Arthritis At Home (+ On the Go)

Arthritis Consumer Experts
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Arthritis At Home (+ On the Go) makes it possible for people living with arthritis to watch or listen to interviews with Canadian experts in clinical rheumatology, arthritis scientists, physio and occupational therapists, psychologists and health economists, as well as patient experts and advocates. We hope you find Arthritis At Home informative and fun as you live your best life with arthritis.

  1. 4d ago

    Crohn’s and Colitis Foundation of the USA on the Patients and patents campaign

    In this episode of Arthritis At Home, host Cheryl Koehn speaks with Laura Wingate, Chief Education, Support, and Advocacy Officer of the Crohn’s and Colitis Foundation of the USA, about the Patients and patents campaign.   The interview will explore what the Crohn’s and Colitis Foundation does for patients, why the Patients and patents campaign is important for patients in the USA, and discuss ways patients can help share the information. Laura also talks about a recent webinar titled “Access to Care: Pharmaceutical Patents” that was recently published on the Foundation’s website.   Additional learning resources  Patients and patents : A grassroots education campaign on pharmaceutical patentsAbout Crohn’s and Colitis FoundationCrohn’s and Colitis Foundation’s “Access to Care: Pharmaceutical Patents” webinar

    15 min

  2. May 28

    Cardiomyopathy monitoring in antimalarials use in systemic lupus erythematosus

    May is Lupus Awareness Month in Canada, an important opportunity to raise awareness about the realities of living with lupus and the need for more comprehensive, patient-centred care. As part of ACE’s special Lupus Awareness Month programming, Arthritis at Home is featuring programming that elevate patient experiences and highlight important gaps in lupus care. In this episode of Arthritis At Home, we are sharing the #CRArthritis with Dr. Zahi Touma, a rheumatologist and clinical epidemiologist at the University of Toronto and University Health Network. Dr. Touma highlights best practices for cardiomyopathy monitoring in antimalarials use in systemic lupus erythematosus.  In the workshop he participated in with other specialists, he explained the importance of antimalarials such as Plaquenil in being the first line treatment for lupus. The workshop looked at ways to screen for adverse effects from Plaquenil, look for patterns, monitor retinol toxicity, and cardiomyopathy, a disease of the heart muscle that makes it harder for the heart to pump blood, which can lead to heart failure.  Additional learning resources  Arthritis Consumer Experts’ National Survey on Lupus Report: Part OneArthritis Consumer Experts’ National Survey on Lupus Report: Part TwoAntimalarial-Induced Cardiomyopathy in Systemic Lupus Erythematosus

    15 min

  3. May 21

    Hidden impacts of lupus on mental health, intimacy, and reproductive health

    May is Lupus Awareness Month in Canada, an important opportunity to raise awareness about the realities of living with lupus and the need for more comprehensive, patient-centred care. As part of ACE’s special Lupus Awareness Month programming, Arthritis at Home is featuring programming that elevate patient experiences and highlight important gaps in lupus care. In this episode of Arthritis at Home, Arthritis Consumer Experts (ACE) speaks with Ms. Ellen Wang, ACE’s Programs Coordinator and PhD candidate at Arthritis Research Canada, about the important findings from Part 2 of ACE’s National Survey on Lupus in Canada. The conversation explores how lupus affects areas of life that are often overlooked in healthcare conversations, including mental health, pregnancy and family planning, relationships, intimacy, confidence, and emotional wellbeing. During the interview, Ellen discusses why these issues can be difficult for patients and health care providers to talk about openly, and why more comprehensive, patient-centred lupus care is urgently needed in Canada. The episode also highlights the importance of creating safe spaces where people living with lupus feel comfortable discussing the full impact of the disease on their lives. Additional learning resources  Arthritis Consumer Experts’ National Survey on Lupus Report: Part OneArthritis Consumer Experts’ National Survey on Lupus Report: Part Two

    14 min

  4. May 14

    Toward a liquid biopsy for lupus

    In this episode of Arthritis At Home featuring lupus highlights from #CRArthritis, we are sharing our interview with Dr. Andrea Fava, Faculty Member at the Johns Hopkins Lupus Center. Dr. Fava speaks about his RheumNow presentation on how a liquid biopsy for lupus nephritis can benefit patients.  Dr. Fava defines what lupus nephritis and systemic lupus erythematosus are. He follows with a definition of what and how a liquid biopsy is done – a procedure that uses urine samples instead of taking a small sample of tissue or cell by using a needle or scalpel to remove the tissue or cell. In traditional biopsy of the kidney, low protein in the urine may not necessarily mean no inflammation. A liquid biopsy can benefit patients because it is less invasive and can predict who is responding to medication by observing trends more frequently and faster. It also reduces the risk of irreversible kidney damage, which in most cases, happens in the first 6 months.  Additional learning resources  Johns Hopkins Lupus CenterThe Rheumatologist: A liquid biopsy for lupus nephritis?Arthritis Consumer Experts’ National Survey on Lupus Report: Part One

    11 min

  5. May 7

    Fine particular matter and volatile organic compounds in air pollution and lupus risk

    May is Lupus Awareness Month in Canada! Join us this May on Arthritis At Home as we share lupus highlights from #CRArthritis 2026. Lupus is a complex autoimmune disease that affects nearly every part of life, including health, work, family and emotional wellbeing.  In this episode of Arthritis At Home, we are sharing the #CRArthritis interview with Dr. Sasha Bernatsky, a rheumatologist and James McGill Professor and senior scientist at the Research Institute of the McGill University Health Centre. Dr. Bernatsky defines what systemic lupus erythematosus is. We learn about the different types of fine particulate matter components in air pollution and how ozone can cause problems too.  She concludes by talking about the connection between environment, genetics, and exposure to air pollution and development of SLE. There are ways to protect yourself from air pollution such as looking at the air quality index and limiting your time outdoor at times of poor air quality, regular use of N95 masks, using air filters and closing windows when you are indoor during times when air quality is bad.  Additional learning resources Health Canada: Air quality and healthBC Lung FoundationVolatile organic compoundsFine particulate matter air pollution and anti-nuclear antibodies

    19 min

  6. Apr 30

    Translational science, biomarkers, and antibodies in spondyloarthritis

    In this episode of Arthritis At Home, we are excited to raise awareness for World AS Day (happening on May 2) by sharing the #CRArthritis 2026 interview with Dr. Walter Maksymowych, a Professor in the Department of Medicine and Dentistry at the University of Alberta. World AS Day is an annual day dedicated to people living with axial spondyloarthritis.  Dr. Walter Maksymowych defines what biomarkers are and why it is so important in the diagnosis of spondyloarthritis. Biomarkers can also be an indicator of something that is happening inside the body. Dr. Maksymowych concludes by highlighting some key points from his workshop on translational science.  About Dr. Walter Maksymowych  Dr. Walter Maksymowych is a Professor in the Department of Medicine and Dentistry at the University of Alberta. He is a co-founder and principal investigator at the Spondyloarthritis Research Consortium of Canada (SPARCC), a group established to develop biomarkers and imaging technologies for this form of spinal arthritis.  Additional learning resources JointHealth™ Education – Ankylosing Spondylitis Spondyloarthritis Research Consortium of CanadaArthritis Consumer Experts’ About Axial Spondyloarthritis page

    16 min

  7. Apr 23

    How imaging and therapies are reshaping large-vessel vasculitis

    In this episode of Arthritis At Home, we are excited to share the #CRArthritis 2026 interview with Dr. Jean-Paul Makhzoum, clinician-scientist specializing in vasculitis at the Hôpital du Sacré-Coeur de Montréal.  Dr. Makhzoum shares highlights from a presentation titled “Lighting up the arteries: How imaging and therapies are reshaping large vessel vasculitis”. He defines what large-vessel vasculitis, including giant cell arteritis (GCA), is and the common and severe symptoms such as vision loss, observed in large-vessel vasculitis. He stresses that it is important to get GCA diagnosed and treated in a timely manner. A model that has been effective in Montréal for people living with GCA is the GCA rapid access clinic.  About Dr. Jean-Paul Makhzoum Dr. Makhzoum is an associate professor at the University of Montreal and the Director of the Vasculitis Research Program and GCA rapid access clinic at the Hôpital du Sacré-Coeur de Montréal. Additional learning resources Learn more about large-vessel vasculitisVasculitis Foundation CanadaSONIC-GCA StudyVasculitis Clinic, Hôpital du Sacré-Coeur de Montréal

    21 min

  8. Apr 9

    Development of national clinical guidelines for transition in rheumatology

    In this episode of Arthritis At Home, we are sharing the #CRArthritis interview with Dr. Nadia Luca, an Associate Professor at the University of Ottawa who practices as a pediatric rheumatologist at the Children’s Hospital of Eastern Ontario. Dr. Luca discusses about the development of the national clinical guidelines for transition in rheumatology in Canada.  In addition, she offers valuable advice to helping children and youth living with juvenile idiopathic arthritis and their families understand the challenges of transitioning from pediatric to adult care and why standardized guidelines are so important.  Additional learning resources Arthritis Consumer Experts’ About Juvenile Idiopathic Arthritis pageRoad to Adult Arthritis CareCassie and Friends Society

    15 min
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About

Arthritis At Home (+ On the Go) makes it possible for people living with arthritis to watch or listen to interviews with Canadian experts in clinical rheumatology, arthritis scientists, physio and occupational therapists, psychologists and health economists, as well as patient experts and advocates. We hope you find Arthritis At Home informative and fun as you live your best life with arthritis.

Information

  • Creator
    Arthritis Consumer Experts
  • Years Active
    2020 - 2026
  • Episodes
    191
  • Rating
    Clean
  • Copyright
    © 2026 Arthritis At Home (+ On the Go)
  • Show Website
    Arthritis At Home (+ On the Go)