The Autoimmune Mom Podcast

Alexandra Atwell

Just a regular Mom living an irregular life of Rheumatoid Arthritis. We will be talking all things Mom and autoimmune - the good, the bad, the unexpected and of course the ugly but I will not let this be a space to be miserable. The world has enough of that!! Mom life plus Autoimmune in a podcast.

  1. Sep 3

    Breaking down my Total Knee Replacement at 45

    Total Knee Replacement at 45: What Recovery Really Looked LikeAli shares the full story behind her total knee replacement, including why she needed it so young, what surgery and recovery were actually like, and what she wishes she had done differently. This episode is especially useful for anyone weighing a knee replacement while also managing chronic pain or an inflammatory condition. In this episode, Ali breaks down the layered history behind her knee damage, the realities of surgery day, and the hardest parts of the first few weeks at home. She also shares practical recovery tips, from ice machines and physical therapy to pain management and support at home. Key topicsAli explains why her knees were already vulnerable from years of high-level sports, including basketball, volleyball, track, golf, running, and working on her feet.She shares how rheumatoid arthritis and years of inflammation added to the damage over time.She talks about putting off surgery for years because knee replacements do not last forever and because the unknown was intimidating.The surgeon told her both knees eventually needed replacement, with the right knee being much worse than the left.She describes the surgery-day experience, including being discharged the same day and having to do physical therapy almost immediately.Ali details how the initial post-op medication strategy did not work for her, leading to severe pain and a difficult few days.She explains why pain control needs to stay ahead of the pain in the first nights after surgery and why a strong support system mattered so much.She shares how bruising, sitting upright, bathroom use, and basic movement were harder than she expected in the first phase of recovery.She emphasizes the importance of doing physical therapy and home exercises consistently to protect range of motion and avoid setbacks.Ali talks about recovery tools that helped most, especially the ice machine and a body-molding ice pack.She reflects on the emotional side of recovery, including how humbling it was to rely on family for weeks.She shares that losing some weight before surgery helped, and says she would do the procedure again now that she knows how much better her knee feels.

  2. Aug 25

    The Emotional Reality of Rheumatoid Arthritis & Recovering from 3 surgeries at 45 years old

    The emotional reality of rheumatoid arthritis surgeries at 47Ali shares the lived experience of navigating rheumatoid arthritis as a mother, including hand surgeries, a total knee replacement, and the emotional toll of losing independence during recovery. This episode is as much about mindset, grief, and self-forgiveness as it is about the procedures themselves. In this solo episode, she walks through what led to each surgery, why she delayed treatment for years, and how that choice affected her body, motherhood, and mental health. It matters because she speaks plainly about the gap between “being strong” and actually getting the help you need. Key topicsAli explains how rheumatoid arthritis progression led to serious damage in her hands and right knee.She describes spending four to five years trying holistic healing alone, including acupuncture, supplements, chiropractic care, and food changes, before accepting medical treatment.Her dominant right hand developed severe pain, a locked pinky, and eventually ligament damage that required surgery and reconstruction with a ligament taken from her arm.She shares how the first hand surgery required weeks of immobilization, then rehab, then a second surgery to remove scar tissue and restore movement.Ali reflects on the mental spiral of realizing her body had deteriorated because she was trying to prove she could heal without conventional treatment.She talks about motherhood during those years, including not being able to brush her daughters’ hair, cut food, or do basic daily tasks because of hand pain.Her right knee replacement was prompted less by routine pain and more by safety, since her knee would lock while driving and moving from gas to brake.She compares the recovery experience across surgeries and says the knee replacement was harder physically, but ultimately more life-changing.Ali emphasizes how much she struggled with being dependent on her mother for help after surgery, especially with laundry, meals, and childcare routines.The episode closes with her message that listeners are not alone, especially those told they are “too young” for major procedures.Timestamps00:00 - Why this episode is about motherhood, pain, and autoimmune disease 02:27 - From marathon-running to struggling up a driveway a year later 04:04 - How hand pain affected parenting and daily life 06:46 - The doctor visit that revealed ligament damage 08:16 - First hand surgery and ligament reconstruction from her arm 09:46 - Rehab, scar tissue, and needing a second hand surgery 11:08 - The mental gymnastics of accepting surgery 13:17 - Why she had two surgeries within one year 15:42 - Recovery, anesthesia, and intense physical therapy 17:41 - Why the right knee replacement became a safety issue 19:52 - Choosing surgery after delays, deductible pressure, and scheduling luck 20:51 - What the knee surgeon said about replacement longevity 22:24 - The brutal first weeks after knee replacement 23:51 - Why athletic conditioning helped her rehab faster 25:45 - The life-changing payoff of a functioning knee 27:05 - The emotional difficulty of needing her mother’s help 29:24 - Depression, gratitude, and being done feeling unwell 30:50 - Health insurance stress and a future left-knee surgery 31:47 - The big takeaway: “too young” does not mean untreated Notable quotesCopy “I let my body eat my ligaments.” Copy “I cannot believe that I ignored pain so long that it ate through a ligament.” Copy “You’re not the only person who goes through these types of things.”

  3. Jul 21

    How to Be an Empowered Patient: Strategies for Navigating the Healthcare System

    If you've ever left a doctor's appointment feeling rushed, unheard, or unsure what just happened, this episode is for you. Living with an autoimmune disease often means navigating specialists, insurance companies, medications, lab work, and appointments that can feel overwhelming. But what if there were simple ways to become a more empowered patient? In this episode, I sit down with Dr. Terry Adirim, former Chief Medical Officer for the U.S. Military Health System, emergency physician, healthcare policy leader, and author of The Prepared Patient: Your Guide to Surviving the Health Care System (Johns Hopkins University Press, August 2026 Drawing from more than 25 years inside the healthcare system, Dr. Adirim shares what doctors wish patients knew, how to prepare for appointments, why advocating for yourself matters, and how to work with your physician instead of feeling like you're working against the system. We also discuss: ✔ Why so many patients leave appointments frustrated ✔ The "White Binder Method" that can transform your medical care ✔ How to communicate effectively with your doctor ✔ What to do when insurance denies treatment ✔ How AI tools like ChatGPT can (and can't) help patients ✔ Why healthcare feels so fragmented—and what patients can do today Whether you're newly diagnosed with an autoimmune disease or have been managing chronic illness for years, this episode will help you navigate healthcare with more confidence and less frustration.

  4. Jul 7

    Motherhood with Ulcerative Colitis: Pregnancy, J-Pouch Surgery & Finding Your Voice

    Can you have a healthy pregnancy with ulcerative colitis? What happens if you've had J-pouch surgery? And how do you raise children while managing a lifelong autoimmune disease? In this episode of The Autoimmune Mom Podcast, Ali sits down with Amber Tresca, founder of About IBD and host of the About IBD Podcast, to discuss what it's really like living with ulcerative colitis for more than 35 years. Amber shares her journey from being diagnosed at just 16 years old to undergoing life-changing J-pouch surgery, navigating pregnancy after surgery, raising two children, and learning to advocate for herself in a healthcare system that doesn't always make it easy. Together, they also have an honest conversation about chronic illness, medical trauma, fatigue, insurance barriers, patient advocacy, and the emotional reality of motherhood with an invisible illness. Whether you're living with ulcerative colitis, Crohn's disease, rheumatoid arthritis, lupus, Hashimoto's, or another autoimmune disease, this episode offers practical advice, hope, and reassurance that you're not alone. In this episode you'll learn: • What it's like being diagnosed with ulcerative colitis as a teenager • Pregnancy after J-pouch surgery • How inflammation affects fertility and pregnancy • Why remission matters before trying to conceive • How chronic illness changes motherhood • The importance of advocating for yourself with doctors • Navigating insurance challenges with autoimmune disease • Why finding the right medical team can change everything If you've ever wondered whether motherhood is possible with autoimmune disease—or you're trying to balance parenting while living with chronic illness—this conversation is for you. Don't forget to follow The Autoimmune Mom Podcast so you never miss an episode. If this episode encouraged you, please leave a rating and review—it helps more moms discover the show.

  5. Jun 17

    Infrared Sauna Benefits for Autoimmune Disease: Can It Help Reduce Inflammation?

    If you're a mom living with autoimmune disease and searching for natural ways to reduce inflammation, manage fatigue, and support your overall wellness, you've probably wondered whether infrared saunas actually work. In this episode of The Autoimmune Mom Podcast, I share my personal experience using an infrared sauna as part of my autoimmune disease management plan. We discuss the potential benefits of infrared sauna therapy for inflammation, chronic pain, stress, fatigue, recovery, and overall health, along with important safety considerations for women living with autoimmune conditions. You'll also learn about the long history of sauna use across different cultures, including Finnish sauna traditions and other ancient healing practices that have used heat therapy for centuries. I review what current research says about infrared saunas, answer common questions people ask about infrared sauna benefits, and share practical tips for getting started safely. Whether you're newly diagnosed, navigating motherhood with chronic illness, or looking for holistic approaches to support your autoimmune health, this episode will help you understand if infrared sauna therapy might be a useful tool in your wellness journey. Topics CoveredInfrared sauna and autoimmune diseaseNatural ways to reduce inflammationInfrared sauna benefits for womenAutoimmune disease and chronic fatigueManaging autoimmune symptoms naturallyWellness tools for moms with chronic illnessSauna safety and best practicesHeat therapy and inflammationAutoimmune disease after pregnancySelf-care for moms with autoimmune diseaseChapters 00:00 Introduction to the Autoimmune Mom Podcast07:06 Historical and Cultural Significance of Saunas12:31 Best Practices for Sauna Use18:13 Personal Experience with Infrared Sauna

  6. Jun 3

    How Faith Carried Jenna Schutt Through Her Healing Journey

    Jenna Schutt shares her journey of being diagnosed with systemic mastocytosis and the impact it had on her life as a mother. She discusses the challenges of treatment, the role of faith in coping, and the development of a relationship with God. Jenna emphasizes the importance of self-worth and finding joy in the midst of adversity. Jenna Schutt shares her journey of finding true joy and peace through faith, even in the midst of health challenges and survivorship. She emphasizes the importance of claiming ownership of joy and peace through faith, offering free devotionals and resources to help others on their faith journey. Jenna also discusses the impact of her journey on her children and the importance of fostering resilience and faith in their lives. Takeaways Faith and coping: Faith played a significant role in Jenna's coping with her diagnosis and treatment.Value and worthiness: Jenna emphasizes the importance of recognizing one's value and worthiness, regardless of the challenges faced. True joy and peace come from a spiritual infusion from the LordFaith plays a crucial role in claiming ownership of joy and peaceStarting the faith journey is about taking the first step and making it a part of daily routinesFostering resilience and faith in children's lives is essential for their well-being and growthClick the link to go directly to her website: Faith with Jenna Schutt-The Joy Reflex™ | Embrace Faith, Find Joy — Join UsChapters 00:00 Diagnosis and Early Symptoms07:11 Faith and Coping12:13 Living Out Faith17:34 Faith and Medicine24:16 Value and Worthiness32:17 Writing and Sharing the Journey38:42 Starting the Faith Journey

Ratings & Reviews

5
out of 5
10 Ratings

About

Just a regular Mom living an irregular life of Rheumatoid Arthritis. We will be talking all things Mom and autoimmune - the good, the bad, the unexpected and of course the ugly but I will not let this be a space to be miserable. The world has enough of that!! Mom life plus Autoimmune in a podcast.

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