Patty's Place

Lisa

A place to talk about grief, dementia and caregiving. A place to find comfort when you are going through a difficult time. A place to know you are not alone as you go through this difficult time.

  1. 4d ago ·  Video

    Understanding Frontotemporal Dementia-Interview with Sarah Lopata

    I would love to hear from you. Send me questions or comments. Dementia doesn’t always start with forgetting. Sometimes it starts with a personality shift that feels like a stranger moved into your house, a sudden loss of empathy, a scary change in judgment, or speech that just won’t come out right. We’re joined by Sarah Lapata from the Association for Frontotemporal Degeneration (AFTD) to unpack frontotemporal degeneration (FTD) in plain language, with the details families actually need when they’re trying to make sense of what’s happening. We talk about why FTD is a leading cause of young onset dementia, why it can be misdiagnosed as Alzheimer’s or a psychiatric disorder, and why the path to an accurate diagnosis can take years. Sarah explains what makes FTD different, what “anosognosia” means when a loved one truly can’t see their own symptoms, and how that lack of insight can turn everyday life into conflict, especially around safety issues like driving. We also walk through the FTD umbrella, including behavioral variant FTD, primary progressive aphasia, movement-related syndromes that can resemble Parkinson’s, and the overlap some people face with ALS. We get into genetics, what “sporadic” vs “familial” can mean, and why meeting with a genetic counselor can help you think through testing without pressure. We also highlight palliative care as a holistic support that can start earlier than most people assume, plus the value of support groups and the AFTD helpline for real-world strategies and relief. If this conversation helps, subscribe, share it with someone who’s caregiving, and leave a review so more families can find it when they need it most. AFTD - The Association for Frontotemporal Degeneration Support the show

  2. Sep 30 ·  Video

    Congrats, You’re The Parent Now-Interview with Kim & Alex

    I would love to hear from you. Send me questions or comments. Caregiving can sneak up on you. One day you’re doing a favor, the next you’re managing medications, appointments, mobility issues, safety at home, and the emotional whiplash of watching a parent change. We sit down with Kim Branch Lucid and Alexander Nuri, co-authors of Survival Guide to Caring for Aging Parents, to talk about what the earliest warning signs really look like, especially with Alzheimer’s disease and dementia, and how to respond before a “small problem” becomes a crisis. We also dig into why eldercare feels like a maze in the United States. Medicare basics, Medicare Advantage versus supplements, Medicaid eligibility that varies by state, patient privacy, and the constant question of “what’s covered” can wear families down fast. Kim and Alex share practical guidance for getting help, including when a Medicare or Medicaid consultant can save time, money, and stress, and why moving a parent to assisted living or memory care still requires strong family advocacy. Then we get real about the risks nobody warns you about enough: financial scams targeting older adults, caregiver guilt, burnout, and the quiet loss of your own life if you don’t set boundaries. We cover self-care that actually works, support groups, and the legal documents that keep families from scrambling later, like power of attorney, POLST, and trust planning. If you’re caring for aging parents or you see it coming, listen now and share this with someone who needs it. Subscribe, leave a review, and tell us: what part of caregiving feels most confusing right now? https://www.caring4agingparents.net/ Support the show

  3. Sep 23 ·  Video

    How To Advocate For A Loved One When Healthcare Gets Complicated-Interview with Tiffany Auvil

    I would love to hear from you. Send me questions or comments. One phone call can change everything: “Your insurance didn’t approve it, so we’re canceling treatment tomorrow.” That moment kicks off a powerful conversation with Tiffany Ovell, a registered nurse, functional medical health coach, and caregiver coach who learns what it really takes to protect a family when the healthcare system gets messy. Tiffany shares how her husband’s renal cell cancer returned years later, metastasized, and turned their lives into a rotating schedule of specialists, scans, and decisions. Even with two decades inside clinics and leadership roles, she’s shocked by how often caregivers are expected to accept confusing answers without context. We talk through the prior authorization mix-up that nearly delayed immunotherapy, why medical codes and documentation matter, and how “push back politely” can be the difference between waiting and getting care. Then the story gets even more complicated: vision symptoms, an inconclusive eye biopsy, brain lesions, gamma knife radiation, an emergency craniotomy, and the discovery of a second primary cancer, central nervous system lymphoma. Tiffany explains why rare diagnoses get missed, how treatment changes overnight, and what it looks like to weigh quality of life versus quantity of life when the road ahead is terminal. We also get real about hospice, end-of-life conversations, and the grief that comes after a loved one dies at home, including the small decisions nobody prepares you for and the financial and legal tasks that show up when you’re already exhausted. Tiffany’s book, The No BS Guide to Caregiving, is built for people who “don’t have a Tiffy,” and her website offers tools to help you get organized fast. If you’ve ever felt overwhelmed by caregiving, dementia, cancer care, insurance denials, or medical paperwork, hit play, then subscribe, share with someone who needs it, and leave a review so more caregivers can find this support. ffanyauvil.com Support the show

  4. Sep 16 ·  Video

    Caregiving In The Raw-Interview with Lisa Berlanga

    I would love to hear from you. Send me questions or comments. The parts of dementia caregiving that break you are often the parts nobody wants to describe in polite company. So we decided to talk about them plainly. I’m Lisa, your host of Patty’s Place, and I sit down with author Lisa Berlanga to unpack what dementia care really feels like when you’re overwhelmed, anxious, sleep deprived, and trying to hold your family together at the same time. Lisa wrote *Dementia in the Raw: Confessions of a Caregiver Uncensored* after living the day to day reality of caring for her mom, and she doesn’t sugarcoat it. We talk about why many “perfect” caregiving guides are impossible to use in the moment you need them most, and why it matters to hear someone say, “Yes, this is awful right now.” We also get into the misconception that family caregivers are “just helping,” when the truth is you’ve taken on a full-time job with a shifting job description, heavy medical responsibility, and nonstop emotional labor. We dig deep into sundowning and sleep deprivation, caregiver burnout, and the guilt that makes it hard to ask for rest. Lisa shares practical dementia caregiving strategies that actually help, from cutting down endless laundry to getting organized with schedules and written task lists so someone else can step in. We also talk about communication tips for dementia, the fear and confusion your loved one may be living in, and the grief of the moment they stop knowing who you are, even as connection can still exist in surprising ways. If you’re a family caregiver, part of the sandwich generation, or supporting someone in memory care, this conversation is for you. Subscribe, share this with someone who needs to feel less alone, and leave a review to help other caregivers find Patty’s Place. What’s the one caregiving challenge you want us to answer next? https://dementiaintheraw.com/ Support the show

  5. Sep 9 ·  Video

    Care Options For Dementia-Interview with Barbara Lambert

    I would love to hear from you. Send me questions or comments. Dementia doesn’t announce itself, it sneaks in through small changes until one day you realize nothing feels normal anymore. We sit down with Barbara Lambert, founder of Home to Home for Seniors, to talk through what happens next when your family is suddenly searching for senior care and you have no idea where to begin. We get specific about what “appropriate dementia care” actually looks like as symptoms progress: safety, supervision, medication support, hydration, toileting, and a plan for the nights when nobody is sleeping. Barbara explains why a solo family caregiver often hits a breaking point and how guilt can lead to compromised care. We also dig into crisis triggers families commonly face, including wandering and falls, plus a medical curveball many people miss: urinary tract infections that can show up as sudden aggression, confusion, or “packing up to leave.” From there, we map the real-world options and costs, including in-home caregivers, adult day care, assisted living, memory care, and skilled nursing. Barbara shares how to vet facilities beyond online reviews by using Medicare nursing home ratings as a guide and then visiting in person. We also talk about family conflict, power of attorney, and why education and clear roles matter when siblings disagree. Finally, Barbara points listeners to free resources on her site, including a veterans tab and an overview of Aid and Attendance benefits that may help fund care. If you’re carrying this alone, let’s change that. Subscribe for more conversations on dementia, grief, and caregiving, then share this with someone who needs a clearer next step and leave a review so more families can find the help sooner. https://home2home4seniors.com/ Support the show

  6. Sep 2 ·  Video

    You Can Lower Dementia Risk With Small Daily Habits-Interview with Alzheimer's Association

    I would love to hear from you. Send me questions or comments. We sit down with Kaylee Rizzo and Hattie Finnerty from the Alzheimer’s Association Illinois Chapter to get clear about what dementia is, what Alzheimer’s is, and what early signs should prompt a real medical conversation. We also share practical brain health steps, caregiver support options, and ways to get involved so no one has to navigate this alone.  • dementia as an umbrella term with Alzheimer’s as the most common form  • early warning signs beyond typical aging like repeating questions, getting lost, and losing social filters  • why a thorough diagnosis matters and why earlier care can help more  • other conditions that can mimic cognitive symptoms like depression, thyroid issues, and vitamin deficiencies  • brain health momentum in research including lifestyle intervention findings from the U.S. POINTER Study  • realistic habits for brain health including diet, exercise, learning, stress reduction, and social connection  • Alzheimer’s Association resources like alz.org, support groups, ALZ Connected, and the 24/7 helpline at 800-272-3900  • caregiver guidance on safety, communication, and letting go of guilt  • how to join the Walk to End Alzheimer’s, form a team, and volunteer  I always tell everybody go check out the Alzheimer’s Association website, call the helpline  So make sure you leave us a review, subscribe to our YouTube channel as well, and check out the Alzheimer’s Association website.  Support the show

  7. Aug 28 ·  Video

    After The Dementia Diagnosis-Interview with Grace Walfall

    I would love to hear from you. Send me questions or comments. A dementia diagnosis can feel like getting dropped into the middle of a maze with a pamphlet and a long wait until the next appointment. We wanted to close that gap, so we sat down with Grace Walfall, founder of Living with Change, Dementia Consultants, and author of *Preparing with Clarity: Next Steps After Dementia Diagnosis*. Grace is a certified dementia practitioner, dementia champion, and educator trained in a Positive Approach to Care, and she brings a calm, practical framework that helps families stop spiraling and start moving forward. We dig into why even “good” medical advice can still leave you feeling lost. Medical information can explain what may be happening in the brain, but it often doesn’t answer the real-life questions: What does tomorrow morning look like? Who needs to know? What should we gather first? Grace explains why naming the type of dementia matters (Alzheimer’s, vascular, Lewy body, frontotemporal, and mixed dementia) and how that clarity supports better planning, better conversations, and better expectations. Then we get concrete. Grace walks us through the first steps after diagnosis, including creating a simple “home base” for critical documents like medication lists, insurance details, emergency contacts, advance directives, and HIPAA authorization so the right people can access medical information when it counts. We also talk about dignity-centered planning, how to include the person living with dementia while their preferences can still be heard, and why “don’t correct, connect” can change everything in hard moments. If you want a steadier path through dementia caregiving, hit play, share this with someone who needs it, and please subscribe, leave a review, and tell us what planning question you’re wrestling with right now. Support the show

  8. Aug 19 ·  Video

    You Can Be Afraid Of Dying And Still Live Well-Interview with Dr. Elizabeth Scott

    I would love to hear from you. Send me questions or comments. Death is the one certainty we all share, and somehow it still blindsides us when we get close to it. We talk with psychologist Dr. Elizabeth Scott about the moment her breast cancer diagnosis turned “someday” into “this could be soon” and why that shock can send us into denial, avoidance, or frantic control. Her book, You’re Going to Die but not me, tracks a deeply human shift from near terror toward a more livable relationship with mortality, without pretending fear disappears overnight. We dig into what actually helps with mortality anxiety and grief: approaching the scary topic safely and gently, the way exposure therapy works in psychology, instead of avoiding it and letting it grow louder in your mind. We also explore an unexpected idea Dr. Scott found comforting, panpsychism, and how thinking about life as part of a larger web can soften the hard edges of “ending.” Along the way, we connect these themes to dementia caregiving, memory care, and what it means to enter a loved one’s world and stay present when the future feels uncertain. We also get practical about end-of-life planning, from getting your affairs in order to making clear choices about what you want done with your body, so your kids are not left guessing. And we talk about support language that matters: don’t tell horror stories, don’t minimize, and when you’re unsure, ask, “Would you like advice or would you like to be heard?” If this conversation helps you, subscribe, share it with a caregiver or friend, and leave a review. What’s one small step you can take this week to face what you’ve been avoiding? SUBSTACK: https://lizscottwriter.substack.com WEBSITE: www.lizscottwriter.com   Support the show

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A place to talk about grief, dementia and caregiving. A place to find comfort when you are going through a difficult time. A place to know you are not alone as you go through this difficult time.