153 episodes

The Major Pain podcast is a collection of interviews from people living with chronic illness and disability. Our goal is to spread awareness, empathy and community around experiences often lived through in isolation. Through sharing these stories important themes have become increasingly apparent, including the dangers of medical gaslighting, the importance of self-advocacy and the fact that none of us are in this alone. You can share your thoughts, your story, or inquire about appearing on the show at majorpainpodcast@gmail.com.

Major Pain Jesse Mercury

    • Health & Fitness
    • 4.9 • 41 Ratings

The Major Pain podcast is a collection of interviews from people living with chronic illness and disability. Our goal is to spread awareness, empathy and community around experiences often lived through in isolation. Through sharing these stories important themes have become increasingly apparent, including the dangers of medical gaslighting, the importance of self-advocacy and the fact that none of us are in this alone. You can share your thoughts, your story, or inquire about appearing on the show at majorpainpodcast@gmail.com.

    Rasheera Dopson on Being Born Almost 5 Months Premature, Causing VATER and Goldenhar Syndromes

    Rasheera Dopson on Being Born Almost 5 Months Premature, Causing VATER and Goldenhar Syndromes

    Rasheera Dopson, host of the Womanhood & Disability podcast, is an accomplished author, public speaker and advocate spreading her messages of justice, disability empowerment and awareness. She came by this work through her own experience living with two rare syndromes, both caused by her being born about 5 months premature. […]

    • 1 hr 8 min
    Season 4 Premiere! Catching Up With Michelle, Bek and Simon

    Season 4 Premiere! Catching Up With Michelle, Bek and Simon

    We’re kicking off the fourth season of Major Pain by catching up with previous guests! Michelle and Bek both have new diagnoses that are recontextualizing their journeys, while Simon is feeling completely cured. As Major Pain enters its fourth season, now is a great time to support the show on […]

    • 1 hr 40 min
    Kait’s Journey with Miserable Malalignment Syndrome

    Kait’s Journey with Miserable Malalignment Syndrome

    Kait lives with miserable malalignment syndrome, which means that the bones in her legs are rotated abnormally. Since childhood her femurs were pointed inwards while her tibias rotated outwards, causing her knees to face each other. Even though this rotation was plainly visible to the naked eye, it still took […]

    • 1 hr 9 min
    Managing Somatic Symptom Disorder Inside a Multitude of Chronic Illnesses

    Managing Somatic Symptom Disorder Inside a Multitude of Chronic Illnesses

    Colby has 11 chronic illness and mental health diagnoses. These include chronic pain (currently diagnosed as fibromyalgia), PCOS (polycystic ovarian syndrome), asthma, IBS, eczema, PTSD, depression, anxiety, bipolar, ADHD and somatic symptom disorder. That last diagnosis might be the least well-known of Colby’s illnesses. According to psychiatry.org, “somatic symptom disorder […]

    • 1 hr 9 min
    The College of Adaptive Arts Is Providing Continuing Education for Adults With Disabilities

    The College of Adaptive Arts Is Providing Continuing Education for Adults With Disabilities

    DeAnna Pursai and her sister Angel describe themselves as a package deal. A foundational experience growing up in rural Indiana was when DeAnna went off to college, but Angel was left behind due to her disability. After age 22, adults with disabilities age out of national education programs in the […]

    • 48 min
    Transposition of the Great Arteries: My Blood Flows Backwards

    Transposition of the Great Arteries: My Blood Flows Backwards

    Like many babies born with transposition of the great arteries, Amelia was born blue. Her blood was not circulating to her entire body because the two main arteries leading blood away from her heart were switched, sending blood in the wrong direction. She was immediately helicoptered to a larger hospital […]

    • 52 min

Customer Reviews

4.9 out of 5
41 Ratings

41 Ratings

555387654 ,

Please continue

Your show means so much to me. It is at least the one place I feel seen. Please keep going it is a tremendous help. Thank you Sue

Emma Eileen ,

Enjoying this so much

Found this podcast during a time in my life where I really need it. Jesse, you are such an incredible, relatable host - you really have a gift for connecting with people and providing a space for folks to tell their stories. A big thanks to you and all the guests for sharing your stories and helping us know we are not alone.

jjulius2008 ,

I love your podcast!

Please keep doing this podcast, it is so informative and as somebody with a chronic illness I so appreciate listening to all the stories, it creates awareness for supposedly invisible illness that I don’t feel ever are invisible… at least not mine. ❤️

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