Let's Talk SADS Live

Canadian SADS Foundation
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The Let’s Talk SADS Live Podcast intends to be a highly accessible and collaborative educational platform for patients and families navigating SADS conditions. Topics cover the spectrum of SADS conditions, fostering a well-informed and proactive patient community. Launched in January 2023, the Let’s Talk SADS Live Podcast features monthly live-streamed sessions led by prominent Canadian pediatric clinician/researcher, Dr. Shubhayan Sanatani, alongside globally recognized experts. To help us continue in changing SADS patients' lives, please consider donating to us at www.sads.ca/donate/.

  1. FEB 10

    Ep 44. Navigating a Father's Grief and Leading After Loss with Walker Frahm

    This #HeartMonth, we are honoured to share a deeply moving conversation with a very special friend of The Canadian SADS Foundation, Walker Frahm, CEO of The US SADS (Sudden Arrhythmia Death Syndromes) Foundation . Walker opens up with raw honesty about the sudden loss of his daughter, Lavinia, and how this tragedy reshaped his life’s path. He speaks to the unique experience of a father’s grief: the instinct to hold everything together, the delayed wave of emotion, and the choice to lean in and lead. This episode is a powerful exploration of finding purpose in pain, the critical need for specific community after loss, and how a father’s love fuels the relentless work to protect other families. Walker’s story is a testament to turning heartbreak into hope and action. To hear his full story of love, loss, and leadership, listen now on all platforms: YouTube - ⁠https://tinyurl.com/CanadianSADSYouTube⁠ Instagram - ⁠https://tinyurl.com/CanadianSADSInstagram⁠ Spotify - ⁠https://tinyurl.com/CanadianSADSSpotify⁠ Apple - ⁠https://tinyurl.com/CanadianSADSApple⁠ Amazon - ⁠https://tinyurl.com/CanadianSADSAmazon ⁠#SADS #HeartMonth #GeneticHeartCondition #SuddenCardiacArrest #SCAPrevention #Grief #Fatherhood #PatientAdvocacy #HeartHealth #MentalHealth #TurningPainIntoPurpose

    29 min

  2. JAN 27

    Ep 43. From Heart Failure to Heart Life: A Survivor's Journey with Marc Bains

    From unexpected heart failure at 23 to founding a national patient community. Today we are speaking with Marc Bains, co-founder of HeartLife Foundation. He shares his powerful journey from diagnosis to transplant and into advocacy. This episode explores how community, research, and patient partnership can transform life after a devastating cardiac diagnosis and why building support is critical for anyone living with heart disease. To hear the full story of resilience and how Heart Life was born, listen now on all platforms: Facebook - https://tinyurl.com/CanadianSADSFacebook YouTube - ⁠https://tinyurl.com/CanadianSADSYouTube ⁠Instagram - ⁠https://tinyurl.com/CanadianSADSInstagram⁠ Spotify - ⁠https://tinyurl.com/CanadianSADSSpotify⁠ Apple - ⁠https://tinyurl.com/CanadianSADSApple⁠ Amazon - ⁠https://tinyurl.com/CanadianSADSAmazon⁠ #SADS #HeartFailure #Cardiomyopathy #HeartTransplant #GeneticHeartCondition #Cardiology #InheritedArrhythmia #PatientAdvocacy #HeartHealth #HeartLife #SurvivorStory #LivingWithHeartDisease #PatientPartner #HeartResearch #CanadianHealth

    29 min

  3. JAN 13

    Ep 42. Transforming Exercise from Fear to Play

    What if we rebranded exercise with a SADS condition as play? Join us as health coach Janet Omstead shares her joyful approach to building a sustainable movement and exercise routine. This episode dives into practical strategies to overcome fear, find motivation, and rediscover the pleasure of moving within your limits. To build a complete and safe foundation, we recommend listening to part 1 of this 2 part exercise series featuring pediatric cardiologist Dr. Robert Hamilton. Listen to this episode now:YouTube - https://tinyurl.com/CanadianSADSYouTubeInstagram - https://tinyurl.com/CanadianSADSInstagramSpotify - https://tinyurl.com/CanadianSADSSpotifyApple - https://tinyurl.com/CanadianSADSAppleAmazon - https://tinyurl.com/CanadianSADSAmazon #SADS #BrugadaSyndrome #CPVT #LongQT #ARVC #HypertrophicCardiomyopathy #Cardiology #InheritedArrhythmia #ExerciseWithHeart #HeartHealth #HealthCoach #BehaviorChange #Play #JoyfulMovement #LivingWithSADS

    31 min

  4. 12/30/2025

    Ep 41. Rethinking Exercise Restrictions for Inherited Arrhythmias

    What if your diagnosis didn't mean you had to give up the sports and activities you love?  Pediatric cardiologist Dr. Robert Hamilton challenges decades of fear with a new, empowering message for the SADS community: "Complete restriction is just not healthy." Drawing from the latest patient data and his extensive clinical practice, Dr. Hamilton explains how exercise recommendations for inherited arrhythmia conditions have evolved. He provides clear, practical guidance on safely staying active, from recreational sports to high-intensity training, and tackles the tough questions about ICD shocks, overheating, and finding your personal limits. This is Part 1 of a two-part series on Exercise & SADS. Dr. Hamilton provides the essential medical framework and permission to move. To turn this knowledge into action, don't miss Part 2 with health coach and behavior change expert Janet Omstead, who shares practical and inspirational strategies to build motivation, overcome mental hurdles, and create a sustainable, joyful exercise routine. Listen and follow on our socials!YouTube - ⁠https://tinyurl.com/CanadianSADSYouTube⁠Instagram - ⁠https://tinyurl.com/CanadianSADSInstagram⁠Spotify - ⁠https://tinyurl.com/CanadianSADSSpotify⁠Apple - ⁠https://tinyurl.com/CanadianSADSApple⁠Amazon - ⁠https://tinyurl.com/CanadianSADSAmazon⁠ #SADS #Cardiology #InheritedArrhythmia #ExerciseWithHeart #HeartHealth #CPVT #LongQT #ARVC #HypertrophicCardiomyopathy #BrugadaSyndrome #AthleteHeart #ICD #LivingWithSADS #CardiacRehab #HeartPodcast #ExerciseMotivation #BehaviorChange

    31 min

  5. 12/09/2025

    Ep 40. Giving the Gift of an End-of-Life Plan

    What if the greatest gift for your family wasn't something you could wrap? Yvonne Heath, author of "Live Your Life to Death", explains why preparing for the end of life is an essential act of love. She shares powerful stories from the bedside, revealing the profound peace that comes with planning and the heartbreaking conflict that arises without it. This conversation is a powerful call to normalize end-of-life planning, to "just show up" for ourselves and our loved ones, and to embrace proactive living over reactive crisis. To learn more about Yvonne’s transformative practices or to purchase her books, visit her website at https://yvonneheath.com/shop. As a generous supporter of our community, Yvonne has offered to donate 25% of each sale to the Canadian SADS Foundation when you leave the message "SADS" in the contact section on her website after your purchase. Listen and follow on our socials! Facebook - https://tinyurl.com/CanadianSADSFacebook YouTube - ⁠https://tinyurl.com/CanadianSADSYouTube ⁠Instagram - ⁠https://tinyurl.com/CanadianSADSInstagram⁠ Spotify - ⁠https://tinyurl.com/CanadianSADSSpotify⁠ Apple - ⁠https://tinyurl.com/CanadianSADSApple⁠ Amazon - ⁠https://tinyurl.com/CanadianSADSAmazon⁠ #EndOfLifePlanning #DifficultConversations #Legacy #GriefAndJoy #ProactiveLiving #FamilyFirst #JustShowUp #SADSCanada #LifeAndDeath

    33 min

  6. 11/25/2025

    Ep 39. An NHL Career Redirected by Sudden Cardiac Arrest

    Having your life's dream taken away in an instant is a reality Brett MacLean faced at 23. A professional hockey player who had just scored in the NHL, Brett's career ended with a sudden cardiac arrest on the ice. In this powerful conversation, he shares his story of survival, from waking up with no memory of his hockey career to grappling with the profound loss of his identity. This conversation is a powerful testament to the importance of CPR/AED training and the human capacity for resilience. Brett’s story is not just about an ending, but about a new beginning. #CardiacArrest #SuddenCardiacArrest #HeartHealth #CPRSavesLives #AED #LifeAfterSports #AthleteMentalHealth #NewBeginnings #NHL

    27 min

  7. 11/11/2025

    Ep 38. A Sister's Legacy Turned Into a Lifetime of Saving

    For Lia Olmsted, the discovery that her children had Brugada Syndrome came after the devastating loss of her 21-month-old daughter, Reese. In this heartfelt conversation, Lia shares the realities of parenting a child with a life-altering condition, the critical importance of CPR awareness, and how she channels her love for Reese into a foundation that supports and brings smiles to children in her community. This episode is a powerful testament to a family's strength and a mother's determination to create light from profound darkness.

    33 min

  8. 10/28/2025

    Ep 37. Heart Disease Doesn't Care How Old You Are

    Meet Hannah Keime from HeartCharged. Diagnosed with a genetic heart condition at just 14, Hannah gets real about the challenges of an invisible illness and explains why she started HeartCharged. She opens up about showing her scars and sharing the raw, unfiltered truth of her patient journey to build a supportive global community for young people. Her story is a powerful blend of vulnerability, resilience, and life-saving advocacy. Find Hannah and Bethany's work ⁠ @heartcharged ⁠ on Instagram. Tune now. #LetsTalkSADSLive #SADSCanada #HeartCharged #Cardiomyopathy #ICD #InvisibleIllness #PatientAdvocacy #HeartHealth

    32 min
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About

The Let’s Talk SADS Live Podcast intends to be a highly accessible and collaborative educational platform for patients and families navigating SADS conditions. Topics cover the spectrum of SADS conditions, fostering a well-informed and proactive patient community. Launched in January 2023, the Let’s Talk SADS Live Podcast features monthly live-streamed sessions led by prominent Canadian pediatric clinician/researcher, Dr. Shubhayan Sanatani, alongside globally recognized experts. To help us continue in changing SADS patients' lives, please consider donating to us at www.sads.ca/donate/.

Information

  • Creator
    Canadian SADS Foundation
  • Years Active
    2025 - 2026
  • Episodes
    44
  • Rating
    Clean
  • Copyright
    © Canadian SADS Foundation
  • Show Website
    Let's Talk SADS Live