14 episodes

Shaping Foundations is a 501(c)(3) student-led nonprofit that aims to raise awareness, advocate, and fundraise for rare diseases. These diseases, although mysterious and fascinating, are often ignored in the healthcare industry. This means that there is little research, funds, and treatment options available for rare diseases and the people who have them. By listening to this podcast, not only will you educate yourself about this topic, you will also support our cause and provide help to those who really need it!

New episodes every Friday! Support this podcast: https://podcasters.spotify.com/pod/show/shapingfoundations/support

Once Upon A Blue Moon Our Leaders: Pooja, Liesha, Anirudh, and Cayla!

    • Science

Shaping Foundations is a 501(c)(3) student-led nonprofit that aims to raise awareness, advocate, and fundraise for rare diseases. These diseases, although mysterious and fascinating, are often ignored in the healthcare industry. This means that there is little research, funds, and treatment options available for rare diseases and the people who have them. By listening to this podcast, not only will you educate yourself about this topic, you will also support our cause and provide help to those who really need it!

New episodes every Friday! Support this podcast: https://podcasters.spotify.com/pod/show/shapingfoundations/support

    A Discussion with Katie Callaghan

    A Discussion with Katie Callaghan

    This week, we spoke to Katie Callaghan, works with Rare Youth Revolution and runs an organization called Cards for Bravery. Tune in as we speak about Katie's experience with her own rare diseases and how she works to advocate for the rare disease community. A huge thanks to Katie for joining us on this episode!!


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    Support this podcast: https://podcasters.spotify.com/pod/show/shapingfoundations/support

    • 18 min
    Update + Rare Disease Day

    Update + Rare Disease Day

    Happy new year! A big thank you to all of our listeners who have stuck with us so far. In this episode, we speak about the events of the past two months and what we hope to do in the next year.

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    Support this podcast: https://podcasters.spotify.com/pod/show/shapingfoundations/support

    • 9 min
    Victoria Jackson’s Story with Endosalpingiosis and Endometriosis: A Lesson in Self-Advocacy

    Victoria Jackson’s Story with Endosalpingiosis and Endometriosis: A Lesson in Self-Advocacy

    Victoria’s story battling endometriosis and endosalpingiosis is one of true strength and bravery. Facing the intense pain and debilitating health issues that accompany endosalpingosis, she has struggled to get the help that she needs and deserves through all her life. Her story is one of resilience and learned to fight for oneself; it's truly an inspiring lesson in self-advocacy! Note: an earlier version of this podcast incorrectly defined endometriosis and endosalpingiosis. We have fixed the definition - sorry for the mixup!

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    Support this podcast: https://podcasters.spotify.com/pod/show/shapingfoundations/support

    • 6 min
    Sofie’s Journey with Spina Bifida

    Sofie’s Journey with Spina Bifida

    Sofie Cox is a champion athlete and renowned dancer - she’s travelled around the world, competed numerous times, and has several awards to her name. But what you wouldn't expect is that Sofie also lives with spina bifida; a rare congenital disorder that has left her paralyzed from the waist down. Her story of strength and passion is truly inspiring, as she shows that her disability will never limit her talent and speaks out for other disabled individuals. Tune in to find out more about Sofie and how spina bifida has impacted her life!


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    Support this podcast: https://podcasters.spotify.com/pod/show/shapingfoundations/support

    • 5 min
    Ali’s Journey with Pediatric Wild-Type GIST

    Ali’s Journey with Pediatric Wild-Type GIST

    Ali lives like many other 22 year olds - she’s a student, blogger, activist. But Ali also lives with GIST cancer. Listen through this episode to learn about Ali’s diagnosis and how she lives with this cancer. Ali’s story is extremely empowering and inspiring - thank you to Ali for sharing her story with us! 💜

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    Support this podcast: https://podcasters.spotify.com/pod/show/shapingfoundations/support

    • 8 min
    Sickle Cell Awareness

    Sickle Cell Awareness

    Join cohost Liesha Yenduri as she discuss the various aspects and implications of Sickle Cell Disease in honor of National Sickle Cell Awareness Month. Please be sure to check out our website (https://shapingfoundations.wixsite.com/shapingfoundations) and socials (shapingfoundations) for more content! 


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    Support this podcast: https://podcasters.spotify.com/pod/show/shapingfoundations/support

    • 4 min

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