In a new Arthritis at Home interview, ACE Founder and President Cheryl Koehn explains why the Quebec election is an important opportunity for people with arthritis to make their voices heard and what ACE is asking political parties and candidates to do to improve arthritis care.  The conversation looks at ACE’s election priorities, including earlier diagnosis and better access to care, timely access to advanced therapy arthritis medications, reducing surgical wait times, and improving equitable access to care across Quebec.  Watch the interview and learn how you can use your vote and your voice to help make arthritis care an election priority.  Additional learning resources  ACE’s Quebec Election PageACE Survey for Quebec Election Political PartiesQuebec Election Backgrounder

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About

Arthritis At Home (+ On the Go) makes it possible for people living with arthritis to watch or listen to interviews with Canadian experts in clinical rheumatology, arthritis scientists, physio and occupational therapists, psychologists and health economists, as well as patient experts and advocates. We hope you find Arthritis At Home informative and fun as you live your best life with arthritis.

Information

  • Creator
    Arthritis Consumer Experts
  • Years Active
    2020 - 2026
  • Episodes
    212
  • Rating
    Clean
  • Copyright
    © 2026 Arthritis At Home (+ On the Go)
  • Show Website
    Arthritis At Home (+ On the Go)

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