"What's Her Problem?" Podcast

Debra Rafson

“What’s Her Problem?” Podcast is the audio version of writer and patient advocate Debra Rafson's weekly Substack newsletter tackling Issues at the Heart of Chronic Illness and Disability through personal essays, interviews, opinion pieces, and more! whatsherproblem.substack.com

  1. 4d ago

    Wheelchair Tennis Celebrates 50 Years

    “I wonder if you can play tennis in a wheelchair?” In 1976, a college student at the University of Utah got into an accident at a freestyle skiing competition in the Rocky Mountains. Born in Southern California in 1957, this kid who had grown up on water skis and surfboards had chosen to pursue skiing professionally. That day, he was helicoptered to a hospital in Salt Lake City, where he was told he was paralyzed from the waist down due to a “complete spinal cord injury” and would never walk again. After a few months grappling with the initial shock and physical impact of the accident and learning to use a wheelchair, he found himself in a rehab center thinking about how he wanted to be able to play sports with his friends again. Others suggested wheelchair basketball. His response: “I wonder if you can play tennis in a wheelchair?” That 18-year-old was Brad Parks, a 2010 inductee into the International Tennis Hall of Fame and founder of the worldwide sport Wheelchair Tennis, which is celebrating its 50th anniversary in 2026. In an episode of The Tennis Podcast that aired exclusively for their paid “Friends” tier on December 19, 2025, Parks gave an interview, and the hosts discussed his impact on the sport. One of the hosts, Catherine Whitaker, said: “So that’s how it started. In a rehab hospital. Just months/weeks after a devastating, life-altering accident as a teenager. Brad Parks decides he wants to be able to play tennis, and the fact that in order to do that, he needs to create a sport and the means to play that sport out of nothing, does not deter him.” Parks connected first with a former aviation specialist named Jeff Minnenbraker, who taught him to build his own aluminum, aerodynamic wheelchair for tennis. In 1977, he held the first wheelchair tennis exhibition in Los Angeles with 20 competitors participating. Wheelchair tennis had officially transitioned from “therapeutic activity to competitive sport,” as Brad continued to network, politic, and promote that sport. 1981 saw the formation of a player’s association, and the first tournament outside the U.S. was held in France the following year. In 1988, Brad led the creation of the International Wheelchair Tennis Federation. It became a full Paralympic Sport in 1992 and was integrated into the International Tennis Federation in 1998. The most consequential development was Wheelchair Tennis’ inclusion at events on the ATP Tour (men’s professional tennis) and the WTA (women’s professional tennis). The former Lipton tournament (now the Miami Open) was an early adopter in the 1990s. Among the Grand Slams, the Australian Open began showcasing Wheelchair Tennis in 2002. The US Open followed suit in 2005, the French Open in 2007, and finally Wimbledon fully embraced it in 2016. Today, there are more than 170 Wheelchair Tennis events annually in 50 countries across the world. Brad Parks told David Law of The Tennis Podcast, “where we are today is beyond my wildest imaginations.” The types of chairs, the amount of prize money, the number of players. He achieved all of that incrementally, and with lots of help, over 50 years. He says that the players are now seen as “athletes instead of inspirations.” What is Wheelchair Tennis? Let’s look at the logistics of the sport Parks created. According to Wikipedia: “There are three categories: Men, Women, and Quads; each category has singles and doubles tournaments. The Quad, the newest division, is for players who have substantial loss of function in at least one upper limb, but may include various disabilities besides quadriplegia….Quad players often tape the rackets to their hand, to compensate for loss of function…” The International Tennis Federation (ITF), who are re-branding as World Tennis, say “One of the fastest growing wheelchair sports in the world, wheelchair tennis is played in the same way as able-bodied tennis, with the only exception being that a wheelchair tennis player is allowed two bounces of the ball.” Check out a full run-down of the rules here, but in short, the scoring system of Love, 15, 30, 40, etc. applies, and the same courts are used as in non-disabled tennis. Athletes must submit medical data to the ITF and undergo a process of classification, based on their specific upper or lower body physical disability, to ensure they qualify for Wheelchair Tennis and are placed into the right category, which keeps the playing field level. The ITF has a cute video about that process here. In addition to Brad Parks, there are six other Wheelchair Tennis players in the International Tennis Hall of Fame, including 2023 inductees Esther Vergeer (NED) and Rick Draney (USA). If you think Roger Federer, Rafael Nadal, Novak Djokovic, and the Williams sisters are impressive: Vergeer won 559 of her last 560 matches before retiring and was ranked world #1 for 12 years. The Live Wheelchair Tennis Experience In 2024, I attended a Wheelchair Tennis demonstration. Sidling up to the court in my mobility scooter, I joined a small crowd of wheelchair users and non-disabled attendees. Among them was professional WTA player Shelby Rogers (USA), who lives nearby. As dusk fell, she got seated in a loaner tennis wheelchair, to try her hand at this version of the sport for the first time, with the help of members of the United States Tennis Association (USTA). On court with Shelby were regular Wheelchair Tennis players, as well as other newbies who volunteered, and they took turns playing some doubles points. In women’s tennis, Shelby, who has since retired, was very good. At the 2021 US Open, she beat world #1 Ash Barty (AUS) on Arthur Ashe Stadium during a night session in front of 25,000 screaming fans. But seated in the wheelchair, she was unsure how to hold her racket, how to navigate a backhand that required two hands when one had to stay on the wheelchair, and how to make quick positioning adjustments. Shelby took it all in stride and joyfully participated in the demonstration, while I watched intently from the sidelines, feeling too bashful to volunteer to try it myself. Since then, I’ve watched a little bit of Wheelchair Tennis, when it’s available on streaming platforms from the Grand Slam tournaments, and I’ve come to know the names of some of the most accomplished players. But I was keen to learn more. So, in March 2026, I attended the Miami Open, as I’ve done for many years. And this time, I focused one of my days on the inaugural Wheelchair Tennis Invitational Tournament. Two courts were simultaneously hosting Men’s and Women’s wheelchair matches (no Quad Players were in attendance at this event), and I designed a plan whereby I could see as much play on each court as possible. I began with a women’s match between Aniek van Koot (NED) and Angelica Bernal (COL). Next up was Gustavo Fernandez (ARG) vs. Martin de la Puente (ESP), then a change of court to catch men’s singles world #2 and doubles #1 Alfie Hewett (GBR) vs. Daniel Caverzaschi (ESP) and, finally, men’s singles world #1 Tokito Oda (JPN) vs. Charlie Cooper (USA). As they played, I tried to familiarize myself with the sights and sounds of the sport. I knew to expect the two-bounce rule, but there were many sensations I couldn’t have anticipated, which don’t come across on tv. Aniek van Koot had a feisty energy about her, and she stored extra tennis balls in the spokes of her wheels, safeguarding them until her turn to serve arrived. Those large wheels on the side are angled to provide balance and stability, with assistance from smaller wheels at the front and back of the chair. I took note of the way van Koot’s chair kept her left leg tucked back, yet positioned to stabilize her movements, using a guard in front of her shin and a strap around her foot. She was born with her right leg shorter than the left, and a series of unsuccessful surgeries as a kid led to her right leg being amputated above the knee. Throughout the day, I admired how each athlete positioned themselves in the chair to accomplish the same movements, while navigating their individual lower limb differences. Gustavo Fernandez’ enormous biceps showed off his power as he served, demonstrating how much core and upper body strength it takes to successfully complete that motion from a seated position. When his opponent, de la Puente, served, his wheelchair rose up, balanced on one wheel, as he reached to hit the ball, and the sheer force of that service motion caused his whole chair to come crashing back down with a bang, just before he zipped away to hit Fernandez’ return. In professional tennis, one-handed backhands are becoming increasingly rare, but in Wheelchair Tennis they are required. One hand must be on the wheelchair at all times, keeping it spinning and moving. Alfie Hewett, who is magnetic to watch, had such a smooth backhand and a quick spinning motion, never losing sight of the ball as he did a 360 and sped back towards it to win easily against Caverzaschi. Tokito Oda, too, has a beautiful backhand. Yet, with Oda, I found myself studying his chair. Like the other players, his had a low back and angled wheels, but this was a customized chair, featuring black and red rims. Part way through his match against Charlie Cooper, Oda signaled to the chair umpire that he needed assistance. I’m accustomed to seeing physiotherapists called to the court to assist injured or ill players. This, however, was a visit from a mechanic for his wheelchair, and the mechanic was the unassuming gentleman in his own wheelchair who happened to be sitting right next to me during the match. He wheeled right out onto the court with his repair kit and had Oda playing again in no time. I’ve written before about the losses or damage that can occur when an airline mishandles a mobility device. During that mechanical time out, I couldn’t help but wonder how these professional athletes, who spend the year travelling th

  2. Aug 14

    Chronic Illness is Holding the Remote Control

    Your story matters too! If you are a fellow patient, I invite you to use my personal referral link to join Pinpoint Patient Recruiting. Pinpoint connects patients and caregivers to meaningful research opportunities where your real experiences help shape the future of healthcare — and you're compensated for your time. The Chronic Illness Time Warp I’ve been thinking about the best way to explain my relationship to time and how chronic illness has affected it. A topic that has come up a lot in recent months, in various settings. But, at first, I struggled to articulate my viewpoint. I thought about how it causes time dysmorphia by bending, warping, and distorting my perception of time. I pondered the idea that time flies when you’re having fun but high school science class felt like it dragged on for hours (with apologies to those of you who liked high school science). I mused about how the best vacations are the ones when you lose track of the day and date. I considered that summers feel quick but winters feel long and that the older I get, the faster the years seem to pass. I even got “Let’s do the time warp agaaaaaiiiinnnn….” stuck in my head! But none of those concepts quite seemed to nail it. Then, it hit me. Chronic illness is like a remote control for my life; it is dictating the time and speed at which I experience everything, just as I do to my favorite series when I’m watching tv (and yes, I am a person who still watches a real television). No matter how much I try to steal that remote away from chronic illness, take back control, and change the channel, it holds on like the jerk of a couch potato it really is. When I thought about time through that lens, the effects of chronic illness became clearer: When Chronic Illness Presses STOP To me, the most obvious example of chronic illness pressing the STOP button on the remote control for my life is when I’ve been hospitalized. I’ve had a few lengthy hospital stints: 9 days for open-heart surgery in 2016, and 54 days at 3 different hospitals with my neuropathy in 2019. A few shorter stints of 1 to 3 nights have been sprinkled in as well, but it’s the longer stays I’m referring to as a full STOP here. In the hospital, time slows and becomes amorphous. Every morning, a nurse comes in and writes the day and date on a dry erase board because patients are unlikely to have that awareness otherwise. It feels like nothing exists outside the hospital, which has its own eco-system. A constant parade of doctors, nurses, and phlebotomists pass through on their own schedule, which has nothing to do with the waking and sleeping hours you would choose for yourself. It’s disorienting! You can’t go to work. You would be unlikely to leave of your own volition. Everything else around you has ceased. That’s definitely how I felt in 2019. The whole summer passed me by, while I just went through the same hospital routine day after day, inside a room without much natural light to help my circadian rhythm kick back in. Time basically stopped and became irrelevant. When Chronic Illness Presses PAUSE More often than not, my chronic illness remote control doesn’t hit the STOP button, saving that for only special occasions. Instead, it most frequently hits the PAUSE button. In a recent Note, one of my fellow chronic illness Substackers, You Don’t Look Sick, Ang, wrote: I think one of the hardest parts of chronic illness is that life doesn’t pause while you’re recovering. The laundry still exists. The emails still exist. The kids still need snacks. You just learn to keep moving a little differently. This really resonated with me. We may be on PAUSE, recovering from a flare, focusing on medical appointments, researching symptoms, and trying to rest, but the world is still going on around us, and we have to find ways to manage that disparity. When Chronic Illness Presses FAST FORWARD FAST FORWARD might be the scariest button on my chronic illness remote control. Before I had open-heart surgery, I was so symptomatic that it felt like everyone and everything around me was racing by in FAST FORWARD, but I couldn’t keep up. I was so terrified to have the surgery that I let it grind my life to a full STOP. I didn’t know if I would have more time. But once I survived the procedure, I had no plan for the time I gained afterwards. While I recovered, everyone and everything around me raced by in FAST FORWARD once again, until I could finally get back on track and catch up. When Chronic Illness Presses AHEAD 30 SECONDS Admittedly, the remote-control button to skip AHEAD 30 SECONDS is my favorite. It allows me to skip through commercials on recorded programs, thereby saving time. I actually wish my chronic illness remote control would push this button more. Could it help me skip over a moment of intense nerve pain to reach a moment of relief? Or skip past my next ICD (Implantable Cardioverter Defibrillator, which is both a pacemaker and a defibrillator) replacement surgery and go straight to recovery? I wouldn’t mind! A 30-second jump feels much more manageable and selective than a full FAST FORWARD, which allows time to escape quickly. When Chronic Illness Presses BACK 10 SECONDS While these last two buttons focused on the forward momentum of time, chronic illness is more commonly known for its backwards trajectory. The BACK 10 SECONDS button is like a minor setback. One bad day of symptoms. A single migraine, a day when I have shortness of breath, or one with intense nerve pain. Not a full regression, but rather a moment of discomfort that catches your attention and causes a brief time lapse. When Chronic Illness Presses REWIND The REWIND button, on the other hand, is chronic illness’ way of turning back time. Usually in the form of a bigger setback. For example, a few years ago, I thought I was making good progress transitioning from my walker to a cane, so I decided to go run an errand with just the cane. I had my small purse backpack on my back and the cane in my left hand, as I strode through the living room towards the garage to get in the car. But the grippy part of the sole of my shoe caught on the tile floor, and I tripped. Although I somehow prevented myself from falling, I landed on my left foot, bent in a way that I instantly knew something was wrong. Sure enough, I had broken both a toe and part of the metatarsal bone in the foot itself. The podiatrist put me into a walking boot and sent me straight back to the walker to ensure my balance. A REWIND indeed. When Chronic Illness Presses RECORD A moment is frozen in time when chronic illness presses the RECORD button. If we are willing to go back and look at the recording, it can offer us a new perspective. When I take a moment to reflect on the moments recorded and etched into my memory from throughout my time managing multiple chronic illnesses, it helps me find meaning. It also helps me to see the overall trajectory and not to focus as much on the individual moments, especially when they have been difficult. Above all, the saved moments help me to become a better person, learning and growing as a result. When Chronic Illness Presses PLAY PLAY is the mode in which we’re able to go about our daily business. It’s the average day with all the chronic illness effects managed as best they can be, alongside our regularly scheduled programming. But my PLAY mode now looks much different than it used to. A few months ago, in her Health Story Collaborative group “Writing for Expression and Connection,” Jen Crystal gave us this writing prompt: How has your relationship to time changed because of your illness? As you may remember, Jen and I spoke earlier this year for my Interview Series about her book, “One Tick Stopped the Clock.” Like the title suggests, she too experienced the stoppages, pauses, rewinds, and fast-forwards of the chronic illness remote control during her battle with Lyme Disease. When Jen posed this question, I was thinking about time as it used to relate to my workaholic tendencies. But I think my response to the prompt is evidence of how my standard PLAY mode has been altered in the face of chronic illness. Here is a lightly edited version of what I wrote: Before multiple chronic illnesses changed the trajectory of my career, I was a theatrical Stage Manager. In this coveted role as the point person on a play or musical, I had a multitude of responsibilities. But one of the most important was to keep rehearsals and performances on a tight time schedule. There is a phrase we used at the theatre where I worked the longest: ‘The Stage Manager’s watch is G-d,’ we would say. For example, if an actor thought they were on time but my watch said otherwise? They were late. If the show was supposed to start at 7 minutes after the hour, we started at exactly 7 minutes after the hour, according to my watch. And so, I prided myself on having the “right” watch for the job. It had to have the “right” face and the “right” numbers to see them in the dark lighting of the theatre. If it were to rule us all, it had to be worthy. Now, after a decade away from my life in the theatre, as I manage my health, I adhere to time less strictly. Don’t get me wrong. I’m still punctual. But I set the alarm less often. Don’t oversee anyone else’s time schedule. In fact, when I type on my laptop keyboard, the face of my watch rests on a magnet. The longer I type, the slower my watch becomes. Lagging behind by 3-5 minutes doesn’t worry me the way it would have in the past. I just re-set my watch every few days and move on. My, how times have changed. The thing is, with chronic illness in charge of the remote, I can’t change the channel. I can’t take the batteries out and start over. But I will keep finding new ways to manage how my perception of time is bent and adjusting to every press of a button. Each issue of “What’s Her Problem?” includes questions for fu

  3. Jul 31

    Answering Reader Questions

    Thank you! Today, as I celebrate one year of writing “What’s Her Problem?,” those words feel insufficient to express my gratitude to each of you. Every person who has read an article, clicked a link, made a comment, given a like, interacted on Notes, and, especially, subscribed, has made this venture worthwhile. The goal has always been to use personal storytelling to advocate for and connect with others. I have two special surprises for Free Subscribers: * For the month of August only, I have removed the paywall from the two most recent episodes of the Interview Series! If you missed out on those conversations, this is your chance to catch up! * Dr. Wendie Trubow, MD on how Functional Medicine practitioners can help us mitigate the impact of toxins on our bodies. * Lyme Warrior Jennifer Crystal discussing chronic illness, writing to heal, and her book “One Tick Stopped the Clock.” * For this week only (7/31-8/6), I’m offering a 20% discount on annual subscriptions. That’s $48/year instead of the regular rate of $60. Even better? You will be locked in at that rate for all future annual renewals. If you’ve found my articles valuable, please support my work by upgrading to a paid subscription. I only plan to do a discount like this once a year, so now is your chance! In preparation for this 1st birthday, I asked you, the readers, to submit questions. I’ve selected four to respond to here. Thank you to everyone who participated... Links/References: Your Best Life Made Easy: Thriving After 50 https://whatsherproblem.substack.com/p/the-trouble-with-doors My top 8 Tips for Managing Chronic Illness and Mental Health. https://www.womenheart.org/about-us/become-a-womenheart-champion/ https://substack.com/@whatsherproblem/note/c-296492572?r=heamx&utm_source=notes-share-action&utm_medium=web https://youtu.be/uIxvUtWKwRo?si=j7H_6i8MbLvtxhAr https://whatsherproblem.substack.com/p/what-if-there-had-been-another-treatment?r=heamx https://4hcm.org/ https://womenheart.org/ https://whatsherproblem.substack.com/p/lets-discuss https://whatsherproblem.substack.com/archive This week’s question: Do you have any other questions for me? I will periodically be opening the “Ask Me Anything” inbox in an official way, but feel free to message me with questions any time, or drop them in the comments, and I’ll keep them for future reader-focused articles. Get full access to What's Her Problem? at whatsherproblem.substack.com/subscribe

  4. Jul 24

    Is Accessible Parking Really Accessible?

    The 1990 Americans with Disabilities Act (ADA) put in place an excellent set of rules for accessible parking. But 36 years have since passed. Now, a greater percentage of the population is aging or has a chronic illness or disability, and more people are eligible for handicap placards (and their correlating parking spaces) than ever before. This article takes a deep dive into the current rules, as well as some of the challenges those of us with handicap placards or wheelchair license plates face every time we enter a parking lot. My personal experience informs my viewpoint on this issue, and I think the time has come to update the ADA rules... Links/References: https://thearc.org/blog/why-and-how-to-celebrate-disability-pride-month/ https://www.flhsmv.gov/motor-vehicles-tags-titles/disabled-person-parking-permits/ https://www.flhsmv.gov/motor-vehicles-tags-titles/disabled-person-parking-permits/wheelchair-license-plate/ https://www.flhsmv.gov/pdf/forms/83039.pdf https://unitedspinal.org/accessible-parking/ https://parking-mobility-magazine.org/may-2024/accessibility-working-group-survey-results/#:~:text=According%20to%20the%20Accessible%20Parking,availability%20for%20leading%20independent%20lives. https://whatsherproblem.substack.com/p/how-to-buy-an-accessible-vehicle ADA Requirements for Accessible Parking: https://www.ada.gov/topics/parking/ 2010 ADA Standards for Accessible Design https://www.flhsmv.gov/motor-vehicles-tags-titles/disabled-person-parking-permits/ Each issue of “What’s Her Problem?” includes questions for further discussion. Leave a comment below! This week’s questions: If you have a handicap placard or permanent handicap license plate, or if you are the driver or caretaker for someone who does, what has your experience been with accessible parking? Get full access to What's Her Problem? at whatsherproblem.substack.com/subscribe

  5. Jul 10

    How to Buy an Accessible Vehicle

    How to Buy an Accessible Vehicle Issue #45 of "What's Her Problem?": Finding and adapting a vehicle that met my disability needs was a 5-step process. This is the first of three July articles focused on life with a disability. “Disability Pride Month is observed every July to celebrate disability identity and community, mark the anniversary of the Americans with Disabilities Act (ADA), and push for full inclusion in everyday life.” I recently wrote about How I Learned to Drive Again, but the challenges of getting back behind the wheel after a three-year, illness-induced hiatus didn’t disappear just because I was deemed safe enough to do so. I had to find the vehicle I felt safest driving. I sought adaptability and usability. Ideally, it would also allow me to travel independently. I knew that a one-size-fits-all solution didn’t exist and I would have to explore many options. Two elements of my search process are important to acknowledge, before I take you through my journey.... Links/References: MobilityWorks, my recent driving re-assessment BraunAbility VMI Freedom Motors Joey Lift Bruno Curb-Sider Harmar Joey Lift Demo Video: https://youtu.be/aWQ7d0JkRwc?si=P-PrdiPq-M8WAfH_ Each issue of “What’s Her Problem?” includes questions for further discussion. Leave a comment below! This week’s questions: Do you have a wheelchair-accessible vehicle? Have you ever looked into purchasing hand controls, a lift, or another vehicle modification? If so, what was your experience like? Get full access to What's Her Problem? at whatsherproblem.substack.com/subscribe

About

“What’s Her Problem?” Podcast is the audio version of writer and patient advocate Debra Rafson's weekly Substack newsletter tackling Issues at the Heart of Chronic Illness and Disability through personal essays, interviews, opinion pieces, and more! whatsherproblem.substack.com