Incluse This!

Sarah Kirwan
  • 5.0 (5)
  • PHILOSOPHY

Not just a podcast: We’re a movement to amplify disabled voices, tackle the intersectionality that naturally exists for people living with disabilities, connect people through shared experiences, and work alongside disability allies. This safe and coalitional space was created for critical conversations at eye level that lead to change – on individual, local, state, and federal levels. We host in-depth interviews with a wide variety of guests who bring disability to the forefront of the greater diversity conversation, and progress movement for disability equity forward.

Episodes

  1. 04/07/2021

    Incluse This! Episode 12: We Have Sh** to Understand

    Episode 12: We Have Sh** to Understand GUEST: Molly Bloom, PhD, Inclusive Design Researcher, Adobe https://media.blubrry.com/incluse_this/content.blubrry.com/incluse_this/S1_E12_We_Have_Sh--to_Understand.mp3 The Incluse This! podcast has forever changed me, and that's the point. As my dear friend, colleague, and guest this week so eloquently put it, "One of the main ways this journey has impacted me is that I've learned that I absolutely have internalized ableism. I think - there's productivity and there are timelines, and we have to stick to that. And you kindly remind me what it's like to experience your disability. It has helped me shift the way I understand how we can get things done in a more collective way, that's less about this sense of productivity that requires an able body and an able mind." She goes on to say, " I've learned about the different perspectives that are in different disability communities within the larger community, and how those don't always align with the people who might be the most vocal advocates in the disability community." We hope you've enjoyed the journey as much as we have! Until next season…take care and be well. QUICK LINKS As language, perceptions and social mores change at a seemingly faster and faster rate, it is becoming increasingly difficult for communicators to figure out how to refer to people with disabilities. This style guide, developed by the National Center on Disability and Journalism at Arizona State University, is intended to help. It covers almost 200 words and terms commonly used when referring to disability. OUR GUEST: Molly J Bloom, PhD Molly has felt an affinity for and responsibility to the disability community since sustaining a life-changing injury as a teenager in 2006. Since then, she has co-founded the only women's wheelchair basketball team in California, completed a PhD drawing on anthropology and disability studies, and learned from her friends and peers that disability community always involves sharing knowledge, advocacy, and living joyfully. In her doctoral studies at UCLA, Molly brought together critical perspectives on race, class, and disability community. Her research, funded by the National Science Foundation among other organizations, was recognized for its commitment to diversity when she was inducted into the Edward A. Bouchet Honor Society in 2018. She has authored publications on topics ranging from adaptive athletics, to disability in the Middle East, to Brazilian Sign Language. Recently, Molly has relocated to home of the American Disability Rights Movement, the Bay Area, where she is busy working as an Inclusive Design Researcher for Adobe and soaking in the activist milieu. She thrives on connection and collective growth and longs for the day when she can build joy in-person with her disabled kin. TRANSCRIPT Hi and welcome to Incluse This! I'm your host, Sarah Kirwan, and this is a movement for disability equity. Today, we're talking with my very dear friend and colleague, Dr. Molly Bloom, and we're talking about Season One of the Incluse This! Podcast, which as of today is a wrap! Dr. Molly Bloom has felt an affinity for and responsibility to the disability community since sustaining a life-changing injury as a teenager in 2006. Since then, she has co-founded the only women's wheelchair basketball team in California, completed a PhD drawing on anthropology and disability studies, and learned from her friends and peers that disability community always involves sharing knowledge, advocacy, and living joyfully. In her doctoral studies at UCLA, Molly brought together critical perspectives on race, class, and disability community. Her research, funded by the National Science Foundation among other organizations, was recognized for its commitment to diversity when she was inducted into the Edward A. Bouchet Honor Society in 2018. She has authored publications on topics ranging from adaptive athletics,

    41 min

  2. 03/31/2021

    Incluse This! Episode 11: Your Only is My Everything

    Episode 11: Your Only is My Everything GUEST: Carl Deriso, MS Advocate https://media.blubrry.com/incluse_this/content.blubrry.com/incluse_this/S1_E11_Your_Only_is_My_Everything.mp3 We celebrate Multiple Sclerosis (MS) Awareness Month for 31-days each year; however, close to one million people in the United States are living with the effects of this chronic and debilitating disease each day, including our host and her husband. This week's episode is a candid conversation between two fellow MS Warriors, who are also married, and there's no topic off-the-table. Although the diagnosis is the same, everyone experiences MS in very different ways, and this week we discuss personal journeys through diagnosis, dating, marriage, pregnancy, self-help groups, advance directives, and much more. Don't miss this special episode! #MSAwarenessMonth2021 QUICK LINKS As language, perceptions and social mores change at a seemingly faster and faster rate, it is becoming increasingly difficult for communicators to figure out how to refer to people with disabilities. This style guide, developed by the National Center on Disability and Journalism at Arizona State University, is intended to help. It covers almost 200 words and terms commonly used when referring to disability. OUR GUEST: Carl Deriso TRANSCRIPT Hi and welcome to Incluse This! I'm your host, Sarah Kirwan, and this is a movement for disability equity. Today's show is a bit different. We're celebrating MS Awareness Month and I'm here with my husband and fellow MS Warrior, Carl Deriso. Good morning, honey. Good morning. We're celebrating MS Awareness Month, which is in March. I'm excited to have you here today. Welcome. Thank you. We've been together for a while now. We got married in August of 2020, and you and I recently did an interview for Yahoo media. One of the things that you and I really wanted to go back to was to talk about the fact that we both have experienced MS in a different way. When we met, I was at a point where I pretty much thought that everything I experienced had to do with MS. And you were at a point where you didn't feel like most of the things that you experienced had to do with your MS. Let's take a listen to a little bit of this interview, an edited down version of the original interview that we did together with Yahoo media group. It definitely highlights our experiences and our journeys. My name is Carl Deriso and I was diagnosed with MS 1996. I'm Sarah Kirwan, and I was diagnosed with MS in 2011. I grew up in Arizona and after several summers of the heat there, I started developing tingliness in my feet and my hands and back in 1996, MRIs were not a common thing that were done. I went through the typical spinal taps, went through all the exercises with a bunch of different doctors. Finally they said, we need to send him for an MRI. That's when I was originally diagnosed with lesions on the spine. But you also had another issue. Yeah, actually I didn't get very much treatment at all. From that time I just kinda got used to my symptoms. In 2006, I had a flare or a, an exacerbation of my symptoms and had some blurred vision. I went back to a neurologist and they, at that time said, yeah, it looks like you've had a, you've had an incident, so we need to get you on some medication. That's when I started, actually using a treatment for MS. And I, actually my initial symptom was my left ear was very full. I got off of a plane in June of 2010 and my left ear just never popped. Or opened. It was just very full. I started going through testing for a vestibular schwannoma, which is a brain tumor that sits on your optic nerve, as well as your ear canal. As they were doing that testing, they found the lesions on my brain. At that time I was actually finishing grad school, which was very stressful. I was ending a long-term relationship at the time, which was also very stressful. I was trying to find a job, after grad school.

    43 min

  3. 03/24/2021

    Incluse This! Episode 10: Dawnia Marie IS Brightside 365

    Episode 10: Dawnia Marie IS Brightside 365 GUEST: Dawnia Marie, MS Advocate, and Founder and CEO of Brightside 365 https://media.blubrry.com/incluse_this/content.blubrry.com/incluse_this/S1_E10_Dawnia_Marie_is_Brightside_365.mp3 March is Multiple Sclerosis (MS) Awareness Month, and we're celebrating with my very dear friend and fellow MS Warrior, Dawnia Marie. We talk about everything from the pros and cons of self-help groups, to our relationships with providers and celebrating our diagnoses. MS is a debilitating disease, but it doesn't dim our light. And my friend Dawnia Marie, a true representation of Brightside 365, is an amazing example and reminder for all of us to - keep living! #DisabilityPride QUICK LINKS As language, perceptions and social mores change at a seemingly faster and faster rate, it is becoming increasingly difficult for communicators to figure out how to refer to people with disabilities. This style guide, developed by the National Center on Disability and Journalism at Arizona State University, is intended to help. It covers almost 200 words and terms commonly used when referring to disability. OUR GUEST: Dawnia Marie Dawnia Marie was born in Pittsburgh, PA. At the age of 9, she moved to Los Angeles because her father was pursuing his music career. Dawnia resided in Inglewood, CA and graduated from Inglewood High. At the age of 20, Dawnia moved to Atlanta, GA. She received an undergraduate degree in Business Administration from NCCU and a Masters degree in Corporate Finance and Project Management. In 2006, Dawnia's body went numb from her chest down and in her hands. After a trip to the ER, a neurologist visit, and hours of MRI's, Dawnia was diagnosed with Relapsing Remitting Multiple Sclerosis. In 2013 Dawnia moved back to California and in 2014 she was taking a class through the MS Society at USC. Through the class Dawnia began volunteering with the MS Society. This lead to being featured in a USC magazine, assisting in the office at the MS Society, being flown to Seattle, Washington to film a resilience campaign video, featured on the cover of the MS Momentum magazine, featured in multiple articles, becoming a District Activist Leader which she visits local government offices, flies to the capitol in California and Washington, DC to advocate for bills that benefit people living with MS and other sicknesses and diseases, was a part of the WeAreIllmatic campaign for women of color diagnosed with MS, an interview with KTLA regarding the Marilyn Hilton MS Achievement Center at UCLA, a video for Yahoo Lifestyles, We Believe campaign video for the MS Society, and asked to participate in a video for the Hilton family. The most important thing was becoming a self-help group leader. Currently, Dawnia is a self-help group facilitator for adults in their 20s, 30s, and 40s for the National MS Society. Seeing a need for a self-help group for teens, Dawnia spearheaded a self-help group for High School students and quickly spread to College Students called MS Youngsters that began in 2017. The MS Youngsters lovingly refer to her as their MS momma. In 2020 Dawnia received the Inspirational Person of the Year Award for the Southern California/ Nevada Chapter of the NMSS. She also received the 2020 L.O.V.E. (Ladies Operating Very Effectively) Overcomer Award. Most recently she received the 2020 Volunteer Inspiration Award. Dawnia is a caregiver for her father who is also diagnosed with MS that is now bedridden. Since he lives in Pittsburgh she coordinates everything by phone, trips back to Pittsburgh to go to doctor's appointments with her dad, has relationships with every person involved in his care, and family that still lives in Pittsburgh. True to her reputation, she maintained a positive outlook even after her diagnosis. Dawnia knows that God wasn't bored one day and allowed her to be diagnosed with MS. She knows there is a purpose in every challenge and avoids asking "why me?".

    45 min

  4. 03/16/2021

    Incluse This! Episode 9: It's a Love-Hate Relationship

    Episode 9: It's a Love-Hate Relationship Wednesday, March 17, 2021 GUEST: Molly Bloom, PhD, Inclusive Design Researcher, Adobe https://media.blubrry.com/incluse_this/content.blubrry.com/incluse_this/S1_E9_It_s_a_Love-Hate_Relationship.mp3 I'm thrilled to have my very dear friend and colleague, Dr. Molly Bloom, back on the show to explore our relationships with medical providers, in the context of inaccessible structures. How do we, even momentarily, balance the power differential? Our medical records impact our ability to receive services, so why aren't they easily accessible and amendable? When immune compromised people are dying of COVID at the same rate as those aged 75+, why are we deprioritized? If getting the best care comes only because we've advocated for ourselves, have we made advocacy the thing that determines our best care? We are pondering these questions and more this week, so don't miss out! QUICK LINKS As language, perceptions and social mores change at a seemingly faster and faster rate, it is becoming increasingly difficult for communicators to figure out how to refer to people with disabilities. This style guide, developed by the National Center on Disability and Journalism at Arizona State University, is intended to help. It covers almost 200 words and terms commonly used when referring to disability. OUR GUEST: Molly J Bloom, PhD Molly has felt an affinity for and responsibility to the disability community since sustaining a life-changing injury as a teenager in 2006. Since then, she has co-founded the only women's wheelchair basketball team in California, completed a PhD drawing on anthropology and disability studies, and learned from her friends and peers that disability community always involves sharing knowledge, advocacy, and living joyfully. In her doctoral studies at UCLA, Molly brought together critical perspectives on race, class, and disability community. Her research, funded by the National Science Foundation among other organizations, was recognized for its commitment to diversity when she was inducted into the Edward A. Bouchet Honor Society in 2018. She has authored publications on topics ranging from adaptive athletics, to disability in the Middle East, to Brazilian Sign Language. Recently, Molly has relocated to home of the American Disability Rights Movement, the Bay Area, where she is busy working as an Inclusive Design Researcher for Adobe and soaking in the activist milieu. She thrives on connection and collective growth and longs for the day when she can build joy in-person with her disabled kin. TRANSCRIPT Hi and welcome to Incluse This! I'm your host, Sarah Kirwan, and this is a movement for disability equity. Today, we're talking with Dr. Molly Bloom, and we're talking about the love-hate relationships we have, including those relationships with our medical providers. Molly has felt an affinity for and responsibility to the disability community since sustaining a life-changing injury as a teenager in 2006. Since then, she has co-founded the only women's wheelchair basketball team in California, completed a PhD drawing on anthropology and disability studies, and learned from her friends and peers that disability community always involves sharing knowledge, advocacy, and living joyfully. In her doctoral studies at UCLA, Molly brought together critical perspectives on race, class, and disability community. Her research, funded by the National Science Foundation among other organizations, was recognized for its commitment to diversity when she was inducted into the Edward A. Bouchet Honor Society in 2018. She has authored publications on topics ranging from adaptive athletics, to disability in the Middle East, to Brazilian Sign Language. Recently, Molly has relocated to home of the American Disability Rights Movement, the Bay Area, where she is busy working as an Inclusive Design Researcher for Adobe and soaking in the activist milieu.

    43 min

  5. 03/10/2021

    Incluse This! Episode 8: Despite the Barriers, There's Joy

    Episode 8: Despite the Barriers, There's Joy Wednesday, March 10, 2021 GUEST: Stephanie Keeney Parks, PhD Candidate Department of Anthropology | University of California, Los Angeles https://media.blubrry.com/incluse_this/content.blubrry.com/incluse_this/S1_E8_Despite_the_Barriers_There_s_Joy_Stephanie_Keeney-Parks.mp3 Stephanie Keeney-Parks joins us this week to discuss all things Autism. As a scholar, academic, and researcher, and mother of a son diagnosed with Autism, she shares her unique perspective and insights with listeners. We talk about the multiple layers of oppression that children of color face in this country, and what it means to have joy despite all of those barriers. Don't miss this incredible conversation and learning opportunity! QUICK LINKS As language, perceptions and social mores change at a seemingly faster and faster rate, it is becoming increasingly difficult for communicators to figure out how to refer to people with disabilities. This style guide, developed by the National Center on Disability and Journalism at Arizona State University, is intended to help. It covers almost 200 words and terms commonly used when referring to disability. OUR GUEST: Stephanie Keeney Parks Stephanie is a doctoral student at the University of California, Los Angeles, in the Department of Anthropology, where she studies medical/psychological and linguistic anthropology. She also holds a master's degree in medical anthropology from Creighton University, in Omaha, Nebraska. Stephanie's research centers on the everyday lives of Black parents who have children with autism. She is also interested in the process of diagnosing a Black child with autism, as well as the healthcare disparities these families face. Stephanie is interested in centering the Black parent's narrative and experience as the expert to decenter white ideologies on health, healthcare, disability, and Black culture. Her research stems from her experience as a Black woman, wife, and mother of two children. Stephanie's oldest child is diagnosed with autism. TRANSCRIPT Hi and welcome to Incluse This! I'm your host, Sarah Kirwan, and this is a movement for disability equity. Today, we're talking with Stephanie Keeney-Park, and we're talking about uplifting and amplifying the voices of disabled women. Stephanie is a doctoral student at the University of California, Los Angeles, in the Department of Anthropology, where she studies medical/psychological and linguistic anthropology. She also holds a master's degree in medical anthropology from Creighton University, in Omaha, Nebraska. Stephanie's research centers on the everyday lives of Black parents who have children with autism. She is also interested in the process of diagnosing a Black child with autism, as well as the healthcare disparities these families face. Stephanie is interested in centering the Black parent's narrative and experience as the expert to decenter white ideologies on health, healthcare, disability, and Black culture. Her research stems from her experience as a Black woman, wife, and mother of two children. Stephanie's oldest child is diagnosed with autism. Good morning, Stephanie Keeney parks, and welcome to Incluse This! Can you believe that we're here? I'm so excited. Thank you for having me. I'm so excited. I remember the first time we spoke was at the very beginning of my planning period for this podcast, when it hadn't really been fully created and I still pretty much had no idea what I was doing, but I, I remember that we had a really great conversation that day with you and I and Dr. Molly bloom. And a few things come to mind when I think about that first conversation. The the main thing that comes to mind for me is this laundry list of systemic barriers facing children of color in this country that I basically read off to you, which was like, yes, obviously Stephanie already knows these things, but I'm very grateful that you were one of my very i...

    48 min

  6. 02/23/2021

    Incluse This! Episode 7: Amplifying Voices of Disabled Women

    Episode 7: Amplifying Voices of Disabled Women Wednesday, February 24, 2021 GUEST: Alannah Murray https://media.blubrry.com/incluse_this/content.blubrry.com/incluse_this/S1_E7_Amplifying_Voices_of_Disabled_Women_Alannah_Murray_Final.mp3 Our guest this week is disability advocate and postgraduate researcher, Alannah Murray. She brings insights and experiences from Ireland to our conversation about uplifting the voices of disabled women around the world. We explore the relationship between feminism and disability. And discuss reproductive health rights and social inclusion of disabled people, the inclusion of disabled people in LGBTQ+ spaces, and much more! QUICK LINKS As language, perceptions and social mores change at a seemingly faster and faster rate, it is becoming increasingly difficult for communicators to figure out how to refer to people with disabilities. This style guide, developed by the National Center on Disability and Journalism at Arizona State University, is intended to help. It covers almost 200 words and terms commonly used when referring to disability. OUR GUEST: Alannah Murray Alannah Murray is a disability advocate and postgraduate researcher living in Ireland. Her advocacy mainly focuses on key social issues such as social inclusion of disabled people, reproductive rights and promoting greater inclusion in LGBTQ+ spaces for disabled people. She holds a bachelor's degree in film and television production and is currently writing a master's thesis on Disability and Culture in Film. She is the co-founder of Disabled Women Ireland, and in 2019 completed a placement in Washington, DC, as part of the Washington Ireland Program; a program aimed at engaging young leaders across the island of Ireland. She started her activism journey in her second year of college, while researching her award winning documentary Roll Camera, a documentary exploring representation of disabled people in Irish Film (which you can find here). She has campaigned extensively for equal accessibility to transport, greater funding for students, the need for inclusive education and reproductive healthcare for disabled people. She delivered a TEDx Talk on Disability and Social Inclusion (which you can find here) , and has delivered numerous workshops on Disability & Sexuality, as well as the need for greater accessibility for disabled people in LGBTQ+ spaces. TRANSCRIPT Sarah Kirwan Hi and welcome to Incluse This! I'm your host, Sarah Kirwan, and this is a movement for disability equity. Today, we're talking with Alannah Murray and we're talking about uplifting and amplifying the voices of disabled women. Alannah Murray is a disability advocate and postgraduate researcher living in Ireland. Her advocacy mainly focuses on key social issues such as social inclusion of disabled people, reproductive rights and promoting greater inclusion in LGBTQ+ spaces for disabled people. She holds a bachelor's degree in film and television production and she is currently writing a master's thesis on Disability and Culture in Film. She is the co-founder of Disabled Women of Ireland, and in 2019 completed a placement in Washington, DC, as part of the Washington Ireland Program; a program aimed at engaging young leaders across the island of Ireland. She started her activism journey in her second year of college, while researching her award winning documentary Roll Camera, a documentary exploring representation of disabled people in Irish Film. She has campaigned extensively for equal accessibility to transport, greater funding for students, the need for inclusive education and reproductive healthcare for disabled people. She also delivered a TEDx Talk on Disability and Social Inclusion and she has delivered numerous workshops on Disability & Sexuality, as well as the need for greater accessibility for disabled people in LGBTQ+ spaces. Sarah Kirwan Welcome to Incluse This! Alannah. I'm really,

    45 min

  7. 02/17/2021

    Incluse This! Episode 6: Is COVID-19 a Disability?

    Episode 6: Is COVID-19 a Disability? Wednesday, February 17, 2021 GUEST: Marjorie Roberts, DBA | Certified Life Coach and Speaker https://media.blubrry.com/incluse_this/content.blubrry.com/incluse_this/Incluse_This_S1_E6_Is_COVID-19_a_Disability_Dr_Marjorie_Roberts.mp3 In this episode, Dr. Marjorie Roberts shares her personal insights and experiences as a COVID-19 Long Hauler. And we discuss why she's pushing so hard for COVID-19 to be recognized as a disability. With her life turned upside down in a matter of hours, she's spent the last 12-months advocating for herself and others in the COVID-19 Community. She says, "We're on a mission to be heard. And COVID-19 is a disability. This is the bottom line." QUICK LINKS As language, perceptions and social mores change at a seemingly faster and faster rate, it is becoming increasingly difficult for communicators to figure out how to refer to people with disabilities. This style guide, developed by the National Center on Disability and Journalism at Arizona State University, is intended to help. It covers almost 200 words and terms commonly used when referring to disability. OUR GUEST: Marjorie Roberts, DBA Greetings and thanks for taking the time to find out a bit more about me. 1st and foremost I am a Covid-19 Long-hauler/Survivor/Advocate. My name is Dr. Marjorie Roberts. My husband and I recently relocated to Johns Creek, Georgia after calling Philadelphia, PA home for over 30 years. I gave birth to my very best friend Leanne who decided to relocate shortly after. I have a Doctorate in Business. Interacting with people throughout the years, I have come to understand something very fundamental, regardless of backgrounds or current situations people are looking to survive and thrive as human beings. With a strong business background in both the retail and restaurant industries, I have always focused upon an individual's personal growth and happiness. My skills of providing structured questions to help organize an individual's thoughts and excellent critical thinking skills for helping others set tangible objectives, have been thrust to the forefront in recent years and led to a career change to my becoming a Certified Life Coach. As a life coach contracting Covid-19 has meant personally I have to face some hard truths about my total existence and how I must now take the form of a realistic assessment of my life and how I can help others as we recover from Covid-19. As an active member of several grassroots group Covid 19 Survivor groups, my approach is life coaching is not a do this and that will happen concept for me; it is a reaching deep, planning and allowing myself and others to come through and out of this experience whole and complete as possible. TRANSCRIPT Sarah Kirwan: Hi, and welcome to Incluse This! I'm your host Sarah Kirwan, and this is a movement for disability equity. Today we're talking with Dr. Marjorie Roberts, and we're talking about COVID-19 and disability.   Sarah Kirwan: Greetings. Thanks for taking the time to find out a bit more about me first and foremost, I am a COVID-19 long holler survivor and advocate. My name is Dr. Marjorie Roberts, my husband and I recently relocated to Johns Creek Georgia after calling Philadelphia, Pennsylvania home for over 30 years, I gave birth to my very best friend, Leanne, who decided to relocate shortly after I have a doctorate in business and interacting with people throughout the years. I have come to understand something very fundamental that regardless of backgrounds or current situations, people are looking to survive and thrive as human beings with a strong business background in both the retail and restaurant industries, I have always focused upon an individual's personal growth and happiness, my skills of providing structured questions to help organize an individual's thoughts and excellent, critical thinking skills for helping others. Set tangible objectives have been thrust to th...

    46 min

  8. 02/10/2021

    Incluse This! Episode 5: Will the Cripples Save You?

    Episode 5: Will the Cripples Save You? Wednesday, February 10, 2021 GUEST: Charis Hill, Writer, Speaker, Model, Being Charis https://media.blubrry.com/incluse_this/content.blubrry.com/incluse_this/Incluse_This_S1_E5_Will_the_Cripples_Save_You_Charis_Hill.mp3 Throughout the past year, the COVID-19 pandemic has been the impetus for bringing the term ableism to mainstream conversations. In this episode, Charis Hill and I discuss the messaging we've been confronted with, the actions we've witnessed, and the structures in-place that devalue and destroy disabled human lives. QUICK LINKS As language, perceptions and social mores change at a seemingly faster and faster rate, it is becoming increasingly difficult for communicators to figure out how to refer to people with disabilities. This style guide, developed by the National Center on Disability and Journalism at Arizona State University, is intended to help. It covers almost 200 words and terms commonly used when referring to disability. OUR GUEST: Charis Hill Award-winning advocate for the spondyloarthritis community since 2013, Charis is a queer disabled writer, speaker, and model living with Axial Spondyloarthritis, Major Depressive Disorder, Anxiety, Post-Traumatic Stress Disorder, and Autism. Charis has been instrumental in the creation and design of spondyloarthritis disease treatment guidelines, patient-centered rheumatological research, international criteria for disease treatment outcomes, and research guidelines. They are consistently involved in national/international awareness and legislative advocacy efforts to improve spondylitis education, funding, and access to treatment. Charis serves on the Spondylitis Association of America advocacy committee and the CreakyJoints/Global Healthy Living Foundation (GHLF) Patient Council and COVID-19 Patient Leadership Council. They have spoken at numerous events and press conferences, as well as regularly with members of Congress on Capitol Hill. Charis has modeled in Los Angeles Style Fashion Week and New York Fashion Week and they're featured on covers of Féroce magazine, Arthritis Today, and Spondylitis Plus Magazine. Their bylines appear in HealthCentral, Healthline, Business Insider, AnkylosingSpondylitis.net, and This AS Life; including cover stories for Arthritis Today and Spondylitis Plus magazine. Charis' story has been featured numerous times in mainstream news and lifestyle media, including the 2019 documentary, Becoming Incurable. TRANSCRIPT Sarah Kirwan: Hi, and welcome to Incluse This! I'm your host Sarah Kirwan, and this is a movement for disability equity. Today we're talking with Charis Hill, and we're talking about all the different ways the coronavirus has impacted and continues to impact the disability community. Award-winning advocate for the spondyloarthritis community since 2013, Charis is a queer disabled writer, speaker and model living with axial spondyloarthritis, major depressive disorder, anxiety, post-traumatic stress disorder and autism. Charis has been instrumental in the creation and design of spondyloarthritis disease treatment guidelines, patient-centered rheumatological research, international criteria for disease treatment outcomes and research guidelines. They are consistently involved in national and international awareness and legislative advocacy efforts to improve spondylitis education, funding and access to treatment. Sarah Kirwan: Charis serves on the Spondylitis Association of America advocacy committee, the CreakyJoints Global Health Living Foundation, patient council, and the COVID-19 patient leadership council. They have spoken at numerous events and press conferences, as well as regularly with members of Congress on Capitol Hill. Charis has modeled in Los Angeles Style Fashion Week and New York Fashion Week, and they're featured on covers of Feroce Magazine, Arthritis Today and Spondylitis Plus magazine. Their bi- lines appear in HealthCentral,

    1h 13m

  9. 02/03/2021

    Incluse This! Episode 4: What Disability Community?

    Episode 4: What Disability Community? Wednesday, February 3, 2021 GUEST: Tiffany Yu, Founder of DIVERSABILITY https://media.blubrry.com/incluse_this/content.blubrry.com/incluse_this/Incluse_This_S1_E4_What_Disability_Community-Tiffany_Yu.mp3 When we think of disability, we often think of the literal definition, which is a medical issue that keeps a person from fully participating in daily activities. And when we think of disability community, we often think of the total population of all disabled people. However, a medical diagnosis does not automatically make anyone a member of the Disability Community. In today's episode, we explore this phenomenon. QUICK LINKS As language, perceptions and social mores change at a seemingly faster and faster rate, it is becoming increasingly difficult for communicators to figure out how to refer to people with disabilities. This style guide, developed by the National Center on Disability and Journalism at Arizona State University, is intended to help. It covers almost 200 words and terms commonly used when referring to disability. OUR GUEST: Tiffany Yu Tiffany Yu is the CEO & Founder of Diversability, an award-winning social enterprise to rebrand disability through the power of community; the Founder of the Awesome Foundation Disability Chapter, a monthly micro-grant for disability projects that has awarded $41.5k to 42 projects in 8 countries; and the host of TIFFANY & YU, the podcast. She was appointed to the San Francisco Mayor's Disability Council by San Francisco Mayor London Breed in 2019. Tiffany comes into this work based on her own personal experiences of acquiring a disability at a young age as a result of a car accident. She started her career in investment banking at Goldman Sachs, working on over $14 billion of announced transactions. She has also worked at Bloomberg, Sean Diddy Combs' REVOLT Media & TV, and a venture-backed real estate startup. She has been featured in Marie Claire, the Guardian, and Forbes and has spoken at the World Economic Forum Annual Meeting in Davos, TEDx, and Stanford University. She received her Bachelor's degree from Georgetown University and her Master's degree from the London School of Economics. LEARN MORE: https://www.tiffanyyu.com https://www.tiffanyyu.com/podcast https://mydiversability.com   TRANSCRIPT Hi, and welcome to Incluse This! This I'm your host, Sarah Kirwan. And this is a movement for disability equity. Today, we're talking with Tiffany Yu, and we're talking about the disability community. Tiffany is the CEO and Founder of Diversability, an award-winning social enterprise to rebrand disability through the power of community. She is also the Founder of the Awesome Foundation Disability Chapter, which is a monthly micro-grant for disability projects that has awarded $41,000 to 42 projects, in eight different countries. Tiffany is also the host of Tiffany and Yu, the Podcast. She was appointed to the San Francisco Mayor's Disability Council, by San Francisco Mayor London Breed, in 2019. Tiffany comes into this work based on her own personal experiences of acquiring a disability at a young age, as a result of a car accident. She started her career in investment banking at Goldman Sachs, working on over $14 billion dollars of announced transactions. She has also worked at Bloomberg, Sean Diddy Combs Media and TV, and a venture-backed real estate start-up. She has been featured in Marie Claire, The Guardian, and Forbes. And, she has spoken at the Word Economic Forum Annual Meeting in Davos. She has also given talks at TEDx and Stanford University and she received her bachelor's degree from Georgetown University along with her master's degree from the London School of Economics. And with that, let's dive into What Disability Community? Welcome to Incluse This!, Tiffany! I'm so excited to finally be here talking with you here today and answering the question that so many have - What Disability Community?

    45 min

  10. 01/26/2021

    Incluse This! Episode 3: Words Are Powerful

    Episode 3: Words Are Powerful GUEST: Jourdan Saunders, MS, CCC-SLP, Founder of The Resource Key https://media.blubrry.com/incluse_this/content.blubrry.com/incluse_this/Incluse_This_S1_E3_Words_Are_Powerful.mp3 How powerful are the words we use? What effect do words have on how we interpret information? In this episode, host Sarah Kirwan and guest Jourdan Saunders, have a down-to-earth conversation about words, words, and more words. Listeners will walk away with a better understanding of how powerful words are, within the framework of disability, woke capitalism, relationships, plain language, getting comfortable in our conversations, the Americans with Disabilities Act (ADA), and much more. QUICK LINKS As language, perceptions and social mores change at a seemingly faster and faster rate, it is becoming increasingly difficult for communicators to figure out how to refer to people with disabilities. This style guide, developed by the National Center on Disability and Journalism at Arizona State University, is intended to help. It covers almost 200 words and terms commonly used when referring to disability. OUR GUEST: Jourdan Saunders, MS, CCC-SLP Jourdan Saunders, MS, CCC-SLP is a Speech Language Pathologist, Disability Inclusion Consultant, Author, and Resource Generator. She develops solutions to ensure people with disabilities are included and are making meaningful connections with brands. Jourdan is the founder of The Resource Key providing consulting services using innovative approaches, research based industry resources, and advising companies to ensure People with Disabilities are included, and making meaningful connections with brands. She is the owner of one of the largest SLP resources group with over 15,000 followers. Jourdan has written several articles for non-profit organizations, major magazines, and online resources. Her work has been featured in USA Gymnastics, American Speech Language Hearing Association (ASHA), MarketWatch, Association of University Centers on Disability, and Kennedy Center. TRANSCRIPT Hi, and welcome to Incluse This! This I'm your host, Sarah Kirwan. And this is a movement for disability equity. Today, we're talking with Jourdan Saunders, and we're talking about how powerful words are. Jourdan Saunders is a speech language pathologist, a disability inclusion consultant, author, and resource generator. She is the founder of The Resource Key, a business providing consulting services that use innovative approaches, research-based industry resources, and advising companies to ensure people with disabilities are included. And also making meaningful connections with brands. She's the owner of one of the largest resources group with more than 15,000 followers. Jourdan has written several articles for nonprofit magazines, and organizations, and online resources. Her work has been featured in USA Gymnastics, American Speech-Language-Hearing Association, MarketWatch, Association of University Centers on Disabilities, and The Kennedy Center. Jourdan established one of the first resource websites for students interested in the field of speech language pathology, Future SLPs, which has received recognition worldwide. Recently, she created a program that infuses art and reading literacy skills entitled Design Read Create. Jourdan is the author of Our Reading Literacy Kitchen: Fresh Approaches to Target Reading Literacy Skills. And with that, let's dive in. Welcome to Incluse This! Jourdan. I am super thrilled to be here with you today talking about words, words, and more words. Thank you so much for having me, Sarah. I am honored to be here with you on this podcast. And words can be used in a positive way or a negative way. So you and I met virtually last September, and I remember exactly why I got ahold of you. Because I all of a sudden got pretty active on LinkedIn, and I wanted to see who was posting in the disability, equity, and inclusion space.

    1 hr
  • 10 Episodes

5
out of 5
5 Ratings

About

Not just a podcast: We’re a movement to amplify disabled voices, tackle the intersectionality that naturally exists for people living with disabilities, connect people through shared experiences, and work alongside disability allies. This safe and coalitional space was created for critical conversations at eye level that lead to change – on individual, local, state, and federal levels. We host in-depth interviews with a wide variety of guests who bring disability to the forefront of the greater diversity conversation, and progress movement for disability equity forward.

Information

  • Creator
    Sarah Kirwan
  • Years Active
    2K
  • Episodes
    10
  • Rating
    Explicit
  • Show Website
    Incluse This!