Moved

Gary Watts

The podcast of 289 people inspiring change. Conversations with people driven to make an impact whether related to the UN Global Goals, other frameworks for impact, or simply their own vision to improve society and the planet. We speak with the people doing the great work, leaders and changemakers, and learn what shaped them, along with what advice they have for listeners. The project is to speak with 289 people - will you be one of them?

  1. #17 Moved by Listening to People Living with Sickle Cell Disease | Noémi Roy

    Jun 3

    #17 Moved by Listening to People Living with Sickle Cell Disease | Noémi Roy

    Dr Noemi Roy is a consultant haematologist at Oxford University Hospitals NHS Foundation Trust and an Honorary Senior Clinical Lecturer in Haematology at the University of Oxford – working with some of the rarest blood disorders there are. But what struck me most wasn't the information she shared on the disorders themselves, but how she thinks about the people in front of her. She listens until patients feel safe enough to push back on her own ideas. She prints out pictures so people can see what's happening in their own body. She built a charity from scratch because her patients simply had no community to belong to (https://togetherwecan.uk/) "Seeing your patient as a partner – even with the time you have, there's a lot we can all do in the way we listen, in the way we speak, that can make a big difference." ✦ KEY TAKEAWAYS ✦ Sickle cell is massively underfunded relative to comparable conditions – research funding runs at roughly one-seventh that of cystic fibrosis, despite affecting tens of thousands in the UK and millions globally. ✦ Racial bias in healthcare is a documented, deadly problem – the APPG report No One's Listening catalogued avoidable deaths where patients in crisis had their pain dismissed or were wrongly suspected of drug-seeking. ✦ Listening is a clinical tool, not just a courtesy – around 30% of prescribed medications are never taken, often because the patient didn't truly feel heard. Real trust-building directly affects outcomes. ✦ Peer support is medicine – Dr Roy's charity CAN grew from 20 to 120 families annually. One mother, seeing young adults with sickle cell living full lives, said it changed her entire outlook on her two-year-old daughter's future. ✦ Gene therapy exists – but at around £1 million per patient, equity of access is a serious question. Dr Roy asks whether that money wouldn't do more invested across the whole system for more patients. ✦ Prescription charges remain a concrete injustice – unlike patients with cystic fibrosis or type 1 diabetes, adult sickle cell patients in England still pay. Repeated parliamentary campaigns have failed to change it. ✦ Cultural humility is essential – assuming Western models of individual decision-making apply universally is itself a failure to listen. Some patients make health decisions as a family, and that deserves respect. ✦ Median survival age is 54 – many patients grew up being told they wouldn't live past 20 or 30. Progress is real, but nowhere near enough. ✦ Early detection saves lives simply – preventive antibiotics and regular monitoring, not cutting-edge drugs, are the foundation of good sickle cell care in the UK. ✦ Dr Roy ended up in this field almost by accident – a maternity cover gap – but gravitated naturally toward a disenfranchised population, echoing an instinct she's carried since childhood. https://www.rdm.ox.ac.uk/people/noemi-roy https://www.medsci.ox.ac.uk/for-staff/staff/noemi-roy https://www.linkedin.com/in/noemi-roy-93891021/?originalSubdomain=uk https://www.imm.ox.ac.uk/news/focus-on-racism-making-a-difference-for-sickle-cell-disease https://togetherwecan.uk/

    59 min
  2. #12 Moved by Divya | Dr Navjot Sawhney

    Mar 3

    #12 Moved by Divya | Dr Navjot Sawhney

    It’s easy to assume most people have a washing machine. But half of the world’s population don’t, which means hand washing. That might sound innocuous – until you realise it can equate to 20 hours a week of manual labour. Which falls mainly on women and girls. There’s the physical toll – hands, wrists, backs. And then there’s the opportunity cost. Because while they’re spending those 20 hours washing clothes, they’re not reading, not studying, not doing paid work, not resting. Not doing the things many of us do while our washing machine quietly whirs in the background. That’s why the story of Dr Navjot Sawhney and The Washing Machine Project is so powerful. In 2017, while volunteering in India after leaving a role at Dyson, Nav met a woman called Divya. She was hand washing clothes for up to 20 hours a week. “I’ll get you an electric washing machine,” he said. But there was no point. They had no running water. No reliable electricity. The manual work had to continue. But Nav couldn’t ignore what he’d seen. As he left the village, he made her a promise: “I will come back one day and bring you a washing machine you can use.” He returned in 2019 to show her how her story had already inspired something bigger. And in 2024 – seven years after that original promise – he came back again. This time with the machine itself. A machine that reduced Divya’s laundry time from 20 hours to around 5 hours a week. Fifteen hours regained. What would you do with 15 extra hours every single week? That moment brought tears to my eyes. But it didn’t end there. That promise became a mission – refining the design, manufacturing challenges, distribution – with the ambition of reaching millions. Dr Navjot Sawhney (“Nav”) is Guest #12 of 289 people making an impact on society and the planet. "A woman would spend up to 20 hours a week for her family hand washing clothes." Listen on Spotify, Apple, Amazon or via the Captivate link in the comments. Dr Navjot Sawhney is a London‑born, Indian‑origin engineer and social entrepreneur who received the UK Prime Minister’s Points of Light Award in February 2023 for his humanitarian innovation through The Washing Machine Project, which designs and distributes energy‑efficient, hand‑cranked washing machines to communities without reliable electricity. At the time he was awarded, the Prime Minister invited Dr Nav for lunch at 10 Downing Street, and of course he brought his mum with him. She had recently retired after a 40-year career in HMRC for the government after coming to the UK with £5 in her pocket. What a wonderful point in the story that's unfolding. Further Information The Washing Machine Project – https://www.thewashingmachineproject.org/divya-washing-machine Engineers Without Borders UK – https://www.ewb-uk.org Points of Light Award – https://www.pointsoflight.gov.uk

    51 min

About

The podcast of 289 people inspiring change. Conversations with people driven to make an impact whether related to the UN Global Goals, other frameworks for impact, or simply their own vision to improve society and the planet. We speak with the people doing the great work, leaders and changemakers, and learn what shaped them, along with what advice they have for listeners. The project is to speak with 289 people - will you be one of them?