Every Voice Speaks

The SPEAK Foundation
  • 5.0 (1)
  • NON-PROFIT

Every Voice Speaks unites and empowers the muscular dystrophy community by elevating patient voices and fostering collaboration across conditions like LGMD, FSHD, myotonic, Becker and Duchenne. Through personal stories, expert interviews, and accessible discussions, the show helps listeners understand drug development and learn how their input can influence trials, policies, and care. By centering lived experience, it strengthens advocacy, advances research, and supports better futures for kids and adults living with muscular dystrophy.

Episodes

  1. Episode #001 - Uniting the Muscular Dystrophy Community

    2D AGO

    Episode #001 - Uniting the Muscular Dystrophy Community

    The conversation centers around the experiences of individuals living with Muscular Dystrophy, focusing on personal diagnosis stories, the challenges faced during childhood, and the importance of advocacy within the community. The hosts discuss their journeys, the evolution of understanding Muscular Dystrophy, and the founding of the Speak Foundation, which aims to amplify patient voices and support those affected by the condition.

    35 min
  • 1 Episode

About

Every Voice Speaks unites and empowers the muscular dystrophy community by elevating patient voices and fostering collaboration across conditions like LGMD, FSHD, myotonic, Becker and Duchenne. Through personal stories, expert interviews, and accessible discussions, the show helps listeners understand drug development and learn how their input can influence trials, policies, and care. By centering lived experience, it strengthens advocacy, advances research, and supports better futures for kids and adults living with muscular dystrophy.

Information

  • Creator
    The SPEAK Foundation
  • Years Active
    2K
  • Episodes
    1
  • Rating
    Clean
  • Copyright
    © 2026 The SPEAK Foundation
  • Show Website
    Every Voice Speaks