Rare Strides

Rare STRIDES
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  • HEALTH & FITNESS

Rare STRIDES® mission is to empower patients and medical teams with innovative tools to successfully fight rare diseases. #makerarevisible

Episodes

  1. 03/01/2023

    Season 2 Episode 1 Duchenne Muscular Dystrophy #makerarevisible

    Listen in as we hear from the Rare Leaders and Parents with their journey in Duchenne Muscular Dystrophy.   #beckshelpinghands #makerarevisible #duchennemusculardystrophy #rarestrides #zebrastrong #rarediseases

    48 min

  2. 02/01/2022

    Season 1 Episode 4 Rare Wish and the Make Rare Visible Challenge

    Join us for Rare Strides updates about Rare Wish and the Make Rare Visible Challenge with co-founder, Beth Nguyen.

    18 min

  3. 10/07/2021

    Season 1 Episode 3. Code Rare. What is it and how did it help her child?

    Join us as we speak with Missy who is the parent of our first Code Rare participant and learn all about Code Rare. For more information about Code Rare go to our website at www.rarestrides.com

    38 min

  4. 10/06/2021

    Episode 2 learning more about Rare from a parents perspective

    Season 1, Episode 2 we are speaking with Rare Strides board member Dennis who is a parent of a Rare child. He shares his experience being a parent to a child who was diagnosed with a Rare disease, the struggles and the triumphs. Tune in and dig in to learn how you can #makerarevisible. You can find out more about Rare Strides and Code Rare on our website www.rarestrides.com Like, share and follow us on social media.

    24 min

  5. 10/03/2021

    Rare Strides Season 1 Episode 1 Beth Nguyen, Founder

    Rare Strides Host, Trena Myers interviews Rare Strides founder and today's guest, Beth Nguyen. Trena inquires with Beth on the reasons behind the creation of Rare Strides. Join us on this episode to learn about the building blocks of Rare Strides where we hope to "make rare visible." #rarestrides #coderare #makerarevisible

    25 min
  • 5 Episodes

About

Rare STRIDES® mission is to empower patients and medical teams with innovative tools to successfully fight rare diseases. #makerarevisible

Information

  • Creator
    Rare STRIDES
  • Years Active
    2021 - 2023
  • Episodes
    5
  • Rating
    Clean
  • Copyright
    © Rare STRIDES
  • Show Website
    Rare Strides