Living with FASD

Patricia Kasper
  • 0.0 (0)
  • Mental Health

The biggest hidden-in-plain sight epidemic we face is FASD, Fetal Alcohol Spectrum Disorders, affecting 1:14 people to varying degrees and in differing ways. How many people do you know, counting family, friends, coworkers and acquaintances? Divide that number by 14 to find out how many people in YOUR circle have been affected by Prenatal Alcohol Exposure, regardless if they've received a diagnosis or not. This interview style podcast, by a host with both professional and living experience, seeks to educate the public, to combat the ongoing stigma, and to provide community and understanding to those living with the affects of Prenatal Alcohol Exposure and their loved ones.

  1. Harrison’s Hope: Building a Lifespan Support System with Mary Byrnes

    6h ago

    Harrison’s Hope: Building a Lifespan Support System with Mary Byrnes

    In this deeply personal and wide-ranging conversation, Patti is joined by Mary Byrnes, founder of Harrison’s Hope, a Canadian charity dedicated to supporting families living with Fetal Alcohol Spectrum Disorder (FASD). Mary shares her "full circle" story—from navigating years of infertility and a whirlwind adoption process to discovering both her son’s and her own FASD diagnosis in adulthood. Together, they discuss the critical need for lifelong caregiver support, the power of reframing "behavior as a message," and the unique challenges of aging with a neurobehavioral disability. Key Discussion Points: Harrison’s Hope: How a project manager’s skill set turned a personal crisis into a national Canadian charity that provides "womb to tomb" support, including caregiver groups and death doula services.The Adult Diagnosis: Mary discusses the "ding-ding-ding" moment when she realized her own lifelong "quirks"—social awkwardness, academic success paired with social struggle, and various comorbid health conditions—were actually FASD.Behavior as a Messenger: A breakdown of how positive emotions validate met needs, while unpleasant emotions like anger or anxiety are signals of unmet needs.Aging with FASD: The importance of "anticipatory guides" for adults as they navigate physical health issues that often appear earlier in those with prenatal alcohol exposure.Planning for the Future: The emotional and practical necessity of creating Formal Wills, Living Trusts, and multi-generational care plans for loved ones with FASD.The Power of Art Therapy: Why traditional talk therapy often fails neurodivergent individuals and how modalities like art and nature walks provide a necessary emotional release.If you would like to reach Patti, you can email her at livingwithfasdpodcast@gmail.com. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services, or visit ttps://calendly.com/kaspertrainingandcoaching/consultation to schedule a complimentary call. If you would like to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, visit www.books.by/yourfasdcoach or Amazon. (Both print on demand, but due to lower overhead costs, books.by is able to pay its authors a few more dollars in royalties.) As always, please like, share & subscribe to this podcast, as doing these three things will help more people discover it, and learn if FASD is also part of their journey.

    1h 35m
  2. Top Strategies to Manage RSD and Overthinking with Kyle Perkins

    Jun 8

    Top Strategies to Manage RSD and Overthinking with Kyle Perkins

    In this episode, Kyle Perkins joins Patti Kasper to explore rejection sensitivity dysphoria (RSD) within the neurodivergent community, especially those with FASD and ADHD. They discuss personal experiences, coping strategies, the overlap of neurodiverse conditions, and practical tools to manage RSD and related challenges. key topics Rejection sensitivity dysphoria (RSD)Overlap of neurodivergent conditions like ADHD, FASD, autismStrategies to manage RSD and overthinkingThe importance of neurodiversity and individualized approachestakeaways RSD causes intense emotional reactions and overanalysis.Accountability partners can help manage spiraling thoughts.Understanding neurodiversity shifts focus from labels to strengths.Accepting shutdowns and focusing on small, manageable tasks reduces overwhelm.Self-awareness and reflection are key to managing neurodiverse challenges.  You can support Kyle’s business while getting customized merchandise by visiting https://www.bigfrog.com/raleigh-north/ If you would like to reach Patti, you can email her at livingwithfasdpodcast@gmail.com. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services, or visit https://calendly.com/kaspertrainingandcoaching/consultation to schedule a complimentary call. If you would like to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, visit www.books.by/yourfasdcoach or Amazon. (Both print on demand, but due to lower overhead costs, books.by is able to pay its authors a few more dollars in royalties.) Please remember to like, subscribe & share, so that even more people can learn about FASD.

    51 min
  3. Solving the Wrong Problem: When Recovery Models Ignore Neurodivergence

    Jun 1

    Solving the Wrong Problem: When Recovery Models Ignore Neurodivergence

    Patti Kasper hosts Jon Baer to explore the critical intersection of neurodivergence and substance use recovery. Jon shares his journey from early childhood trauma and substance use to his later-in-life diagnosis of AuDHD, emphasizing the need for recovery models that are neurodiversity-aware. They discuss why traditional recovery systems often fail neurodivergent individuals and how a paradigm shift toward self-discovery and nervous system regulation is necessary for true healing. Jon Baer is an advocate and mentor with over 13 years of personal experience in long-term recovery.  As Director of Admissions and Community Outreach at Insight Recovery Mental Health, he works closely with individuals and families navigating mental health challenges, substance use disorders, and neurodivergence—recognizing how deeply these experiences can intersect and influence one another.  Jon brings authenticity and compassion rooted in his own lived experience, and a deep belief that healing looks different for everyone—especially for those whose brains are wired differently. His work is driven by a passion for making sure neurodivergent individuals feel seen, understood, and supported on their path toward recovery and mental wellness. Standard Recovery Risks: Traditional recovery programs often demand neurotypical compliance, which can lead to burnout for neurodivergent individuals.Internal Focus: True healing requires addressing internal wiring and nervous system regulation rather than relying on external strategies.Reframing Addiction: Jon reframed his substance use struggles after his AuDHD diagnosis, identifying his addiction as a search for relief.The FASD Epidemic: FASD is a hidden epidemic affecting roughly 1 in 12 North Americans, with significant overlap with other neurodivergent diagnoses like ASD.Systemic Trauma: Living in a world designed for neurotypicals causes systemic trauma, often manifesting as depression and anxiety.Inclusive Recovery: Recovery models must become inclusive of all neurotypes and prioritize self-discovery.Insight Recovery: Jon serves as the Director of Community Outreach at Insight Recovery Treatment Center, which offers tailored treatment tracks for neurodivergent individuals. If you would like to reach Patti, you can email her at livingwithfasdpodcast@gmail.com. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services, or visit https://calendly.com/kaspertrainingandcoaching/consultation to schedule a complimentary call. If you would like to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, visit www.books.by/yourfasdcoach or Amazon. (Both print on demand, but due to lower overhead costs, books.by is able to pay its authors a few more dollars in royalties.) Please remember to like, subscribe & share, so that even more people can learn about FASD.

    52 min
  4. FASD & Masking with Alice Foote

    May 25

    FASD & Masking with Alice Foote

    In this episode, Patti Kasper sits down with Alice Foote, an FASD advocate from the UK who is currently vacationing in the United States. Alice shares her unique journey of being diagnosed at birth but not learning of her condition until age 16. They discuss the challenges of "masking," the necessity of rigid routines, and the physical symptoms of fetal alcohol spectrum disorders that often go overlooked by medical professionals. Key Discussion Points The "Late" Realization: Although diagnosed at birth, Alice was raised as a neurotypical person until her grandmother explained her struggles with concentration at age 16.The Power of Routine: Alice describes how structure is vital to her daily life, from her specific morning coffee ritual and airplane-mode work habits to maintaining the same breakfast table and time even while on vacation.Masking and Authenticity: Alice talks about the exhausting nature of "masking" to appear normal and her recent decision to let her true personality show more, including her impulsive excitement for things like meeting a Minion at Universal Studios.Workplace Advocacy: In the UK, while FASD itself isn't under the Equality Act, its symptoms are. Alice shares how she worked with HR to implement infographics and clear communication strategies to help her succeed in a call center environment.Physical Symptoms & Medical Ignorance: Alice and Patti discuss how FASD is a "whole-body diagnosis". Alice shares her experiences with physical issues, such as losing feeling in her legs, and the frustration of having to educate her own doctors about her condition.The "Invisible" Disability: Alice emphasizes that just because someone "looks normal" or can drive a car doesn't mean they aren't fighting a "whole different continent" internally. If you would like to reach Patti, you can email her at livingwithfasdpodcast@gmail.com. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services, or visit https://calendly.com/kaspertrainingandcoaching/consultation to schedule a complimentary call. If you would like to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, visit www.books.by/yourfasdcoach or Amazon. (Both print on demand, but due to lower overhead costs, books.by is able to pay its authors a few more dollars in royalties.) Please remember to like, subscribe & share, so that even more people can learn about FASD.

    41 min
  5. The Neurobiology of Migraines in FASD: What You Need to Know

    May 18

    The Neurobiology of Migraines in FASD: What You Need to Know

    This episode features Dr. Jerrod Brown, Jodee Kulp, and host Patti Kasper discussing the complex relationship between migraines and FASD. They explore neurobiological mechanisms, triggers, co-occurring conditions, and practical interventions to manage migraines, especially in individuals with FASD. Action  items: Consult healthcare providers for personalized migraine management Implement lifestyle changes such as sleep, diet, and stress reduction Explore trauma-informed approaches and family system interventions Research and consider specialized pain management options Be on the lookout for Dr. Brown’s new podcast, to launch soon. To pick up a copy of Jodee’s memoir of her journey with parenting Liz, Iridescent Spoon: Colors of Courage, go to https://books.by/jodee-kulp/iridescent-spoon If you would like to reach Patti, you can email her at livingwithfasdpodcast@gmail.com. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services, or visit ttps://calendly.com/kaspertrainingandcoaching/consultation to schedule a complimentary call. If you would like to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, visit www.books.by/yourfasdcoach or Amazon. (Both print on demand, but due to lower overhead costs, books.by is able to pay its authors a few more dollars in royalties.) Chapters 00:00 Introduction to Migraines and FASD 02:57 Understanding the Complexity of Migraines 06:09 The Impact of Migraines on Quality of Life 08:53 The Relationship Between Migraines and Comorbidities 11:56 Neuroscience of Migraines 15:08 The Role of the Gut-Brain Axis 17:57 Migraines in Children and Adolescents 20:47 Pregnancy and Migraines 23:56 Conclusion and Future Directions 32:35 Exploring the Connection Between Autism and Migraine 34:03 Gut-Brain Axis and Environmental Factors 36:30 The Impact of Medication on Health 37:44 Understanding the Biopsychosocial Model 38:13 Life's Essential Eight and Migraine Management 40:10 The Role of Executive Function and Trauma 42:40 Identifying Triggers and Coping Strategies 45:11 Family Dynamics and Migraine Impact 50:43 Lifestyle Medicine Approaches to Migraine 55:05 Therapeutic Interventions and Self-Management 57:57 Research Gaps and Future Directions

    54 min
  6. Unlocking Emotional Intelligence for Neurodivergent Minds: A Conversation with Morgane Borzee

    May 11

    Unlocking Emotional Intelligence for Neurodivergent Minds: A Conversation with Morgane Borzee

    In this episode, Patti Kasper chats with Morgane Borzee about a groundbreaking visual system that revolutionizes how we understand and regulate emotions, especially in neurodivergent communities like those affected by FASD. If you're ready to see emotions as protective parts and learn how to navigate them, this episode is your new best friend! In this episode: Morgane Borzee’s journey from trauma therapy to emotional intelligence mappingThe importance of visual tools in understanding emotional responsesHow emotional parts like the tiger, bunny, koala, and seagull symbolize our defense mechanismsThe neural research behind stress responses and traumaPractical ways to use visual maps for emotional regulation and self-awarenessHow this system can prevent re-traumatization and improve relationshipsThe role of parts work in healing attachment and authenticity issuesThe power of non-judgmental language around emotionsResources: tools, training programs, and how to access Morgane’s workTo reach Morgane and explore her program, visit equanima.io. Her website offers many free resources. If you would like to reach Patti, you can email her at livingwithfasdpodcast@gmail.com. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services, or visit ttps://calendly.com/kaspertrainingandcoaching/consultation to schedule a complimentary call. To pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, go to https://books.by/yourfasdcoach. Large print edition is on Amazon.

    50 min
  7. A Complicated and Beautiful Brain: Reframing FASD with Angela Geddes

    May 4

    A Complicated and Beautiful Brain: Reframing FASD with Angela Geddes

    In this episode, Patti Kasper engages in a candid conversation with Angela Geddes, a social worker and author, about the complexities of Fetal Alcohol Spectrum Disorder (FASD). They discuss the challenges of diagnosis, the impact of FASD on families, and the role of social workers in raising awareness and providing support. Angela shares her personal experiences and insights from her work in the field, emphasizing the importance of early intervention and the need for better education and training on FASD. The conversation highlights the societal implications of FASD and the necessity for a compassionate understanding of those affected by it. Takeaways FASD is often misunderstood and misdiagnosed. Early intervention can significantly improve outcomes for individuals with FASD. Social workers play a crucial role in advocating for FASD awareness. The stigma surrounding alcohol use during pregnancy needs to be addressed. Families affected by FASD often face systemic challenges and trauma. Education on FASD should be integrated into all relevant professional training programs. Personal experiences can provide valuable insights into the challenges of FASD. There is a need for more resources and support for adults with FASD. The prevalence of FASD is higher than commonly recognized. Compassionate support is essential for individuals and families affected by FASD. If you would like to reach Patti, you can email her at livingwithfasdpodcast@gmail.com. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services, or visit ttps://calendly.com/kaspertrainingandcoaching/consultation to schedule a complimentary call. If you would like to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, visit www.books.by/yourfasdcoach or Amazon. (Both print on demand, but due to lower overhead costs, books.by is able to pay its authors a few more dollars in royalties.) If you would like to pick up copies of Angela’s books, you can find them all on Amazon. ·         A Complicated and Beautiful Brain – ASIN # B0F8NJ95CB ·         Not Your Typical Growing Up & Adulting Guide – ASIN # B0GJS7LFF6 ·         Not Your Typical Growing Up & Adulting Guide  WORKBOOK – ASIN # B0GJT9ZKD8 ·         Not Your Typical Parenting Guide – ASIN # B0F8N3N3ZS ·         Not Your Typical Teaching Guide - ASIN # B0FJ796V7G Amazon in Canada also has French editions of several of these titles. To access the free FASD checklist Angela offers on her website, visit: https://www.angelageddes.ca/professional-development/geddes-customized-support-tool To reach Angela, email her at angela@angelageddes.ca. Follow Angela’s podcast, Kitchen Table Conversations, on your favorite podcast platform!

    55 min
  8. Finding Calm in Chaos: Practical Strategies for Emotional Regulation with AJ Loashio

    Apr 28

    Finding Calm in Chaos: Practical Strategies for Emotional Regulation with AJ Loashio

    If you enjoy Living with FASD, please go to www.womenpodcasters.com/awards and choose Living with FASD in the Wellness category, for people’s choice award being sponsored by Women Podcasters. Winning the competition would bring in many listeners who would learn about FASD! Voting ends April 30th! In this episode, Patti Kasper and AJ Locascio delve back into the complexities of emotional regulation, exploring practical strategies to help individuals ground themselves and regain a sense of safety. They discuss the importance of laughter, activity, sleep, creative expression, and intimate connections in the regulation process. The conversation also touches on the significance of creating a 'nest' for emotional release, practicing mindful self-compassion, and understanding sensory systems. They emphasize the role of gratitude and celebration in fostering emotional well-being, while also addressing the challenges of grief and loss. Takeaways Laughter can be a powerful tool for emotional regulation. Being active helps to ground and regulate emotions. Sleep is essential for emotional and physical health. Creative expression can serve as a form of regulation. Intimate connections can enhance emotional safety. Creating a 'nest' can provide a safe space for emotional release. Mindful self-compassion helps in managing negative thoughts. Understanding sensory systems is crucial for self-regulation. Grief and gratitude can coexist in the healing process. Celebration can be a form of regulation and connection. As always, please remember to like, subscribe & share this podcast episode, because it is by doing these things that more people can find the podcast and learn about FASD. To reach Patti Kasper, perhaps to suggest topics or guests, or to ask questions, or even just to say hello, email her at livingwithfasdpodcast@gmail.com . To reach Patti to explore FASD Life Coaching for yourself as an adult or as a parent of a little, or to arrange for professional development or community agency training on FASD, you can arrange for a consult at https://calendly.com/kaspertrainingandcoaching/consultation To order a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, visit books.by/yourfasdcoach or Amazon. (Both are print on demand at a printer near you, but books.by offers its authors a few dollars more in royalties.) AJ’s resources: The Burnout Book, Emily & Amelia Nagoski: https://a.co/d/eJaSFDR Sensory Checklist (.org is a broken link) Self-compassion quiz: https://self-compassion.org/self-compassion-test/ Dr. Kristen Neff’s site: https://self-compassion.org/

    54 min
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About

The biggest hidden-in-plain sight epidemic we face is FASD, Fetal Alcohol Spectrum Disorders, affecting 1:14 people to varying degrees and in differing ways. How many people do you know, counting family, friends, coworkers and acquaintances? Divide that number by 14 to find out how many people in YOUR circle have been affected by Prenatal Alcohol Exposure, regardless if they've received a diagnosis or not. This interview style podcast, by a host with both professional and living experience, seeks to educate the public, to combat the ongoing stigma, and to provide community and understanding to those living with the affects of Prenatal Alcohol Exposure and their loved ones.

Information

  • Creator
    Patricia Kasper
  • Years Active
    2K
  • Episodes
    134
  • Rating
    Clean
  • Copyright
    © 2026 Patricia Kasper
  • Show Website
    Living with FASD

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