My Hero 360

My Hero 360

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My Hero 360 is an online community dedicated to showing the human side of medicine. It is our deep desire and goal to honor, celebrate, and connect unsung heroes in medical communities worldwide. This initiative provides these extraordinary individuals with a platform to share their experiences and foster a ripple effect of inspiration. Together, we can empower each other and improve quality of life, one story at a time.

4d ago

Talking Rare Disease, But Make It Cute | Ashley Brooks

In this episode, Kerri Fitzgerald speaks with Ashley Brooks about her rare disease journey. Ashley first learned about generalized myasthenia gravis (gMG) during her studies in college and later learned she actually had the chronic autoimmune neuromuscular disorder. After getting diagnosed, she noticed an absence of people who looked like her—a young woman—featured in resources online linked to gMG, so she decided to start Ashley’s Anatomy as a way to shine a light on the condition and provide education and real-world insights on living with gMG. Key Highlights: Hear how Ashley came to understand that her symptoms were not the result of typical collegiate exhaustion, but rather a chronic condition. Be inspired by Ashley’s passion and success in creating a space for young people with invisible illnesses to better represent themselves. Hear why Ashley was determined to help people better understand rare conditions by framing the discussion in layman’s terms. Learn about her brand, Ashley's Anatomy, which seeks to validate the experiences of those living with a rare condition while educating those who may not understand the struggles faced. 00:00 Introduction & Background 00:44 Exhaustion? Or Something Worse... 03:05 Struggling to Reach a Diagnosis 06:39 Creating a Space for Young People With Rare Conditions 09:18 Advocating for a Treatment Plan 12:15 Creating a Community on Social Media 17:30 Advice to Younger Self 18:17 Closing Remarks Connect with Ashley: ⁠https://ashleysanatomy.com/blog/⁠ ⁠https://instagram.com/_ashleysanatomy⁠ ⁠https://www.tiktok.com/@_ashleysanatomy⁠ ⁠https://www.youtube.com/channel/UCXrzesB_OXb68gftMqms7iQ⁠ ⁠https://www.facebook.com/AshleysAnatomy/⁠ About My Hero 360: At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity. Follow us to hear more incredible stories of unsung heroes who make a difference in the world. Support My Hero 360: ⁠https://myhero360.com/⁠ ⁠https://www.instagram.com/myhero.360/⁠ ⁠https://www.tiktok.com/@myhero.360⁠

19 min
Jun 8

Our Missions Align – Why We Partnered With the HypoPARA Association | Hypopara Series: Part 7

As part of this video series celebrating Hypoparathyroidism Awareness Day, Hero Philanthropy made a $2500 donation to the HypoPARAthyroidism Association. Patty and Michele, both advocates and heroes, sit down with My Hero 360’s Chris Ciraulo to discuss the ways in which the two outlets’ missions align. Both seek to spotlight the stories of individuals living with chronic rare health conditions, with the hoping of offering community and inspiration and to improve patient quality of life and outcomes. Connect with the HypoPARA Association: https://www.hypopara.org/ https://www.youtube.com/channel/UC8fpei7liF73LFflvU6zZHwhttps://www.instagram.com/hypoparaassoc/ https://www.linkedin.com/company/hypoparathyroidism-association/ About My Hero 360: At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity. Follow us to hear more incredible stories of unsung heroes who make a difference in the world. Support My Hero 360: https://myhero360.com/ https://www.instagram.com/myhero.360/https://www.tiktok.com/@myhero.360Subscribe to this channel for more inspirational stories.

9 min
Jun 5

This Advocacy Group Is Changing Rare Disease Care | Hypopara Series: Part 6

In this special episode, Kerri Fitzgerald sits down with Patty Keating and Michele Rayes, the leadership team behind the HypoPARAthryoidism Association, to discuss and define what it means to have hypoparathyroidism, giving listeners a glimpse into the daily struggles and symptoms of individuals with hypoparathyroidism. The two women share recent wins for the Association and share how listeners can get involved and support the Association. Connect with the HypoPARA Association: https://www.hypopara.org/ https://www.youtube.com/channel/UC8fpei7liF73LFflvU6zZHw https://www.instagram.com/hypoparaassoc/ https://www.linkedin.com/company/hypoparathyroidism-association/ About My Hero 360: At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity. Follow us to hear more incredible stories of unsung heroes who make a difference in the world. Support My Hero 360: https://myhero360.com/ https://www.instagram.com/myhero.360/ https://www.tiktok.com/@myhero.360

7 min
Jun 4

Fighting to Fix the Broken Healthcare System | Hypopara Series: Part 5

In part 2 of our conversation with Michele Rayes, she shares how legislative change is a critical part of supporting and protecting people living with a rare disease. She discusses legislative bills that the HypoPARAthyroidism Association supports and provides an educational lens into how to be a good patient advocate. Michele explains specific pieces of legislation she is fighting for, like responsible AI integration into insurance claim reviews and denials, and shares why she is so passionate about advocating for yourself and others. Watch part 1 of Michele's interview: https://youtu.be/Qzp6hyhC3_U Key Highlights: • Hear how the HypoPARA Association is working to ensure the patient's voice is included in drug development, clinical education, and research. • Be inspired by Michele’s passion for improving the future of rare disease diagnosis and treatment. • Hear why Michele encourages patients to better understand their health and advocate for their needs. • Learn about Michele’s efforts to advance legislation regarding PBM reform and responsible incorporation of AI into the healthcare system. 00:00 Recap from Part 1 of Patty’s interview 00:44 A Happy Accident: Finding the HypoPARA Association 08:07 Promising Genetic Testing Breakthroughs 12:02 Advocacy on Capitol Hill 14:57 Understanding the System in Order to Change It 18:34 Connect With the HypoPARA Association 19:31 Advice to Younger Self 22:10 Closing Remarks Connect with the HypoPARA Association: https://www.hypopara.org/ https://www.youtube.com/channel/UC8fpei7liF73LFflvU6zZHw https://www.instagram.com/hypoparaassoc/ https://www.linkedin.com/company/hypoparathyroidism-association/ About My Hero 360: At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity. Follow us to hear more incredible stories of unsung heroes who make a difference in the world. Support My Hero 360: https://myhero360.com/ https://www.instagram.com/myhero.360/ https://www.tiktok.com/@myhero.360 Subscribe to this channel for more inspirational stories.

23 min
Jun 3

A Cancer Diagnosis Leads to a Chronic Condition | Hypopara Series: Part 4

In this episode, Kerri Fitzgerald speaks with Michele Rayes about her journey from one life-changing diagnosis to another. After being diagnosed with thyroid cancer in her early 20s, the surgery that helped to address the cancer subsequently resulted in a diagnosis of hypoparathyroidism, a rare, chronic disease for which there is no cure. Michele speaks in-depth about the physical and mental toll that both health conditions had on her. She also discusses the clinical trial she took part in which helped to bring a new treatment option, palopegteriparatide, to hypoparathyroidism patients everywhere. Key Highlights: • Hear how Michele was diagnosed with thyroid cancer at 23 after being told she was “too young” for cancer by doctors. • Be inspired by the support system Michele’s family offers, including how her daughter was inspired to pursue a specific career path after witnessing her mother’s struggles. • Hear why Michele took part in a clinical trial that helped to bring the first-ever hypoparathyroidism treatment option to market. • Learn about the FDA approval of palopegteriparatide and why it was a major milestone for the hypoparathyroidism community. 00:00 Introduction & Background 02:14 The Diagnosis That Changed Her Life Forever 04:23 Taking 60 Pills Per Day to Address the Condition 11:01 Witnessing an FDA-Approved Treatment Become Available 14:02 A Clinical Trial Experience 17:06 The Need to Keep Fighting for More Treatment Options 21:55 We’re Not Done! Watch Part 2 Connect with the HypoPARA Association: ⁠⁠https://www.hypopara.org/⁠⁠ ⁠⁠https://www.youtube.com/channel/UC8fpei7liF73LFflvU6zZHw⁠⁠ ⁠⁠https://www.instagram.com/hypoparaassoc/⁠⁠ ⁠⁠https://www.linkedin.com/company/hypoparathyroidism-association/⁠⁠ About My Hero 360: At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity. Follow us to hear more incredible stories of unsung heroes who make a difference in the world. Support My Hero 360: ⁠⁠https://myhero360.com/⁠⁠ ⁠⁠https://www.instagram.com/myhero.360/⁠⁠ ⁠⁠https://www.tiktok.com/@myhero.360⁠⁠ Subscribe to this channel for more inspirational stories.

22 min
Jun 2

Patients Make Progress Possible | Hypopara Series: Part 3

In part 2 of our conversation with Patty Keating, we dive deep into how hypoparathyroidism can affect the whole patient. Patty shares vulnerable moments that highlight symptoms such as brain fog, emphasizing how truly debilitating and isolating it can feel. The conversation also discusses treatment options, specifically how the HypoPARAthyroidism Association has helped to bring an FDA-approved option to market. Patty continues to be a voice for patients with hypoparathyroidism everywhere through her podcast, HypoPARA Unscripted. Watch part 1 of Patty’s interview: https://youtu.be/NZd0N4ztgkAKey Highlights: • Hear how the HypoPARA Association is helping to bring patient voices to the center of care discussions. • Be inspired by Patty’s outlook on life of “we’ll figure it out.” • Hear why symptoms that appear “invisible” can be debilitating, and why the whole-patient care approach is important. • Learn about the work that was done to help bring a treatment option to market for hypoparathyroidism. 00:00 Recap from Part 1 of Patty’s interview 00:39 The First-Ever Treatment Approved for Hypoparathyroidism 8:11 Understanding “Invisible Illness” 12:43 Debilitating Brain Fog, A Personal Experience 16:48 How to Connect with The HypoPARA Association 17:45 Advice to Younger Self 18:35 Closing Remarks Connect with the HypoPARA Association: https://www.hypopara.org/ https://www.youtube.com/channel/UC8fpei7liF73LFflvU6zZHw https://www.instagram.com/hypoparaassoc/ https://www.linkedin.com/company/hypoparathyroidism-association/ About My Hero 360: At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity. Follow us to hear more incredible stories of unsung heroes who make a difference in the world. Support My Hero 360: https://myhero360.com/ https://www.instagram.com/myhero.360/ https://www.tiktok.com/@myhero.360Subscribe to this channel for more inspirational stories.

19 min
Jun 1

Went in for Surgery, Left With a Lifelong Disease | Hypopara Series: Part 2

In this episode, Kerri Fitzgerald speaks with Patty Keating about her experience as a post-surgical hypoparathyroidism patient. What was supposed to be surgery to address complex tumors on her thyroid became what felt like a life sentence with a chronic health condition. When her journey toward understanding her rare disease took a dangerous turn, resulting in a heart attack, Patty took charge of her life and turned her life sentence into her life’s work. Now the Executive Director of the HypoPARAthyroidism Association, Patty has dedicated herself to elevating the patient voice to spread education and awareness about hypoparathyroidism. Key Highlights: • Hear how Patty Keating developed hypoparathyroidism after surgery that was meant to remove her parathyroids. • Be inspired by how Patty came to understand her new normal and used her leadership skills to advance education and advocacy for this patient population. • Hear why Patty is so passionate about elevating the patient voice in order to improve health outcomes. • Learn about how the HypoPARA Association was a driving force behind the first FDA-approved treatment for this condition. 00:00 Introduction & Background 06:45 Misconceptions: When Treatment Isn’t a Cure 10:10 Turning a Life Sentence into a Life's Mission to Help Others 13:33 The Patient Reality: Beyond the Lab Results 15:45 Helping Clinicians Understand the Whole Patient 17:19 Patient Voices Drive Change on a National Level 19:46 We’re Not Done! Watch Part 2 Connect with the HypoPARA Association: https://www.hypopara.org/ https://www.youtube.com/channel/UC8fpei7liF73LFflvU6zZHw https://www.instagram.com/hypoparaassoc/ https://www.linkedin.com/company/hypoparathyroidism-association/ About My Hero 360: At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity. Follow us to hear more incredible stories of unsung heroes who make a difference in the world. Support My Hero 360: https://myhero360.com/ https://www.instagram.com/myhero.360/ https://www.tiktok.com/@myhero.360Subscribe to this channel for more inspirational stories.

20 min
May 14

A Donor Exchange Program Saves a Life | Stuart Miller

In this episode, Kerri Fitzgerald speaks with Stuart Miller about his health journey with IgA nephropathy. Stuart was diagnosed with the rare kidney condition before there were any FDA-approved treatment options. In 2018, he underwent a kidney transplant through a donor exchange program. His incredible wife was one of the donors who made this possible. Stuart is now the Director of Strategic Planning and Government Affairs for the IgA Nephropathy Foundation, a patient advocacy group dedicated to finding a cure for the condition. Stuart talks about the importance of advocacy efforts to move the needle for rare diseases. Key Highlights: • Hear how Stuart Miller came to understand his IgA nephropathy diagnosis and the difficulty confronting a now lifelong condition that must be managed. • Be inspired by the generosity of a donor exchange program that allows living donors to make a big impact on those in need. • Hear why Stuart was motivated to take an active role within the IgA Nephropathy Foundation and how this organization is helping patients. • Learn about pending legislation that would remove roadblocks for donors to help increase the availability of organ transplants for patients who critically need them. 00:00 Introduction & Background 02:05 Managing IgA Nephropathy With Limited Treatment Options 02:43 A Donor Exchange Program Changes Multiple Lives 05:37 Finding Community: The IgA Nephropathy Foundation 07:22 Expanding and Globalizing Awareness for IgA Nephropathy 09:18 This Pending Piece of Legislation Is Crucial 13:01 Advice to Younger Self 13:32 Closing Remarks Connect with the IgA Nephropathy Foundation: https://igan.org/ About My Hero 360: At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity. Follow us to hear more incredible stories of unsung heroes who make a difference in the world. Support My Hero 360: https://myhero360.com/https://www.instagram.com/myhero.360/https://www.tiktok.com/@myhero.360 Subscribe to this channel for more inspirational stories.

14 min

My Hero 360 is an online community dedicated to showing the human side of medicine. It is our deep desire and goal to honor, celebrate, and connect unsung heroes in medical communities worldwide. This initiative provides these extraordinary individuals with a platform to share their experiences and foster a ripple effect of inspiration. Together, we can empower each other and improve quality of life, one story at a time.

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My Hero 360
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2K
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39
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My Hero 360