Just Say HIE

Hope for HIE
  • 5.0 (5)
  • NON-PROFIT
  • UPDATED MONTHLY

Just Say HIE is the official podcast of the Hope for HIE foundation, a nonprofit serving the worldwide community of HIE families, whose children have been diagnosed with hypoxic ischemic encephalopathy. Just Say HIE brings the stories of the HIE community from around the world to you, exploring each unique journey and connection with its own version of HOPE to share.

  1. HIE Research Update with Dr. Kenji Cunnion

    OCT 14

    HIE Research Update with Dr. Kenji Cunnion

    Join Betsy Pilon, Executive Director at Hope for HIE and Dr. Kenji A. Cunnion, Chief Medical Officer at ReAlta Life Sciences, Inc. for an update on the state of HIE research, the evolution of ReAlta's commitment to therapeutic development for HIE, and the strategy and direction of their upcoming Phase 2 trials. This episode originally aired 4/28/2022.

    44 min
  2. AAC with Dr. Carole Zangari & Tina Moreno, MA, CCC-SLP

    OCT 7

    AAC with Dr. Carole Zangari & Tina Moreno, MA, CCC-SLP

    Join AAC experts Dr. Carole Zangari and Tina Moreno, MA, CCC-SLP, to learn all about assistive and augmentative communication, including when to get started, who to engage on your team, community resources, and more. This episode originally aired on 4/28/2022.

    52 min
  3. Navigating the Therapy Maze with Dr. Danielle Barber

    SEP 30

    Navigating the Therapy Maze with Dr. Danielle Barber

    Join Dr. Danielle Barber, member of Hope for HIE's Medical Advisory Board, HIE parent, pediatric neurologist, and lab researcher at Children's Hospital of Philadelphia, to learn how she has not only taken the perspective as a HIE parent and child neurologist to advise patients and families on how to navigate the therapy maze. This episode originally aired on 4/18/2022.

    53 min
  4. HIE Research Update with Dr. Brian Kalish

    SEP 23

    HIE Research Update with Dr. Brian Kalish

    Join Dr. Brian Kalish, staff neonatologist and clinician-scientist at SickKids Foundation, and Hope for HIE Medical Advisory Board member, share about his exciting research, and the evolution of HIE research in the past, and into the future, as a part of Medical Advisory Board Educational Series, and HIE Awareness Month events. This originally aired on 4/12/2022.

    46 min
  5. Ask the Neurologist with Dr. Monica Arroyo

    SEP 16

    Ask the Neurologist with Dr. Monica Arroyo

    Dr. Monica Arroyo, a member of Hope for HIE's Medical Advisory Board, is a pediatric neurologist with Joe DiMaggio Children's Hospital in Florida, passionate about caring for families, advocating for multidisciplinary care, and follow-up support. This originally aired on 4/10/2022.

    55 min
  6. Trauma-Informed Care and Perinatal Mental Health with Dr. LaTrice L. Dowtin

    SEP 9

    Trauma-Informed Care and Perinatal Mental Health with Dr. LaTrice L. Dowtin

    Dr. LaTrice L. Dowtin joins us to discuss the pillars of trauma-informed care and how they can and should be implemented for families facing trauma due to a NICU or PICU experience with HIE, hypoxic ischemic encephalopathy. This originally aired on 6/3/2021.

    54 min
  7. BONUS EPISODE: HIE, Seizures & Epilepsy

    11/17/2021

    BONUS EPISODE: HIE, Seizures & Epilepsy

    Join us for this BONUS EPISODE, as we bring our Medical Advisory Board educational series to our Just Say HIE podcast. This conversation was previously recorded and aired in April 2021 during HIE Awareness Month. Topics covered include neonatal seizures, the connection of HIE to seizures and epilepsy, what types of epilepsy babies and children with HIE are at risk for, including the discussion on Infantile Spasms, Lennox-Gastaut Syndrome, and Electrical status epilepticus in sleep (ESES). Tips are discussed on how to build productive relationships with your child's neurologist, including developing a proactive plan of how to contact them in case you suspect a seizure or have a concern about a movement. We are so grateful to Dr. Hannah Glass and Dr. Renee Shellhaas for sharing their expertise, their dedication to the HIE community in research and in clinical practice, and their involvement in the Medical Advisory Board with Hope for HIE.  To learn more about HIE and epilepsy, be sure to visit our blog.

    53 min
  8. Giving Hope for the Holidays

    11/16/2021

    Giving Hope for the Holidays

    Join us as David Ford, president of Hope for HIE's board of directors, shares his HIE story, his calling to give back to Hope for HIE, and encouragement for others to get involved in a myriad of ways as the giving season begins. Learn how to get started with Giving Tuesday, Hope for HIE's 100 for $100 campaign, and the exciting sixth annual Hope for the Holidays giving program benefiting HIE families to improve the quality of life for children and families - now totally over $70,000 of equipment, experiences and journey-lifters for the worldwide HIE community.

    33 min
See All (16)

5
out of 5
5 Ratings

About

Just Say HIE is the official podcast of the Hope for HIE foundation, a nonprofit serving the worldwide community of HIE families, whose children have been diagnosed with hypoxic ischemic encephalopathy. Just Say HIE brings the stories of the HIE community from around the world to you, exploring each unique journey and connection with its own version of HOPE to share.

Information

  • Creator
    Hope for HIE
  • Years Active
    2021 - 2025
  • Episodes
    16
  • Rating
    Clean
  • Copyright
    © Hope for HIE
  • Show Website
    Just Say HIE