Parenting Children with Limb Differences

Ali Barnum and Kari Treat

Our primary reason for Parenting Children with Limb Differences (PCWLD) is to CONNECT with parents - especially moms - who have children with a limb difference. We hope that you can find some comfort, validation, empathy and community here. This podcast will include interviews with other parents of children with limb differences, discussions with specialists, life experiences shared by adults with limb differences, conversations around education and advocacy, and more.

  1. 4D AGO

    Born For This Stories - with Johanna and Peter Hartley

    Listeners, please note that this episode is marked E for Explicit content due to the graphic material and descriptions discussed to give listeners the full picture and understanding of these parents' (and their kiddo's) experience. Most parents don’t expect their child's diagnosis to turn their world upside down. Johanna and Peter Hartley share their raw journey navigating a severe hypospadias diagnosis and the life-changing surgeries their son Silas faced before age two. From shocking moments in the hospital to the importance of second opinions, they reveal how informed choices, holistic health, and relentless advocacy transformed their experience—and their son’s future.You’ll discover the power of asking tough questions and seeking out specialized, high-volume surgeons to avoid unnecessary surgeries and complications. We break down the critical role of community support, how to communicate difficult topics with your child, and why tracking long-term outcomes is essential for these complex conditions. Their story underscores how parental intuition, education, and personalized care can defy the expectations many medical systems set, offering hope for families facing similar diagnoses. Johanna and Peter, holistic-minded chiropractors, dedicated parents, advocates, and powerful podcast hosts, show how they turned trauma into empowerment and why sharing these stories can change the whole conversation around rare birth differences. Perfect for parents, health advocates, or anyone seeking insight into navigating medical challenges with confidence and compassion—this episode might just reshape how you approach your child's health. Join us in amplifying awareness about hypospadias, second opinions, and holistic support—because every story matters, and every child deserves a path to health that aligns with their family’s values. Also: be sure to check out Johanna and Peter's awesome podcast: Born For This Stories, on Spotify: https://open.spotify.com/show/7fjwayJIABZXTWOdQxhEfN?si=7ca38f95469e4906 Thanks for tuning into the Parenting Children with Limb Differences Podcast an initiative of the Limb Difference Collective Foundation. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari: Website: limbdifferencecollective.orgFacebook: Parenting Children with Limb Differences Podcast and Limb Difference Collective Instagram: @pcwldpodcast @limbdifferencecollective Email: info@limbdifferencecollective.org

    1h 2m
  2. APR 20

    Shriner's Children's Hospital of Chicago, Part 2: The Hidden Role of Psychology and Recreation in Boosting Confidence for Kids with Limb Differences

    Most families don’t realize how powerful psychological and recreational therapy can be in transforming a child’s confidence and resilience after limb loss. In this episode, we welcome two dedicated professionals from Shriners Children’s Hospital: Dr. Kathy Zebracki, Chief Psychologist of Shriners Children's Hospital, and Amanda Hogle, a recreational therapist. Dr. Zebracki and Amanda reveal how personalized support — from emotional adjustment to adaptive sports — helps children not just cope, but thrive. Discover evidence-based strategies for addressing common emotional hurdles, such as dealing with curiosity, teasing, or medical fears, and learn how building a positive narrative fosters self-esteem and peer acceptance. We break down practical guidance on how families can recognize signs that their child might benefit from psychosocial support, including changes in behavior or sleep patterns. Dr. Zebracki shares her insights on navigating complex emotions like grief, identity, and peer interactions, emphasizing the importance of strength-based storytelling. Amanda Hogle, recreational therapist, explains how tailored activities and peer connections help kids discover their abilities and enjoy a full, active life — both in and out of hospital settings. This episode underscores why a holistic, family-centered approach is critical in childhood medical journeys. If you’re a parent, caregiver, or healthcare provider looking for actionable tools to support emotional well-being and foster lasting confidence, this conversation is essential listening. You’ll hear real stories, practical scripts, and innovative ideas to empower kids with limb differences to navigate social situations, participate in sports, and build their own stories of strength and joy. Whether you’re starting this journey or seeking to deepen your understanding of holistic care, tune in to discover how patience, humor, and personalized support can change everything. Nothing is too small or too big when it comes to creating a thriving, inclusive environment for children to flourish. Kathy Zebracki is the chief of psychology at Shriners Chicago, with 17 years of experience in pediatric psychosocial care. Amanda Hogle has served as a recreational therapist for 16 years, focusing on making hospital stays fun and empowering.Learn more about Shriners Children's Hospital:https://www.shrinerschildrens.org/en Thanks for tuning into the Parenting Children with Limb Differences Podcast an initiative of the Limb Difference Collective Foundation. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari: Website: limbdifferencecollective.org Facebook: Parenting Children with Limb Differences Podcast and Limb Difference Collective Instagram: @pcwldpodcast @limbdifferencecollective Email: info@limbdifferencecollective.org

    43 min
  3. MAR 30

    Shriner's Children's Hospital of Chicago - Part 1: Your Child is a Complete Child - with Dr. Jeffrey Ackman and India Jacobson

    Sometimes children with limb differences are underestimated — but at Shriners Children's Hospital, dedicated teams are transforming lives through pioneering orthopedic care, prosthetics, and personalized therapy. In this eye-opening episode, Dr. Jeffrey Ackman, with over 37 years of experience, and certified prosthetist India Jacobson, share insider insights from four decades of shaping resilience in children facing limb differences. You’ll discover how a collaborative, team-based approach helps kids thrive—covering everything from congenital limb deficiencies to traumatic injuries. They break down innovative surgical procedures like limb lengthening and joint fused prosthetics that improve function and confidence. Learn about the latest advances in adaptable, prosthetics tailored for active kids and how insurance and charitable support make these life-changing devices accessible. We also explore the emotional journey for families: addressing guilt, managing expectations, and fostering confidence. You'll hear inspiring success stories of children running, swimming, and even playing sports or musical instruments—all once thought impossible. Plus, get expert advice on how to navigate care logistics, growth adjustments, and social integration for kids of all ages. Why does this matter? Because access to expert care, personalized prosthetics, and emotional support isn’t just about limbs—it’s about unlocking a child's potential and helping them live fully. This episode is essential listening for parents, caregivers, educators, and anyone committed to empowering children to overcome challenges and embrace their bright futures. If you believe every child deserves a chance to thrive with dignity and joy, tune in now. Because at Shriners, children are not just treated—they’re transformed. For more information regarding Shriner's Children's Hospital Pediatric Orthopedic program, click this link: https://www.shrinerschildrens.org/en/locations/chicago Thanks for tuning into the Parenting Children with Limb Differences Podcast an initiative of the Limb Difference Collective Foundation. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari: Website: limbdifferencecollective.org Facebook: Parenting Children with Limb Differences Podcast and Limb Difference Collective Instagram: @pcwldpodcast @limbdifferencecollective Email: info@limbdifferencecollective.org

    45 min
  4. 12/22/2025 ·  BONUS

    Strengthening the Limb Difference Community: 2025 Highlights & 2026 Vision

    In this special holiday episode of Parenting Children with Limb Differences, Kari and Ali wrap up an unforgettable 2025 and share a sneak peek of what’s coming in 2026. They kick things off with a candid, funny, and very real conversation about navigating the holiday season with young kids — the magic, the chaos, and the constant quest to find that elusive “just enough. The episode then shifts into a heartfelt reflection on one of the year’s biggest highlights: the 2nd Annual LLLDAM meetup at Brookfield Zoo. With more than 230 attendees, the event brought together new friends, longtime friends, and families from across the community. Kari and Ali share the emotional moment they looked at each other — eyes full of tears — realizing just how powerful and connected this community has become. They give a huge shout‑out to Rachel Walsh for sparking the zoo meetup tradition, along with Tarah, Sarah, Krystal, Rose, and Katie M., whose behind‑the‑scenes work made the day unforgettable. They also celebrate the many new friendships formed this year and the organizations who supported the event, including Brookfield Zoo, Moxie Adaptive, Shriners Children’s Hospital, and a mysteriously unnamed partner. Plus, gratitude to those who contributed to the goodie bags: GLASA, EazyHold, Hanger Clinic, Shirley Ryan Ability Lab, and Amputee Coalition. And then — one of the biggest milestones of 2025. Kari and Ali share the exciting news that Parenting Children with Limb Differences officially became part of a larger movement with the founding of the Limb Difference Collective Foundation (LDCF) this summer. LDCF is now a 501(c)(3) nonprofit dedicated to supporting parents and children with limb differences by fostering meaningful connections, promoting community‑driven initiatives, and providing accessible, empowering resources. You can even find LDCF listed in the IRS tax‑exempt organization database. The hosts highlight several major initiatives already underway, including LDCF’s commitment to organizing and funding local meetups — starting with support for the 3rd Annual LLLDAM Brookfield Zoo Meetup on April 25, 2026. They share details about sponsorship needs, from pavilion rental to food costs, and invite potential partners to reach out at 630‑403‑8076 or events@limbdifferencecollective.org. Listeners also get the inside scoop on LDCF’s newest project: the Hugs‑in‑a‑Box campaign, launching December 22. These thoughtfully curated care packages are designed to feel like a warm embrace for new parents and caregivers of children with limb differences across the U.S., offering comfort, confidence, and connection. Packages will be assembled on demand, with the first deliveries expected in January. Kari and Ali also discuss LDCF’s growing efforts to collaborate with hospitals, obstetricians, and maternal‑fetal medicine specialists — first locally, then nationally — to ensure families receive supportive, accurate, and empowering resources from the very beginning of their journey. The goal is simple and powerful: make limb difference resources easy to find, both online and in every doctor’s office. From there, the episode moves into a celebration of Season 3’s incredible guests and some jaw‑dropping Spotify Wrapped stats: massive audience growth, listeners tuning in from 15 countries, and a community that comments, shares, and shows up more than most podcasts out there. And yes — the dads episode made a very strong showing. With laughter, warmth, and plenty of tangents (because that’s who they are), this episode is a joyful thank‑you to the listeners who make this podcast what it is. Tune in for the celebration, stay for the sneak peeks, and get excited for new episodes coming in February.

    30 min
  5. 12/08/2025

    Embodied Advocacy: Parenting, Rights, and Resilience with Aisha Bell Robinson

    In this episode, we’re honored to welcome Aisha Bell Robinson—a dance movement therapist, counselor, artist, and parent whose work beautifully weaves embodiment, inclusion, and systemic change. Her advocacy for her daughter Naima and for families navigating school systems is both personal and powerful. Aisha discusses the importance of showing up for our kids and in situations as regulated parents, and also attuning to our kids and letting them lead when some challenges arise. During this episode, she also shares ways in which parents can learn about their rights and their children's rights going into educational settings. Aisha further shares that having the tools and resources to know what to ask for during IEP/504 meetings is crucial to advocate effectively for our kids. To help parents navigate this, Aisha offers parents a one-page handout and also holds an open parents forum a few times per year. For more information regarding Aisha's work and to obtain the one-page handout discussed during this episode, please go to: https://bellacosolutions.com/ Thanks for tuning into the Parenting Children with Limb Differences Podcast an initiative of the Limb Difference Collective Foundation. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari: Website: limbdifferencecollective.orgFacebook: Parenting Children with Limb Differences Podcast and Limb Difference Collective Instagram: @pcwldpodcast @limbdifferencecollective Email: info@limbdifferencecollective.org

    55 min

Trailers

5
out of 5
6 Ratings

About

Our primary reason for Parenting Children with Limb Differences (PCWLD) is to CONNECT with parents - especially moms - who have children with a limb difference. We hope that you can find some comfort, validation, empathy and community here. This podcast will include interviews with other parents of children with limb differences, discussions with specialists, life experiences shared by adults with limb differences, conversations around education and advocacy, and more.

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