Rare Care Podcast

Rare Care Podcast

Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.

  1. An Interview With Dr. Michelle Ng Gong, New President of the American Thoracic Society

    4d ago

    An Interview With Dr. Michelle Ng Gong, New President of the American Thoracic Society

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Michelle Ng Gong, MD, president of the American Thoracic Society (ATS). Dr. Gong formally replaced Raed Dweik, MD, at the ATS 2026 conference in Orlando, Florida.

    11 min
  2. An Interview With Dr. Andrew Wilson, Scientific Director of the Alpha-1 Foundation

    May 31

    An Interview With Dr. Andrew Wilson, Scientific Director of the Alpha-1 Foundation

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Andrew Wilson, MD, scientific director of the Alpha-1 Foundation, about the latest therapies to treat alpha-1 antitrypsin deficiency, an incurable genetic disease that causes both lung and liver damage.

    8 min
  3. An Interview With Dr. Vallerie McLoughlin, Director of the University of Michigan's Pulmonary Hypertension Program

    May 26

    An Interview With Dr. Vallerie McLoughlin, Director of the University of Michigan's Pulmonary Hypertension Program

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Vallerie McLoughlin, MD, director of the Pulmonary Hypertension Program at the University of Michigan-Ann Arbor, about results of a phase 3 trial for ralinepag to treat pulmonary arterial hypertension.

    9 min
  4. An Interview With Craig Martin, Founder and CEO of the Orphan Therapeutics Accelerator

    May 18

    An Interview With Craig Martin, Founder and CEO of the Orphan Therapeutics Accelerator

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Craig Martin, founder and CEO of the Orphan Therapeutics Accelerator (OTXL) — a nonprofit biotech dedicated to advancing shelved clinical-stage therapies for ultrarare diseases.

    15 min
  5. An Interview With Henriette Farkas, Director of the Hungarian Angioedema Reference Center in Budapest

    May 14

    An Interview With Henriette Farkas, Director of the Hungarian Angioedema Reference Center in Budapest

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Henriette Farkas, MD, PhD, director of the Hungarian Angioedema Reference Center in Budapest, and a world expert on the treatment of HAE.

    13 min
  6. An Interview With Dr. Antón Blatnik on the Molecular Mechanisms Driving Neuromuscular Disease

    May 4

    An Interview With Dr. Antón Blatnik on the Molecular Mechanisms Driving Neuromuscular Disease

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Antón Blatnik, PhD, who recently won a $150,000 grant from Cure SMA to study the molecular mechanisms that drive neuromuscular disease and gene expression.

    11 min
  7. An Interview With SMA Expert and Neurologist Dr. Kathryn Swoboda

    Apr 27

    An Interview With SMA Expert and Neurologist Dr. Kathryn Swoboda

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Kathryn Swoboda, MD, faculty emerita at Massachusetts General Hospital and a neurologist and rare disease specialist who's been working on SMA for nearly 30 years.

    15 min
  8. An Interview With Dutch Neurologist Ewout Groen of SMA Europe

    Apr 20

    An Interview With Dutch Neurologist Ewout Groen of SMA Europe

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Dutch neurologist Ewout Groen, PhD, a member of the Scientific Advisory Board of SMA Europe.

    9 min
See All (238)

Ratings & Reviews

5
out of 5
2 Ratings

About

Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.

Information

  • Creator
    Rare Care Podcast
  • Years Active
    2022 - 2026
  • Episodes
    238
  • Rating
    Clean
  • Copyright
    Copyright © 2022 Haymarket Media, Inc. All Rights Reserved
  • Show Website
    Rare Care Podcast

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