Just Needs: parenting children with disabilities Exceptional Lives
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- Kids & Family
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Some people think of disabilities as "special needs." But as parents of children with disabilities, we know our kids just have needs... like everyone else. Settle in with our podcast for real talk about advocacy, friendships, developmental delays, evaluations, IEPs, sensory meltdowns, autism, and all the ups and downs that come with this gig. We don’t have all the answers, but we promise to try to figure it out with you. Join us.
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Re-Release: The importance of sleep in early childhood with Dr. Nilong Vyas
This week, Christina chats with Dr. Nilong Vyas of Sleepless in NOLA, on the importance of sleep in early childhood. They’ll answer questions like, “Why is sleep important?” and “My child is a terrible sleeper. Is it me or something else?” Listen along for helpful information and tips and tricks around sleep.
Resources mentioned in this episode
What is a sleep consultant and how do they help families?Sleep Disorders in ChildrenAutism Awareness & SleepMelatonin for Kids: A Guide for Parents and CaregiversSleepless in NOLADr. Vyas’ Bedtime ChecklistThank you Dr. Vyas for offering our families a discount on your services! For a 10% discount use code: INEEDSLEEP10
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Re-Release: 5 tips for filing taxes for people with disabilities
Nothing’s sure but… well, you know the end of that sentence. If your family includes a child or adult with a disability, here are 5 important things to know before you file your taxes in 2022.
Resources mentioned in this episode
5 Things to Know Before Filing Taxes for People with DisabilitiesABLE (Achieving a Better Life Experience) AccountsSpecial Needs Alliance: Attorneys for Special Needs PlanningTax Help for People with DisabilitiesLiving and Working with Disabilities (IRS) Volunteer Income Tax Assistance (VITA): free tax preparation help for taxpayers who qualifyWhere to find Exceptional Lives
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Re-Release: Flying with kids with disabilities: 5 tips to make the trip easier
Flying with kids with disabilities can be stressful and overwhelming. This week’s podcast episode has 5 tips to make the trip easier for you and your child.
Resources mentioned in this episode
Better parenting using self-regulation
What is self-regulation and how can it help me be a better parent?
¿Qué es la autorregulación y cómo puede ayudarme a ser un mejor padre?
Co-regulation: Your secret tool for managing meltdowns
How can co-regulation help my child’s behavior? Strategies for parenting children with disabilities
¿Cómo puede ayudarle a mi hijo la corregulación? Estrategias para ser padre de niños con discapacidades
US Department of Transportation; Wheelchairs and Other Assistive Devices
Disabilities and Medical Conditions
What is the Hidden Disabilities Sunflower?
Wings for Autism / Wings for All
TSA Notification Card
What To Do When an Airline Damages Your Wheelchair
Where to find Exceptional Lives
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Bonus: Pediatric Sleep Study: Sleepless in Baton Rogue
In this bonus episode, Christina discusses doing a pediatric sleep study with her son and his sensory needs.
Resources mentioned in this episode
The importance of sleep in early childhood with Dr. Nilong VyasSleepless in NOLAOur Lady of the Lake Sleep MedicineWhere to find Exceptional Lives
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LinkedIn -
The importance of sleep in early childhood with Dr. Nilong Vyas
This week, Christina chats with Dr. Nilong Vyas of Sleepless in NOLA, on the importance of sleep in early childhood. They’ll answer questions like, “Why is sleep important?” and “My child is a terrible sleeper. Is it me or something else?” Listen along for helpful information and tips and tricks around sleep.
Resources mentioned in this episode
What is a sleep consultant and how do they help families?Sleep Disorders in ChildrenAutism Awareness & SleepMelatonin for Kids: A Guide for Parents and CaregiversSleepless in NOLADr. Vyas’ Bedtime ChecklistThank you Dr. Vyas for offering our families a discount on your services! For a 10% discount use code: INEEDSLEEP10
Where to find Exceptional Lives
Facebook
Instagram
TikTok
LinkedIn -
How to be a great health care advocate for your complex kid
What do you do if you just found out your child has medically complex needs? Do you know how to be a great health care advocate for your complex kid? Christina gets helpful information and insight from Julia Roberts, parent and long-time advocate, in this week's episode.
Resources mentioned in this episode
Julia RobertsChildren with Medical ComplexityHealth Insurance for a Child With Disabilities: Easily Navigate Coverage and ServicesHow to get medical insurance for a child with a disabilityHow to get the most out of health insurance for your child with disabilitiesFrequently Asked Questions about Health InsuranceWhat happens when a child with a disability turns 18?If you are undocumented (don’t have papers), you can get care at a Federally Qualified Health Center.Where to find Exceptional Lives
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