Refrigerator Moms

Kelley Jensen, Julianna Scott

Born from 20 years of friendship, during which they navigated the trenches of autism parenting and advocacy, the Refrigerator Moms is Kelley Jensen and Julianna Scott’s way of reaching out to parents waging the same battles they were.  Their purpose with this podcast is to clear the fog, silence the noise, and find a path through neurodivergence for parents that are stuck between bad choices. They tackle parenting topics such as mom guilt, tantrums, pathological demand avoidance, siblings, medication, comorbidities, social media, and much more. 

  1. 3d ago

    Not About Autism: A Refrigerator Moms Side Chat

    Kelley Jensen and Julianna Scott launch a new segment called Not About Autism, built on a simple idea: parents managing complex mental health challenges need real breaks, not more algorithm-fed autism content. To kick it off, they dig into a 2006 email thread from back when they first became friends, revisiting early medication decisions, a beloved longtime psychiatrist, and a very of-its-era debate over The Devil Wears Prada. Along the way they talk reality TV, online shopping in its infancy, the Anne Hathaway-led Yesteryear adaptation, and Emily Wilson's Odyssey translation.  Key Takeaways: A new recurring segment, Not About Autism, is designed as an intentional break from autism-focused contentKelley and Julianna read from an actual 2006 email exchange between themThe email covers an early medication decision, including a diagnosis and a first anti-anxiety prescriptionThey both still recommend the same psychiatrist referenced in that 2006 emailTheir paper "A Tough Pill to Swallow" covers how they evaluate whether a medication is workingThe conversation drifts into The Devil Wears Prada, both book and movie, and its sequelThey recommend the documentary The September Issue as a companion watchBook chat touches on Yesteryear, the trad-wife novel Anne Hathaway is adaptingThey also discuss Emily Wilson's translation of The OdysseyA future Not About Autism episode will cover the Jane Austen Society Resources Mentioned in This Episode: A Tough Pill to Swallow — a Refrigerator Moms paper on medicating autism and how to evaluate whether a medication is working. (https://refrigeratormoms.com/a-tough-pill-to-swallow-medicating-autism/) The Devil Wears Prada — the novel and film referenced throughout the conversation, along with its upcoming sequel.(https://www.imdb.com/title/tt0458352/?ref_=nv_sr_srsg_3_tt_7_nm_1_in_0_q_the%20devil%20wears) The September Issue — a documentary about Anna Wintour and Vogue, recommended as a companion watch to The Devil Wears Prada. (https://www.imdb.com/title/tt1331025/) The Run-Through with Vogue — hosted by Chloe Malle, mentioned in connection with behind-the-scenes stories about Anna Wintour and Vogue. (https://open.spotify.com/episode/5h0FDZsFjP3DOuvia003mB) Yesteryear — a novel about a trad-wife influencer, being adapted into a film starring Anne Hathaway. (https://www.penguinrandomhouse.com/books/780686/yesteryear-a-gma-book-club-pick-by-caro-claire-burke/) The Odyssey (Emily Wilson translation) — referenced in discussing Anne Hathaway's performance in a related adaptation. (https://wwnorton.com/books/9780393356250) 🔗 Learn More:Website: refrigeratormoms.comInstagram: https://www.instagram.com/refrigeratormoms/LinkedIn: https://www.linkedin.com/company/refrigeratormomsFacebook: https://www.facebook.com/refrigeratormoms/TikTok: https://www.tiktok.com/@RefrigeratorMoms Refrigerator Moms is sponsored by Brain Performance Technologies, a specialty mental health clinic that offers neuromodulation treatments for mental health conditions including depression, PTSD, OCD, anxiety, ADHD and autism. Our treatments utilize TMS (transcranial magnetic stimulation) protocols including rTMS, aTMS, and MeRT. All of our treatments are drug-free and noninvasive. Call for insurance options or learn more at https://brainperformancetechnologies.com 00:00 Introducing Not About Autism00:24 Why parents need a break from autism talk01:10 Life before phones, email, and social media01:44 Pulling up a 2006 email thread02:31 The email topic: medication02:54 A first psychiatrist visit and diagnosis03:10 Starting buspar, an anti-anxiety medication04:00 Emoji habits then versus now04:45 Brain Performance Technologies sponsor message05:06 Managing medication with Jamba Juice and yogurt05:44 Devil Wears Prada plans, twenty years ago06:13 Tough Pill to Swallow, their medication paper06:39 Back to Devil Wears Prada talk07:07 Confessing a reality TV addiction07:20 Real World before Real Housewives07:31 The book's first hundred pages verdict08:06 Coordinating babysitting and free weekends08:25 Early days of online shopping08:57 Whether they ever saw Prada 209:25 Comparing the movie to the book10:08 Frustration with endless remakes and sequels10:34 The Vogue Runway podcast comes up11:24 Brain Performance Technologies sponsor message11:45 The September Issue documentary recommendation12:23 Asking for a new book recommendation12:30 Introducing the novel Yesteryear13:19 Anne Hathaway's Odyssey performance14:00 Emily Wilson's Odyssey translation14:13 Teasing the Jane Austen Society

    Not About Autism: A Refrigerator Moms Side Chat
  2. Jul 22

    KultureCity Wants Every Stadium, Bar, and Airport Sensory Friendly

    Tash Dillmon, co-host of Moms Talk Autism, joins the show to talk about KultureCity, the nonprofit making stadiums, airports, bars, and churches sensory inclusive nationwide, and what that access actually looks like in practice. Tash also opens up about parenting her son Jack, now in middle school, as his needs shift from visible behaviors toward anxiety and identity questions like "why am I different?" She and the hosts talk through therapy, TMS, medication, and what it really means to be a child's "safe person," plus a candid take on the controversial book Upward Bound and facilitated communication. Key Takeaways: KultureCity is a nonprofit that certifies sensory inclusive spaces, including NFL stadiums, airports, bars, and churchesCertified locations offer sensory bags with noise-reducing headphones, fidget tools, and communication cardsKultureCity's app locates certified venues and includes the Koji system for non-speaking communicationAutism intensity often comes in waves rather than steadily decreasing with ageAs kids get older, the focus can shift from managing behaviors to managing anxiety, depression, and identityBeing a "safe person" doesn't mean avoiding hard truths, it means being the one trusted to tell themChronic conditions like anxiety, depression, and OCD require ongoing management, not a single fixTherapy readiness evolves over time, and repeated exposure to new tools matters more than one right answerMasking is exhausting, and home can be the place where kids don't have to do itResources Mentioned in This Episode: KultureCity: the nonprofit sensory inclusive certification organization discussed throughout the episode, covering stadiums, airports, bars, and other venues, including its app and the Koji communication systemLove on the Spectrum: the TV series discussed near the end of the episode, including the Inclusion Fusion program in Las Vegas featured on the showInclusion Fusion: a program based in Las Vegas mentioned as featured on Love on the Spectrum and attended by Tash's sonUpward Bound by Woody Brown: a novel discussed as reportedly written with facilitated communication, recommended despite skepticism about its authorshipTell Them You Love Me: a documentary referenced regarding the Anna Stubblefield case and the dangers of facilitated communication🔗 Learn More:Website: refrigeratormoms.comInstagram: https://www.instagram.com/refrigeratormoms/LinkedIn: https://www.linkedin.com/company/refrigeratormomsFacebook: https://www.facebook.com/refrigeratormoms/TikTok: https://www.tiktok.com/@RefrigeratorMoms Refrigerator Moms is sponsored by Brain Performance Technologies, a specialty mental health clinic that offers neuromodulation treatments for mental health conditions including depression, PTSD, OCD, anxiety, ADHD and autism. Our treatments utilize TMS (transcranial magnetic stimulation) protocols including rTMS, aTMS, and MeRT. All of our treatments are drug-free and noninvasive. Call for insurance options or learn more at https://brainperformancetechnologies.com 00:00 Introducing guest Tash Dillmon00:45 What KultureCity is and does01:46 How KultureCity certifies venues03:11 Inside a sensory room setup04:17 What's in the KultureCity sensory bag04:58 The Koji communication system05:30 How to find certified venues06:32 Staff training requirements explained07:22 Sensory friendly airports08:22 Sensory friendly bars explained09:30 Meet Tash's family and son Jack09:55 Jack's diagnosis and school setting12:07 Jack's academic and support levels13:57 Shift from behaviors to mental health17:14 Starting the mental health conversation19:14 TMS and managing OCD symptoms21:10 Framing autism as a chronic condition22:06 Doing better than the last generation25:22 Becoming your child's trusted resource27:06 The risk of masking under pressure30:16 Talking honestly about wearing masks34:30 Setting honest expectations with Jack36:04 Building trust for harder truths later41:14 Speed round begins44:22 Upward Bound and facilitated communication46:08 Where to find Moms Talk Autism

    KultureCity Wants Every Stadium, Bar, and Airport Sensory Friendly
  3. Jul 15

    Ready or Not: How to Prepare Autistic Students for College

    Getting into college is not the same as being ready for it, and for autistic students, that gap can lead to a painful call home. Dr. Marci Schwartz, founder of Thrive College Counseling, joins Julianna and Kelley to unpack what real college readiness looks like: executive functioning, independent living, advocacy, and social connection, all built on a foundation of self-awareness. They talk through how parents can tell if a student is truly ready versus just capable, how to talk about fit instead of prestige, and what to do when a student needs to come home and start again. Key Takeaways: College acceptance does not equal college readiness, self-awareness is the real foundationFour core skills to build before college: executive functioning, independent living, advocacy, and social connectionAsking for help in a timely way is itself a college readiness skill, not just a social nicetyNearly 1 in 4 autistic college students drop out, prestige is not protection against thatFit matters more than rank: small classes and known professors can outweigh brand-name schoolsStudents should demonstrate independence in high school, not just promise they'll do it laterIEPs and 504s don't carry over to college, the student must self-identify and request accommodationsComprehensive support programs, executive functioning coaches, and gap-year skill building are real options when a student isn't readyMental health self-identification is its own readiness skill, and often the hardest one to buildNeurodiversity-informed career services matter as much as academic accommodations, because the real goal is career, not just collegeResources Mentioned in This Episode Thrive College Counseling — College counseling service specializing in neurodivergent teens, founded by episode guest Dr. Marci Schwartz https://www.thrivecollegecounseling.com🔗 Learn More:Website: refrigeratormoms.comInstagram: https://www.instagram.com/refrigeratormoms/LinkedIn: https://www.linkedin.com/company/refrigeratormomsFacebook: https://www.facebook.com/refrigeratormoms/TikTok: https://www.tiktok.com/@RefrigeratorMoms Refrigerator Moms is sponsored by Brain Performance Technologies, a specialty mental health clinic that offers neuromodulation treatments for mental health conditions including depression, PTSD, OCD, anxiety, ADHD and autism. Our treatments utilize TMS (transcranial magnetic stimulation) protocols including rTMS, aTMS, and MeRT. All of our treatments are drug-free and noninvasive. Call for insurance options or learn more at https://brainperformancetechnologies.com 00:00 A student's crisis call home from college00:24 Welcome to Refrigerator Moms01:04 Why college readiness starts in 9th grade01:04 Meet Dr. Marci Schwartz01:57 From therapist to college counselor02:55 The biggest gap in family understanding03:50 College capable versus college ready04:06 The four core readiness skills04:31 Self-awareness as the foundation05:08 Building self-awareness through mistakes06:09 Asking for help is a social skill06:29 Redefining what social support means08:23 Sponsor: Brain Performance Technologies09:31 Scaffolding versus true independence10:32 The show me standard for readiness11:03 What demonstrating responsibility looks like13:17 Executive functioning and independent living13:31 Advocacy and IEP meeting involvement14:15 Social skills and roommate life14:33 What realistic prep looks like in high school16:40 When to start these conversations17:26 Talking to parents fixed on prestige19:05 The one in four dropout statistic19:40 How Dr. Schwartz evaluates college fit21:15 Helping students recognize their own fit21:47 Advice for students who come home23:34 Mental health signs students must self-identify24:53 Deferring enrollment versus community college26:35 Sponsor: Brain Performance Technologies27:24 What accommodations carry over to college28:48 Comprehensive support programs explained29:22 The hardest part to set up: mental health30:31 Neurodiversity-informed career services31:41 Closing advice for families32:45 Where to find the Refrigerator Moms paper

    Ready or Not: How to Prepare Autistic Students for College
  4. Jul 8

    Partial Credit: What RFK Jr. Got Right (and Wrong) About Deprescribing

    RFK Jr. and HHS have launched a deprescribing campaign, and the Refrigerator Moms have thoughts. Julianna and Kelley agree that psychiatric medication, especially for kids and teens, is often over prescribed. But they push back on what's actually being offered as a solution: fast-tracked psychedelic medication, while non-invasive, drug-free options like TMS go unmentioned. They dig into who's prescribing SSRIs (it's not just psychiatrists), what's missing from the conversation about alcohol and legalized cannabis interacting with medication, and why a real deprescribing conversation needs to include real alternatives, not just a new drug. Key Takeaways: RFK Jr. and HHS have started a deprescribing campaign for psychiatric medicationJulianna and Kelley agree overprescribing is real, especially for children and adolescentsThe campaign's main alternative appears to be fast-tracked psychedelic medicationTMS, a non-invasive, drug-free option, is largely absent from the public conversationTMS is currently covered by insurance for ages 15 and upAbout 40% of SSRIs are prescribed by general practitioners, not psychiatristsLegalized cannabis and its interaction with SSRIs remains understudiedPsychiatrists often lack education about alternatives like TMS and can act as gatekeepersTMS is also FDA cleared for smoking cessation, relevant given rising vaping ratesThe hosts want a real conversation about alternatives, not a surface-level one🔗 Learn More:Website: refrigeratormoms.comInstagram: https://www.instagram.com/refrigeratormoms/LinkedIn: https://www.linkedin.com/company/refrigeratormomsFacebook: https://www.facebook.com/refrigeratormoms/TikTok: https://www.tiktok.com/@RefrigeratorMoms Refrigerator Moms is sponsored by Brain Performance Technologies, a specialty mental health clinic that offers neuromodulation treatments for mental health conditions including depression, PTSD, OCD, anxiety, ADHD and autism. Our treatments utilize transcranial magnetic stimulation (TMS) protocols including rTMS, aTMS, and MeRT. All of our treatments are drug-free and noninvasive. Call for insurance options or learn more at https://brainperformancetechnologies.com 00:00 RFK Jr.'s deprescribing campaign begins00:18 Welcome and today's topic00:27 Their Dear RFK letter on the website01:00 Where they agree with RFK Jr.01:23 Psychedelic medication is the proposed fix01:49 Concerns about disassociative drugs for kids02:11 Revisiting their prior medication episode02:40 Are SSRIs studied in combination with other drugs02:56 The big question: what are the alternatives03:26 TMS is missing from the deprescribing conversation03:49 Searching news comments for TMS mentions04:28 TMS insurance coverage starts at age 1505:07 General practitioners prescribe 40% of SSRIs05:52 A surface-level conversation isn't enough06:01 Sponsor: Brain Performance Technologies06:33 What "prescribed correctly" really means06:55 Legal cannabis and SSRIs, an understudied mix07:40 TMS is FDA cleared for smoking cessation08:06 Is RFK Jr. having this conversation in earnest08:35 Overprescribing is real, but so is the need for alternatives09:14 Closing thoughts and how to support the show

    Partial Credit: What RFK Jr. Got Right (and Wrong) About Deprescribing
  5. Jul 1

    A Mother's Wish List for Her Severely Autistic Son

    Nearly one in three autistic people are profoundly autistic: they need round-the-clock care, often cannot speak for themselves, and are rarely part of the public conversation about autism. Julianna Scott and Kelley Jensen built a short paper and a wish list for this community, and this episode walks through both. They trace how the 2013 DSM-5 change folded everyone under one autism umbrella, why that left the most severely affected fighting for the same scarce services, and where the real gaps sit: staffing paid at poverty wages, research that screens out anyone with an IQ under 70, adult services that barely exist, and policy that treats safe, shared housing as "institutional." Along the way they get personal about caregiving versus parenting, the loneliness of independent living done without community, and one creative win: an ABA therapist who taught a 26-year-old to love movies over Zoom, one scene at a time. Key takeaways: Roughly 27% of autistic people are level three, or profoundly autistic, yet the term only entered the literature in 2021.The DSM-5 change in 2013 widened the umbrella and stopped tracking the most severe cases separately.Less than 15% of autism research funding is estimated to reach profound autism.Therapists are scarce because the work is hard, the pay is low, and the required licensure is expensive to earn.Many clinical trials require an IQ of 70 or higher, excluding much of this population.Rules meant to prevent "congregate" or "institutional" settings can block the shared, safe housing many families actually want.A separate diagnosis for profound autism could route higher-need people to services first.IHSS pays family caregivers, often at minimum wage, because there is frequently no one else and no day program available.The hosts' wish list spans housing, communication, schools, caregiving, medical care, reproductive health, and social life.🔗 Learn More:Website: refrigeratormoms.comInstagram: https://www.instagram.com/refrigeratormoms/LinkedIn: https://www.linkedin.com/company/refrigeratormomsFacebook: https://www.facebook.com/refrigeratormoms/TikTok: https://www.tiktok.com/@RefrigeratorMoms Resources:VOR (A Voice of Reason) www.vor.net A national nonprofit advocating for a full continuum of care options and family decision-making rights for people with intellectual and developmental disabilities.Together for Choice www.togetherforchoice.orgA national organization fighting to protect the rights of individuals with I/DD to live, work, and thrive in a setting of their choice.Solidarity: Parent-to-Parent Support www.solidarityp2p.orgA peer support network for families raising children with severe autism and neurobehavioral disorders.National Council on Severe Autism (NCSA) www.ncsautism.org A nonprofit pursuing recognition, policy, and solutions for individuals and families affected by severe autism. Refrigerator Moms is sponsored by Brain Performance Technologies, a specialty mental health clinic that offers neuromodulation treatments including SAINT (Stanford Accelerated Intelligent Neuromodulation Therapy) for treatment-resistant depression and major depressive disorder, as well as MeRT (Magnetic e-resonance therapy) for autistic people aged three or older. Learn more at https://brainperformancetechnologies.com 00:00 The part of autism we rarely talk about00:24 Why this episode is for everyone01:01 The paper and the wish list01:55 2021: the term "profound autism"02:08 How the DSM-5 widened the umbrella03:30 All fighting for the same services04:36 Institutionalized vs shut out05:07 Less than 15% of research funding05:36 The case for a separate diagnosis06:20 Where the gaps are: staffing08:14 The research gap and IQ cutoffs09:35 Adult services barely exist10:53 Policy: self-advocacy vs high needs11:46 Needs versus rights13:01 Facilitated communication, feel-good story14:33 Caregiving versus parenting15:33 The wish list begins: housing16:25 A son's apartment, and his loneliness19:43 Dementia villages, intentional community21:01 Communication and AAC devices21:52 ECT, TMS, and medication22:11 Schools built for life, not academics23:00 The target run problem24:03 Teaching a love of movies over Zoom26:48 Caregiving: a separate licensure27:30 IHSS and paying family caregivers29:24 Medical care and full screening30:46 Reproductive health31:26 Social life and a real community34:00 The paper, and how to help

    A Mother's Wish List for Her Severely Autistic Son
  6. Jun 24

    What "Extreme Caregiving" for Profound Autism Really Means

    Brittney Crabtree is raising four kids whose needs land at opposite ends of the autism spectrum, and she joins Julianna and Kelley for an honest conversation most autism content skips. Her 19-year-old son is profoundly autistic and nonspeaking, needing the round-the-clock care she calls extreme caregiving, not parenting. They get into daily safety planning, sensory and frustration-driven aggression, and a services system that promises community integration then turns families away. Brittney also opens up about long-term residential care, siblings who become caregivers, California's Self-Determination Program, and the grief of planning for a future she won't always be part of. Key Takeaways Extreme caregiving means 24/7 supervision to keep a profoundly autistic, nonspeaking adult both healthy and physically safe.Aggression tends to fall into two buckets: frustration from being unable to communicate a need, and sensory overload."Fort Knox" home setups (door and pantry locks, shiplap over drywall) become necessary for safety and elopement risk.Caring for a profoundly autistic adult is caregiving, not parenting, and naming that distinction helps mentally.Long-term residential planning carries real grief, and starting the acceptance process early helps.Finding appropriate services can feel like a hide-and-seek game where you already have to know someone.California's Self-Determination Program lets families negotiate a budget and choose their own providers, including caregivers their child clicks with.There's no "test the waters" equivalent for adult disability housing the way a college dorm works for typical kids.Siblings often shift from a brotherly role into a caregiving one.Families worry the broader autism conversation is leaving profoundly affected, nonspeaking people behind.🔗 Learn More:Website: refrigeratormoms.comInstagram: https://www.instagram.com/refrigeratormoms/LinkedIn: https://www.linkedin.com/company/refrigeratormomsFacebook: https://www.facebook.com/refrigeratormoms/TikTok: https://www.tiktok.com/@RefrigeratorMoms Organizations mentioned in this episode:rubycakescookies.commomstalkautism.combrave-together.orgwearebravetogether.org Refrigerator Moms is sponsored by Brain Performance Technologies, a specialty mental health clinic that offers neuromodulation treatments including SAINT (Stanford Accelerated Intelligent Neuromodulation Therapy) for treatment-resistant depression and major depressive disorder, as well as MeRT (Magnetic e-resonance therapy) for autistic people aged three or older. Learn more at https://brainperformancetechnologies.com 00:00 Meet Brittney Crabtree of Moms Talk Autism01:14 Four kids, four different paths02:19 What "extreme caregiving" really means04:08 The big three: aggression and safety04:52 Fort Knox: locks, shiplap, and elopement06:09 Frustration aggression vs. sensory aggression08:11 Sponsor: Brain Performance Technologies08:33 The book "Upward Bound" and facilitated communication10:50 A system that's woefully inadequate11:33 No safe place in the community12:42 When community programs won't accommodate13:24 Aging out of the school system14:01 The grief of long-term residential care15:00 The hide-and-seek of finding services16:01 The question: what happens when I'm gone18:39 Resources and the regional center18:51 California's Self-Determination Program20:13 Finding caregivers he clicks with20:15 No way to test the waters on housing22:02 When siblings become caregivers28:16 Sponsor: Brain Performance Technologies28:42 Is profound autism being left behind?30:09 A separate diagnosis for profound autism31:14 Needs versus rights34:24 Speed round40:31 We Are Brave Together and the Tahoe retreat43:52 Closing

    What "Extreme Caregiving" for Profound Autism Really Means
  7. Jun 17

    Autism Dads Open Up: Marriage, Mental Health, and Raising a Child on the Spectrum

    Kelley Jensen and Julianna Scott turn the mic over to the other side of the partnership, welcoming their husbands, Eric and Steve, for a candid conversation about what it actually means to be the autism dad. Drawing from their research paper "Fathers as Secondary Caregivers for Autism Families," the four explore the emotional toll fathers absorb quietly, why dad-specific research is nearly nonexistent, how couples navigate disagreements over therapy choices, and why autism fathers often have no outlet for their stress. Honest, funny, and deeply relatable for any parent who has felt like the outside player in a two-person caregiving team. Key Takeaways Research on autism fathers is sparse, and nearly every study ends with "more research is needed" -- a telling sign dads are still an afterthought.In autism support groups, women outnumber men roughly 4 to 1, leaving fathers with almost no peer community.Mothers tend to report stress tied to caregiving demands; fathers report stress tied to uncertainty about their role and conflicting feelings about their child.Fathers often withhold their own emotional struggles to avoid adding to an already-stretched partner -- deepening their isolation in silence.Financial strain in autism fathers correlates with depression, substance abuse, and elevated suicide risk, yet rarely gets named.Giving dads a defined, owned task -- music therapy, park runs, bike riding -- creates a meaningful role that does not require mirroring the primary caregiver's approach.Maternal gatekeeping, even when well-intentioned, can erode a dad's confidence and cut him off from forming his own relationship with the child.Proposing a timeline ("let's revisit in two weeks") is a more effective strategy than digging in when parents disagree on a therapeutic approach.The team mentality -- even when never said out loud -- is one of the strongest predictors of a couple staying together through the long haul of autism parenting.For single parents and two-parent households alike: county respite programs exist, and using them is not optional -- it is essential.00:00 Teaser01:00 Welcoming the husbands02:13 Intro to the research paper04:11 How fathers experience stress differently05:38 The quinoa wars and reality checks07:40 Maternal gatekeeping and dad confidence09:17 Letting dads own their role without criticism10:21 Wanting to know everything after diagnosis12:54 Sponsor: Brain Performance Technologies14:03 The financial burden that falls on dads15:03 Finding quiet time: sneaking home early16:54 Jealousy over work life17:30 The emotional burden21:34 Fathers and the long game23:17 "When we're gone"27:29 Why fathers struggle to find support29:08 Friends, empathy, and action31:06 Moms must recognize dads lack of outlets33:49 Isolation from friends and family37:17 Scenario: professional ignores the secondary caregiver38:23 IEP meetings: strong cop, crying cop39:29 Sponsor: Brain Performance Technologies (MeRT read)40:22 Scenario: parents can't agree on a therapy41:12 Dads need their own relationship with the child44:11 Highlights from the paper's to-do list45:29 Building a team when you are doing it alone46:10 Division-of-labor appendix from the paper48:28 What to say to a dad who doesn't know where to start49:42 Patience grows if you commit to it50:13 Speed round: superpowers, deplore, and love53:07 Closing and origin of the name Refrigerator Moms54:03 Happy Father's Day; go read the paper

    Autism Dads Open Up: Marriage, Mental Health, and Raising a Child on the Spectrum
  8. Jun 10

    Is Accommodating Your Autistic Child's Anxiety Making Things Worse?

    Kelley Jensen and Julianna Scott break down SPACE — Supportive Parenting for Anxious Childhood Emotions — a therapeutic approach originally developed in the 1980s that is now being studied for autistic children and teens. Kelley noticed a growing shift in parenting communities away from radical accommodation and toward setting boundaries, and the hosts explore why that matters. Using co-sleeping as a central example, they discuss how accommodating fear-based anxiety in the short term can reinforce it over time, and how SPACE offers a research-backed alternative that builds distress tolerance while still honoring genuine sensory and processing needs. Key Takeaways SPACE stands for Supportive Parenting for Anxious Childhood Emotions and was originally developed in the 1980s for general parenting, not specifically for autism.Research shows that family accommodation alleviates anxiety in the short term but is linked to increased symptom severity, greater functional impairment, and higher caregiver burden over time.SPACE has shown preliminary evidence of effectiveness: parents rated it highly satisfactory, and both anxiety severity and family accommodation were significantly reduced following treatment.The key distinction for autistic kids: accommodate sensory needs, processing differences, and communication needs — do NOT accommodate fear-based anxiety.Co-sleeping is a classic example of an accommodation that starts as a short-term fix but can become deeply ingrained by adolescence if not addressed early.Anxiety that is not addressed tends to grow — children are unlikely to simply "grow out of it" if the fear has been repeatedly reinforced.SPACE uses gradual scaffolding, not cold turkey — slowly introduce coping strategies and mitigating measures to build tolerance without creating more anxiety.The approach overlaps with ABA principles: identify the function of the behavior, avoid reinforcing avoidance, and build skills incrementally.Prioritize by function: address sleep, health, and daily functioning first, and tackle one behavior at a time rather than everything at once.Waiting until a child is older to address entrenched anxiety habits means undoing years of reinforcement on top of the original fear — early intervention matters.🔗 Learn More: Website: refrigeratormoms.com Instagram: https://www.instagram.com/refrigeratormoms/ LinkedIn: https://www.linkedin.com/company/refrigeratormoms Facebook: https://www.facebook.com/refrigeratormoms/ TikTok: https://www.tiktok.com/@RefrigeratorMoms Refrigerator Moms is sponsored by Brain Performance Technologies, a specialty mental health clinic that offers neuromodulation treatments including SAINT (Stanford Accelerated Intelligent Neuromodulation Therapy) for treatment-resistant depression and major depressive disorder, as well as MeRT (Magnetic e-resonance therapy) for autistic people aged three or older. Learn more at https://brainperformancetechnologies.com Timestamps 00:00 Intro & what is SPACE?01:00 Radical acceptance vs. setting limits02:00 Kicking the can down the road02:03 Sponsor: Brain Performance Technologies03:00 SPACE sounds like solid parenting03:09 Research background on SPACE04:24 Co-sleeping case study walkthrough05:13 Sponsor: Brain Performance Technologies / MeRT05:43 Is the anxiety fear-based or sensory?06:07 CBT, nightlights & scaffolding06:18 Mapping SPACE onto autistic kids07:03 Accommodate sensory needs, not fear07:29 Scaffolding, routines & no cold turkey07:57 SPACE and ABA overlap08:03 Persistence, patience & positivity08:47 Reinforcement is the real problem09:54 Prioritize by function, one at a time10:36 Undo years of reinforcement10:48 Closing thoughts10:50 Outro & disclaimer

    Is Accommodating Your Autistic Child's Anxiety Making Things Worse?
4.4
out of 5
9 Ratings

About

Born from 20 years of friendship, during which they navigated the trenches of autism parenting and advocacy, the Refrigerator Moms is Kelley Jensen and Julianna Scott’s way of reaching out to parents waging the same battles they were.  Their purpose with this podcast is to clear the fog, silence the noise, and find a path through neurodivergence for parents that are stuck between bad choices. They tackle parenting topics such as mom guilt, tantrums, pathological demand avoidance, siblings, medication, comorbidities, social media, and much more. 

You Might Also Like