Our Forever Smiles with Laura Arroyo

Laura C Arroyo

Whether you've just learned the difficult news of your baby's cleft lip/palate, you're in the middle of your cleft lip/palate journey, or you're a seasoned pro who knows the many challenges of children who are born with clefts all too well, this podcast is for you! Join your host, Laura C. Arroyo, mother of a daughter born with a cleft palate, in a weekly conversation about everything from feeding and speech therapy to surgeries and genetics. We'll share tips and advice from other moms who have been there and even share a little joy in the process. If you're a cleft mom, or if you know someone who is, please subscribe to the Our Forever Smiles Podcast. We're here to support you on your journey. Want to share your story or sponsor the show? Email us at ourforeversmiles@gmail.com

  1. Apr 28

    A Cleft Lip and Palate Diagnosis with a Rare Genetic Twist

    In this powerful episode of Our Forever Smiles, Laura sits down with Kori — a licensed social worker, maternal health advocate, and mom to two — whose second child was prenatally diagnosed with a cleft lip and palate. Already working in perinatal mental health, Kori thought she was prepared. But an unexpected ultrasound at 18 weeks revealed a cleft diagnosis, additional physical markers, and the possibility of a syndromic condition. What followed was months of high-risk care, genetic testing, insurance denials, and overwhelming uncertainty. Kori shares what it was like to receive a rare genetic diagnosis when her daughter was six months old — one that doctors warned could involve developmental delays, seizures, or regression. She opens up about living in the "what if," balancing professional knowledge with maternal fear, and learning to parent without guarantees. She also bravely recounts her traumatic delivery experience, the challenges of advocating in the hospital, navigating NICU fears, breastfeeding with a cleft baby, insurance battles over congenital care, and the emotional weight of raising a child with both a cleft and an ultra-rare genetic mutation. This conversation is honest, nuanced, and deeply validating for any cleft mom walking through prenatal diagnosis, medical trauma, genetic uncertainty, or advocacy fatigue. If you've ever felt like you have to be strong while carrying so much unknown — this episode is for you. Subscribe to Our Forever Smiles and join a community that reminds you: you are never alone in this journey. Links: Buy Us a Coffee FB Support Group ELSA

    59 min

Trailer

4.9
out of 5
28 Ratings

About

Whether you've just learned the difficult news of your baby's cleft lip/palate, you're in the middle of your cleft lip/palate journey, or you're a seasoned pro who knows the many challenges of children who are born with clefts all too well, this podcast is for you! Join your host, Laura C. Arroyo, mother of a daughter born with a cleft palate, in a weekly conversation about everything from feeding and speech therapy to surgeries and genetics. We'll share tips and advice from other moms who have been there and even share a little joy in the process. If you're a cleft mom, or if you know someone who is, please subscribe to the Our Forever Smiles Podcast. We're here to support you on your journey. Want to share your story or sponsor the show? Email us at ourforeversmiles@gmail.com