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166 episodes
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Major Pain Jesse Mercury
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- Health & Fitness
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4.9 • 41 Ratings
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The Major Pain podcast is a collection of interviews from people living with chronic illness and disability. Our goal is to spread awareness, empathy and community around experiences often lived through in isolation. Through sharing these stories important themes have become increasingly apparent, including the dangers of medical gaslighting, the importance of self-advocacy and the fact that none of us are in this alone. You can share your thoughts, your story, or inquire about appearing on the show at majorpainpodcast@gmail.com.
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Kevin Has A New Diagnosis, and New Insight Into Applying for Disability
This week Kevin returns to the Major Pain podcast to catch us up on his health journey. The big news is that he was recently diagnosed with Ménière’s disease, adding one more diagnosis to his already long list. He was also finally approved for disability, and he discusses this process […]
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Living with Systemic Juvenile Idiopathic Arthritis, AKA Still’s Disease
While AK’s peers were shopping for prom dresses and applying to college, she spent senior year self-advocating and undergoing hospitalizations. AK had been diagnosed with juvenile arthritis at 12 years old after experiencing jaw and ankle pain. Subsequently, the flares became increasingly systemic with daily spiking fevers. AK shares how […]
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Ali DiGiacomo On Spoonies Being Accused of Using Illness for Likes and Views
A few years ago, Ali DiGiacomo was shocked to discover her face on a Daily Mail article called ‘Addicted to being sad: Teenage girls with invisible illnesses – known as ‘Spoonies’ – post TikToks of themselves crying or in hospital to generate thousands of likes – as experts raise concerns […]
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Living with Hypersomnia: Sunny’s Story
Sunny did not consider her diagnosis as a major pain, but rather a “major inconvenience,” until she realized how affected her daily life was. Since childhood, Sunny battled to stay awake during the day. She experienced sudden waves of drowsiness and her eyelids feeling heavy, which often would not resolve […]
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Avery’s Acromegaly: “It’s All in Your Head”… but Something Is Actually in My Head!
Avery was gearing up for senior year of college when she began to notice painful changes in her body. Her initial symptoms included difficulty sleeping and intense jaw pain. Avery also began to notice growth in her facial features, hands and feet. She thought these changes could be from another […]
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Demystifying Functional Neurological Disorder: Sydney’s Story
Sydney Anne Bennett lives with functional neurological disorder (FND), which is a condition where the brain doesn’t communicate properly with the nervous system. Sydney’s symptoms include chronic pain, hallucinations, loss of taste, trouble sleeping, hand paralysis, seizures, ataxia, muscle spasms, fatigue, and difficulty using her legs. Consequently, after a year […]
Customer Reviews
Please continue
Your show means so much to me. It is at least the one place I feel seen. Please keep going it is a tremendous help. Thank you Sue
Enjoying this so much
Found this podcast during a time in my life where I really need it. Jesse, you are such an incredible, relatable host - you really have a gift for connecting with people and providing a space for folks to tell their stories. A big thanks to you and all the guests for sharing your stories and helping us know we are not alone.
I love your podcast!
Please keep doing this podcast, it is so informative and as somebody with a chronic illness I so appreciate listening to all the stories, it creates awareness for supposedly invisible illness that I don’t feel ever are invisible… at least not mine. ❤️