4 episodes

Kidney Transplant Conversations features diverse voices and experiences of donating, receiving, and caring for this gift of life. Over the coming months each new episode will feature interviews with patients, caregivers, advocates, donors, healthcare providers, and community leaders.

At its highest level, our podcast series focuses on quality healthcare delivery, highlighting the innovative approaches kidney transplant recipients and providers are applying to improve care. Along the way, we’ll explore all the stages of the kidney transplant journey and invite our guests to share their experiences and insights. We’ll also look at things like health disparities in renal transplant, identifying where and why some groups don’t do as well when compared to others, and discuss what we can do to close the gap. This will include explorations of inclusion, diversity, equity and access (also known by the acronym IDEA), which are all subjects central to the purpose of this podcast. We invite you to subscribe and let Kidney Transplant Conversations keep you connected, informed and inspired with a constant flow of new thoughts and ideas.

Kidney Transplant Conversations is underwritten by Veloxis Pharmaceuticals, Inc. All views and opinions expressed in the podcast reflect those of the participants and do not necessarily represent the views and opinions of Veloxis Pharmaceuticals, Inc.

Kidney Transplant Conversations Project Advocacy

    • Health & Fitness
    • 5.0 • 3 Ratings

Kidney Transplant Conversations features diverse voices and experiences of donating, receiving, and caring for this gift of life. Over the coming months each new episode will feature interviews with patients, caregivers, advocates, donors, healthcare providers, and community leaders.

At its highest level, our podcast series focuses on quality healthcare delivery, highlighting the innovative approaches kidney transplant recipients and providers are applying to improve care. Along the way, we’ll explore all the stages of the kidney transplant journey and invite our guests to share their experiences and insights. We’ll also look at things like health disparities in renal transplant, identifying where and why some groups don’t do as well when compared to others, and discuss what we can do to close the gap. This will include explorations of inclusion, diversity, equity and access (also known by the acronym IDEA), which are all subjects central to the purpose of this podcast. We invite you to subscribe and let Kidney Transplant Conversations keep you connected, informed and inspired with a constant flow of new thoughts and ideas.

Kidney Transplant Conversations is underwritten by Veloxis Pharmaceuticals, Inc. All views and opinions expressed in the podcast reflect those of the participants and do not necessarily represent the views and opinions of Veloxis Pharmaceuticals, Inc.

    4. International perspectives on organ donation and transplantation with Dr. Joyce Trompeta. From California to Hawaii, then on to Japan.

    4. International perspectives on organ donation and transplantation with Dr. Joyce Trompeta. From California to Hawaii, then on to Japan.

    In this episode we meet Dr. Joyce Trompeta, A Nurse Practitioner (NP) specializing in transplantation, and an Associate Professor in the school of medicine, at the University of California, San Francisco where she conducts outcome research in the department of surgery.


    Dr. Trompeta discusses several areas of interest, including her concerns about disparities impacting Asian American, Pacific Islander and Latino populations; her work in Hawaii; how younger Latinos with kidney disease are facing unique challenges relating to immigration; and her travels to Japan, where stigma and cultural beliefs have limited organ transplantation, but where the younger generations are now leading change with a little help from Kumamon, Japan’s most popular bear. 


    We thank the participants and advisors, and our underwriters, who helped create this podcast. 


    Kidney Transplant Conversations is underwritten by Veloxis Pharmaceuticals, Inc. All views and opinions expressed in the podcast reflect those of the participants and do not necessarily represent the views and opinions of Veloxis Pharmaceuticals, Inc.


    © Project Advocacy, 2021 


     

    • 25 min
    3. How the UNC Chapel Hill Latino Transplant Clinic is increasing access through culturally competent care. UNC Chapel Hill Latino Transplant Clinic, Part 2

    3. How the UNC Chapel Hill Latino Transplant Clinic is increasing access through culturally competent care. UNC Chapel Hill Latino Transplant Clinic, Part 2

    How the UNC Chapel Hill Latino Transplant Clinic is increasing access through culturally competent care. UNC Chapel Hill Latino Transplant Clinic, Part 1


    Featuring Transplant Social Worker Daniela Matz and clinic founder Dr. Pablo Serrano.


    In our last episode we met José and Xiomara Flores and heard about their five-year journey from kidney disease diagnosis to their live donor transplant, which took place at the University of North Carolina Transplant Latino Transplant Clinic. The clinic is the culmination of a very intentional vision, a strategic decision to integrate a Latino-focused Transplant Clinic within the Abdominal Transplant Division at UNC Chapel Hill. Since being established in 2018, they have gone on to demonstrate how workforce diversity and cultural competency go hand in hand in the delivery of quality care.


    In today’s episode, transplant social worker Daniela Matz and clinic founder Dr. Pablo Serrano look back on Jose and Xiomara’s story, share with us insights into how the clinic works, and how they have been able to reduce renal transplant disparities.


    All views and opinions expressed in this podcast reflect those of the participants.


    We thank the participants and advisors who helped create this podcast, and our underwriter, Veloxis Pharmaceuticals.


    © Project Advocacy, 2021 


    Resources relevant to Episodes 2 & 3 of Kidney Transplant Conversations:


    Welcome to Infórmate            


    El objetivo de ésta página bilingüe es educar a los hispanos / latinos acerca de la donación de riñón en vida.


    The goal of this bilingual page is to educate Hispanics / Latinos about living kidney donation.


    http://informate.org/


    National Kidney Foundation:    


    La información más importante sobre la enfermedad renal.


    Provides lots of great information about kidney disease from prevention to transplant, including living donation.


    https://www.kidney.org/espanol 


    American Kidney Fund             


    Nuestra misión es ayudar a las personas a combatir la enfermedad de los riñones y vivir una vida más sana.


    Information plus financial assistance opportunities.


    https://www.kidneyfund.org/en-espanol/ 


    National Foundation for Transplants    


    Cómo eliminar las barreras financieras para los donantes vivos.


    Removing financial barriers to transplantation. 


    https://transplants.org/resources/


    Children’s Organ Transplant Association: 


    Recaudación de fondos y apoyo para niños y adultos jóvenes con poliquistosis renal.


    Fundraising and support for children and young adults with polycystic kidney disease.


    www.cota.org 


    Episode 3 Full Transcript


    Host:          Welcome to Episode 3 of Kidney Transplant Conversations. Our regular podcast, dedicated to the kidney transplant journey, exploring quality care delivery, inclusion, diversity, equity and access. I'm Rolf Taylor, your host and series producer.


    All views and opinions expressed in this podcast reflect those of the participants.


    In our last episode, we met with Jose and Xiomara Flores, and heard about their five-year journey from kidney disease diagnosis to their live donor transplant, which took place at the University of North Carolina – Transplant Latino Kidney Clinic during the pandemic in late 2020. For our guests today, this story is the culmination of a very intentional vision, a strategic decision to integrate a Latino focused kidney clinic with the abdominal transplant division at UNC Chapel Hill. Since being established in 2018, they’ve gone on to demonstrate how workforce diversity and cultural competency go hand-in-hand in the delivery of quality care. We’re delighted that the clinic’s transplant social worker, Daniela Matts and clinic founder, Dr. Pablo Serrano could join us today for part two, to look back on Jose and Xiomara’s story, share with us insights into how the clinic works, and how they’ve been able to reduce transplant dispar

    • 30 min
    2. José and Xiomara Flores share their living donor transplant journey. UNC Chapel Hill Latino Transplant Clinic, Part 1

    2. José and Xiomara Flores share their living donor transplant journey. UNC Chapel Hill Latino Transplant Clinic, Part 1

    In this episode we’ll hear from José a patient, and Xiomara, his wife and donor, as they describe the challenges they experienced in their quest for a kidney transplant, and the joy they have felt since then. We’ll also hear from transplant social worker Daniela Matz, who assisted them. 


    The Census Bureau estimates that there are over 60 million Hispanics and Latinos living in the United States, and the Latinx population is the fastest growing minority. As many as 40 million are speaking Spanish as their first language. Although Hispanics and Latinos are more likely to experience kidney failure compared to other Americans, they are less likely to access kidney transplant as a solution, the resulting disparity means more years on dialysis, reduced quality of life, reduced life expectancy, and increased healthcare expenses. 


    Part of the problem is the waitlist for a transplant, there simply aren’t enough organs to go around. If a living donor can be found, then that is a gamechanger. But here we find another disparity – because the process of live donor kidney transplantation can often elude our minority populations.


    To address some of these issues, in 2018 Dr. Pablo Serrano established the Latino Transplant Clinic at the University of North Carolina (UNC) Division of Abdominal Transplantation, in Chapel Hill, NC, with the aim of providing culturally competent and culturally sensitive care. 


    August is National Minority Donor Awareness Month (NMDAM). 


    Founded in 1996 by the National Minority Organ Tissue Transplant Education Program (MOTTEP) to bring heightened awareness to donation and transplantation in multicultural communities. For more information and shareable resources please visit: 
    https://www.donatelife.net/nmdam/


    All views and opinions expressed in this podcast reflect those of the participants.


    We thank the participants and advisors who helped create this podcast, and our underwriter, Veloxis Pharmaceuticals.


    © Project Advocacy, 2021


    Resources relevant to Episodes 2 of Kidney Transplant Conversations


    Welcome to Infórmate  
    El objetivo de ésta página bilingüe es educar a los hispanos / latinos acerca de la donación de riñón en vida. 
    The goal of this bilingual page is to educate Hispanics / Latinos about living kidney donation.
    http://informate.org/  


    National Kidney Foundation:  
    La información más importante sobre la enfermedad renal. 
    Provides lots of great information about kidney disease from prevention to transplant, including living donation. 
    https://www.kidney.org/espanol  


    American Kidney Fund  
    Nuestra misión es ayudar a las personas a combatir la enfermedad de los riñones y vivir una vida más sana. 
    Information plus financial assistance opportunities. 
    https://www.kidneyfund.org/en-espanol/  


    National Foundation for Transplants 
    Cómo eliminar las barreras financieras para los donantes vivos. 
    Removing financial barriers to transplantation.  
    https://transplants.org/resources/ 


    Children’s Organ Transplant Association: 
    Recaudación de fondos y apoyo para niños y adultos jóvenes con poliquistosis renal.
    Fundraising and support for children and young adults with polycystic kidney disease. 
    www.cota.org  


    Episode 2 Full Transcript


    Download transcript PDF 


    Host: Welcome to Episode 2 of Kidney Transplant Conversations. Our podcast dedicated to the kidney transplant journey and exploring quality care delivery, inclusion, diversity, equity and access. I'm Rolf Taylor, your host and series producer. 


    All views and opinions expressed in this podcast reflect those of the participants.


    August is National Minority Donor Awareness Month. Founded in 1996, by the National Minority Organ Tissue Transplant Education Program to bring heightened awareness to donation and transplantation in multicultural communities, focusing primarily on African American, Hispanic, Asian, Pacific Islander and Native American communities. We’ll

    • 34 min
    1. Impact of pandemic on immunosuppressed, & the meaning of meeting people where they are.

    1. Impact of pandemic on immunosuppressed, & the meaning of meeting people where they are.

    Download this episode AUDIO


    Episode 1: Impact of Pandemic, & Meeting People Where They Are 


    Welcome to Kidney Transplant Conversations. The COVID-19 pandemic has everyone asking a lot of questions, especially transplant recipients, and those waiting for a transplant. In this episode we discuss the impact of the pandemic, talk about masks and vaccines, and how the pandemic is impacting people with immunosuppression. To explore these subjects, we welcome two guests to the podcast. Firstly, living donor recipient Risa Simon, who will share insights from the transplant patient’s point of view, and then Daryle Blackstock, PA-C, who will talk about the importance of meeting people where they are. 


    Links to resources mentioned in this episode:


    TransplantFirst Academy


    ASTS Patient Resources 


    AST Patient Resources 


    NKF Patient Resources 


    AAKP Patient Resources


    Kinsey's Kidney Adventure by Nadine Morsi


    Medical Apartheid by Harriet Washington


     


    Transcript


    Kidney Transplant Conversations, Podcast series


    Episode 1: Impact of Pandemic, & Meeting People Where They Are


    Download transcript PDF


    The COVID-19 pandemic has everyone asking a lot of questions, especially transplant recipients, and those waiting for a transplant. In this episode we discuss the impact of the pandemic, talk about masks and vaccines, and how the pandemic is impacting people with immunosuppression. To explore these subjects, we welcome two guests to the podcast. Firstly, living donor recipient Risa Simon, who will share insights from the transplant patient’s point of view, and then Daryle Blackstock, PA-C, who will talk about the importance of meeting people where they are. 


    Host:                   Hello, welcome and thank you for joining us for the first episode of our Kidney Transplant Conversations podcast. I'm Rolf Taylor, your host, and series producer, and having been involved with health advocacy for many years, I'm honored and excited to be joining you on this journey of discovery. We'll travel across the world of kidney transplantation, through conversations with all kinds of healthcare professionals, and most importantly of all, with all kinds of people who experience kidney conditions. This podcast is a collaboration between several kidney patient organizations, professional organizations, and committed individuals, who together all share a passion for working to make kidney transplantation more accessible, more equitable, and as successful as possible in the long term.


    Throughout this podcast, we're going to be exploring stories and perspectives that reflect the amazing diversity across this country so whoever and wherever you are, if kidney transplantation is important to you, then we hope you'll find conversations that are meaningful and relevant inside this space. Each new episode will feature interviews with patients, caregivers, advocates, donors, healthcare providers, and community leaders. We'll explore all the stages of the kidney transplant journey and invite our guests to share their experiences and insights as well. We'll also look at things like health disparities and identify where and why some groups don't do as well when compared to others and discuss what we can do to close the gap.


    Our discussions will be purposefully focused on inclusion, diversity, equity, and access. Also known by the acronym IDEA, which are all subjects central to the purpose of this podcast. So, we hope you will subscribe and let kidney transplant conversations keep you connected, informed, and inspired with a constant flow of new thoughts and ideas. And so, for today, the COVID-19 pandemic has everyone asking a lot of questions, especially transplant recipients and those waiting for a transplant. So, today we'll discuss the impact of the pandemic, talk about masks and vaccines, and how the pandemic is impacting people with immunosuppression. To explore these subjects, we'll welcome two guests to the p

    • 45 min

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