The Epilepsy Diaries

Lauren Street

Creating a space for connection, support, story sharing, education, and community for those living with (or adjacent to) epilepsy

Episodes

  1. 7h ago

    Episode 7: Guest - Madeline

    Madeline Bolton-Smith has lived with epilepsy for 17 years. Her experiences inspired her to write a book, Dairy of an Epileptic: The Hidden Reality, where she shares her epilepsy journey along with useful, simplified information about seizures, tests/scans, treatments, mental health, and more. Visit her website to purchase the book and keep up to date on all she is doing in the epilepsy community: https://diaryofanepileptic.wixsite.com/madeline In addition to the book, Madeline has participated in the following: - An Epilepsy Action article in Epilepsy Today magazine https://online.flippingbook.com/view/745618381/?_cldee=0vuI65j7mrsr108JzTyP6ep8ANdDcWk9R7LTNj3t69-pv3tovj3x0gYsrEOm3mme&recipientid=contact-2c403d05a274e811a960002248072cc3-d64a2a673368402ea7f02bc9d203ad4f&esid=041415fd-58d1-f111-a05d-7c1e521df6fb - A book signing at NHNN in London (part of UCLH hospitals) in mid-September for World Patient Safety Day - An article featured in The Psychologist - An article with Epilepsy Society - Featured in Epilepsy Action's “Missing Memories” campaign- An article with SUDEP Action - An article with Epilepsy Research Institute - Part of Epilepsy Action’s Purple Day in March - An article with The Epsom and Ewell Times Newspaper - Diary of an Epileptic was featured in the Pain News Network’s recommended reading (about 6 books down the list) - An article in SEN Magazine’s physical magazine and website - An article in NASEN+ (can be found on LinkedIn - magazine doesn’t have an online counterpart) - An article with Rare Revolution Magazine - An article with Patient Safety Learning  - An article with Fetcham Park House  - Episode 9 of the Brain Buddy Podcast “With You in Mind” (before realised seizures had returned), and spoke at a Brain Buddy event prior to the podcast Thank you, Madeline, for being a part of The Epilepsy Diaries and everything else you do/have done! Find/connect with The Epilepsy Diaries at: thediariespodcasts@gmail.com patreon.com/TheEpilepsyDiaries on Patreon The Epilepsy Diaries on Facebook @the_epilepsy_diaries on Instagram and TikTok @theepilepsydiaries on YouTube

  2. Mar 26

    Episode 3: Epilepsy and Memory

    Epilepsy can impact our memory and cognitive function in many ways. This episode will help understand the processes occurring in our brains and how to help deal with the challenges we face. It also provides a range of individuals' experiences with epilepsy and its impacts on day to day function and well-being. The HOBSCOTCH (Home Based Self-Management and Cognitive Training Changes Lives) Program I discussed is available in several parts of the world. Search HOBSCOTCH followed by the place you live to determine if it is available to you! Sources: Epilepsy Foundation - Thinking and Memory (https://www.epilepsy.com/complications-risks/thinking-and-memory) My Epilepsy Team - How Does Epilepsy Affect Memory (https://www.myepilepsyteam.com/resources/memory-and-epilepsy?utm_source=google&utm_medium=cpc&utm_campaign={campaignname}&utm_adgroup={adgroupname}&utm_term=&utm_content=&gad_source=1&gad_campaignid=23531333231&gbraid=0AAAAAowpoYzfHHVxZq1C0-IyDiEA8Yo3v&gclid=Cj0KCQjwmunNBhDbARIsAOndKpkQYtprYA0VQkTjLNgX40VQMFAdO7TPU_wzzGjwafgtQwgqtwO41BUaAh_CEALw_wcB) Epilepsy Society - Memory and epilepsy (https://epilepsysociety.org.uk/living-epilepsy/memory-and-epilepsy) Another great resource, called Spark from Epilepsy Ontario, can be found at epilepsyontario.org/wp-content/uploads/2018/01/SparkMemory-Adults_Eng.pdf I would love to connect! If you'd like to share your own experiences, request a topic, provide feedback on the podcast, or be featured on the show, please reach out at: Email: thediariespodcasts@gmail.com Instagram: the_diaries_podcasts Facebook: The Epilepsy Diaries

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Creating a space for connection, support, story sharing, education, and community for those living with (or adjacent to) epilepsy

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