Maddie's Joy: An Angelman Journey

Adam Birchmeier

Our daughter Maddie was diagnosed with Angelman Syndrome at 18 months old. This podcast explores her Angelman Syndrome diagnosis. We try to connect with the Angelman Syndrome Community at large and we touch on topics that all special needs parents can benefit from. Come and join our journey. We're all in this together.

  1. 10/20/2023

    Episode 21: Cameron Nix

    Cameron Nix joined the podcast for Episode 21 and talked about navigating the first year of his daughter's diagnosis.

    25 min

  2. 09/15/2023

    Episode 20: Maddie's Eulogy

    Madelynn Joan passed away on August 30, 2023. Many of you reached out to us to convey that you would like to be there but could not make the prayer service or funeral. This was Adam's eulogy that he read at the prayer service.

    13 min

  3. 06/09/2023

    Episode 19: Your Story Matters

    Having an Angelman Syndrome diagnosis can be a lonely process. I've found that sharing Maddie's story has opened the hearts and minds of many people outside of our family.

    18 min

  4. 05/19/2023

    Episode 18: Maddie's IEP

    Maddie went through her first IEP meeting. Since Maddie has Angelman Syndrome, these Individualized Education Plans will be updated year after year. Hear how our first one went.

    15 min

  5. Season 1, Episode 18 Trailer

    Episode 18 Preview: IEPs

    A quick preview of episode 18 will be all about Maddie's first IEP meeting. I'll go over how it went, how I prepared, and what I wish I would have done differently.

    1 min

  6. 05/05/2023

    Episode 17: Provider Turnover

    Having a child with multiple specialists is hard. It's even harder when you have to adapt to a new provider who doesn't know all of the ins and outs of Angelman Syndrome or your child.

    15 min

  7. 04/28/2023

    Episode 16: Public Success, Private Failure

    In episode 16 of Maddie's Joy: An Angelman Journey, I discuss how a new phrase caused me to look inward. Being a parent to an Angelman Syndrome child can be hard. I discuss some of my shortcomings as a parent and how I have worked to resolve them.

    20 min

  8. 04/21/2023

    Episode 15: Aaron Ferguson's Sibling Story

    Aaron Ferguson was kind enough to share his experience as a sibling of an Angelman individual. We discuss how he maintains a strong relationship with his brother as well as some of his experiences along the way. Aaron also has written about his experience in the Wisconsin State Journal. If you have not read his opinion piece, please check it out below. Aaron Ferguson: Seeing the joys and struggles of angels has given me life (madison.com)

    25 min
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Trailers

Ratings & Reviews

5
out of 5
3 Ratings

About

Our daughter Maddie was diagnosed with Angelman Syndrome at 18 months old. This podcast explores her Angelman Syndrome diagnosis. We try to connect with the Angelman Syndrome Community at large and we touch on topics that all special needs parents can benefit from. Come and join our journey. We're all in this together.

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