Invisibly Visible

Alison

The Invisibly Visible Podcast is a place where you can feel safe, heard, understood and finally like someone 'get's it'. Being a parent to a child who has a rare condition, is medically fragile or has special needs is a whole other ballgame and can feel very isolating, stressful and overwhelming. It can also feel very empowering, unique and remarkable. I will share stories about building resiliency, navigating relationships, balancing work and other siblings, the endless Mom guilt, and the feeling of not fighting hard enough. I will share my personal stories to give you inspiration and hope. I will share resources and help guide you through building connections when you feel alone. I want to give you the inspiration to keep learning, advocating and growing to help make a more diverse and inclusive world.

Episodes

  1. Sep 21

    Trust Your Gut- A Mother's Intuition

    Ever feel like something is wrong with your child, but experts say everything is fine? Discover why your mother’s intuition is your most powerful parenting tool and learn how to advocate for your child when you aren't being heard. Listen now. If you want to be part of these conversations beyond the podcast, join the IV League. The IV League is a community for people who want honest conversations, practical resources and the reminder that they aren't navigating the hard stuff alone. https://343318765.hs-sites-na3.com/welcome-to-the-iv-league-1 Alison shares her heartfelt journey advocating for her child's health, emphasizing the importance of trusting gut instincts and persistent advocacy in healthcare. keywords parent advocacy, gut instinct, child health, medical diagnosis, early intervention, family-centered care key topics The importance of trusting parental intuition Recognizing early warning signs in children The role of advocacy in healthcare Understanding genetic microdeletions Navigating complex medical journeys takeaways Parents' intuition is a vital tool in early detection and intervention. Persistent advocacy can lead to crucial diagnoses. Trusting your instincts can save your child's life. Collaboration between families and healthcare providers is essential. Being informed and vocal is key to effective healthcare. sound bites "A mother's intuition is never something to ignore." "My observations mattered, my concerns mattered, my gut intuition mattered." Chapters 00:00 Introduction to Alison and the episode's focus 02:26 Feeding difficulties and the exhaustion of constant worry 03:50 Hospital visits and the struggle for answers 04:45 Recognizing the accumulation of concerning symptoms 05:14 Deciding to advocate more strongly for Olivia 06:10 The emotional toll of leaving Olivia in distress 07:15 Olivia's diagnosis with a rare genetic microdeletion 09:44 The relief and validation of finally understanding her child's condition 10:30 Key lessons: trusting your instincts and advocating for your child 11:12 Encouragement for other parents to trust their gut and keep fighting

About

The Invisibly Visible Podcast is a place where you can feel safe, heard, understood and finally like someone 'get's it'. Being a parent to a child who has a rare condition, is medically fragile or has special needs is a whole other ballgame and can feel very isolating, stressful and overwhelming. It can also feel very empowering, unique and remarkable. I will share stories about building resiliency, navigating relationships, balancing work and other siblings, the endless Mom guilt, and the feeling of not fighting hard enough. I will share my personal stories to give you inspiration and hope. I will share resources and help guide you through building connections when you feel alone. I want to give you the inspiration to keep learning, advocating and growing to help make a more diverse and inclusive world.