3 episodes

Welcome to NORDpod™, the voice of rare disease and the official podcast of the National Organization for Rare Disorders (NORD®), a 501(c)(3) patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. We are one community, and, together, our voices are louder.

NORDpod OffScrip Media, LLC

    • Mental Health
    • 5.0 • 26 Ratings

Welcome to NORDpod™, the voice of rare disease and the official podcast of the National Organization for Rare Disorders (NORD®), a 501(c)(3) patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. We are one community, and, together, our voices are louder.

    Mike Porath: Founder and CEO of The Mighty

    Mike Porath: Founder and CEO of The Mighty

    On today's show, the man, the myth, the legend, Mike Porath, Founder and CEO at The Mighty and member of the Board of Directors at NORD. For those unaware, The Mighty is the world's largest digital health community online at TheMighty.com and via a free mobile app for iOS and Android. 3MM members can't be wrong, and I can attest that this. We talk about his family's personal experience with rare disease, working for ABC and AOL before the Internet was a thing — and what it's like to look in your rearview mirror and realize you created the thing you only wished you had that is now helping millions of people every day. Download The Mighty mobile app for iOS and Android or join online at TheMighty.com

    • 24 min
    Peter Saltonstall: President and Chief Executive Officer of NORD

    Peter Saltonstall: President and Chief Executive Officer of NORD

    What a great way to kick off the NORDpod series, because on today’s show host Matthew Zachary will be speaking with the man, the myth, the legend Peter Saltonstall, President and Chief Executive Officer of NORD. Peter’s been at the helm of NORD since 2008 and has a storied 30-year history of leadership for the private sector and the nonprofit community. And he’s grown NORD into the powerhouse of influence and impact that it is today. We had a great conversation, and I hope you enjoy it. And maybe you’ll learn something. Who knows? Enjoy the show.

    • 28 min
    Welcome to NORDpod (Teaser)

    Welcome to NORDpod (Teaser)

    Welcome to NORDpod™, the voice of rare disease and the official podcast of The National Organization of Rare Disorders (NORD®), a 501(c)(3) patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. We are one community, and, together, our voices are louder. Learn more about NORD at http://RareDiseases.org

    • 3 min

Customer Reviews

5.0 out of 5
26 Ratings

26 Ratings

narcolepsygirl ,

Excellent

NORD is THE most helpful organization out there for resources for people with rare diseases. I’m thrilled about this podcast.

Ndcn126 ,

Nancy

Great episode today!! Really enjoyed listening to it!! Looking forward to the next one!!

JPMANNI ,

Excited for this new podcast!

Looking forward to hearing from the rare community!

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