Ramblin' Rare by ACD

Randy Allen
  • 5.0 (3)
  • ALTERNATIVE HEALTH
  • UPDATED BIWEEKLY

A podcast about rare diseases, the families they impact and scientists aiming to change their world through their work. Sponsored by the Association for Creatine Deficiencies. Learn more @ CreatineInfo.org

Episodes

  1. 09/02/2022

    Siblings!

    Opportunities, Challenges and Strategies for Siblings of Rare Disease Children On this episode, Randy and Nathan will discuss siblings of our rare disease kiddos. Three main takeaways.. Siblings will naturally grow into their roles as an exceptional needs brothers or sisters, however that does not remove our responsibility as parents to help equip them for the task. Rare disease siblings seem to mature quicker, gain more perspective earlier in life but we as parents need to go out of our way to ensure that they can still be kids and have typical childhood experiences. Siblings will be siblings - they will bother one another regardless of rare disorder or not! Allow our neuro-typical siblings to be real, get annoyed, upset, etc. www.creatineinfo.org

    35 min
  2. Travel Tips & Making Memories

    06/14/2022

    Travel Tips & Making Memories

    Traveling this summer? Tune in for some tips & strategies to help create some memories with your family!

    22 min
  • 2 Episodes

Ratings & Reviews

5
out of 5
3 Ratings

About

A podcast about rare diseases, the families they impact and scientists aiming to change their world through their work. Sponsored by the Association for Creatine Deficiencies. Learn more @ CreatineInfo.org

Information

  • Creator
    Randy Allen
  • Years Active
    2K
  • Episodes
    2
  • Rating
    Clean
  • Copyright
    © ACD 2022
  • Show Website
    Ramblin' Rare by ACD