Lighthouse by Dragonfly

Lighthouse by Dragonfly
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Lighthouse by Dragonfly is a calm place for caregivers carrying more than most people can see. Through honest stories from my own caregiving journey, I share the difficult moments, practical lessons, questions I learned to ask, and hope we found along the way. We’ll talk about recognizing change, searching for answers, navigating treatment, working with the healthcare system, and remembering the person behind the diagnosis. My husband is a private man, so some names, locations, dates, and personal details will remain private. I share our experiences while protecting his privacy and dignity.

Episodes

  1. 6d ago

    Episode 4 - The Joy Moment

    Caregiving can take up every inch of your day—if you let it. In this episode, Susan shares the small practice that helps her make room for joy alongside the appointments, medications, uncertainty, grief, and everyday responsibilities of caring for someone with Alzheimer’s. A joy moment is not denial. It does not erase the hard parts. It may be a ridiculous dog, a good cup of coffee, a quiet sunset, a funny memory, or simply five minutes when nobody needs anything from you. If caregiving feels especially heavy today, this is your reminder: you are not failing because it is hard. You are carrying a lot. Today’s question: What is one small joy moment you found today? It can be funny, quiet, beautiful, or simply five minutes when nobody needed anything from you.

  2. Sep 6

    Episode 3 - When Treatment Became Part of Our Story

    Treatment decisions can feel like one more enormous thing a caregiver has to carry. In Episode 3, I share our experience with anti-amyloid treatment for Alzheimer’s—the hope, the unexpected reaction, the infusion days, the MRI monitoring, and the moments when treatment simply becomes part of everyday life. This is not medical advice. It’s one caregiver’s honest story about asking questions, weighing choices, and continuing forward one day at a time. If treatment is becoming part of your family’s story too, I hope this helps you feel a little less alone. Lighthouse by Dragonfly — Your steady light in caregiving.

  3. Aug 29

    Episode 2 - The Diagnosis

    You can spend months—or even years—searching for answers. But what happens when someone finally gives you one? In this episode of Lighthouse by Dragonfly, Susan shares what it felt like to hear the word Alzheimer’s after nearly two years of appointments, testing, waiting, and uncertainty. The diagnosis was real, but so was something else: they walked into that appointment as husband and wife, and they walked out the same way. Alzheimer’s had become part of their story, but it had not become their entire story. This episode is about resisting the urge to solve the next five years in a single afternoon, finding out what happens next, writing it down, and allowing that to be enough for today. Because you don't have to become an expert by bedtime. You don't have to live the whole journey on diagnosis day. And there are still ordinary moments—and moments of joy—waiting outside that doctor's office. Lighthouse by Dragonfly — Your steady light in caregiving. 🔦❤️

  4. Aug 22

    Episode 1 - Listen to Your Instincts

    In the first episode of the Lighthouse by Dragonfly Podcast, I share the moment I knew something was wrong with my husband—and the nearly three-year journey to find a doctor who would truly listen. I talk about the early changes, long waits for appointments, frightening test results without clear explanations, and the relief of finally meeting a neurologist who treated my husband with dignity and gave us a plan. Along the way, I learned one of my most important caregiving lessons: write it down. Your instincts are not a diagnosis, but your observations matter. If you have ever wondered whether you were overreacting, struggled to make yourself heard, or left a medical appointment carrying more questions than answers, this episode is for you. This podcast shares lived experience and general information. It does not provide medical advice. Please bring questions about your loved one’s care to the appropriate healthcare professional.

  • 4 Episodes

About

Lighthouse by Dragonfly is a calm place for caregivers carrying more than most people can see. Through honest stories from my own caregiving journey, I share the difficult moments, practical lessons, questions I learned to ask, and hope we found along the way. We’ll talk about recognizing change, searching for answers, navigating treatment, working with the healthcare system, and remembering the person behind the diagnosis. My husband is a private man, so some names, locations, dates, and personal details will remain private. I share our experiences while protecting his privacy and dignity.

Information

  • Creator
    Lighthouse by Dragonfly
  • Years Active
    2026
  • Episodes
    4
  • Rating
    Clean
  • Copyright
    © Lighthouse by Dragonfly
  • Show Website
    Lighthouse by Dragonfly