Fianna Fáil: In Our Own Words

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"Fianna Fáil: In Our Own Words" brings you closer to the heart of our party, the people who drive it, the policies that guide it, the passions and ambitions that inspire us to shape a better Ireland. Through open conversations with our parliamentary party members, stakeholders  and voices from every corner of society, we explore everything from big national challenges to the local stories that matter. Whether you’ve supported Fianna Fáil for years, are politically curious, or simply want to understand the ideas shaping the country, this podcast offers an honest, human look at who we are and what we stand for as we mark 100 years and look to the future.

  1. Jun 17

    The Campaign to Bring Givinostat to children with Duchenne Muscular Dystrophy

    In this episode of Fianna Fáil: In Our Own Words Senator Teresa Costello sits down with Úna Ennis from Tallaght, whose 8 year-old son was diagnosed with Duchenne Muscular Dystrophy (DMD) to discuss their hard fought campaign for access to Givinostat. Senator Teresa Costello has said working with families impacted by a rare muscular disease has given her an insight into “real pain and suffering”. The Fianna Fáil Senator has been campaigning with families of children with Duchenne Muscular Dystrophy (DMD) to access the drug Givinostat, which slows the progression of the disease that gradually causes weakness and loss of muscle function. They are welcoming the recent decision by the HSE drugs group to recommend the approval of the drug for reimbursement and they want to keep the pressure on so that this happens soon. Úna has said said this has has changed the trajectory for Duchenne Muscular Dystrophy and urged the HSE to make the life-changing drug available as soon as possible. In this episode we hear about the fight for Givinostat, the stark reality of living with DMD and the hope that access to Givinostat will bring. This is a powerful conversation about resilience, advocacy and the determination of families who refused to give up.  Their message is simple: the treatment exists, and now it must be made available as quickly as possible to the children who need it. 🎧 Listen now to hear the story of Archie and his family and Senator Costello's determination to drive change for families living with Duchenne Muscular Dystrophy.

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"Fianna Fáil: In Our Own Words" brings you closer to the heart of our party, the people who drive it, the policies that guide it, the passions and ambitions that inspire us to shape a better Ireland. Through open conversations with our parliamentary party members, stakeholders  and voices from every corner of society, we explore everything from big national challenges to the local stories that matter. Whether you’ve supported Fianna Fáil for years, are politically curious, or simply want to understand the ideas shaping the country, this podcast offers an honest, human look at who we are and what we stand for as we mark 100 years and look to the future.

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