My Lupus Living Room

Lupus Foundation of America Greater Ohio Chapter

The Lupus Foundation of America, Greater Ohio Chapter welcomes you to My Lupus Living Room, a space where we get real about what it’s like to live with lupus. Join our host, chapter President and CEO, Suzanne Tierney, for candid conversations about topics that so often get overlooked. You’ll hear from our Ohio lupus community— including patients, caregivers, and medical experts— about the highs, lows, insights, and advice. Thanks for stopping by My Lupus Living Room. We hope you stay for a while.

  1. 4D AGO

    Biologic Treatments For Lupus Patients

    Dr Vicki Nahra from University Hospitals in Cleveland joins Suzanne to discuss biologic therapies available for lupus patients! Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! Alex@lupusgreaterohio.org⁠ Upcoming Events: https://linktr.ee/lupusgreateroh 🎗️ Lupus Foundation of America, Greater Ohio Chapter (LFA-GOC)We’re a 501(c)(3) nonprofit organization improving the lives of those affected by lupus through research, education, support, and advocacy.Serving lupus warriors across Ohio, we provide programs, patient education, support groups, and events like Walk to End Lupus Now.

    33 min

  2. MAR 11

    Lupus Mail Lady Uses Influence To Deliver Awareness and Hope!

    Rachelle Roy shares her journey overcoming discoid lupus, taking pride in her work and serving her community. She is well traveled, hopelessly optimistic, and a beacon of light in the community she serves! 🎗️ Lupus Foundation of America, Greater Ohio Chapter (LFA-GOC)We’re a 501(c)(3) nonprofit organization improving the lives of those affected by lupus through research, education, support, and advocacy. Serving lupus warriors across Ohio, we provide programs, patient education, support groups, and events like Walk to End Lupus Now. 💜 Get Involved:🌐 Website: https://www.lupusgreaterohio.org💰 Donate: https://www.lupusgreaterohio.org/donate 🚶‍♀️ Join a Walk: https://www.lupusgreaterohio.org/walk 🛍️ Shop RaiseRight: https://www.lupusgreaterohio.org/raiseright 🙌 Volunteer: https://www.lupusgreaterohio.org/get-involved Follow Us: Facebook: https://facebook.com/LupusgreaterOH Instagram: https://instagram.com/lupusgreaterOH Twitter/X: https://twitter.com/lupusgreateroh TikTok: https://tiktok.com/@lupusgreateroh

    24 min

  3. 09/26/2025

    Chef Finds Her Recipe For Thriving With Lupus

    Latasha has been living with lupus for the last 25 years. As a Chef by trade often working 10-12 hours per day, she has her good days and bad. Latasha shares how her unbreakable spirit and can do mindset has allowed her weather every storm and persevere! Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! Alex@lupusgreaterohio.orgRegister For "What's Up Doc?" A Virtual Lupus Q&A Panel - Visit Our Website

    50 min

  4. 08/30/2025

    Seeking Community After Lupus Diagnosis

    Jen Oster started getting a strange rash on her legs while recovering from COVID. After multiple doctors appointments, prescribed rounds of medication and testing she was diagnosed with lupus. Jen sits down with Suzanne to share what she went through along the way and ultimately how it changed her life forever. Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! Alex@lupusgreaterohio.org Walk With Jen In Cleveland on September 6th Visit Our Website

    43 min

  5. 08/28/2025

    Tackling Lupus In Recovery

    Valerie is a newly diagnosed lupus patient just beginning her journey. She shares her struggle to accept and understand her diagnosis while also in recovery from alcohol. Her story is a testament to strength, resilience, and perseverance. Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! Alex@lupusgreaterohio.org

    43 min

  6. 08/13/2025

    A Family Overcoming Lupus Together!

    Melissa shares her incredible journey with lupus and how she, and her family, have managed to find strength together to overcome many hurdles along the way! Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! Alex@lupusgreaterohio.org

    35 min

  7. 06/13/2025

    Brittney refuses to let lupus win!

    Brittney embodies the definition of a lupus warrior. 556 Days. 6 different hospitals. Countless surgeries. A lot of people may have given up. She was determined to come home. Listen to her incredible story! Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! Alex@lupusgreaterohio.org

    33 min

  8. 05/12/2025

    Lupus Patients & Caregivers Share Stories

    The Greater Ohio Chapter held the "I Got It Right" Minority Retreat Saturday April 12. Patients and caregivers from across the region celebrated Minority Health Month by learning about Reiki, Meditation, Hair Care, Yoga, and Much More!After the program concluded Sarah, Laura, and Larissa sat down with Alex to share their thoughts on the program, their journey with lupus and the community as a whole. Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! Alex@lupusgreaterohio.org

    22 min
See All (55)

Ratings & Reviews

5
out of 5
7 Ratings

About

The Lupus Foundation of America, Greater Ohio Chapter welcomes you to My Lupus Living Room, a space where we get real about what it’s like to live with lupus. Join our host, chapter President and CEO, Suzanne Tierney, for candid conversations about topics that so often get overlooked. You’ll hear from our Ohio lupus community— including patients, caregivers, and medical experts— about the highs, lows, insights, and advice. Thanks for stopping by My Lupus Living Room. We hope you stay for a while.

Information

  • Creator
    Lupus Foundation of America Greater Ohio Chapter
  • Years Active
    2020 - 2026
  • Episodes
    55
  • Rating
    Clean
  • Copyright
    © 426779
  • Show Website
    My Lupus Living Room

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