MSMS: The Many Stories of Multiple Sclerosis

Colleen Daniels

We’ve recently updated our podcast cover — same show, new look! Welcome to MSMS: The Many Stories of Multiple Sclerosis Here, you'll hear real stories from real people—Australians and occasionally others from around the world—sharing their experiences of life with Multiple Sclerosis (MS). The podcast began with Colleen's hope to build greater understanding of Hematopoietic Stem Cell Transplant (HSCT), by spotlighting the stories of Australians living with MS who had undergone this intense and often misunderstood procedure. What started as a focus on HSCT has since grown to include a range of conversations relevant to Australians living with MS—honest, heartfelt stories that speak to the reality of this progressive disease. By sharing our experiences, we support one another, reduce the isolation that so often comes with MS, and foster a sense of community—while also raising much-needed awareness. The first series of MSMS centres on HSCT—the decision-making process, the challenges faced, and the individual outcomes that follow. In Episode One, you’ll meet your host Colleen and her husband Kel, as they take you on their extraordinary journey to Moscow, Russia. It was there, just 5 years  married and desperate to stop the rapid progression of her MS, that Colleen underwent HSCT. What followed was an ordeal of unexpected challenges—physical, emotional, and logistical. Through it all, Colleen the patient, and Kel her steadfast champion. Their story has been shared in Australian newspapers, radio and TV—but here, in their own words, Colleen and Kel share even more of their remarkable story, behind the headlines.  ---Disclaimer:This podcast is not intended to replace professional medical advice. The views expressed in this podcast are those of the host or guest(s). No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given.Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition.  Content Warning: Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situations experienced before, during or after HSCT - some of which may be disturbing or upsetting for some.   In Australia https://beyondblue.org.au and Lifeline on 13 11 14 or https://www.lifeline.org.au are organisations which provide assistance  - do please look after yourself.

  1. May 30

    World MS Day - Multiple Sclerosis - giver and taker

    Diagnosis can feel like someone has quietly swapped out the map of your life while you weren’t looking. On World MS Day, Colleen sits with that reality and talks about what can happen after hearing “you have MS” and how honesty matters more than forced optimism.  Support the show You can join Colleen and other  Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all issues relevant to MS. Multiple Sclerosis and HSCT Australia - Facebook group PS:  I'd appreciate your donation to help in maintaining this podcast - if you could buy me a coffee or two please (donate $5, it's not real coffee! thank you!) - Colleen Buy Colleen a Coffee - thank you! Disclaimer: This podcast is not intended to replace professional medical advice. The views expressed in episodes of this podcast are those of the host or guest(s) and are not intended to replace professional medical advice. No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition. Content Warning: Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situatio...

    16 min
  2. May 14

    Invisible Disability, Visible Doubt

    Colleen shares some of her thoughts, talking about what it feels like when people question disability when a person happens to look well, and how those “compliments” feel to a person with MS. Beginning with the 'invisible illness' issue ... something that needs talking about. Feel free to share this episode, please do, and for the other episodes that have gone before - please listen to other people's stories. And of course, if you'd like to share your own story on this podcast, you can contact Colleen via email at msmspodcast@proton.me  This is also a link to buy me a coffee, I'd appreciate that (it's not real coffee, if you choose to contribute to help me keep this podcast alive I'll receive $5 from you, thank you!)  Support the show You can join Colleen and other  Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all issues relevant to MS. Multiple Sclerosis and HSCT Australia - Facebook group PS:  I'd appreciate your donation to help in maintaining this podcast - if you could buy me a coffee or two please (donate $5, it's not real coffee! thank you!) - Colleen Buy Colleen a Coffee - thank you! Disclaimer: This podcast is not intended to replace professional medical advice. The views expressed in episodes of this podcast are those of the host or guest(s) and are not intended to replace professional medical advice. No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition. Content Warning: Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situatio...

    13 min
  3. Apr 18

    Community Voices

    Colleen shares answers to some questions about life with MS, from Australians in the MS community. If you're in the Facebook group attached to this podcast, please keep a look-out for future questions.. Support the show You can join Colleen and other  Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all issues relevant to MS. Multiple Sclerosis and HSCT Australia - Facebook group PS:  I'd appreciate your donation to help in maintaining this podcast - if you could buy me a coffee or two please (donate $5, it's not real coffee! thank you!) - Colleen Buy Colleen a Coffee - thank you! Disclaimer: This podcast is not intended to replace professional medical advice. The views expressed in episodes of this podcast are those of the host or guest(s) and are not intended to replace professional medical advice. No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition. Content Warning: Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situatio...

    12 min
  4. Mar 13

    Motor Neurone Disease - discussion with MND NSW - #Podcasthon episode

    In this special episode we step away from MS in support of another neurological condition - Motor Neurone Disease (MND). As a part of the international #Podcasthon charitable initiative, Colleen has chosen to support MND by raising awareness of that condition, and speaks with Andrew Collins from MND NSW to learn what MND is, and about the services and care needed to support people impacted. To learn more or find out what you can do to help, or to donate please visit the MND NSW website https://www.mndnsw.org.au/   Please consider supporting the work of MND New South Wales (or the national body in your country), and do help raise awareness by sharing this episode. Support the show You can join Colleen and other  Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all issues relevant to MS. Multiple Sclerosis and HSCT Australia - Facebook group PS:  I'd appreciate your donation to help in maintaining this podcast - if you could buy me a coffee or two please (donate $5, it's not real coffee! thank you!) - Colleen Buy Colleen a Coffee - thank you! Disclaimer: This podcast is not intended to replace professional medical advice. The views expressed in episodes of this podcast are those of the host or guest(s) and are not intended to replace professional medical advice. No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition. Content Warning: Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situatio...

    13 min
  5. Feb 24

    MSMS Returns

    Why MSMS needed to take a pause - and soon a dive into this year's  Podcasthon, coming next month.  Podcasthon takes us on a path toward helping others who live with neurological disease, listen as Colleen explains. If any episode of this podcast has meant something to you, if a story has helped you feel less alone or better understood, or maybe you learnt something through hearing someone else's MS experience, there are ways that you can help to continue this podcast. If you just share an episode with a friend, somebody you know who might find some value in it as well. That makes a huge difference, please share - to help another or to help raise awareness. Support the show You can join Colleen and other  Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all issues relevant to MS. Multiple Sclerosis and HSCT Australia - Facebook group PS:  I'd appreciate your donation to help in maintaining this podcast - if you could buy me a coffee or two please (donate $5, it's not real coffee! thank you!) - Colleen Buy Colleen a Coffee - thank you! Disclaimer: This podcast is not intended to replace professional medical advice. The views expressed in episodes of this podcast are those of the host or guest(s) and are not intended to replace professional medical advice. No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition. Content Warning: Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situatio...

    7 min
  6. Jan 28

    With gratitude, and wishes - reflecting on 2025

    Colleen reflects on a year of MS stories and shares gentle holiday wishes with an invite to future MS storytellers from across Australia to join the conversation. Email msmspodcast at proton.me Support the show You can join Colleen and other  Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all issues relevant to MS. Multiple Sclerosis and HSCT Australia - Facebook group PS:  I'd appreciate your donation to help in maintaining this podcast - if you could buy me a coffee or two please (donate $5, it's not real coffee! thank you!) - Colleen Buy Colleen a Coffee - thank you! Disclaimer: This podcast is not intended to replace professional medical advice. The views expressed in episodes of this podcast are those of the host or guest(s) and are not intended to replace professional medical advice. No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition. Content Warning: Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situatio...

    6 min
  7. 09/30/2025

    One Phone Call = Big Decisions

    In this episode Colleen introduces Amy (from Queensland's Sunshine Coast) and their conversation takes a look at MS decision‑making and the courage to choose a path that fits your temperament. Amy also talks with Colleen about her diagnosis, cost shock, her experience of Mavenclad side effects, community wisdom, and the quiet power of taking control. If you’re weighing your choices or how to live with less fear and more clarity, Amy’s story offers practical insight into considerations around risk and recovery. Support the show You can join Colleen and other  Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all issues relevant to MS. Multiple Sclerosis and HSCT Australia - Facebook group PS:  I'd appreciate your donation to help in maintaining this podcast - if you could buy me a coffee or two please (donate $5, it's not real coffee! thank you!) - Colleen Buy Colleen a Coffee - thank you! Disclaimer: This podcast is not intended to replace professional medical advice. The views expressed in episodes of this podcast are those of the host or guest(s) and are not intended to replace professional medical advice. No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition. Content Warning: Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situatio...

    53 min
  8. 09/14/2025

    When Hope Meets Deception: MS Treatment Scams

    Falling prey to a scam can happen to anyone, but for those living with multiple sclerosis, the risks can hurt more than our bank account. The uncertainty of MS can create vulnerabilities that scammers exploit. It’s important to stay hopeful about advances in treatment — but also to stay informed, so hope isn’t taken advantage of. Note from Colleen: This episode is about helping people with MS avoid falling victim to scams that promise “cures.” While much of what I share in this episode is my perspective, the fact is that scammers do prey on our hopes of overcoming MS and all its symptoms. We do need to remain alert to these dangers. I truly hope this episode helps anyone considering an untested or advertised  treatment. Stay safe. 💛 Support the show You can join Colleen and other  Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all issues relevant to MS. Multiple Sclerosis and HSCT Australia - Facebook group PS:  I'd appreciate your donation to help in maintaining this podcast - if you could buy me a coffee or two please (donate $5, it's not real coffee! thank you!) - Colleen Buy Colleen a Coffee - thank you! Disclaimer: This podcast is not intended to replace professional medical advice. The views expressed in episodes of this podcast are those of the host or guest(s) and are not intended to replace professional medical advice. No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition. Content Warning: Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situatio...

    11 min

About

We’ve recently updated our podcast cover — same show, new look! Welcome to MSMS: The Many Stories of Multiple Sclerosis Here, you'll hear real stories from real people—Australians and occasionally others from around the world—sharing their experiences of life with Multiple Sclerosis (MS). The podcast began with Colleen's hope to build greater understanding of Hematopoietic Stem Cell Transplant (HSCT), by spotlighting the stories of Australians living with MS who had undergone this intense and often misunderstood procedure. What started as a focus on HSCT has since grown to include a range of conversations relevant to Australians living with MS—honest, heartfelt stories that speak to the reality of this progressive disease. By sharing our experiences, we support one another, reduce the isolation that so often comes with MS, and foster a sense of community—while also raising much-needed awareness. The first series of MSMS centres on HSCT—the decision-making process, the challenges faced, and the individual outcomes that follow. In Episode One, you’ll meet your host Colleen and her husband Kel, as they take you on their extraordinary journey to Moscow, Russia. It was there, just 5 years  married and desperate to stop the rapid progression of her MS, that Colleen underwent HSCT. What followed was an ordeal of unexpected challenges—physical, emotional, and logistical. Through it all, Colleen the patient, and Kel her steadfast champion. Their story has been shared in Australian newspapers, radio and TV—but here, in their own words, Colleen and Kel share even more of their remarkable story, behind the headlines.  ---Disclaimer:This podcast is not intended to replace professional medical advice. The views expressed in this podcast are those of the host or guest(s). No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given.Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition.  Content Warning: Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situations experienced before, during or after HSCT - some of which may be disturbing or upsetting for some.   In Australia https://beyondblue.org.au and Lifeline on 13 11 14 or https://www.lifeline.org.au are organisations which provide assistance  - do please look after yourself.

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