16 episodes

Just A Spoonful is a conversation podcast where everyone you hear speaking is a young person living with chronic illness and/or disability. Each episode I interview a new guest. This is how we live, and what we live for. Hosted by Kaitlyn Blythe.

Just A Spoonfu‪l‬ Kaitlyn Blythe

    • Society & Culture
    • 5.0 • 5 Ratings

Just A Spoonful is a conversation podcast where everyone you hear speaking is a young person living with chronic illness and/or disability. Each episode I interview a new guest. This is how we live, and what we live for. Hosted by Kaitlyn Blythe.

    Episode 16 - Robyn Lambird

    Episode 16 - Robyn Lambird

    Robyn Lambird doesn't need your prayers, thanks! At the time of this interview, already an accomplished wheelchair athlete, public figure and the first visibly disabled adult to appear in a nationwide ad campaign in Australia, the 19-year-old is doing just fine. We chat about the amusing (and annoying) reactions people have to you when you're visibly disabled, going to stadium concerts in a wheelchair, and how things seem to be improving for people with disabilities in our lifetimes. Robyn was born with cerebral palsy and explains where the nickname "T-Rex" comes from.

    This is the first episode of the new season, after JASP's hiatus. This interview is one from the vault, from before I became too overwhelmed to keep doing this podcast, and I'm so glad I get to share it with you. Our chat was recorded in mid-2016, if you can even recall such a time.

    You can find Robyn on Instagram (@robynlambird) and YouTube (www.youtube.com/user/ATREXLIFE). Read more of Robyn's story in this NDIS feature: https://www.ndis.gov.au/robynstory

    Robyn mentions Starting With Julius, a Perth-based not-for-profit organisation that works to improve media representation for people with disability. Find out more about them here: http://www.startingwithjulius.org.au/

    Get Krack!n airs Wednesdays at 9pm on ABC (Australia) and episodes are available on iview.

    My Patreon members are the wind beneath my wings. If you would like to join my Patreon and access special exclusive content, you can do so for as little as USD$1/month. Check out www.patreon.com/kplyley for more info.

    I'd like to say a massive thanks to Rudi Bremer for donating her time and skills to help me with editing this episode.

    This podcast was produced on the traditional lands of the Wurundjeri people of the Kulin Nation, to whom I pay my respects as the traditional owners of this land.

    • 1 hr 2 min
    Episode 15 - Bhavani Esapathi

    Episode 15 - Bhavani Esapathi

    The binary of healthy/sick is "lazy thinking", says tech innovation writer and researcher Bhavani Esapathi. The RSA Fellow and HuffPo blogger is passionate about shifting the narrative around chronic illness from "despite" to "because of". Without her severe Crohns and arthritis/spondylitis conditions, she would not be doing the exciting work she does today. Perhaps she wouldn't have travelled to Japan to accept an innovation award. Bhavani focuses on what she can do because of her chronic lifestyle.

    We talk about her storytelling platform 'Chronically Driven', an arm of the Invisible Labs network that she founded. For the project, Bhavani seeks out stories from people with 'invisible' illnesses, and asks them to take an unusual view of their conditions. She explains to me why being from India actually set back her diagnosis of Crohn's when she was seeing doctors in London (her current home). It is a fascinating chat and I came away uplifted, yet with many of my assumptions about chronic illness challenged.

    [Note from September 2018: I have had to re-upload this episode, which was originally released on 27 March 2017.]

    Bhavani's HuffPo blog post on 'Going Beyond The Extraordinary': http://huff.to/2o03mYe
    The Invisible Labs: http://theinvisiblelabs.com
    Bhavani on Twitter: @bhaesa

    The music you hear in this episode:
    'Sleepless' by Anna O
    'London Is Calling' by penston
    'Silver Magic Ships' by Marksman Lloyd

    Become a patron of Just A Spoonful!: patreon.com/kplyley

    Thank you to my amazing patrons for your support. x

    • 1 hr 13 min
    Episode 14 - Carly Findlay

    Episode 14 - Carly Findlay

    “You're not like, you know, a REGULAR disability.”

    Carly Findlay fields all kinds of ridiculous comments about her appearance and her disability, ranging from the insensitive to the abusive. Some of them have taken her all the way to the Human Rights Commission. “It was a bit weird to be the top news story for a couple of days … It wasn't a good experience.”

    Carly lives with Ichthyosis – a rare, severe skin condition – and is an appearance activist. She is also a writer whose work has been published by the Guardian, Daily Life, ABC, Mamamia and Frankie magazine. On her award-winning blog Tune Into Radio Carly, she writes honestly about life with Ichthyosis, disability, and visible difference. Carly talks to me about her work, but also we giggle a lot about pop music from the late 90s.

    If 2016 has gotten you down, Carly Findlay is a delightful guest to spend an hour in conversation with.

    [Note from September 2018: I've had to re-upload this episode, and since its first release two years ago Carly has only gone on to do more and more amazing things. Check out her website http://carlyfindlay.com.au]

    Links from this episode:

    Carly's blog: http://carlyfindlay.blogspot.com.au [Now moved to http://carlyfindlay.com.au]

    Carly's Facebook page: http://fb.com/Tune.Into.Radio.Carly/

    Jill Starks' SMH profile on Carly Findlay and other Australian disability activists (and Carly's DRESS): http://www.smh.com.au/national/disability-advocates-demand-an-end-to-slacktivism-and-inspiration-porn-20160109-gm2dw9.html

    'Living the unexpected. Marriage (and maybe babies)': http://carlyfindlay.blogspot.com.au/2014/11/living-unexpected-marriage-and-maybe.html

    Carly's protest of Me Before You - 'Having a disability is not a tragedy' (SBS): http://www.sbs.com.au/topics/life/culture/article/2016/06/17/having-disability-not-tragedy

    'Carly Findlay suffers skin condition, wins internet after copping abuse on internet site Reddit': http://www.news.com.au/technology/online/carly-findlay-suffers-skin-condition-wins-internet-after-copping-abuse-on-internet-site-reddit/story-fnjwnhzf-1226787312639

    'Disability activist and blogger Carly Findlay combats pity, sensationalism with her own story': http://www.abc.net.au/news/2013-12-03/disability-blogger-takes-control-of-her-story/5126834

    Savage Garden bot: http://twitter.com/affirmation_sg


    The music you heard in this episode:

    'Sleepless' by Anna O
    'Savage Garden – Break Me Shake Me (ChristmatiK Remix)' by ChrismatiK
    'Silver Magic Ships' by Marksman Lloyd


    If you'd like to keep Just A Spoonful going, become a Patron of Kaitlyn's! http://patreon.com/kplyley


    Podcast artwork by Brisbane artist Erin Michelle

    • 1 hr 28 min
    Episode 13 - Anna Spargo-Ryan

    Episode 13 - Anna Spargo-Ryan

    "My first response was really, 'This is some kind of psychotic break, I'm having a delusion right now that my dream publisher wants to offer me a book deal.' I felt like that for quite a few weeks, actually."

    But it was not a delusion. Anna Spargo-Ryan's debut novel The Paper House was released today by Picador Australia, and it has already gone into reprint. Back in March this year, Anna sat down for a chat with me over Skype (as neither of us leaves the house much), and talked to me about chocolate, realising your goals, and living with "the most unpleasant cat I've probably ever had."

    The Paper House is about a woman's relationship with her mother who has bipolar disorder, and its author has plenty of lived experience with mental illnesses. Anna lives with obsessive compulsive disorder, post traumatic stress disorder, severe anxiety, depression, and elements of psychosis in the mix. She tells me how "oversharing" on the internet helps her process her experiences and identity issues. We also talk a LOT about chocolate.

    Links to things we discussed in this episode:

    http://ask.fm/
    https://twitter.com/emergencynorman
    http://blog.annaspargoryan.com/book-the-paper-house/
    BuzzFeed article about Anna's selfies http://bzfd.it/1X9Ze3a
    http://seizureonline.com/head-first/

    Sidebar: Today is the final day of ME Awareness Month, so if you haven't already listened to the previous episode, a special short audio documentary on the state of myalgic encephalomyelitis in Australia, why not take 20 minutes out sometime today to catch up.

    This podcast is made possible by the support of my wonderful Patreon patrons. I'd especially like to thank Chris Woods, Ell Ackerman, Katie Rowney, Tegan, kristen bushnell, Alan Vaarwerk, Laura Elvery, Sophie Benjamin, Lauren Piko, Jim Reynolds, Talia F E, David Ryding, Jessica Alice, Heidi, James Colley and Lefa Singleton Norton.

    If you would like to become a patron of the podcast and sling me a couple bucks every month to keep this thang going, go to http://patreon.com/jaspodcast and find out what rewards you can get!

    The songs you hear in this episode are (in order of appearance):

    'Sleepless' by Anna O
    'Part of That* World' sung by Jodi Benson on The Little Mermaid
    'Silver Magic Ships' by Marksman Lloyd

    If you're on iTunes, please subscribe to Just A Spoonful and rate! Review! Gimme dem stars!

    *I know Disney named the song 'Part of Your World' but she says THAT, THAT WORLD. GODDAMMIT.

    • 1 hr 40 min
    May The 12th Be With You

    May The 12th Be With You

    May 12th is the International Day of Awareness for ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome), a gravely misunderstood neurological disease. Up to 598,000 Australians live with ME/CFS, yet there is very little research funding or specialist healthcare available for them. How is such a devastating disease so overlooked? Kaitlyn Plyley investigates in this special episode of Just A Spoonful, 'May The 12th Be With You'. For anyone who ever asked, "Where's the Serial about why I'm still sick?"

    Show notes: http://justaspoonfulpodcast.com

    Become a patron of Just A Spoonful for as little as $1/month: http://patreon.com/jaspodcast

    Educate yourself further about ME/CFS in Australia: http://emerge.org.au

    • 18 min
    Episode 12 - Jill Pantozzi

    Episode 12 - Jill Pantozzi

    Just A Spoonful's first international guest! Jill Pantozzi is a US-based pop culture journalist and former Editor-In-Chief of The Mary Sue, known online by her moniker The Nerdy Bird. Jill talks to me ahead of her appearance at Contact2016 in Brisbane, where she is the International Fan Guest of Honour. We talk Batman V Superman, depictions of disability in the Marvel and DC universes, and what it means to have a disabled character in comics where anything - including magical cures and superpowers - is possible.

    Jill is a Goodwill Ambassador for the Muscular Dystrophy Association, and tells me about the role the Association has played in her life since she was diagnosed with MD at the age of two.

    If you like Just A Spoonful, consider becoming a patron! http://patreon.com/jaspodcast

    Podcast artwork by Erin Michelle Art

    More episodes and news at http://justaspoonfulpodcast.com
    Follow us on Twitter @jaspodcast

    • 1 hr 24 min

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