Lupus: The Expert Series

Lupus Foundation of America
  • 4.9 (31)
  • 医学

The Expert Series is an educational podcast series featuring empowering presentations from leading lupus experts with a focus on helping you live well with lupus. Presented by the Lupus Foundation of America, we touch on the daily issues that affect those with lupus: flares, health, medical care, exercise, managing doctor's appointments, diagnosis, and much more.

  1. 10月2日

    La Serie de Expertos: Lupus y Manejo del Dolor

    En este episodio de La Serie de Expertos, el pódcast de la Fundación de Lupus de América, la Dra. Olga Kromo analiza las complejidades del lupus y su impacto en el manejo del dolor. Aborda los distintos tipos de dolor, las opciones de tratamiento y la carga emocional que conlleva el dolor crónico. Destaca la importancia de comprender el origen del dolor, mantener una comunicación clara con los profesionales de la salud y contar con una atención integral. Asimismo, resalta la relación entre el dolor y la fatiga, el papel de la alimentación y las investigaciones futuras que ofrecen tratamientos prometedores. This episode is also available in English - listen here. Regístrese para recibir correos electrónicos de la Fundación de Lupus de América (LFA) cuando se publiquen nuevos episodios. Conclusiones: El lupus es una enfermedad compleja que causa inflamación y diferentes tipos de dolor.El dolor crónico y la fatiga pueden afectar de manera significativa la vida diaria, el bienestar emocional y la salud mental.El manejo del dolor a menudo requiere medicamentos, cambios en el estilo de vida y técnicas de reducción del estrés.La alimentación desempeña un papel importante en el manejo de los síntomas del lupus.La comunicación clara con los profesionales de la salud y el seguimiento de los síntomas son fundamentales para una atención eficaz.Las redes de apoyo, la educación y la investigación en curso ofrecen esperanza de tratamientos mejorados y futuros avances. Recursos relacionados: Cómo manejar el estrés cuando usted tiene lupus Pregúntele a una educadora de la salud Find Support Near You (en inglés) Centro Nacional de Recursos sobre el Lupus Los síntomas comunes de lupus Estrategias para Controlar el Dolor Prepárese para su próxima cita con el médico Encontrar el Plan de Tratamiento del Lupus Adecuado Para Usted

    16 分钟

  2. 10月2日

    The Expert Series S8E4: Lupus and Pain Management

    In this episode of the Lupus Foundation of America's The Expert Series podcast, Dr. Olga Kromo discusses the complexities of lupus and its impact on pain management. She covers types of pain, treatment options, and the emotional toll of chronic pain. She emphasizes understanding the source of pain, clear communication with providers, and comprehensive care. She also highlights the link between pain and fatigue, the role of diet, and future research with promising treatments. Este episodio también está disponible en español: escúchelo aquí. Sign up to receive emails from the Lupus Foundation of America (LFA) when new episodes are published.  Episode Takeaways: Lupus is a complex disease that causes inflammation and different types of pain.Chronic pain and fatigue can greatly affect daily life, emotional well-being, and mental health.Pain management often requires medications, lifestyle changes, and stress reduction techniques.Diet plays an important role in managing lupus symptoms.Clear communication with healthcare providers and tracking symptoms are key to effective care.Support networks, education, and ongoing research offer hope for improved treatments and future breakthroughs. Related Resources: Managing Stress When You Have LupusAsk a Lupus Health EducatorFind Support Near YouNational Resource Center on LupusLupus SymptomsStrategies for Managing PainGet Ready for Your Next Doctor’s AppointmentFinding the Right Lupus Treatment Plan for You

    12 分钟

  3. 6月6日

    The Expert Series S8E3: Lupus and Men

    In this episode of the Lupus Foundation of America's The Expert Series podcast, we focus on the unique challenges faced by men with lupus, a group that often experiences delayed diagnosis and is impacted by widespread misconceptions. Dr. Lisa Sammaritano shares how lupus symptoms can differ between men and women, and how the disease can affect mental health, identity, and quality of life. We also discuss reproductive health concerns and the evolving landscape of lupus treatment. For men who are newly diagnosed, Dr. Sammaritano offers practical guidance and emphasizes the importance of self-advocacy, education, and seeking support throughout the lupus journey. Sign up to receive emails from the Lupus Foundation of America (LFA) when new episodes are published. Episode Takeaways: Lupus in men is often overlooked, leading to delayed diagnosis and misunderstandings about the disease.Symptoms and disease progression can differ in men, making personalized care especially important.Self-advocacy and education are key to managing lupus and navigating the healthcare system.Mental health and reproductive health concerns are important but often under-addressed aspects of living with lupus.Support from peers, family, and friends plays a vital role in coping and improving quality of life.Related Resources: Ask a Lupus Health Educator (LFA) Find Support Near You (LFA) National Resource Center on Lupus (LFA) American College of Rheumatology (ACR) Systemic lupus erythematosus and male reproductive health: A systematic review and meta-analysis Impact of sex disparities on the clinical manifestations in patients with systemic lupus erythematosus

    30 分钟

  4. 4月14日

    The Expert Series S8E2: Lupus and Menopause

    In this episode of the Lupus Foundation of America's The Expert Series podcast, we explore the intersection of menopause and lupus, highlighting the unique challenges faced by women with lupus during this significant life transition. Dr. Mehret Birru Talabi explains the stages of menopause, its effects on lupus symptoms, and the importance of individualized care. We also cover hormone replacement therapy, lifestyle factors, and the necessity of self-advocacy in managing health during menopause. And although we know it isn’t easy, we also talk about how important it is for women to prioritize their health and seek support from their health care team. Sign up to receive emails from the Lupus Foundation of America (LFA) when new episodes are published. Episode Takeaways: Menopause is a significant transition in women's lives. Because most people with lupus are women, most people with lupus will experience this transition. Estrogen plays an important role in autoimmune diseases like lupus and fluctuating estrogen levels during menopause can cause both increases and decreases in disease activity. Hormone replacement therapy can be an option for women with lupus who are having difficulty managing the symptoms of menopause. There is no one size fits all approach to lupus or menopause and women should discuss all of their options with their health care team. Lifestyle factors such as diet and exercise are vital in managing menopause symptoms and lupus. Even small changes can lead to positive results. Quality of life matters and women with lupus don’t have to face difficult symptoms of menopause without help. Learning and practicing self-advocacy is essential for women navigating menopause and lupus. Related Resources: Grown Women Talk: Your Guide to Getting and Staying Healthy by Sharon MaloneAsk a Lupus Health Educator (LFA)Find Support Near You (LFA)National Resource Center on Lupus (LFA)The Expert Series: Lupus and Antiphospholipid Syndrome (LFA)The Expert Series: Planning for Pregnancy With Lupus (LFA)

    46 分钟

  5. 1月13日

    The Expert Series S8E1: Lupus and Fibromyalgia

    This episode explores the complex relationship between lupus and fibromyalgia, focusing on definitions, symptoms, overlapping conditions, treatment approaches, mental health implications, cultural influences, lifestyle factors, diagnostic tools, and the importance of patient advocacy. Experts Drs. Peter Izmirly and Kelly Corbitt provide insights into the challenges faced by patients with both conditions and discuss the need for better understanding and treatment options. Sign up to receive emails from the Lupus Foundation of America (LFA) when new episodes are published. Related Resources: Strategies for Managing Pain (LFA) Staying Active When You Have Lupus (LFA) Ask a Lupus Health Educator (LFA) FMAware.org (National Fibromyalgia Association resource site mentioned by Dr. Corbitt)

    33 分钟

  6. 2024/11/07

    The Expert Series S7E2: Race-free eGFR Calculations and Implications for People Living With Lupus Nephritis

    Drs. Ashira Blazer and Denise Kimbrough discuss the recent removal of the African American/Black race coefficient from the Kidney Donor Profile Index (KDPI) by the Organ Procurement and Transplantation Network (OPTN). Learn about the implications for lupus patients with kidney disease and the potential impacts on health equity. Episode Takeaways: Lupus-related kidney disease (lupus nephritis) disproportionately affects African American/Black, Hispanic, Indigenous, South Asian and Latino/a populations, who face longer transplant wait times due to systemic inequities and social determinants of health. Biases in medical algorithms, such as race-based estimated glomerular filtration rate (eGFR) calculations, can harm patient outcomes. Recent removal of race from eGFR calculations could potentially improve access to transplants for communities where previous opportunities for transplantation were significantly lower. Enhancing education and awareness related to kidney health is essential for addressing these health disparities and improving outcomes. Sign up to receive emails from the Lupus Foundation of America (LFA) when new episodes are published. Related Resources: New Policy Will Remove Race, Improve Equity in Transplantation (National Kidney Foundation) Kidney transplant for lupus: Your essential questions answered (LFA) Lupus Nephritis Information Center (LFA) Lupus and the Kidneys (LFA) What is lupus nephritis? (LFA)

    29 分钟

  7. 2024/03/04

    The Expert Series S7E1: Lupus Nephritis

    March is Kidney Month! Join us for a conversation with Dr. Brad Rovin, an expert in autoimmune kidney disease, where we talk about lupus nephritis and kidney health for people with lupus.

    43 分钟

  8. 2023/11/20

    The Expert Series S6E6: Lupus and Cancer

    In this episode, we talk with Dr. Sasha Bernatsky, about lupus and cancer, if there’s a link between lupus and cancer, and a new abstract about cancer incidence and risk factors in a large SLE cohort.  Dr. Bernatsky is a rheumatologist, a James McGill professor and a senior scientist in the Centre for Health Outcomes Research and Division of Clinical Epidemiology at the Research Institute of the McGill University Health Centre. Her expertise lies in using ‘big data’ from health services, linked to additional clinical sources of information. Read more about lupus facts and statistics Learn how doctors diagnose lupus FAQs about participating in clinical trials Help expand lupus research through RAY (Research Accelerated by You) Read the mentioned abstract: Updated analyses  of cancer incidence and risk factors in a large international SLE cohort SUBSCRIBE to receive an email update when new episodes of The Expert Series are released.

    15 分钟
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评分及评论

4.9
共 5 分
31 个评分

关于

The Expert Series is an educational podcast series featuring empowering presentations from leading lupus experts with a focus on helping you live well with lupus. Presented by the Lupus Foundation of America, we touch on the daily issues that affect those with lupus: flares, health, medical care, exercise, managing doctor's appointments, diagnosis, and much more.

信息

  • 创作者
    Lupus Foundation of America
  • 活跃年份
    2020年 - 2025年
  • 单集
    46
  • 分级
    儿童适宜
  • 版权
    © Lupus Foundation of America
  • 节目网站
    Lupus: The Expert Series

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