Meniere's Muse

Heather Davies
  • 5.0 (6)
  • RELATIONSHIPS
  • UPDATED BIWEEKLY

I’ve spent the last several years trying to figure out how to live my best life with Meniere’s disease and vestibular migraine. I have learned just how important connection is with other vestibular warriors. Through support, stories, conversation and tears, we have shared through social media, we’ve found a community of amazing people that lean on and support each other. I want this podcast to reach other vestibular warriors regardless of their diagnosis or where they are on their journey, to let them know they aren’t alone and living a beautiful life, despite these symptoms, is possible.

  1. Paul - Balance Awareness Week - How YOU Can Make a Difference, E55

    08/27/2025

    Paul - Balance Awareness Week - How YOU Can Make a Difference, E55

    In this episode, Heather sits down with the Development Director at VeDA (Vestibular Disorders Association), who brings over 30 years of nonprofit fundraising experience to the conversation.  From regional theater to healthcare, to programs offering chess to low-income students, he has helped organizers raise millions of dollars to fulfill their missions.  For Paul, fundraising isn’t just about the money, it’s about the people, relationships and the shared mission that binds communities together. In this conversation, we discuss: ~  Why fundraising is really about connection, not just donations ~ How you can support in ways that feel authentic, through words, art, social media or simply starting conversations ~ Why balance is a right, not a luxury ~ How to invite your friends and family into supporting the vestibular community This episode is an invitation to participate.  Whether through a post, poem, donation or a partnership, there’s a way for YOU to join in! More on vestibular disorders www.vestibular.org Are you a vestibular patient- PLEASE take a few moments and sign this registry The Dizziness, Vertigo and Imbalance Patient Registry - Vestibular Disorders Association Connect with Heather:  www.instagram.com/menieresmuse Or email her at menieresmuse@gmail.com Thank you for being here!  Be sure to use the hashtags #balanceawarenessweek #vestibulardisordersassociation #menieresmuse #makevestibularvisible

    40 min
  2. In Sickness and Strength - Vestibular Minutes S3E54

    05/15/2025

    In Sickness and Strength - Vestibular Minutes S3E54

    What does support really look like when you have a chronic illness?  In this deeply personal episode, I share an essay I wrote during the early days of my dizzy journey, a time marked by misdiagnosis, fear and overwhelming change. This episode is more than a reflection.  It's a conversation about how support shows up, through partners, children, faith communities and sometimes even in the quiet spaces we least expect.  In this episode, I share what it's like to be held with compassion and how we can find or build meaningful support when it doesn't come easily. Whether you have a strong support system or you’re still searching for one, this episode is for you.  You are seen, you are believed, and you are not alone. VeDA Support Groups Online Support Groups - Vestibular Disorders Association Lara’s private FB Support Group (2) Mummy Seeing Double Support Group | Facebook “8 Minute, One Connection”  S3E52 The podcast episode Heather shares about when you need support from a trusted friend https://open.spotify.com/episode/0XWstWOI5u1LU6F1el00cj?si=drl2SefMTDe6f9k58tdWuA If you would like more information on vestibular disorders www.vestibular.org If you would like to reach out to me, Heather, please email me at Menieresmuse@gmail.com or find me on Instagram Thank you for being here! Don't forget to link, share and subscribe! #support #supportgroups #menieres #SCCD #vestibularmigraine #medicallyretired #familysupport #vestibular #onlinesupportgroups

    17 min
  3. Hope vs. Hype - Vestibular Minutes S3E53

    04/18/2025

    Hope vs. Hype - Vestibular Minutes S3E53

    In this episode of Vestibular Minutes, we’re talking about something that’s both sensitive and important—how to recognize red flags when someone promises a "cure" for Meniere’s disease. While it's natural to hope for relief, not all advice out there is trustworthy, and some people may use scientific language or emotional pressure to take advantage of vulnerable moments. Join me as we unpack how to protect ourselves and each other and why trusting your intuition is one of the most powerful tools you have. Real hope doesn’t come from false promises, it comes from community and clarity. Find me on Instagram Email me at menieresmuse@gmail.com For more information on vestibular disorders www.vestibular.org VeDA also has a helpline for dizziness, imbalance and/or vertigo 1-800-837-8428

    8 min
  4. "8 Minutes, One Connection" Vestibular Minutes S3E52

    01/07/2025

    "8 Minutes, One Connection" Vestibular Minutes S3E52

    In this 1st episode of Vestibular Minutes of the Meniere's Muse Podcast, we explore the power of asking for support using the simple question: "Do you have 8 minutes?" Inspired by a thought-provoking reel by Simon Sinek, Heather discusses how just eight minutes of someone's time can bring comfort, build trust, and deepen emotional connections, especially for those navigating the challenges of vestibular disorders. Learn how to signal your need for help and create meaningful moments of connection in just a few minutes. To connect with me in Instagram Email me Watch reel with Simon Sinek on this theory For more information on vestibular disorders visit the VeDA website VeDA has a help line for dizziness, imbalance and/or vertigo 1-800-837-8428 Suicide and crisis line in the USA, 988 If you require further medical attention, please reach out to your local emergency services or call 911-if in the USA.

    8 min

  5. 01/01/2025

    Lessons from My Sabbatical

    I learned a lot during my unexpected sabbatical, and now I'm excited to be back! In this episode, I’m sharing the key takeaways from my time away. From unexpected lessons to moments of personal growth, I’m diving into what I discovered about myself, my work, and life along the way. Whether you’re considering a sabbatical or just curious about the impact of a break, join me as I reflect on the valuable insights I’m bringing back with me. I would love to know what you want more of this year! Reach out to me: Instagram For more information on vestibular disorders I've missed you!

    6 min
  6. Heather - "Navigating Life with Comorbidities" - Vestibular Migraine, ME/CFS and BVD, E49

    04/16/2024

    Heather - "Navigating Life with Comorbidities" - Vestibular Migraine, ME/CFS and BVD, E49

    Have you ever heard the word comorbidity?  Ever wondered what it is?  The simple meaning is when someone has two or more medical conditions simultaneously.  We hear this a lot in the vestibular community.  These disorders/diseases can develop at the same or different times, they can interact with one another making diagnosis and treatment difficult.  These conditions can be both physical and/or mental and can increase the risk of complications or even the possibility of developing something new. AS YOU CAN IMAGINE, learning to live and navigate the world of medicine and life with comorbid conditions has its own set of challenges. In this episode, Heather shares about these challenges and so much more: ~ vertigo, migraine associated vertigo/vestibular migraine, ME/CFS, binocular vision disorder, brain fog, migraine threshold ~Advocacy, ableism, financial strain, hardship, insurance appeals Connect with todays guest, Heather: Instagram If you would like to reach out to the podcast host, Heather: Instagram EMAIL Leave a voice message If you would like more information on vestibular disorders please visit the VeDA website at www.vestibular.org Love and be gentle with yourself, lean on this beautiful community and remember that healing is possible.  I'll see you soon warriors! bensound.com/royalty-free-music License code: Q25BEF068CTQS5M6 #vertigo #dizziness #migraineassociatedvertigo #vestibularmigraine #myalgicencephalomyelitis #chronicfatiguesyndrome #brainfog #Advocacy #Spinning

    1h 30m
  7. Glenn - "The Reality of Rewiring Tinnitus" - Meniere's, E48

    03/26/2024

    Glenn - "The Reality of Rewiring Tinnitus" - Meniere's, E48

    "TINNITUS", that's what we are discussing today with Glenn Schweitzer. Glenn is a passionate entrepreneur, health coach, blogger, and the author of two best-selling books, “Mind Over Meniere’s: How I Conquered Meniere’s disease and Learned to Thrive” and “Rewiring Tinnitus: How I Finally Found Relief from the Ringing in My Ears". In this episode Glenn shares some of his strategies for tinnitus habituation and learning to live his best life with Meniere's. Here are some worksheets Glenn discusses in this episode, download your copy today!  ⁠Facing the Fear of Making Plans with Meniere’s Disease⁠ ⁠Meniere’s Disease Activity Planner Worksheet⁠ To connect with Glenn: Website: ⁠Rewiring Tinnitus⁠ Website: ⁠Mind Over Menieres⁠   Book Links: ⁠Rewiring Tinnitus: How I Finally Found Relief from the Ringing in My Ears⁠ ⁠Mind Over Meniere’s: How I Conquered Meniere’s Disease and Learned to Thrive⁠   Social Links: ⁠https://www.youtube.com/mindovermenieres⁠ ⁠https://www.youtube.com/rewiringtinnitus⁠ ⁠https://www.facebook.com/rewiringtinnitus⁠ ⁠https://www.facebook.com/mindovermenieres/⁠   Feel free to email Glenn: ⁠glenn@mindovermenieres.com⁠ and ⁠glenn@rewiringtinnitus.com⁠ Coaching Links: ⁠Tinnitus Coaching: Work with Glenn 1-on-1⁠ ⁠Meniere’ Disease Coaching: Work with Glenn 1-on-1⁠ If you would like to leave a VOICE MESSAGE for me, Heather please ⁠click here⁠. If you would like to grab the boor ⁠Dear Meniere's; Letters and Art: A global Meniere's Project⁠ (book, all proceeds go to Menere's research). Find me on⁠ Instagram⁠ For more information on vestibular disorders, please visit the ⁠VeDA website⁠ and MAKE VESTIBULAR VISIBLE! Music: bensound.com/royalty-free-music License code: Q25BEF068CTQS5M6 #menieres #tinnitus #vestibular #habituation #fear #vedaambassador #meditation #coaching #mindset #healing #movingpastfear

    1h 16m
  8. Cally - Healing though Natures Embrace - Meniere's Disease and Vestibular Migraine, E47

    02/20/2024

    Cally - Healing though Natures Embrace - Meniere's Disease and Vestibular Migraine, E47

    Scrolling Instagram, years ago I came across this stunning human, mermaiding. Watching her was hypnotic and our daughter became obsessed. After sometime I learned she had Meniere's. Today, Cally is here to share her story. She is a gentle soul and nature enthusiast, through her ups and downs, highs and lows she has a newfound appreciation for life. She is a new VeDA Ambassador and is looking forward to connecting with other warriors and sharing each others WINS! In this episode, Cally shares about these and other topics: ~ fluctuating hearing loss, vertigo, tinnitus, anxiety ~ sensory overload, visual sensitivity, drop attack, migraine ~ grief, embracing symptoms, living life anyway. Connect with Cally: Instagram Connect with Heather: Instagram YouTube To pick up your copy of Dear Meniere's Letters and Art: A Global Meniere's Project (Book, all proceeds go for Meniere's research) Email Heather Leave me a voicemail If you would like to learn more about vestibular disorders or to donate visit the Vestibular Disorders Association website. Register for LIFE REBALANCED LIVE for March2024. HELP MAKE VESTIBULAR VISIBLE! Share, tag, follow and review! Remember to love and be gentle with yourself, lean on this beautiful community and lastly believe healing is possible! See you soon warriors! Music: Bensound.com/royalty-free-music License code: Q25BEF068CTQS5M6 #menieres #menieresdisease #vestibular #vestibularmigraine #vedaambassador #meditation #cleaneating #mermaiding #anxiety #tinnitus #habituation #hearingloss #vertigo #sensoryoverload #visualsensitivity #healyourheadachebook #migrainevariant

    1h 3m
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Ratings & Reviews

5
out of 5
6 Ratings

About

I’ve spent the last several years trying to figure out how to live my best life with Meniere’s disease and vestibular migraine. I have learned just how important connection is with other vestibular warriors. Through support, stories, conversation and tears, we have shared through social media, we’ve found a community of amazing people that lean on and support each other. I want this podcast to reach other vestibular warriors regardless of their diagnosis or where they are on their journey, to let them know they aren’t alone and living a beautiful life, despite these symptoms, is possible.

Information

  • Creator
    Heather Davies
  • Years Active
    2022 - 2025
  • Episodes
    55
  • Rating
    Explicit
  • Copyright
    © Heather Davies
  • Show Website
    Meniere's Muse