Fighting Dementia Podcast

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Hosted by Fran & Tom who live with Dementia, we’re a podcast & community for those impacted in the early to middle stages – offering expert insights, honest stories & support. For those diagnosed, carers & families who need to feel seen, informed & less alone 🤝 **New Episodes Weekly On Mondays!** We want to take viewers on a journey to see what behaviours can be adapted, changed or moulded to support good brain health, and fight the progression of Dementia 🥊

  1. Jun 1

    Liverpool’s Dementia Strategy | Fighting Dementia Episode 38

    On this episode of the Fighting Dementia Podcast, presenters Leon, Fran (Alzheimer’s) and Tom (mixed dementia) speak with Liverpool City Council’s Emma (Senior Public Health Practitioner and healthy ageing lead) and Ellie (Director of Adult Strategic Commissioning) about Liverpool’s newly launched dementia strategic action plan and how public health, adult social care and NHS partners are working together over the next three years. They discuss the need to better connect existing services so people aren’t left after diagnosis, improve information and signposting, address stigma, and build a truly dementia-friendly city (transport, public-facing roles, and inclusion). They highlight work to reduce inequalities through funding for the Liverpool Dementia Action Alliance, including dementia champions focused on minoritised communities and young-onset dementia, plus training for adult social care staff. The episode also covers prevention and early identification via health checks, links between heart health and dementia risk factors, support for carers through a five-year carers strategy, and a “Oily Fish” segment on diet changes inspired by Mediterranean/MIND approaches. Resources & Further Reading: Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging SURF (Service Users Reference Forum): https://surfdementia.org/ Alzheimer’s Society: https://www.alzheimers.org.uk/ Carers UK: https://www.carersuk.org/ Reddit Dementia Communities: https://www.reddit.com/r/dementia/ Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney Chapters: 00:00 Welcome to the Podcast 00:26 Meet the Liverpool Council Guests 02:52 Dementia Action Plan Launch 04:08 Connecting Support Pathways 05:01 Services in Silos Problem 06:37 Dementia Friendly City Vision 07:37 Young Onset Dementia Needs 09:29 Funding and Inequality Focus 10:46 Prevention and Health Checks 14:56 Training and Awareness Drive 18:32 Signposting and One Stop Info 19:56 Carer Strategy and Workplace Support 23:41 Tech and Future of Dementia Care 26:37 Regional and National Standards 31:44 Break and Listener Call to Action 32:48 Advice for Newly Diagnosed 33:23 Life After Diagnosis 34:21 Finding Community Purpose 37:15 Social Work Reflections 38:19 Better Info Prevention 42:00 Oily Fish Diet Check 45:21 Mediterranean Swaps Recipes 49:38 Cookbook Idea Wrap Up 50:07 Final Thanks Disclaimer Recipe:Date and oat cakeDates 150 gm Banana 1Chopped walnuts 50 gm and some extra to top cakeChopped dark chocolate 70% cocoa or chocolate chips 50 gm and some extra to top cakeMilk 250 mlOats 150 gmEggs 2 largeOil 4 tbsBaking powder 1 tspBicarbonate of soda 1 tspCinamon 1 tspInstructionsHeat oven to 180 C. Heat milk so that it is hot not boiling. Place dates in heatproof bowl. Soak dates in hot milk for 20 minutes. Blend the dates and milk.Blend the oats to look like flour.Smash the bananaAdd egg and oil to the date mixture.Add baking soda and bicarbonate of soda to oat flour.Add oats into date mixture and add banana, chopped walnuts and chocolate and mix well. Transfer mixture to cake tin or loaf tin. Sprinkle with chopped walnuts and chocolateBake for 35 to 40 minutes.Leave to cool

    51 min

  2. May 25

    Diet, Brain Health & Dementia | Fighting Dementia Episode 37

    Leon, Fran and Tom welcome Kirsty Robinson, a dietetic team lead for stroke and neuro with nearly 20 years’ experience and a personal connection to dementia through her grandfather. They discuss what dietitians do, why nutrition matters as one pillar of brain health alongside exercise, social interaction, stress reduction, avoiding smoking and limiting alcohol, and why there’s no single “magic bullet” food. The group explores sugar intake, fruit, hydration (aiming for 6–8 glasses of fluid daily), and the gap in early-stage/young-onset dementia support and resources - especially around changing tastes, reduced enjoyment of food, and cravings for sweet or stronger flavors. Kirsty outlines evidence-based healthy eating approaches, including Mediterranean-style eating and the MIND and DASH diets, and the hosts launch a new weekly “Oily Fish” segment focused on practical meal ideas. Resources & Further Reading: Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging SURF (Service Users Reference Forum): https://surfdementia.org/ Alzheimer’s Society: https://www.alzheimers.org.uk/ Carers UK: https://www.carersuk.org/ Reddit Dementia Communities: https://www.reddit.com/r/dementia/ Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney Chapters: 00:00 Podcast welcome and hosts 00:30 Meet dietitian Kirsty 00:59 Why dietetics and brain health 03:44 Granddad story and neuroplasticity 06:29 How diet fits dementia care 07:32 Sugar myths and smart swaps 09:12 Access to dietitians gap 12:47 Taste changes and cravings 21:44 Hydration and daily fluids 26:08 What helps and next steps 29:14 Brain Healthy Diets 30:57 Mind Diet Evidence 32:04 Taste Change Challenges 32:55 Break And New Segment 33:16 Food Clip Reaction 34:58 Oily Fish Basics 36:08 Recipes And Meal Ideas 39:11 Overnight Oats Debate 42:08 Weekly Meals Roundup 44:10 Wrap Up And Disclaimer

    46 min

  3. May 11

    Memory Boxes to Mobile Museums: Innovative Approaches to Dementia | Fighting Dementia Episode 36

    On this episode of the Fighting Dementia Podcast, presenters Leon and Fran are joined by Kathy, a project facilitator from House of Memories in Liverpool. Kathy explains how the programme uses museum objects to spark conversation and reminiscence through free themed “memory suitcases,” a mobile museum van with immersive digital screens, and a free app that puts themed museum collections “in your pocket.” She discusses adapting content for younger-onset dementia and creating culturally relevant suitcases (including Irish, Chinese, and Afro-Caribbean) with community input. The group talks about outcomes such as reducing isolation, creating shared experiences for families and carers, and “magic moments” where people speak or read unexpectedly. They also share practical, low-cost ideas like making a personal memory box and using meaningful objects and music while being mindful that some memories can be emotional. Resources & Further Reading: Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging SURF (Service Users Reference Forum): https://surfdementia.org/ Alzheimer’s Society: https://www.alzheimers.org.uk/ Carers UK: https://www.carersuk.org/ Reddit Dementia Communities: https://www.reddit.com/r/dementia/ Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney Chapters: 00:00 Podcast Introductions 00:37 Meet House of Memories 01:37 Growing With Community 02:33 Memory Suitcases Explained 03:20 Why Reminiscence Works 05:24 Updating For Younger Onset 07:06 Sessions In The Community 09:34 The Mobile Museum Van 11:54 App Takeaway And Outcomes 13:46 Funding And Support 15:21 Culture And Inclusion Suitcases 16:49 DIY Memory Box Tips 20:39 Living With A Memory Box 21:53 Memory Box Boost 23:04 Music Mood Triggers 24:29 Talking Through Memories 26:06 House of Memories Impact 26:55 Magic Moments Bus 28:22 How the Bus Works 29:30 Engage Dementia Community 32:02 Reminiscence Corner Break 32:43 Holiday Change Overwhelm 35:20 Meaningful Objects Only 37:48 Personal Keepsake Stories 40:57 Closing Thanks Resources

    42 min

  4. Apr 29

    Dementia Friendly Radio: Music, Memory & Calm Listening | Fighting Dementia Episode 35

    On this episode of the Fighting Dementia Podcast, Leon is joined by presenters Fran (Alzheimer’s/mixed dementia) and Tom (mixed dementia) alongside guest Nat from Merseyside Dementia Friendly Radio (MDFR). Nat explains he founded MDFR in early 2020 after caring for family members with dementia and wanting comforting audio without distressing content. The station is dementia friendly rather than dementia focused, offering clear, simple presentation with no news, no adverts, and reduced “sonic clutter,” and curating music around listeners’ “memory bump,” shifting eras from the 1930s–80s to the 40s–90s. Nat shares access options (website mdfr.co.uk, Alexa, and DAB in Liverpool areas), listener feedback, and MDFR’s Merseyside noticeboard for dementia events and services. The group discusses how music supports mood, reminiscence, conversation, and wellbeing, and Nat invites donations and volunteers plus feedback and advisory groups. www.mdfr.co.uk Resources & Further Reading: Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging SURF (Service Users Reference Forum): https://surfdementia.org/ Alzheimer’s Society: https://www.alzheimers.org.uk/ Carers UK: https://www.carersuk.org/ Reddit Dementia Communities: https://www.reddit.com/r/dementia/ Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney Chapters: 00:00 Podcast Welcome 00:29 Meet Nat and MDFR 01:15 Why Start the Station 02:49 Dementia Friendly Not Focused 05:16 How to Listen DAB Alexa Web 08:36 Local Flavour Noticeboard 10:43 No News No Adverts 15:03 Music and Reminiscence Power 19:48 Using Music on Bad Days 23:00 Science of Music Memory 24:48 How to Tune In 30:09 Playlist Stories and Videos 32:47 Alexa Tips 35:05 Final Thanks and Radio Example

    42 min

  5. Apr 13

    Lasting Power of Attorney, Capacity, and Protecting Your Wishes | Fighting Dementia Episode 34

    On the Fighting Dementia Podcast, Leon is joined by co-hosts Fran and Tom, who live with mixed dementia, and guest Anne Forrester, a chartered legal executive, to discuss why families should arrange lasting powers of attorney (and eventually wills) as early as possible. Anne explains how powers of attorney help trusted people make financial and health/welfare decisions, avoid social services or court involvement, and keep control for longer through clear, personalised instructions, including care preferences and end-of-life guidance. She outlines choosing attorneys, handling disagreements, safeguarding via Office of the Public Guardian registration (taking 12–16 weeks), and the risks and delays of deputyship if capacity is lost. Fran and Tom share how family conversations and early planning bring peace of mind and allow focus on living well with dementia. Resources & Further Reading: Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging SURF (Service Users Reference Forum): https://surfdementia.org/ Alzheimer’s Society: https://www.alzheimers.org.uk/ Carers UK: https://www.carersuk.org/ Reddit Dementia Communities: https://www.reddit.com/r/dementia/ Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney 00:00 Podcast Welcome 00:38 Why Legal Planning Matters 02:08 Anne’s Dementia Story 03:29 Family Struggles Without Paperwork 06:25 Choosing Attorneys Together 10:07 Health and Welfare Decisions 12:39 DNR and Personal Wishes 15:16 How Many Attorneys to Appoint 16:49 When Families Disagree 19:16 Fran’s Power of Attorney Setup 21:44 Talking It Through as a Family 22:13 Talk Early Together 23:30 Power Of Attorney Steps 26:11 Safeguards And Registration 27:30 No LPA Deputyship Costs 28:28 Choosing Trusted Attorneys 29:34 Complaints And Investigations 31:40 DIY Vs Solicitor Help 33:05 Living Well After Diagnosis 35:17 Acceptance And Peace Of Mind 37:38 Insurance Policy Wrap Up 38:18 Final Thanks And Disclaimer

    39 min

  6. Apr 6

    Living Well, Awareness, and Support for Families | Fighting Dementia Episode 33

    On the Fighting Dementia Podcast, Fran (Alzheimer’s/mixed dementia), Tom (mixed dementia), and Marion speak with Jack, chair of the Liverpool Dementia Action Alliance (DAA), about how he became involved through Dementia Friends training and how the DAA works as a Liverpool-wide federation of 114 member organisations. Jack explains the DAA’s focus on spreading dementia awareness, improving dementia-friendly practices in sectors like retail, housing, design, policing, and health, and signposting families to support and activities via directories and social prescribers. The group discusses misunderstandings about dementia, the importance of “living well,” challenges for carers, and approaches like meeting people in their reality. They highlight young-onset dementia awareness (an event on 7 May at Central Library), work with diverse communities, and a key achievement: informing Liverpool’s 2019–2024 dementia action plan, including creating respite beds for carers. Resources & Further Reading: Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging SURF (Service Users Reference Forum): https://surfdementia.org/ Alzheimer’s Society: https://www.alzheimers.org.uk/ Carers UK: https://www.carersuk.org/ Reddit Dementia Communities: https://www.reddit.com/r/dementia/ Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney 00:00 Welcome and Introductions 01:04 Meet Jack and the Big Question 01:49 How Jack Joined the DAA 04:48 Dementia Myths and Realities 08:00 What the DAA Actually Does 10:17 Dementia Friendly Design and Housing 12:14 Retail Training and Shop Stickers 16:56 Young Onset Awareness Event 20:08 Signposting Support and New Charity 23:57 Spreading Beyond Liverpool 28:19 GP Training and Better Diagnosis 31:08 Living Beyond Diagnosis 31:54 Finding Support Networks 32:45 Staying Active With Purpose 34:11 Kind Communication Strategies 35:19 Compassionate Distraction 38:14 What DAA Actually Is 40:09 Reaching Diverse Communities 42:10 Biggest Wins And Impact 46:49 Unequal Care By Postcode 48:19 Navigators And Advocacy 51:31 How To Volunteer 53:11 Hearing And The Senses 55:14 Every Dementia Is Different 58:28 Closing Thoughts And Outro

    56 min

  7. Mar 30

    Dementia, Behaviour Change & the Power of Music | Fighting Dementia Episode 31

    In this episode, the hosts discuss behaviour change with Tom, who lives with dementia, focusing on how hard it can be to build habits like drinking more water and adjusting diet. Tom explains that he often forgets to drink, even during cycling or long periods of focused activity like painting or building a racing simulator, and he questions the point of changing habits given his diagnosis, despite acknowledging water could help with cognition, concentration, exercise, and fatigue. The conversation also covers Tom’s sugar intake, his preference for sweet tastes due to reduced taste, and his view that an active lifestyle offsets diet choices. A later segment reflects on a music therapy discussion about how music can reach people in ways words can’t; Tom shares how music lifts his mood and what he likes to listen to. Resources & Further Reading: Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging SURF (Service Users Reference Forum): https://surfdementia.org/ Alzheimer’s Society: https://www.alzheimers.org.uk/ Carers UK: https://www.carersuk.org/ Reddit Dementia Communities: https://www.reddit.com/r/dementia/ Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney Chapters: 00:00 Welcome and Setup 00:21 Why Water Is Hard 01:46 Hydration and Fatigue 03:06 Reminders and Friction 03:46 Diet and Sugar Debate 06:03 Taste Loss and Sweetness 07:39 Motivation to Change 08:34 Staying Active Mindset 09:48 Sugar Burning Off Argument 12:20 Music Therapy Clip 13:30 Tom on Music and Mood 15:18 Wrap Up and Thanks

    16 min

  8. Mar 23

    Behaviour Change with Dementia - Marion on Supporting Tom 8 Years In | Fighting Dementia Episode 30

    Leon catches up with Marian, Tom’s wife and co-host, on how behavior changes have gone as Tom’s dementia progresses, focusing on hydration, diet, routines, and learning new skills. Marian says Tom enjoys painting and golf, but finds drinking enough water harder, using Alexa reminders, fridge stickers, and bottled water visibility to help. They discuss taste changes driving a sweet tooth, small diet shifts like moving from white to brown bread, and balancing enjoyment with healthy choices. Marian believes behaviour change is still possible eight years after diagnosis if the person wants it, noting Tom’s motivation and the podcast giving him purpose and lifting his mood during fatigue. She also shares practical support tips: routines, prompts, and doing tasks like cooking together as he struggles to follow recipes and read steps. Resources & Further Reading: Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging SURF (Service Users Reference Forum): https://surfdementia.org/ Alzheimer’s Society: https://www.alzheimers.org.uk/ Carers UK: https://www.carersuk.org/ Reddit Dementia Communities: https://www.reddit.com/r/dementia/ Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney Chapters: 00:00 Welcome and catch up 00:50 Diet and sweet cravings 02:30 Getting more water 03:52 Hobbies versus habits 05:21 Balancing enjoyment and health 07:07 Can change still happen 07:42 Acceptance and denial 09:08 Podcast as purpose 11:09 Subscribe and support 11:39 Living in the present 12:39 Tea making and recipes 13:54 Routines and reminders 15:45 Final thanks and disclaimer

    16 min
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About

Hosted by Fran & Tom who live with Dementia, we’re a podcast & community for those impacted in the early to middle stages – offering expert insights, honest stories & support. For those diagnosed, carers & families who need to feel seen, informed & less alone 🤝 **New Episodes Weekly On Mondays!** We want to take viewers on a journey to see what behaviours can be adapted, changed or moulded to support good brain health, and fight the progression of Dementia 🥊

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