58 episodes

In the MS-Perspektive Podcast, I present my view of multiple sclerosis and show you how you can make the best of the diagnosis. Because a beautiful and fulfilling life is also possible with multiple sclerosis.

Here you will find information and strategies on how you can actively influence your course. In addition, I publish solo articles with my experiences, interview experts and on various topics related to living with MS as well as other affected people. In addition, there are a few episodes that serve the relaxation, positive attitude and stimulation.

MS-Perspektive - The Multiple Sclerosis Podcast Nele Handwerker

    • Health & Fitness

In the MS-Perspektive Podcast, I present my view of multiple sclerosis and show you how you can make the best of the diagnosis. Because a beautiful and fulfilling life is also possible with multiple sclerosis.

Here you will find information and strategies on how you can actively influence your course. In addition, I publish solo articles with my experiences, interview experts and on various topics related to living with MS as well as other affected people. In addition, there are a few episodes that serve the relaxation, positive attitude and stimulation.

    Depression and MS. How to find your way back to emotional balance

    Depression and MS. How to find your way back to emotional balance

    Depression can bring your everyday life to a complete standstill. Find out when you need help and what services are available.
    You can read the full article on my blog: https://ms-perspektive.com/57-depression


    Depression and mood disorders can bring your entire everyday life to a standstill. That’s why I’m dedicating this article to negative changes in the psyche. You will find out what triggers there are, when they occur, how they can manifest themselves, what support options are available and what you can do yourself. Every second person with MS experiences at least one depressive phase. It’s good if you know in advance what you can do in such a case. Because there are plenty of options. And depression is very treatable.





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    When do mood disorders and depression occur?
    How does depression manifest itself?
    How can you measure depressive moods?
    What triggers lead to depression?
    What can you do yourself if you suffer from depressive mood disorders?
    Where can you get help?
    How can psychotherapy help you?
    What medication is available to treat depression?
    What is the best prevention against depression?
    Food for thought
    Question to you









    Where can you get help?

    Good first points of contact are your family doctor, your neurologist, your local MS patient organization and depression support associations.
    On the website of Mental Health America you can do the worldwide recognized 10 question depression test. The New Zealand depression website also offers another test on anxiety disorders to find out what your problem is. These are just two examples. Feel free to use another local service to find out if you need help or if this is not/not yet the case. If in doubt, ask for help rather than putting off the problem for too long.
    If the self-test confirms that you have depression, contact your neurologist, GP, psychiatrist or psychosomatic specialist as soon as possible.
    ---
    See you soon and try to make the best out of your life,
    Nele
    For more information and positive thoughts, subscribe to my newsletter for free.
    Click here for an overview of all podcast episodes published so far.

    • 17 min
    Insights into the activities of the European Charcot Foundation with Prof. Giancarlo Comi

    Insights into the activities of the European Charcot Foundation with Prof. Giancarlo Comi

    Prof. Giancarlo Comi presents the extensive work of the European Charcot Foundation to help improve the lives of people with MS worldwide.
    You can find the complete transcript of the interview on my blog: https://ms-perspektive.com/56-prof-comi


     
    This time I welcome Prof. Giancarlo Comi, President of the European Charcot Foundation (ECF), for an interview. We talk about the important role of the Foundation and how it has grown into an international, influential organization to improve the lives of people with MS in a variety of areas.
    The Charcot Foundation chairs the English MS Master's program, which trains MS specialists on a part-time basis with over 100 international lecturers over 2 years.
    The multi-stakeholder initiative is about coordinating different projects, pooling resources and avoiding redundancies. The Charcot Foundation also offers various further training opportunities, invites people to the annual meeting in Baveno on Lake Maggiore and is closely networked with the ECTRIMS organization and the local CTRIMS organizations around the world.
    We talk about this and other exciting topics in the interview.



    Table of Contents
    Introduction – Who is Prof. Giancarlo Comi?
    European Charcot Foundation
    Charcot Multiple Sclerosis Master
    Further activities of the European Charcot Foundation
    Quickfire Q&A Session
    Farewell



    Introduction – Who is Prof. Giancarlo Comi?

    I’m Professor Giancarlo Comi, means Professor of Neurology. I am at present Honorary Professor of the Vita Salute University, President of the European Charcot Foundation and Chairman of the Scientific Committee of Human Brains Prada Foundation. At the same time, I’m still having a clinical responsibility, I’m the director of the MS Center, in Milan, at Casa di Cura Igea. So this is the way I utilize my time.




    Finally, what message of hope or encouragement would you like to share with the listeners?

    It is a bit linked to what I said before. I think that one of the most important initiatives in multiple sclerosis, in the last 10 years, has been the promotion of the Progressive MS Alliance, jointly promoted by patients’ association with the involvement of many important academic centers. Because it is only if we join our efforts that we may be in a condition to succeed, in order to solve the problem of progressive MS treatment. So my message to people with MS is first, for those of you, who have received the diagnosis just now or very recently, be very confident with the possibility to live your entire life without major problems from the disease. Because when we are able to start our treatment very early, today we have so efficient disease-modifying treatment that it is not every way, not every time I have to say, but in the vast majority of cases, we are able to keep the control of the disease.
    And the second message is for those who are forcibly already have the disease since some time. Again, here also for you, because of these new treatments, the expectations are extremely good to have a very good future. And for those, who unfortunately already have some level of disability, I also hear and see a lot of the important evolutions. Here, please don’t forget that the rehabilitation, not just only physical rehabilitation, but a very, let’s say, modern and complex rehabilitation, is of great importance to facilitate your life. So, don’t lose the opportunity to utilize such an approach. And also, I’m very convinced that in a very reasonable time, also for you, there will be some pharmacological support to try to block the evolutionary deficits.











    ---
    See you soon and try to make the best out of your life,
    Nele
    For more information and positive thoughts, subscribe to my newsletter for free.
    Click here for an overview of all podcast episodes published so far.
     

    • 1 hr 1 min
    Therapeutic decisions regarding pregnancy and lactation. Interview with Prof. Celia Oreja-Guevara

    Therapeutic decisions regarding pregnancy and lactation. Interview with Prof. Celia Oreja-Guevara

    For women with MS desiring motherhood, controlled MS and informed choices in pregnancy and lactation ensure a fulfilling journey, with modern therapies supporting both mother and child's health.
    You can find the questions and asnwers to read on my blog: https://ms-perspektive.com/55-celia-oreja-guevara


    Prof. Celia Oreja-Guevara advises women with multiple sclerosis and the desire to have children once a week at the University Hospital San Carlos in Madrid. It is best if the MS has been under control for two years. Then the chances of having a relaxed pregnancy are very good. 
    As women with MS are on average somewhat older at birth, artificial insemination plays a role. The recommendation is to choose the slightly more expensive in-vitro option, as it has a higher chance of success and couples can save time and disappointment.
    In general, it has been shown that motherhood hardly affects the long-term course of the disease and that nothing stands in the way of this important part of life’s happiness for many people. Modern, effective therapies control even highly active courses very well.
    Those who wish to breastfeed can do so. Nevertheless, health should always come first and if it becomes difficult or very time-consuming, whether for therapeutic or other reasons, you can fall back on substitute milk without a guilty conscience. It is better to prevent relapses and possible long-term effects than to breastfeed at all costs. Dive deeper into the various topics around pregnancy, lactation and immunotherapy for women with MS.



    Table of Contents
    Introduction – Who is Prof. Celia Oreja-Guevara?
    General information about the desire to have children with MS
    Specific information on childbearing and pregnancy with MS
    Breastfeeding with multiple sclerosis
    Farewell



    Introduction – Who is Prof. Celia Oreja-Guevara?​

    I am Celia Oreja-Guevara, Vice Chair of Neurology and Head of Multiple Sclerosis Center at the University Hospital San Carlos, Madrid, in Spain.
    I am Professor of Neurology at the University Complutense, Madrid.
    After gaining my medical degree from the University of Madrid, I completed my PhD thesis in Neuroimmunology at the Max Planck Institute of Neurobiology in Munich, Germany.
    I then completed a residency in the Department of Neurology at the University of Bochum, Germany, followed by a one-year fellowship in neuroimaging at the University Hospital San Raffaele in Milan, Italy. Since then, I have held several posts, including Senior Neurologist at the University of Dusseldorf, Germany, Head of Neurology at Hospital de Fuenlabrada, and Chair of the Multiple Sclerosis Center at University Hospital La Paz, both in Madrid, Spain. I am the Co-Chair of the Scientific Panel on Multiple Sclerosis for the European Academy of Neurology.
    My main areas of research interest are clinical and neuroimaging correlations in MS, family planning, the use of optical coherence tomography in symptomatic therapy, neuromyelitis optica (NMO), and the evaluation of new drugs for the treatment of MS and NMO.
    My hobbies are technology, buy gadgets, repair computer, visit technological exhibitions…
    On the other hand, I like travel everywhere and to watch comedy and love films.




    Is there anything else you would like to share with the listeners?

    For patients with Multiple Sclerosis, becoming pregnant is absolutely possible with the right preparations. Therefore, engaging in thorough family planning is crucial to manage both the disease and the pregnancy effectively, safeguarding the health of both the mother and the baby.


    How and where can interested people follow your research activities?

    Twitter LinkedIn PubMed


    ---
    Many thanks for the positive insight views into the topic of pregnancy and lactation with MS.
    See you soon and try to make the best out of your life,
    Nele
    For more information and positive thoughts, subscribe to my

    • 51 min
    #054: Living Fully with MS. Managing Bladder and Bowel Disorders

    #054: Living Fully with MS. Managing Bladder and Bowel Disorders

    Learn more about strategies, tools and medications to manage bladder and bowel symptoms associated with MS to regain your quality of life.
    You can find the full article to read on my blog: https://ms-perspektive.com/54-bladder-bowel


    This time it’s about bladder and bowel disorders caused by multiple sclerosis. Around two thirds of all people with MS have at least one episode of impaired bladder and bowel function. This is triggered by inflammation that impedes the transmission of stimuli from the brain via the spinal cord to the bladder and bowel.
    Unfortunately, it is a classic taboo subject, although it does not only affect MS patients. Women after childbirth, but also many men, have such problems. It’s just that almost nobody talks about it.
    Thanks to a wide range of support services, you don’t have to limit yourself.





    "},"minimize_box":"yes","minimized_on":"tablet","hierarchical_view":"yes","min_height":{"unit":"px","size":"","sizes":[]},"min_height_tablet":{"unit":"px","size":"","sizes":[]},"min_height_mobile":{"unit":"px","size":"","sizes":[]}}" data-widget_type="table-of-contents.default"> Table of Contents
    When do bladder and bowel disorders occur in multiple sclerosis?
    What types of bladder and bowel disorders are associated with MS?
    What can you do yourself if you have bladder and bowel dysfunction?
    What aids and medication are available for bladder and bowel disorders?
    What can you do in acute phases?
    And if bladder and bowel disorders remain permanent?
    What is the best prevention against bladder and bowel disorders?
    Food for thought
    Question to you
    Food for thought

    Talk to your neurologist about your bladder or bowel disorder, regardless of whether it occurs acutely or whether you have had it for a long time and have been afraid to talk about it.
    Help is available in many different ways. But you must address the problem and ask for support. Your doctor can advise you and you can work out a strategy together on how to deal with the problem. As much as necessary and as little as possible is certainly a good way. After all, if you can initially counteract the problem with your own measures, you will have further options if the symptom worsens.
    But please don’t wait too long, as this could exacerbate the bladder and/or bowel dysfunction. In addition, resulting infections can worsen other MS symptoms or even trigger inflammatory activity. And if it’s acute, bold intervention may also be the best choice.


    Question to you

    Do you suffer from bladder or bowel problems?


    ---


    See you soon and try to make the best out of your life,
    Nele
    For more information and positive thoughts, subscribe to my newsletter for free.
    Click here for an overview of all podcast episodes published so far.

    • 17 min
    #053: EBV Insights. Shedding Light on Its Impact on MS with Prof. Dr. Christian Münz

    #053: EBV Insights. Shedding Light on Its Impact on MS with Prof. Dr. Christian Münz

    Discover Prof. Christian Münz's research on the connection between EBV and MS, including theories, mechanisms, and potential treatments.
    You can find the transcript of the interview on my blog: https://ms-perspektive.com/52-christian-muenz


    EBV, the Epstein-Barr virus, and its influence and impact on multiple sclerosis has long been a subject of interest to Dr. Christian Münz. As Professor of Viral Immunobiology at the Institute of Experimental Immunology at the University of Zurich, he has contributed to the latest studies and research findings that show a strong link between EBV infection and the subsequent development of MS. We talk about how certain the theory is, what mechanisms of action are suspected and what future treatment strategies could result from it. After all, EBV is extremely widespread and only a small proportion of the population suffers from MS.


    "},"minimize_box":"yes","minimized_on":"tablet","hierarchical_view":"yes","min_height":{"unit":"px","size":"","sizes":[]},"min_height_tablet":{"unit":"px","size":"","sizes":[]},"min_height_mobile":{"unit":"px","size":"","sizes":[]}}" data-widget_type="table-of-contents.default"> Table of Contents
    Introduction – Who is Prof. Dr. Christian Münz?
    EBV and its significance
    Relationship between EBV and MS
    Treatment strategies and progress
    Research and challenges
    Quickfire Q&A Session
    Farewell



    Introduction – Who is Prof. Dr. Christian Münz?

    My name is Christian Münz, I’m co-director of the Institute of Experimental Immunology at the University of Zürich. I studied originally biochemistry in Tübingen and then did a long period of research in New York at The Rockefeller University before, in 2008, I returned to Europe to my current position in Zürich. And I’m married, I have two children and a cat. And my hobbies are sailing and anything outdoors that Switzerland offers.



    Finally, what message of hope or encouragement would you like to share with the listeners?

    As one has seen in the past years or decade, there are more and more treatments that were developed against multiple sclerosis. This has shown that indeed it is a disease that disease modifying treatments can be developed. And the better we understand that the more we identify the factors that are involved in the disease, that will allow to develop new therapies. So, I think the message of hope is that indeed we might be able to be a little bit more specific in our treatments and more refined in our treatments so that quality of life stays high, but suppression of disease is still quite efficient.


    How and where can interested people follow your research activities?

    So mostly on the website of our institute. Unfortunately, I’m not that much into LinkedIn and Instagram, so therefore I have to point towards mostly the website of our institute where we publish our new findings and have links more or less to our new research studies.
    Christian Münz on PubMed
    ---


    See you soon and try to make the best out of your life,
    Nele
    For more information and positive thoughts, subscribe to my newsletter for free.
    Click here for an overview of all podcast episodes published so far.

    • 32 min
    Sequencing and Escalation in MS. Navigating Treatment & Progression with Prof. Tomas Kalincik

    Sequencing and Escalation in MS. Navigating Treatment & Progression with Prof. Tomas Kalincik

    Prof. Kalincik gives insights into the statistical results of treatment regimens and why most PwMS benefit from highly effective therapies.
    You can find the transcript of the interview to read through on my blog:  https://ms-perspektive.com/52-tomas-kalincik


    Tomas Kalincik is Professor of Neurology and Applied Statistics at the University of Melbourne and the Royal Melbourne Hospital in Australia and is concerned with treatment sequences in order to choose the strategy that offers the best long-term prognosis for MS patients. In the interview, he explains how complex and difficult this is and why it nevertheless usually makes sense to opt for a highly effective treatment. He also provides many positive arguments for looking to the future, as the understanding of multiple sclerosis is improving rapidly, enabling ever better therapeutic success.


    "},"minimize_box":"yes","minimized_on":"tablet","hierarchical_view":"yes","min_height":{"unit":"px","size":"","sizes":[]},"min_height_tablet":{"unit":"px","size":"","sizes":[]},"min_height_mobile":{"unit":"px","size":"","sizes":[]}}" data-widget_type="table-of-contents.default"> Table of Contents
    Introduction – Who is Prof. Tomas Kalincik?
    Understanding MS Progression and Treatment Effectiveness
    Treatment Approaches and Strategies
    Sources for Evidence-Based Medicine
    Shared Decision Making and Patient Understanding
    Quickfire Q&A Session
    Farewell



    Introduction – Who is Prof. Tomas Kalincik?

    Dear Ladies and gentlemen, my name is Thomas Kalincik. I’m a neurologist in Australia, in Melbourne. I’m the Director of the Neuroimmunology Centre at the Royal Melbourne Hospital, which is a dedicated neuroimmunology centre, which looks after people with MS, but also with other neuroimmunological conditions. And also, I am the Head of Clinical Outcomes Research Unit, also known as CORE at the University of Melbourne, whose focus is on analysis of observational data and translating data into evidence.



    Finally, what message of hope or encouragement would you like to share with the listeners?

    That we are very close. It’s exciting times, as I mentioned several times during this interview, and hopefully I have justified those claims with some mentions of research that has recently been completed, literally in the last two or three years, where we are becoming much more apt in understanding the pathogenesis of MS and how that understanding feeds into the development of new therapies or use of the currently available therapies. So, stay tuned.


    How and where can interested people follow your research activities?

    We have a website, the Core Clinical Outcomes Research Unit at the University of Melbourne. We have a website where we highlight publications that come from the team. The Neuroimmunology Centre at the Royal Melbourne Hospital also has its own website where we sometimes feature research and we also communicate through channels such as MS Translate, the ECTRIMS platform and MS Australia.
    ---


    See you soon and try to make the best out of your life,
    Nele
    For more information and positive thoughts, subscribe to my newsletter for free.
    Click here for an overview of all podcast episodes published so far.

    • 1 hr 16 min

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