Myelopathy Matters

Myelopathy Matters
  • 5.0 (14)
  • HEALTH & FITNESS

Myelopathy Matters is the official podcast of Myelopathy.org, the charity for degenerative cervical myelopathy. It aims to bring the latest on living with, managing and understanding the condition, through expert guests from around the world. The show is hosted by Ben Davies (Neurosurgeon, Scientist and Founder of Myelopathy.org) and Iwan Sadler (Person with Myelopathy and Founder of Myelopathy.org). The show is produced byCarl Homer from Cambridge TV with logo designs by Iwan Sadler.

  1. S5E2 - Myelopathy.org Research Award Winners 2023 - Kajana & Aditya

    01/30/2024

    S5E2 - Myelopathy.org Research Award Winners 2023 - Kajana & Aditya

    Iwan and Ben are joined by the winners of the Myelopathy.org Research Award 2023 - Aditya Vedantam and Kajana Satkunendrarajah - for their investigation of how breathing is affected in DCM, with some stark findings and potential implications for our understanding of fatigue. The prize is awarded by the charity’s scientific steering committee to the best scientific study aligned with one of the research priorities each year. You can read more about the award at https://myelopathy.org/research-award/.

    31 min
  2. S5E01 - Targeting Early Diagnosis with James Whatley

    01/08/2024

    S5E01 - Targeting Early Diagnosis with James Whatley

    Happy New Year, This month Ben and Iwan hear a UK perspective on the challenges of early diagnosis. They are joined by James Whatley, an advanced physiotherapy practitioner from North London, to hear his perspectives on initial diagnosis and triage. This initial step in the pathway appears to be a critical and common focal point for global interventions to accelerate diagnosis.

    24 min
  3. S4E10 - Targeting Early Diagnosis with Rohil Chauhan

    12/10/2023

    S4E10 - Targeting Early Diagnosis with Rohil Chauhan

    In the first of a two part episode, Iwan and Ben speak to professionals tackling myelopathy’s greatest challenge: Diagnosis. Rohil Chauhan is a Physiotherapist working in New Zealand, who was inspired to look more deeply at what are the specific challenges faced by frontline professionals. Rohil also takes the time to answer some of your questions. #myelopathymatters

    28 min
  4. S4E9 -Importance of community and support with Sheila Thomas Duggan

    11/08/2023

    S4E9 -Importance of community and support with Sheila Thomas Duggan

    In this podcast episode, Iwan is flying solo. He interviews Sheila Thomas Duggan, a dedicated volunteer and administrator for myelopathy.org’s support group. Sheila shares her personal experience of living with DCM (Degenerative Cervical Myelopathy) and discusses how she finds it incredibly rewarding to give back and provide support to people facing similar challenges with myelopathy. The episode delves into Sheila’s journey, her insights, and the importance of community and support in coping with this condition.

    32 min
  5. S4E8 - 10 years of Myelopathy.org: Where next?

    10/03/2023

    S4E8 - 10 years of Myelopathy.org: Where next?

    Iwan and Ben pause for reflection, 10 years since they first came together to create Myelopathy.org (alongside Mark Kotter), and almost 5 years since the research priorities were established in DCM. The community and reach of the charity has grown significantly over this time, which has become a powerful platform for progress. However alongside opportunity, the size also brings operational challenges. It feels like Myelopathy.org is at a tipping point, and to truly kick on we need to focus on growing financial investment. What can be done? Where could this go? Some of the critical topics discussed. If you have ideas or suggestions do get in touch ben@myelopathy.org.

    32 min
  6. S4E7 - Core Information for Myelopathy with Irina Sangeorzan

    09/11/2023

    S4E7 - Core Information for Myelopathy with Irina Sangeorzan

    It’s a Myelopathy Matters Exclusive! Iwan and Ben are joined by Myelopathy.org researcher Irina Sangeorzan, to hear about the new Core Information Set. This forms part of a wider project called Shared DCM, and funded by the Evelyn Trust, to help people affected with DCM take a more active role in the decision making around their care. As Iwan likes to say, “Knowledge is Power”. The use of a CIS in this manner is a first for healthcare. We hear why it was needed, how it was formed and what it hopes to achieve.

    31 min
  7. S4E6 - A bus conversion on a mission with Jay Cantebrigge

    08/03/2023

    S4E6 - A bus conversion on a mission with Jay Cantebrigge

    Iwan and Ben are joined by Jay Cantebrigge, a person living with myelopathy, to talk about his campaign “on borrowed spine” aiming to raise awareness of DCM. Jay is taking the campaign on the road, turning a bus into a mobile educational cafe! The project is at the early stages, and Jay is looking for help - financial or in kind. Find further information at https://www.gofundme.com/f/onborrowedspine-bus-conversion.

    19 min
  8. S4E5 - Should I have a disc replacement or fusion surgery?

    07/05/2023

    S4E5 - Should I have a disc replacement or fusion surgery?

    With expert opinion from Spine Surgeons Michael Fehlings, Rory Murphy and Valerie Schuermans, and the personal experience of Meghan Baxter, Iwan and Ben explore the role of cervical disc replacement (also known as cervical arthroplasty) surgery for Degenerative Cervical Myelopathy: what we know, and what we still need to find out.

    56 min
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Ratings & Reviews

5
out of 5
14 Ratings

About

Myelopathy Matters is the official podcast of Myelopathy.org, the charity for degenerative cervical myelopathy. It aims to bring the latest on living with, managing and understanding the condition, through expert guests from around the world. The show is hosted by Ben Davies (Neurosurgeon, Scientist and Founder of Myelopathy.org) and Iwan Sadler (Person with Myelopathy and Founder of Myelopathy.org). The show is produced byCarl Homer from Cambridge TV with logo designs by Iwan Sadler.

Information

  • Creator
    Myelopathy Matters
  • Years Active
    2020 - 2024
  • Episodes
    52
  • Rating
    Clean
  • Copyright
    © All rights reserved
  • Show Website
    Myelopathy Matters