Its Not All About ME

Its Not All About ME

A guy with ME and a mic. Chat and frequent guests sharing experience of chronic illnesses such as Myalgic Encephalomyelitis and Chronic Fatigue Syndrome. @0allaboutme - get in touch to come on the show or just say hi.

  1. 09/07/2020

    INAAM ep 30 The Stumbling Ramble

    It's not as bad as I thought it would be! We're back after a little break with a walk and talk ep. We chat the stress, guilt and frustration of trying to maintain a schedule and keep appointments when you have a chronic illness. How do you adapt to the new normal and how on earth to you become cool with that? My old life - I wish I knew how to quit you. FANCY PICKING UP THE TAB FOR THE COFFEE? Support the show at https://ko-fi.com/inaam MUSIC – Feeling sunny by Scott Holmes from Free Music Archive. Contact us on the show at: @0allaboutme itsreallynotallaboutme@gmail.com Thanks all!!

    29 min
  2. INAAM ep 29 The Loneliness of the Chronic Illness Experience

    05/29/2020

    INAAM ep 29 The Loneliness of the Chronic Illness Experience

    Episode 29 The loneliness of the chronic illness experience As the world begins to explore getting back out into the world after months of isolation, we take a moment to think about those who will, once again, be left behind and missing. On a cheerier note, we have a bed of nails so all will be well. MUSIC – Feeling sunny by Scott Holmes from Free Music Archive Contact us on the show at: @0allaboutme itsreallynotallaboutme@gmail.com Thanks all!!

    43 min
  3. INAAM ep 28 One Family Four kids with ME part one feat Sean and Niamh

    04/17/2020

    INAAM ep 28 One Family Four kids with ME part one feat Sean and Niamh

    Episode 28 – One Family, Four kids with ME feat Sean and Niamh Henneberry Some time ago, 14 year old Sean got in touch asking if he could come on the show and share his experience of having ME (Myalgic Encephalomyelitis). As we were getting organized to have our chat he revealed that all four kids in his family have the chronic illness. In this, first of two special episodes, Sean and his sister Niamh share their struggles and hope for the future. Sign up to Sean’s Youtube page to get announcements about his stop motion animation at https://www.youtube.com/channel/UC93CCTn640Kgv8CfGURybOA/about MUSIC – Feeling sunny by Scott Holmes from Free Music Archive Contact us on the show at: @0allaboutme itsreallynotallaboutme@gmail.com Thanks all!!

    1h 6m
  4. INAAM ep 27 Older Wiser Kinder

    03/23/2020

    INAAM ep 27 Older Wiser Kinder

    Episode 27 – Older, Wiser, Kinder We are back from our “baby break” and ready to go. After a brief chat about life with ME and a new baby, we chat about our strong response and reaction to the recent tweet from Brianne Benness (@bennessb) that said “The distinction feels contrived, but my mental health really changed when I stopped asking "why am I so lazy" and started asking "why does my body need so much rest right now?" *apologies - does contain a little bit of swearing! MUSIC – Feeling sunny by Scott Holmes from Free Music Archive Contact us on the show at: @0allaboutme itsreallynotallaboutme@gmail.com Thanks all!!

    33 min
  5. INAAM ep 26 and then there were three

    09/02/2019

    INAAM ep 26 and then there were three

    Episode 26 and then there were three This week we share our experience of the first ten days of first-time parenthood and explore our hopes and fears as a parent with ME\CFS. Please do get in touch with your experience, tips and support. All will be most gratefully received! MUSIC – Feeling sunny by Scott Holmes from Free Music Archive Contact us on the show at: @0allaboutme itsreallynotallaboutme@gmail.com Thanks all!!

    27 min
  6. INAAM ep 25 feat Jayne Barnard

    08/19/2019

    INAAM ep 25 feat Jayne Barnard

    Episode 25 – feat. J E Barnard This week we are joined by writer and very-much all-round great person J.E. (Jayne) Barnard. Jayne shares her long term experience of ME and chats about how it affected the whole family and also how she realized she had to find her own questions, answers and treatment to be able to just get by. She takes us through her process of writing several (award winning) books while living with the full-time job of having ME and offers experience of how she dealt with expectation, responsibility, demand and adrenaline. The first books in her two series can be found on Amazon and are called When The Flood Falls (Falls Mysteries series) and Maddie Hatter and the Deadly Diamond (Maddie Hatter Adventure series). Jayne and her books can be found at: https://www.facebook.com/permalink.php?id=256291734780049&story_fbid=474069513002269 https://www.facebook.com/MaddieHatterAdventures/ @J_E_Barnard and @JayneBarnard1 on twitter MUSIC – Feeling sunny by Scott Holmes from Free Music Archive Contact us on the show at: @0allaboutme itsreallynotallaboutme@gmail.com Thanks all!!

    1h 15m
  7. INAAM ep 24 feat Ros Lemarchand

    08/05/2019

    INAAM ep 24 feat Ros Lemarchand

    Episode 24 – feat. Ros Lemarchand The French Femme This week we are joined by Rosalynde Lemarchand aka The French Femme. Ros shares her experience of ME as well as several of her poems that were inspired by the illness. Find her and her creative output here: https://www.facebook.com/pg/My-A-Z-of-ME-1403270009902127/about/?ref=page_internal MUSIC – Feeling sunny by Scott Holmes from Free Music Archive Contact us on the show at: @0allaboutme itsreallynotallaboutme@gmail.com Thanks all!!

    1 hr
  8. INAAM ep 23 - "MECFS you can get better" walkthrough

    07/22/2019

    INAAM ep 23 - "MECFS you can get better" walkthrough

    Episode 23 – ME\CFS You Can Get Better – a walkthrough This week we return from a month off and share our experience of rigorously applying the guidance of Dr. David Smith’s ME\CFS You Can Get Better (http://www.me-cfs-treatment.com/wp-content/uploads/2013/03/Get-Well-Guidelines-Revised-2012.pdf). We share our day plan and how we have found the experience so far. MUSIC – Feeling sunny by Scott Holmes from Free Music Archive Contact us on the show at: @0allaboutme itsreallynotallaboutme@gmail.com Thanks all!!

    37 min
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Ratings & Reviews

5
out of 5
3 Ratings

About

A guy with ME and a mic. Chat and frequent guests sharing experience of chronic illnesses such as Myalgic Encephalomyelitis and Chronic Fatigue Syndrome. @0allaboutme - get in touch to come on the show or just say hi.

Information

  • Creator
    Its Not All About ME
  • Years Active
    2016 - 2020
  • Episodes
    31
  • Rating
    Clean
  • Copyright
    © Its Not All About ME
  • Show Website
    Its Not All About ME