Remember Me

Remember Me Podcast
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The Remember Me Podcast is a heartfelt and informative series dedicated to supporting families, caregivers, and individuals affected by Frontotemporal Dementia (FTD). Hosted by Maria Kent Beers and Rachael Martinez, both of whom have personal experiences with FTD caregiving, the podcast aims to provide connection, understanding, and advocacy for those navigating the challenges of this rare and often misunderstood disease. Visit our website www.remembermeftd.com Join us on Patreon at www.patreon.com/remembermecommunity Follow us on Instagram @remembermepodcast.

  1. 1 天前

    With love, from Seattle: Community Caregiver Tips

    This episode is made up of your voices—listener-submitted advice, caregiving hacks, and the real-life tips that have helped you get through the days (and the nights). The small things, the practical things, the “why didn’t anyone tell me this sooner?” kind of things. From navigating behaviors, to finding moments of relief, to the ways you’ve learned to care—for them and for yourself—this is wisdom that only comes from lived experience. So whether you’re in it right now, or finding your footing on the other side, we hope something in here meets you where you are. Thank you for showing up, for sharing, and for continuing to build this community with us. --- FIRST - THE LINKS MENTIONED IN TODAY'S EPISODE: Searching for the Words Substack Expert Chat: How To Advocate For A Loved One Living In A Care Facility with Laurette Klier. Participate in our Ask A Genetic Counselor Episode Support the show + unlock bonus content (including a bonus episode with Amy): Patreon → ⁠⁠www.patreon.com/remembermecommunity⁠⁠ Today’s Sponsors — Progranulin Information Navigator Learn more about genetic testing, clinical trials, and FTD resources → ⁠⁠www.progranulinnavigator.org⁠⁠ Psilera → ⁠⁠⁠⁠Psilera is a biotechnology company developing next-generation neurotherapeutics .⁠https://www.psilera.com⁠ Follow along: Instagram → @remembermepodcast Website → ⁠⁠www.remembermeftd.com⁠⁠ Our Non-Profit — The Remember Me Foundation ⁠⁠www.remembermefoundation.org⁠⁠ — Remember Me Podcast + Community exists to offer hope, connection, and support for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

    48 分鐘

  2. 4月29日

    Ike

    This week, we sit with Kim as she shares the story of her life with Ike—the love at the center of it all, and the long, complicated road of FTD they’ve walked together. You can feel that love in every moment of this conversation—steady, enduring, and deeply human—as Kim speaks with honesty and courage about what it means to lose someone in pieces. This episode holds so much of what Remember Me is about: the quiet and not-so-quiet challenges of care, the complexity of loving someone through delusion and change, the financial weight so many families carry, and the layered grief that weaves through it all. Kim, thank you for trusting us—and this community—with your story. — Support the show + unlock bonus content (including a bonus episode with Amy): Patreon → ⁠www.patreon.com/remembermecommunity⁠ Today’s Sponsors — Progranulin Information Navigator Learn more about genetic testing, clinical trials, and FTD resources → ⁠www.progranulinnavigator.org⁠ Psilera → ⁠⁠Psilera is a biotechnology company developing next-generation neurotherapeutics .https://www.psilera.com Follow along: Instagram → @remembermepodcast Website → ⁠www.remembermeftd.com⁠ Our Non-Profit — The Remember Me Foundation ⁠www.remembermefoundation.org⁠ — Remember Me Podcast + Community exists to offer hope, connection, and support for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

    1 小時

  3. 4月22日

    Jeff

    This week, we sit with Amy as she shares the quiet, enduring love she built with Jeff—before, during, and beyond his diagnosis of Frontotemporal Dementia (FTD). It’s a story of tenderness and patience, of navigating subtle changes, and the long, often winding road to understanding what was really happening. Amy brings us into a life rooted in intention—a partnership marked by gentleness, humor, and deep presence—even as FTD slowly reshaped their world. This episode is a reflection on caregiving, early symptoms of FTD, the diagnostic journey, and what it means to hold onto love as everything shifts. Thank you, Amy, for trusting us with your story. — Support the show + unlock bonus content (including a bonus episode with Amy):Patreon → www.patreon.com/remembermecommunity Today’s Sponsor — Progranulin Information NavigatorLearn more about genetic testing, clinical trials, and FTD resources → www.progranulinnavigator.org Follow along:Instagram → @remembermepodcastWebsite → www.remembermeftd.com Our Non-Profit — The Remember Me Foundationwww.remembermefoundation.org — Remember Me Podcast + Community exists to offer hope, connection, and support for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).Always, always accept the good.

    1 小時 10 分鐘

  4. 4月15日

    Bob B.

    We're back from our mid-season break with a story of a young couple - Erin and Bob. Erin shares the journey to an FTD diagnosis after many misdiagnosis including young-onset Parkinsons.  Thank you Erin, for sharing your story with us.  Support the show + get more bonus content including a bonus episode with Erin on PATREON: www.patreon.com/remembermecommunity Today's SPONSOR - PROGRANULIN INFORMATION NAVIGATOR: Learn more about genetic testing, clinical trials + more at www.progranulinnavigator.org ⁠⁠⁠⁠⁠⁠⁠⁠INSTAGRAM: @remembermepodcast WEBSITE: www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ OUR NON-PROFIT: www.remembermefoundation.org⁠⁠ ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

    1 小時 21 分鐘

  5. 3月25日

    Faye

    In our last episode before the mid-season break, Shane, takes to the mic , and both of us were eager to hear his story with his late wife, Faye. This episode was extremely powerful to listen to as the love and the pain are both present. It’s a beautiful love story of self preservation, of letting go, of listening to your gut and leaning in to that love… that sweet, sweet love. Thanks for being so vulnerable, Shane. Yours and Faye's story will stay with us forever.  We'll be back April 14th to kick off the second half of Season 12. Be well. xx-R+M A big thank you to our listeners, our supporters, our Patreons and our guests.  Want to support the podcast + get more content? Join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ We'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram @remembermepodcast. For more general info about the podcast, please visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. Before you go, we’d love for you to check out our new non profit foundation for the general neurodegenerative community of caregivers:  ⁠www.remembermefoundation.org⁠ ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

    1 小時 15 分鐘

  6. 3月18日

    Barbara

    Today you'll meet Susan and her late wife, Barbara. Susan joined us all the way from Mexico, where we saw her beautiful Milagro wall as she spoke so vulnerably about her love story with Barbara. Susan has a way of telling her story with so much tenderness and adoration that we could feel the beauty of their relationship across the miles. This story also so delicately discusses genetic FTD, and the incredible dedication Barbara and Susan had to research and clinical trials. Oh, and Ms. Susan has written a book about her experience and we HIGHLY recommend you sign up for her e-mail list + keep an eye out for the book in June here: https://www.susankoen.com Thank you, Susan, for sharing your love story with all of us. ---- A big thank you to our listeners, our supporters, our Patreons and our guests. A special thank you to ⁠⁠⁠Psilera⁠⁠⁠ for supporting this season of Remember Me. Ways to connect, get more resources + support RM: Patreon: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Instagram: www.instagram.com/remembermepodcast Website: www.remembermeftd.com Our non-profit created to support caregivers before and after their journey: www.remembermefoundation.org ⁠⁠⁠------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good. #spouse #dementia #grieving #grief #caregiving #frontotemporaldementia #ftd #podcast #marriage

    54 分鐘

  7. 3月11日

    Doug

    Karen sits down with us for this week's episode and the conversation took right off. Karen spoke openly, albeit delicately, about the changes she noted in her husband, Doug and how the family roles have shifted and morphed alongside Doug’s disease. A beautiful love story that highlights love, resilience and strength. --- A big thank you to our listeners, our supporters, our Patreons and our guests. A special thank you to ⁠⁠⁠Psilera⁠⁠⁠ for supporting this season of Remember Me. Want to support the podcast + get more content? Join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ We'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram @remembermepodcast. For more general info about the podcast, please visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. Before you go, we’d love for you to check out our new non profit foundation for the general neurodegenerative community of caregivers:  ⁠⁠⁠www.remembermefoundation.org⁠⁠⁠ ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

    51 分鐘

  8. 3月4日

    Maureen

    Today we welcome Michael as he shares his journey with his wife Maureen. Maureen was diagnosed with FTD after a misdiagnosis of psychiatric disorders and Lewy body Dementia due to her symptoms of hallucinations. Michael walks us through his experiences navigating caring for his changing wife - and the grief and love woven throughout. Thank you, Michael for sharing your story with us. --- A big thank you to our listeners, our supporters, our Patreons and our guests. A special thank you to ⁠⁠Psilera⁠⁠ for supporting this season of Remember Me. Want to support the podcast + get more content? Join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ We'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram @remembermepodcast. For more general info about the podcast, please visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. Before you go, we’d love for you to check out our new non profit foundation for the general neurodegenerative community of caregivers:  ⁠⁠www.remembermefoundation.org⁠⁠ ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

    54 分鐘
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5
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2 則評分

簡介

The Remember Me Podcast is a heartfelt and informative series dedicated to supporting families, caregivers, and individuals affected by Frontotemporal Dementia (FTD). Hosted by Maria Kent Beers and Rachael Martinez, both of whom have personal experiences with FTD caregiving, the podcast aims to provide connection, understanding, and advocacy for those navigating the challenges of this rare and often misunderstood disease. Visit our website www.remembermeftd.com Join us on Patreon at www.patreon.com/remembermecommunity Follow us on Instagram @remembermepodcast.

資訊

  • 創作者
    Remember Me Podcast
  • 活躍年代
    2023年 - 2026年
  • 集數
    176
  • 年齡分級
    兒少適宜
  • 版權
    © 075898
  • 節目網站
    Remember Me

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