Our Forever Smiles with Laura Arroyo

Laura C Arroyo

Whether you've just learned the difficult news of your baby's cleft lip/palate, you're in the middle of your cleft lip/palate journey, or you're a seasoned pro who knows the many challenges of children who are born with clefts all too well, this podcast is for you! Join your host, Laura C. Arroyo, mother of a daughter born with a cleft palate, in a weekly conversation about everything from feeding and speech therapy to surgeries and genetics. We'll share tips and advice from other moms who have been there and even share a little joy in the process. If you're a cleft mom, or if you know someone who is, please subscribe to the Our Forever Smiles Podcast. We're here to support you on your journey. Want to share your story or sponsor the show? Email us at ourforeversmiles@gmail.com

  1. Aug 25

    Navigating Pierre Robin Sequence: From Lip and Tongue Adhesion to Pharyngeal Flap Surgery | Stacey Charbel

    What happens when two of your children are born with the same rare condition that doctors say is typically isolated? In this heartfelt episode of Our Forever Smiles, Laura sits down with Stacey Charbel, a middle school teacher, cleft advocate, and mom to two daughters, Ava and Norah, both born with cleft palates caused by Pierre Robin Sequence (PRS). Stacey shares the unexpected diagnoses of both girls, the emotional challenges of feeding difficulties, airway concerns, hospital stays, surgeries, and the resilience that has shaped her family. Together, Laura and Stacey discuss the realities of raising children with PRS, including lip adhesion, cleft palate repair, pharyngeal flap surgery, and the importance of finding a medical team you trust. They also explore the emotional side of the journey, from grieving the expectations of early motherhood to finding strength, community, and hope through shared experiences. Whether you're navigating a new cleft diagnosis, supporting a loved one, or simply looking to better understand Pierre Robin Sequence, this conversation offers practical insight, honest encouragement, and the reminder that even the hardest journeys can lead to extraordinary resilience. In this episode, you'll hear about: What Pierre Robin Sequence (PRS) is and how it affects feeding and breathing The challenges of feeding a baby with a cleft palate Specialized bottles, feeding positions, and early interventions Lip adhesion vs. jaw distraction Cleft palate repair and pharyngeal flap surgery Parenting through multiple surgeries and hospital stays The power of community, advocacy, and hope for newly diagnosed families No matter where you are on your cleft journey, this episode is a reminder that you are not alone, and that brighter days are ahead. Links: Buy Us a Coffee FB Support Group

  2. Aug 18

    Breastfeeding, Surgery & Hope: A Mom's Journey with Bilateral Cleft Lip and No Palate Involvement | Sam Beckstead

    What happens when the anatomy scan changes everything? In this heartfelt episode of Our Forever Smiles, Laura sits down with cleft mom Sam Beckstead to share the emotional story of learning her daughter had a cleft lip during pregnancy, navigating uncertainty, and discovering strength through the cleft community. Sam opens up about the shock of receiving a prenatal diagnosis, the emotional rollercoaster that followed, and the journey from fear to hope. She shares how her family found support through Shriners Children's, what it was like welcoming her daughter into the world, unexpectedly breastfeeding despite preparing for the worst, and navigating cleft lip surgery with honesty and resilience. Together, Laura and Sam discuss the importance of community, the value of connecting with other cleft families, and why every parent's journey is unique. They also offer encouragement for families who may be facing a new diagnosis today, reminding them that they are not alone—and that their child is so much more than a cleft. Whether you're a parent navigating a cleft diagnosis, supporting someone who is, or simply looking to better understand the cleft journey, this conversation is filled with practical insight, vulnerability, laughter, and hope. In this episode, you'll hear about: Receiving a prenatal cleft diagnosis and processing the unexpected Preparing for birth amid uncertainty Breastfeeding with an incomplete bilateral cleft lip Sam's experience with Shriners Children's and cleft care Preparing for and recovering from cleft lip repair surgery The power of the cleft parent community Advice for parents receiving a new diagnosis Finding joy, confidence, and hope throughout the journey No matter where you are on your cleft journey, we hope this episode reminds you that you are never walking it alone. Links: Buy Us a Coffee FB Support Group

  3. Jul 28

    The Sibling Perspective: A Sister's Journey with 22q Deletion Syndrome | Amy and Leily Kebriaei

    What does it mean to grow up alongside a sibling with a disability, and who supports the siblings along the way? In this heartfelt episode of Our Forever Smiles, Laura sits down with pediatric dentist and mom Amy Kebriaei and her daughter, Leily Kebriaei, to discuss life with 22q11.2 Deletion Syndrome from a sibling's perspective. Amy shares the emotional journey of receiving her daughter Roya's diagnosis, navigating complex medical needs, and building a support network for families facing similar challenges. Leily offers a powerful and honest look at what it's like growing up with a sister who has special needs, balancing advocacy, friendship, responsibility, and the everyday realities of being a sibling. She also shares the inspiration behind Sib Support, an online support group she created for teens who have siblings with long-term disabilities. Together, they explore disability awareness, sibling relationships, self-advocacy, inclusion in schools and activities, and the importance of creating spaces where siblings feel seen and supported. This episode is a moving reminder that every family member is impacted by a diagnosis, and that connection, understanding, and community can make all the difference. Whether you're a parent, sibling, caregiver, or advocate, this conversation will leave you inspired by the resilience, compassion, and love that exist within the special needs community. Links: Sib Support Registration Buy Us a Coffee FB Support Group

Trailer

4.9
out of 5
30 Ratings

About

Whether you've just learned the difficult news of your baby's cleft lip/palate, you're in the middle of your cleft lip/palate journey, or you're a seasoned pro who knows the many challenges of children who are born with clefts all too well, this podcast is for you! Join your host, Laura C. Arroyo, mother of a daughter born with a cleft palate, in a weekly conversation about everything from feeding and speech therapy to surgeries and genetics. We'll share tips and advice from other moms who have been there and even share a little joy in the process. If you're a cleft mom, or if you know someone who is, please subscribe to the Our Forever Smiles Podcast. We're here to support you on your journey. Want to share your story or sponsor the show? Email us at ourforeversmiles@gmail.com

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