What’s Up With Catalight!

Catalight

Catalight is changing how the world supports people with autism along with other intellectual and developmental disabilities. We’re building a more equitable future through innovative care solutions, research, and open conversations. Join us as we explore groundbreaking research, hear from experts, and uncover new ways to empower individuals and families. Together, we can create a world where everyone thrives.

  1. Jun 10

    Ep. 16 - Needless Suffering

    Sometimes behavior isn't a behavior problem. Sometimes aggression is actually dental pain. Sometimes refusal to eat is acid reflux. Sometimes a sleepless night, or a sudden outburst or a dramatic change in mood is a person's only way of communicating that something is wrong. Sometimes these are actually underlying medical issues that practitioners and physicians simply aren’t seeing because they don’t have the right training.   Lindsey sits down with Dr. Craig Escudé, one of the nation's leading experts in healthcare for people with intellectual and developmental disabilities (I/DD), to explore a blind spot hiding in plain sight: the gap between behavioral and medical care. Drawing on nearly 30 years of experience, Dr. Escudé explains why behavior is communication, how clinicians and physicians alike can miss critical underlying health issues, and why many medical professionals receive little to no formal training on caring for people with I/DD. The consequences can be profound – from unnecessary suffering to missed diagnoses and preventable hospitalizations. Lindsey and Craig discuss the dangers of diagnostic overshadowing, the importance of seeing people as people first rather than diagnoses, and the systemic changes needed to ensure more equitable care. With approximately 1 in 6 people in the United States living with one or more developmental disabilities or delays, the need for better training, stronger collaboration and integrated care has never been more clear. Resources mentioned in this episode: - Curriculum in IDD Healthcare eLearning course: Curriculum in IDD Healthcare eLearn - IntellectAbility - IntellectAbility’s free IDD Perspectives webinar series:  Webinars - IntellectAbility - Free resources and articles from IntellectAbility: Intellectual Disability Services, Intellectual Disability Definition - Dr. Craig Escudé’s book: Clinical Pearls in IDD Healthcare: Second Edition - IntellectAbility - Dr. Craig Escudé’s podcast: IDD Health Matters Podcast - Catalight hospitalization study: Large-Scale Study Finds Autistic Youth Far More Likely to Be Hospitalized for Mental Health Conditions - Catalight - Catalight sleep study: Study Links Poor Sleep to Increased Risky Behavior Among Autistic People - Catalight

    47 min

  2. May 12

    Ep. 15 - A System Built for Behavior, Not Humanity

    Autism and other I/DD treatment is often designed around behavior. But people are more than just behavior. They’re humans with families, wants, needs and their own goals. In BCBA training, behavior analysts are taught to think of humans in terms of “organisms” – a clinical, scientific lens that, unfortunately, first shapes how care is delivered. What that lens is blind to is what matters most – the human experience. Lindsey sits down with Dr. Tracy Raulston, a BCBA, researcher and professor at Texas State University, whose work focuses on family-centered care and parent-mediated intervention, to ask the question, “Why is family-centered care such a novel concept to the autism industry?” There’s been a system built for behavior, but not always built to support individuals, parents, caregivers and families. Lindsey and Tracy explore what it really means to center families in care while discussing the limitations of traditional training models, the overlooked importance of working with caregivers and the reality that most care doesn’t happen in a clinic – it happens in homes, in routines and in everyday life. Links:  Catalight Academy – RUBI course: https://www.catalightacademy.org/program/rubi?utm_source=podcast&utm_medium=organic Catalight Academy – Live RUBI workshops: https://www.catalightacademy.org/program/rubi-workshop?utm_source=podcast&utm_medium=organic Catalight Academy – RUBI advanced certifications: https://www.catalightacademy.org/program/rubi-advanced-certification?utm_source=podcast&utm_medium=organic   Project ImPACT: Project ImPACT ABAI conference (5/22/26) – Empowering Families Through Everyday Applied Behavior Analysis (ABA): A Workshop on Parent-Mediated Interventions (PMI) Implementation: Event Detail - Association for Behavior Analysis International ABAI conference symposium (5/24/26) – Expanding Access and Effectiveness in Parent-Mediated Behavioral Interventions: Event Detail - Association for Behavior Analysis International ABAI conference skill building – Writing Effective, Evidence-Based Goals for Autistic Individuals: A Neuroaffirming Approach (5/25/26): Event Detail - Association for Behavior Analysis International

    53 min

  3. 10/16/2025

    Ep. 14 - Room at the Table: From Food Fights to Family Feasts

    Mealtimes aren't just about nourishing the body, they're also about nourishing connection. For most of us, eating just happens. For many children with autism and other intellectual and developmental disabilities, however, every bite can be a battle – one that affects their physical and mental health along with their sense of cultural belonging. Lindsey sits down with Dr. Yev Veverka, BCBA clinician, researcher, and director of training and consultation services at the University of Washington Autism Center – to explore how make mealtimes meaningful, inclusive and supportive by bringing joy to eating. Whether at home, at school or in a restaurant, mealtimes can be overwhelming and unpredictable for many autistic kids. Dr. Veverka, co-author of “Meaningful Mealtimes: Practical Strategies for All Young Eaters,” empowers educators, parents and support teams to turn mealtimes into opportunities for growth – literally and figuratively. They talk about how small, thoughtful changes can transform mealtimes from a source of stress into a moment of connection. “Meaningful Mealtimes: Practical Strategies for All Young Eaters”: https://www.amazon.com/Meaningful-Mealtimes-Practical-Strategies-Eaters/dp/1681258242 Yev Veverka – Feeding Matters: Yev Veverka PhD, BCBA-D - Inclusion Representative - Feeding Matters

    48 min

  4. 09/04/2025

    Ep. 13 - Evidence Will Sometimes Break Your Heart (and That’s OK)

    Evidence is evidence, right? Binary. Black and white on paper. Well, not really. “Evidence-based” isn’t as simple as people would like to make it out to be. And, if you truly want to be objective and find real answers, you must be open to the idea that your assumptions may not hold up while simultaneously maintaining an openness to learn. Prolific researcher Micheal Sandbank, Ph.D., joins Lindsey to discuss what “evidence-based” really means. They examine what makes a good study, what quality research entails and ask, “evidence for what exactly?” The two talk about how evidence is being used as ammunition in the autism care industry and how people’s strong, unchanging convictions are creating camps in the field – a schism that is hurting kids and families in need. Dr. Sandbank is a professor at the University of North Carolina and the lead of Project AIM, a comprehensive meta-analysis of all non-pharmacological interventions designed for young autistic children, which was selected as one of the ‘Top Advances in Autism Research’ by the U.S. Department of Health and Human Services. You can find her research here. Micheal was a keynote speaker at Catalight's virtual Elevate Your Impact conference earlier this year. The virtual event, occurring next on March 12 and 13, 2026, is open to everyone around the world with continuing education opportunities for those who qualify. Learn more or register here: https://elevateyourimpact.org/. You can also apply to be a speaker here: Call for Papers - Elevate Your Impact: Evidence in Action

    54 min

  5. 07/24/2025

    Ep. 12 - Here Come the Girls

    For decades, autism science has failed women. Lindsey talks with internationally renowned British cognitive neuroscientist Dr. Gina Rippon, whose latest book “Off the Spectrum” (titled “The Lost Girls of Autism” in the UK) details how autism research and diagnostic models have historically overlooked women and girls. For far too long, autism was considered “a boys’ disorder,” and misguided stereotypes persist to this day. Dr. Rippon shares how societal expectations, harmful assumptions and masking behaviors have contributed to the underdiagnosis and misdiagnosis of autistic girls and women as Lindsey conveys her own experiences as a diagnostician – going 5 years to start her career without ever seeing an autistic female patient to now when females seeking her diagnosis far outnumber males. The conversation challenges long-held ideas about brains, gender and neurodiversity while asking how science can do better. This episode marks the What’s Up With Catalight! one-year anniversary — thank you to all our listeners for joining us on this journey! “Off the Spectrum/The Lost Girls of Autism” by Dr. Gina Rippon: https://www.ginarippon.com/the-lost-girls-of-autism

    52 min

  6. 05/20/2025

    Ep. 11 - The Owl Brain, The Cheetah Brain, The Possum Brain

    Host Lindsey Sneed was unfamiliar with the term 'polyvagal theory' until recently.  After reading “Autism in Polyvagal Terms,” however, she saw how guest and author Sean Inderbitzen is using the body-based approach and lived experience to conceptualize autism in a brand-new way.   The polyvagal theory – centered around how vagal nerve branches control unconscious behaviors – has been prominent topic in the self-help section of bookstores since the ‘90s, but Dr. Inderbitzen posits that we can also use it to better understand the challenges of autism and look at nearly all mental health diagnoses along with the full human condition through the theory’s lens. In doing so, he came up with analogy that, in response to feelings of safety or threat, the vagus nerve triggers one of three brains: the owl (when we’re curious and open), the cheetah (fight or flight) and the possum (shutting down).   He and Dr. Sneed discuss the novel concept, Sean’s motivation to increase access to mental health services and how demonstrating kindness is one of the most important themes of the book.  "Autism in Polyvagal Terms" by Sean Inderbitzen: https://wwnorton.com/books/9781324053217  To learn more about Sean, hear him speak or book a consultation: https://linktr.ee/seaninderbitzen

    42 min

  7. 04/17/2025

    Ep. 10 - Vaccines Don't Cause Autism!

    In an extremely topical episode, Dr. Peter Hotez, one of the world’s most preeminent experts on vaccines and Nobel Peace Prize nominee, joins host Lindsey Sneed to talk about the all too widespread and modern misconception that vaccines cause autism. While he’s saved hundreds of thousands of lives with the low-cost vaccines that he’s helped create over his illustrious career, Peter tells Lindsey that his recent work defending vaccines may ultimately prove to be as important as making the vaccines themselves.   The father of a daughter with autism, Peter wrote the book “Vaccines Did Not Cause Rachel’s Autism” in 2018 – mixing his personal and professional life in a way that explains the causes of autism and how parents can be duped into simplistic fallacies in search of understanding. Modifying ‘tikkun olam,’ the Jewish concept of “repairing the world,” Peter says his own ‘science tikkun’ has become the meaningful framework of his life’s work – even when his life is being threatened by anti-vaxxers.   Peter Hotez is a pediatrician, public health advocate, dean of the Baylor College School of Tropical Medicine and co-director of the Texas Center for Vaccine Development who’s appeared on CNN, MSNBC, BBC, Fox News, the New York Times, Washington Post, Wall Street Journal, USA Today and the Joe Rogan Experience. A nine-time author, Peter is finishing up his next book due out in the fall – a collaboration with famed geophysicist Michael Mann entitled “Science Under Siege,” an examination of the overlap between the attacks on climate science and biomedicine.

    47 min

  8. 03/10/2025

    Ep. 9 - Highways in the Brain

    How do you explain someone’s brain? Dr. Liz Angoff does it through strength-based neurodiversity affirming approaches. A former school psychologist who noticed students shined when the environment fit, Liz made it her life’s work to ensure children with developmental disabilities understand that their brains aren’t broken – they’re just different. In finding that some practitioners struggled to explain autism and other diagnoses to children, she wrote two books to help: “The Brain Building Book” and “Brain Building 101.” Host Lindsey Sneed found her “highway” metaphor most impactful: An idea that the brain is made up of highways (a person’s strengths) and road that’s under construction (challenges that a person can work on and improve). In a What’s Up With Catalight! first, Lindsey and Liz talk in person about positive framing, ways diagnosticians and clinicians can shape the way children and their families understand a diagnosis, and how the highway metaphor can be used for any person to help them better understand themselves and others. Specifically for parents, Dr. Angoff’s third book, “Our Brains: A Guide For Understanding What Neurodiversity Means For You,” is set to release this spring. Check out her website, www.explainingbrains.com, to order or for free resources, strategies and interactive tools that help caregivers.

    47 min
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5
out of 5
8 Ratings

About

Catalight is changing how the world supports people with autism along with other intellectual and developmental disabilities. We’re building a more equitable future through innovative care solutions, research, and open conversations. Join us as we explore groundbreaking research, hear from experts, and uncover new ways to empower individuals and families. Together, we can create a world where everyone thrives.

Information

  • Creator
    Catalight
  • Years Active
    2024 - 2026
  • Episodes
    17
  • Rating
    Clean
  • Copyright
    © Copyright 2024 All rights reserved.
  • Show Website
    What’s Up With Catalight!