Zebra Butter: Spreading Awareness for Rare Medical Conditions

Sree Nidhi Bethanapalli
  • 5.0 (3)
  • Medicine

Across the world, 400 million people suffer with rare medical conditions. Every diagnosis impacts each person differently. In this podcast, I interview people with these conditions, exploring the impact on their daily lives. This is an initiative to spread both awareness and comfort to the millions out there that live with these conditions. Episodes will be posted monthly. Cover Art by Vanessa Hasty

Episodes

  1. Aug 24

    A Rare Look at Rheumatic Heart Disease in the US

    In this episode, I interviewed Sophia, who was diagnosed with rheumatic heart disease. She talks about living with her condition, and her unique experiences in doctors' offices and in school. She talks about how she was diagnosed, testing accommodations, questions she gets asked, and limits she overcame. You can find online support for rheumatic heart disease below: World Heart Federation - https://world-heart-federation.org/our-impact/policy-advocacy/global-advocacy/rheumatic-heart-disease/Heart Foundation - https://www.heartfoundation.org.nz/your-heart/heart-conditions/rheumatic-heart-disease Please subscribe, rate, and leave a review on your favorite podcast platform and share this episode with someone who needs to hear Sophia's story!

    A Rare Look at Rheumatic Heart Disease in the US

  2. Jul 23

    Living Flexible - The Ups and Downs of Hypermobile Ehlers-Danlos Syndrome

    In this episode, I interviewed Lucy, who was diagnosed with Ehlers-Danlos Syndrome in 6th grade. She talks about living with her condition, and the struggles she faces in athletics and with other people. You'll hear about: The diagnostic processNavigating athletics with accommodationsHow people react to hearing about her EDSInvisible symptoms and struggles You can find online support for EDS below: The Ehlers-Danlos Society - https://www.ehlers-danlos.com/EDS Awareness - https://www.chronicpainpartners.com/Connective Strength - https://www.connectivestrength.org/ Please subscribe, rate, and leave a review on your favorite podcast platform and share this episode with someone who needs to hear Lucy's story. You can find the episode transcript in this Google Doc: https://docs.google.com/document/d/1aadh8lRaW_cLh1JeWdTxn_DEGWbjVJls4KpCFk2z1fQ/edit?usp=sharing

    Living Flexible - The Ups and Downs of Hypermobile Ehlers-Danlos Syndrome
  • 2 Episodes

Ratings & Reviews

5
out of 5
3 Ratings

About

Across the world, 400 million people suffer with rare medical conditions. Every diagnosis impacts each person differently. In this podcast, I interview people with these conditions, exploring the impact on their daily lives. This is an initiative to spread both awareness and comfort to the millions out there that live with these conditions. Episodes will be posted monthly. Cover Art by Vanessa Hasty

Information