Parenting Children with Limb Differences

Ali Barnum and Kari Treat

Our primary reason for Parenting Children with Limb Differences (PCWLD) is to CONNECT with parents - especially moms - who have children with a limb difference. We hope that you can find some comfort, validation, empathy and community here. This podcast will include interviews with other parents of children with limb differences, discussions with specialists, life experiences shared by adults with limb differences, conversations around education and advocacy, and more.

  1. 12/22/2025 · BONUS

    Strengthening the Limb Difference Community: 2025 Highlights & 2026 Vision

    In this special holiday episode of Parenting Children with Limb Differences, Kari and Ali wrap up an unforgettable 2025 and share a sneak peek of what’s coming in 2026. They kick things off with a candid, funny, and very real conversation about navigating the holiday season with young kids — the magic, the chaos, and the constant quest to find that elusive “just enough. The episode then shifts into a heartfelt reflection on one of the year’s biggest highlights: the 2nd Annual LLLDAM meetup at Brookfield Zoo. With more than 230 attendees, the event brought together new friends, longtime friends, and families from across the community. Kari and Ali share the emotional moment they looked at each other — eyes full of tears — realizing just how powerful and connected this community has become. They give a huge shout‑out to Rachel Walsh for sparking the zoo meetup tradition, along with Tarah, Sarah, Krystal, Rose, and Katie M., whose behind‑the‑scenes work made the day unforgettable. They also celebrate the many new friendships formed this year and the organizations who supported the event, including Brookfield Zoo, Moxie Adaptive, Shriners Children’s Hospital, and a mysteriously unnamed partner. Plus, gratitude to those who contributed to the goodie bags: GLASA, EazyHold, Hanger Clinic, Shirley Ryan Ability Lab, and Amputee Coalition. And then — one of the biggest milestones of 2025. Kari and Ali share the exciting news that Parenting Children with Limb Differences officially became part of a larger movement with the founding of the Limb Difference Collective Foundation (LDCF) this summer. LDCF is now a 501(c)(3) nonprofit dedicated to supporting parents and children with limb differences by fostering meaningful connections, promoting community‑driven initiatives, and providing accessible, empowering resources. You can even find LDCF listed in the IRS tax‑exempt organization database. The hosts highlight several major initiatives already underway, including LDCF’s commitment to organizing and funding local meetups — starting with support for the 3rd Annual LLLDAM Brookfield Zoo Meetup on April 25, 2026. They share details about sponsorship needs, from pavilion rental to food costs, and invite potential partners to reach out at 630‑403‑8076 or events@limbdifferencecollective.org. Listeners also get the inside scoop on LDCF’s newest project: the Hugs‑in‑a‑Box campaign, launching December 22. These thoughtfully curated care packages are designed to feel like a warm embrace for new parents and caregivers of children with limb differences across the U.S., offering comfort, confidence, and connection. Packages will be assembled on demand, with the first deliveries expected in January. Kari and Ali also discuss LDCF’s growing efforts to collaborate with hospitals, obstetricians, and maternal‑fetal medicine specialists — first locally, then nationally — to ensure families receive supportive, accurate, and empowering resources from the very beginning of their journey. The goal is simple and powerful: make limb difference resources easy to find, both online and in every doctor’s office. From there, the episode moves into a celebration of Season 3’s incredible guests and some jaw‑dropping Spotify Wrapped stats: massive audience growth, listeners tuning in from 15 countries, and a community that comments, shares, and shows up more than most podcasts out there. And yes — the dads episode made a very strong showing. With laughter, warmth, and plenty of tangents (because that’s who they are), this episode is a joyful thank‑you to the listeners who make this podcast what it is. Tune in for the celebration, stay for the sneak peeks, and get excited for new episodes coming in February.

    30 min
  2. 12/08/2025

    Embodied Advocacy: Parenting, Rights, and Resilience with Aisha Bell Robinson

    In this episode, we’re honored to welcome Aisha Bell Robinson—a dance movement therapist, counselor, artist, and parent whose work beautifully weaves embodiment, inclusion, and systemic change. Her advocacy for her daughter Naima and for families navigating school systems is both personal and powerful. Aisha discusses the importance of showing up for our kids and in situations as regulated parents, and also attuning to our kids and letting them lead when some challenges arise. During this episode, she also shares ways in which parents can learn about their rights and their children's rights going into educational settings. Aisha further shares that having the tools and resources to know what to ask for during IEP/504 meetings is crucial to advocate effectively for our kids. To help parents navigate this, Aisha offers parents a one-page handout and also holds an open parents forum a few times per year. For more information regarding Aisha's work and to obtain the one-page handout discussed during this episode, please go to: https://bellacosolutions.com/ Thanks for tuning into the Parenting Children with Limb Differences Podcast an initiative of the Limb Difference Collective Foundation. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari: Website: limbdifferencecollective.orgFacebook: Parenting Children with Limb Differences Podcast and Limb Difference Collective Instagram: @pcwldpodcast @limbdifferencecollective Email: info@limbdifferencecollective.org

    55 min
  3. 09/22/2025

    EazyHold: Increasing Accessibility to Activities with Tool that Changes Lives

    In this powerful episode, we spotlight EazyHold—a simple yet revolutionary adaptive tool that’s transforming lives by increasing accessibility to everyday activities. From holding utensils to gripping sports equipment, EazyHold empowers individuals with limb differences, limited mobility, or neurological challenges to reclaim independence and joy in movement. Join us as Kerry Mellen (the founder) and Cierra Sterling share how this silicone strap is more than just a product—it’s a catalyst for inclusion, dignity, and creativity. You’ll hear inspiring stories from users, insights from occupational therapists, and reflections on how small innovations can make a big impact. Whether you're a caregiver, clinician, or advocate, this episode will leave you energized to champion tools that truly change lives. Tune in and discover how accessibility starts with empathy—and how EazyHold is leading the way. For more information, check out: https://eazyhold.com/ Thanks for tuning into the Parenting Children with Limb Differences Podcast an initiative of the Limb Difference Collective Foundation. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari: Website: limbdifferencecollective.org Facebook: Parenting Children with Limb Differences Podcast and Limb Difference Collective Instagram: @pcwldpodcast @limbdifferencecollective Email: info@limbdifferencecollective.org

    49 min

Trailers

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About

Our primary reason for Parenting Children with Limb Differences (PCWLD) is to CONNECT with parents - especially moms - who have children with a limb difference. We hope that you can find some comfort, validation, empathy and community here. This podcast will include interviews with other parents of children with limb differences, discussions with specialists, life experiences shared by adults with limb differences, conversations around education and advocacy, and more.